Health and Disability NGO Newsletter June 2016

Table of ContentsNGO Council information 3

New NGO Council member - representing the Disability Support sub-sector 3

Ministry of Health information 4Stroke: know the signs – think FAST 4Ministry of Health website: http://www.health.govt.nz/home 4

Other government agencies 4Statistics New Zealand - Non-profit organisations contribute $6 billion to economy – Media release 14 June 2016 4Auckland University and Superu - Intimate partner violence: Understanding research on risk & protective factors - Seminar 5

NGO information 6LEAD Centre for Not for Profit Management 6National Volunteer Week 19-25 June 2016 6Asian Network General Network Meeting 7Love Food Hate Waste 7Places to find NGO information 7

Training, education, resources and conferences 7Community and Voluntary Sector Research Forum 7Stanford Licensed Self-Management Programmes 8Dementia Today: Diverse Communities, Collective Action 8Events included in previous updates 9

Consultation, surveys and submissions 9Save the date – upcoming public consultation on developing new clinical guidelines for cervical screening 9Proposed Radiation Safety Regulations: A consultation document 10Social Security Legislation Rewrite Bill 10Healthy Homes Guarantee Bill 11Ministry of Health Review of deceased organ donation and transplantation 11

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Standardised Tobacco Products and Packaging Draft Regulations 11Enabling Good Lives approaches to supporting disabled people 12

Other information 12Community Internships applications open soon - Does your organisation need some help with a specific piece of work? 12

Health and Disability NGO Email Update – June 2016 2

NGO Council informationNew NGO Council member - representing the Disability Support sub-sector

Marese McGee Chief Executive, Community Living TrustMarese has been a leader in the development of innovative, responsive services for people with a disability for over 34 years, yet she has the passion and enthusiasm for this sector as if she only started in it yesterday. This energy and drive is infectious and through her leadership and extensive networks and relationships, she inspires others to contribute to supporting people with disabilities to live the lives of their dreams.

As a leader, Marese has a high profile nationally and a well-deserved reputation, having worked at the sector’s highest level for a number of years; holding senior management and directorship roles in community mental health, disability support services, social work and funding and planning – resulting in a breadth of skills and networks across NZ.

In recent years, Marese has sought to involve Community Living Trust more actively in the wider community; championing strategic partnerships with key stakeholders. A highlight of this work has been Community Living Trust’s strategic sector partnership with Wintec, focussing on innovative projects that combine learning opportunities for Wintec students and tutors. This partnership has been fundamental in building the future workforce in the disability sector, as well as creating wider relationships in the community.

As Chief Executive of Community Living for the past 14 years, she has also represented organisations from within the sector at their peak bodies; i.e. NRID and NZDSN, and has led and chaired a number of national forums.

Marese holds a Bachelor of Social Studies (Hons) and a Masters of Arts from Trinity College Dublin, as well as a Bachelor of Applied Management (Strategic Management) from Otago Polytechnic.

Marese is superb at identifying the strengths of people and supporting them to maximise their contributions, through mentorship and her well-renowned open door policy. A colleague says of her:

“She has challenged outdated thinking and continuously strived to ensure that people with a disability are able to achieve their dreams through connection to the community.” Fran Tilley, General Manager, Community Options

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Ministry of Health information

Stroke: know the signs – think FASTA stroke can happen to anyone, anytime. It could be someone you know, someone next to you. Know the signs. Think FAST.

F – FACE: Is their face drooping on one side? Can they smile?A – ARM: Is one arm weak? Can they raise both arms?S – SPEECH: Is their speech jumbled or slurred? Can they speak at all?T – TIME: Time is critical. Call 111 immediately.

A stroke is an emergency. If you see any of these signs, call 111 immediately and give someone a better chance of recovery. Delayed recognition of a stroke means delayed intervention, which can have tragic consequences, including further damage to the brain, or death.

There is limited public awareness of the signs of stroke. Surveys conducted in 2007 and 2010 by the Stroke Foundation found at least one-third of New Zealanders were unable to recognise even one sign of stroke. This means people are often presenting too late for potential acute stroke thrombolysis treatment, and therefore opportunities for reducing long-term disability are lost.

Please take some time to know the signs and think FAST. http://strokewise.org.nz/

Ministry of Health website: http://www.health.govt.nz/homeFor more information about the Ministry’s structure and business units go to Ministry business units.

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Other government agenciesStatistics New Zealand - Non-profit organisations contribute $6 billion to economy – Media release 14 June 2016Non-profit institutions contributed $6 billion (2.7 percent of the total) to New Zealand’s gross domestic product (GDP) for the year ended March 2013, Statistics New Zealand said today.

When the value from the labour of volunteers ($3.5 billion) is included, non-profit institutions contributed $9.4 billion (4.4 percent) to total GDP.

In 2004, the non-profit sector (including the value of volunteering), had contributed $7 billion (4.9 percent) to New Zealand’s GDP.

Non-profit institutions’ economic contribution2004 2013

$(billion) Percent $(billion) PercentContribution to GDP 3.6 2.5 6 2.7Volunteer labour contribution to GDP 3.3 2.4 3.5 1.7Total contribution to GDP 7 4.9 9.4 4.4GDP represents NZ's income earned from production in NZTotals do not sum due to rounding

The findings above are from the Non-profit Institutions Satellite Account: 2013, which measured the operations of the non-profit sector for the year ended March 2013. The previous measurement was for the March 2004 year.

The total number of non-profit institutions was 114,110 in 2013, up from 97,000 in 2004.

The culture and recreation group had the largest number of institutions in 2013, including 17,990 in sport (up from 14,910 in 2004). Social services, development and housing, and religion were other significant activity groups.

Statistics NZ Annual Enterprise Survey Manager Susan Hollows said 90 percent of non-profits rely on volunteers and do not employ staff. However, paid staff numbers rose 30 percent between 2004 and 2013, up from 105,340 to 136,750.

“The number of people volunteering for non-profit institutions increased from 1 million to 1.2 million, but they contributed fewer hours in 2013,” Ms Hollows said.

The time volunteers spent working for non-profits dropped 42 percent, from 270 million hours in 2004 to 157 million hours in 2013. “These findings reflect a global trend, with other countries also showing reductions in time spent volunteering,” Ms Hollows said.

The non-profit sector’s total income increased 65 percent between 2004 and 2013, with sales of goods and services up 71 percent, to $8.3 billion. Income from grants, donations, and membership fees rose 54 percent to reach $4.1 billion.

For a visual overview of the contribution of non-profit institutions in New Zealand, see our infographic.Follow this link for more information

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Auckland University and Superu - Intimate partner violence: Understanding research on risk & protective factors - Seminar Wednesday 29 June 2016, 10-11.30amRoom 733-201, Gate 1, Tāmaki Campus, 261 Morrin Road, St Johns, Auckland

Organised by the New Zealand Family Violence Clearinghouse, University of AucklandFree. Places limited. RSVP required

This seminar will be presented by Dr Janet Fanslow and Dr Pauline Gulliver, New Zealand Family Violence Clearinghouse.

Typically, a constellation of risk factors combine to result in a person experiencing or perpetrating intimate partner violence (IPV). Individual, relationship, community, social and cultural factors work together to enhance or reduce the likelihood of violence being perpetrated or experienced. This presentation will explore how risk and protective factors for intimate partner violence are identified.

We will discuss conceptual models that have guided exploration of risk and protective factors. Comprehensive, multipronged approaches are required to address IPV, aligned with a long-term investment in policy, infrastructure and communities. Such an approach also needs to be supported by an overall strategic government framework. Lessons can be learnt from addressing other social issues such as the road toll. Exposure to IPV (as well as child maltreatment and other forms of family violence) has significant and wide ranging effects. Addressing the risk factors for IPV has the potential to impact on health, social, educational and justice outcomes as well as on the experience of violence.https://nzfvc.org.nz/events/understanding-research-risk-and-protective-factors-intimate-partner-violence-seminar-auckland

NGO informationLEAD Centre for Not for Profit ManagementNZ has a new Centre for Not for Profit Leadership set up to support and work with managers and leaders in the not for profit sector. Our work includes consultancy, mentoring and training across all areas of leadership development, organisation development and community development.

Whether you lead a team, a cause, or an entire organisation the Centre can help you make a difference by ensuring you have the sector specific leadership and organisational expertise you need to succeed.

The LEAD Centre for Not for Profit Management brings together the skills and experience of the Unitec Graduate Diploma in Not for Profit Management teaching team who have delivered programmes to leaders in not for profit organisations since

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1996. We have worked with over 9000 individuals and 700 not for profit organisations throughout New Zealand, Australia and the South Pacific – and we are just getting started.

More information can be found on www.lead.org.nz. If you have a question or are

looking for support for your work, please do email us on info@lead.org.nz

National Volunteer Week 19-25 June 2016This year’s themes are Make time - Whai whā and Thanks for making time - Kia ora mō tāu whai whā.

The 2016 campaign is therefore a call for action. We also want to celebrate the time made by volunteers and the invaluable contribution they make to our communities.

Volunteer New Zealand has developed lots of great resources that you can adapt and use to recognise the volunteers in your organisations. From posters to certificates and heaps of social media options, it’s all there.http://www.volunteeringnz.org.nz/campaigns/national-volunteer-week/

Asian Network General Network Meeting

10am-12pm Wednesday, 22 June Western Springs Garden Community Hall, 956 Great North Road, Western Springs, Auckland

Presentations Healthy statement for a change, Angela King, Regional manager, Geneva

Healthcare The Auckland and Waitemata Collaboration maternity plan, Wendy Devereux,

Carol Hayward and Raj Singh, Advanced Care Plan (ACP): Korean Resources Co-Design Project, Shona Muir,

National Advance Care Planning (ACP) Training Programme Manager, ADHB .http://www.asiannetwork.org.nz/regional-network-meeting-on-the-22-june-2016-western-spring-garden-community-hall/

Love Food Hate WasteDo you know the average New Zealand family is wasting over $560 each year on food that they buy and then throw away uneaten? Love Food Hate Waste is a new campaign to help Kiwis reduce the amount of food that they waste and save money.

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The Love Food Hate Waste website features helpful tips on things like meal planning, portion sizes, food storage and best before dates. It also has inexpensive and easy to follow recipes for commonly wasted foods like bread, chicken and bananas.

www.lovefoodhatewaste.co.nz

The average NZ household throws away double this amount of food every year!

Places to find NGO information Community Research http://www.communityresearch.org.nz/ Volunteering NZ www.volunteernow.org.nz

Training, education, resources and conferencesCommunity and Voluntary Sector Research ForumTuesday, 28 June 2016 from 3 pm-5 pm. Refreshments provided from 2.45 pm.Victoria’s Railway West Wing Room 129 (Victoria University’s Door on the left hand side of the Station; take the lift to the 1st floor, or walk up the flight of stairs to the right of the lifts.) Wellington

Research Papers: Alex Hannant “Social enterprise in

Aotearoa - where are we now and where are we going?”

Sendirella George "Democratising Accounting and Accountability: Exploring Social Movement Counter-Accounting Practices and Engagement Strategies"

Garth Nowland-Foreman “Outcomes, Accountability and NGOs: Holy Grail, Black Hole or Wholly Possible?”

http://www.victoria.ac.nz/vbs/research-services/researchpartnerships/cvsr-forums

Stanford Licensed Self-Management Programmes

Training Opportunity for Master Trainers

Chronic Disease Self-Management Programme (CDSMP) and Chronic Pain Self-Management Programme Cross Training (CPSMP)CDSMP, Master training: 4 ½ days: 19th to 23rd July 2016 Pain Management Cross Training (Master Trainers): 2 days: 25th & 26th July 2016

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Venue: Ko Awatea Centre, Building 54 Middlemore Hospital, 100 Hospital Road, Otahuhu, Auckland 1640

You will be able to offer your clients with long term conditions the opportunity to achieve a better quality of life and greater independence through self-management.

Extensive research into the course has shown that participants manage their pain; stress and fatigue more effectively, have fewer visits to the medical centre, are better able to communicate with family and health professionals, exercise more, and get more out of life.

As a result of this training Master Trainers will be able to deliver and train Leaders to conduct Self-Management Programmes in the community.

The programme has been shown to benefit people with pain, heart problems, diabetes, rheumatic conditions, cancer, breathing difficulties and many other long term conditions.http://patienteducation.stanford.edu

Note: To qualify for the Pain Cross training, participants must have completed the CDSMP Master Trainers course.

Dementia Today: Diverse Communities, Collective Action

Alzheimers NZ Biennial Conference and 19th Asia Pacific Regional Conference of Alzheimer’s Disease International3-5 November 2016Wellington, New Zealand

Dementia is one of the greatest healthcare challenges of our time, in New Zealand and around the world. Already, 60,000 Kiwis are living with dementia and with our ageing population, this number is expected to

almost triple by 2050, to 154,000. Top flight speakers from New Zealand and overseas will share the latest research, evidence, learnings and insights, and discuss how we can address this challenge. With real life case studies, and an emphasis on what works, this conference has practical relevance to the real world of people affected by dementia, policy makers, service providers, health and care professionals, researchers and NGOs. People living with dementia and their care partners can attend the conference free of charge after registering. This is a dementia-friendly conference with facilities for people with dementia at the venue.For more information visit www.alzheimersconference.nz

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Events included in previous updates

Perinatal Anxiety & Depression Aotearoa Seminar8.30am – 5.00pm Friday 24 JuneLearning Centre – Auditorium, Hutt Valley DHBMore information: http://www.pmhnz.org.nz/Flyer-2016-Seminar-Series-form-PADA.pdf Please register online at http://goo.gl/forms/4BLpcPcr0j

NZDSN Auckland regional networking meeting 9.00 am-12.30 pm, Wednesday 29 June New accessible venue of Framework, Kauri Room, 51 Huia Road, Otahuhu 1062NZDSN Members free, Non- members $30Registrations close 17 June. Click here for the Registration form and Programme.

Consultation, surveys and submissionshttp://www.health.govt.nz/about-ministry/consultations

Save the date – upcoming public consultation on developing new clinical guidelines for cervical screening The Ministry of Health’s National Screening Unit expects to be consulting widely on the updated draft cervical screening clinical guidelines from late August 2016. The consultation will be open for approximately six weeks, and the draft guidelines will be available online.

The consultation is part of the transition from cytology to primary HPV testing in 2018. The consultation process will seek feedback on the suitability of new guidelines, not on the decision to move to primary HPV screening.

The National Cervical Screening Programme (NCSP) has enlisted the help of experienced practicing clinicians from around New Zealand to assist with this task.

The updated guidelines are designed to provide high-level guidance to clinicians and smear takers about how best to care for women on the cervical screening pathway. More detailed guidance, and key performance indicators for providers can be found in the NCSP Policy and Quality Standards which will be reviewed separately.

The NCSP will keep you informed about the progress of this work. If your organisation would like to provide feedback on the draft guidelines, you may wish to set aside time in your calendar for late August/early September to prepare your submission.

Proposed Radiation Safety Regulations: A consultation documentThe Regulations are needed to give full effect to the Radiation Safety Act 2016. The Radiation Safety Act comes fully into force on 7 March 2017 and will repeal and replace the current Radiation Protection Act 1965 and its Regulations. More

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information about the new legislation is available at Changes to Radiation Safety Legislation. Both the current and the new legislation will be administered by the Ministry of Health’s Office of Radiation Safety. More information about the current work of the Office of Radiation Safety is available at Radiation safety.The Regulations will be made under sections 91–93 of the Radiation Safety Act and deal with matters that are applicable to many owners, managers, controllers and users of ionising radiation sources. The topics covered in the consultation document are:

authorisations (source licences, use licences and consents) fees exemptions, restrictions and prohibitions incidents and emergencies labelling, signage and other controls registration of controlled radiation sources nuclear material inspection, compliance and enforcement radiation Safety Advisory Council other matters to give full effect to the Act or its administration.

The Radiation Safety Act also enables Codes of Practice to be made under sections 86–90. Codes of Practice will deal with technical, detailed matters that will be applicable to each individual area of radiation practice. Consultation with current owners, managers, controllers and users of radiation sources on Codes of Practice is planned for later in 2016.To ensure that the overall legislative framework is as straightforward and workable as possible, matters that are addressed in Codes of Practice will not be dealt with in Regulations. Consultation is open until 5pm, Wednesday 22 June 2016.The consultation document (Word, 185 KB) outlines the options available for the proposed Regulations and identifies the Ministry of Health’s preferred options. The preferred options are presented simply to promote discussion: no decisions have been made yet. Full instructions for making a submission can be found in the submission form (Word, 49 KB). The submission form also lists the consultation questions found throughout the discussion document to help submitters complete the submission process. Submitters do not have to use the submission form. However, submissions need to be on the topic of Regulations to be made under the Act in order to be considered within the scope of this consultation. All submissions that are in scope and received before the submission deadline will be considered.Submissions can be emailed to the Ministry of Health at radiation_safety_consultation@moh.govt.nz or by post to: Radiation Safety Consultation, Ministry of Health, P O Box 5013, Wellington 6140.

Social Security Legislation Rewrite BillPublic submissions are now being invited on the Social Security Legislation Rewrite Bill.The closing date for submissions is Wednesday, 22 June 2016

Healthy Homes Guarantee BillPublic submissions are now being invited on the Healthy Homes Guarantee Bill (No 2).

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The closing date for submissions is Thursday, 23 June

Ministry of Health Review of deceased organ donation and transplantationThe Ministry of Health is leading a review of organ donation and transplantation.

Organ donation is a life-saving treatment and for people with organ failure it is the best, or only, option available. While New Zealand has made progress to increase organ donation and transplantation rates in recent years, we still have relatively low rates of deceased donation compared with many other countries.

This review aims to identify what can be done to increase deceased donation rates. The review is looking at current practices and trends in New Zealand, along with recent initiatives to increase deceased organ donation and transplantation rates. It has also considered features of higher performing organ donation systems overseas and identified issues within New Zealand that may be impacting donation rates.

Consultation documentThe consultation document seeks feedback on the Ministry’s initial proposals to increase deceased organ donation and transplantation in New Zealand. Proposals are based on the findings of the initial phase of the Ministry of Health’s review of options.

We are seeking feedback on the overall package. This consultation is intended to ensure that everyone can have their say on organ donation.

In addition to consultation on this document, the Ministry will be engaging directly with interested stakeholders for more detailed and technical discussion of some of the proposals in this document.The closing date for submissions is 5pm on Friday, 29 July 2016.

Standardised Tobacco Products and Packaging Draft RegulationsIn 2013 the Government decided to introduce a new regulatory scheme to standardise tobacco products and packaging. The legislation that creates the regulatory powers to bring in standardised tobacco products and packaging – the Smoke-free Environments (Tobacco Plain Packaging) Amendment Bill - is currently progressing through Parliament. The date when the regulations will come into force depends on when the Bill is passed, and has yet to be determined. Regulations will be needed to bring the new regulatory scheme into force. The Government has not yet made any final decisions on these detailed regulatory requirements and the Ministry of Health is now seeking feedback on draft regulations for the Bill. The scope of the current consultation is confined to the proposed requirements for standardised tobacco products and packages as set out in the exposure draft of the regulations (PDF, 637 KB). 

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The consultation document (PDF, 471 KB) gives an overview of the exposure draft regulations, raises a number of consultation issues, and poses specific questions which may help you to prepare your submission.The draft regulations are set out in four parts:

Part 1 sets out general requirements that will apply to all tobacco products (subpart 1) and all tobacco packages (subpart 2) respectively. 

Part 2 contains provisions that apply only to cigarettes, cigarette packs and cigarette cartons. 

Part 3 relates to loose tobacco packaging.  Part 4 covers packaging for cigars.

Consultation issues and questions are set out in the consultation document under two headings.

Size and quantities of tobacco products. Permitted markings on tobacco packages.

Submitters can also suggest other additional features to increase the effectiveness of standardised packaging and make other comments on the content of the draft regulations.The Ministry welcomes submissions on the content and coverage of the draft regulations, backed up wherever possible with detailed reasons and factual evidence. We are particularly interested in the impact and practical implications of the proposed regulations, including for compliance and enforcement.Please note that both the contents of the Bill and the earlier policy decision to standardise tobacco products and packaging have been the subject of previous public consultation, and are outside the scope of this consultation.The closing date for submissions is: 5 pm Friday 29 July 2016.Submitters are encouraged to make submissions by email, using the response form provided (docx, 29 KB), to: standardisedtobacco@moh.govt.nz.

Enabling Good Lives approaches to supporting disabled people The Ministries of Health, Education and Social Development want to learn more about the innovative approaches and practices providers and communities have developed to support disabled people to have greater choice and control over their supports and lives. This will help inform the development of advice to Government on how to apply the Enabling Good Lives approach to disability support services. Information gathering from 1 Apr to 21 Oct 2016.http://www.enablinggoodlives.co.nz/gatheringinformation

Other informationCommunity Internships applications open soon - Does your organisation need some help with a specific piece of work? There are some great people within the Ministry of Health who are interested in spending time in an NGO as part of the Community Internship Programme.

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If you are interested in contacting someone in the Ministry of Health or your community who may want to work in your organisation, please take these steps first.

1. Look at the information on the Department of Internal Affair's website (link below) so you have all the information you need.

2. Take some time to consider the project itself and write a few paragraphs about it so the potential intern can easily understand what you are proposing to do.

Information about the Community Internship Programme

The Department of Internal Affairs is seeking applications for the 2017 Community Internship Programme from 20 July until 31 August 2016. This programme is a three-way partnership designed to strengthen community organisations, increase understanding, and encourage co-operation between the government, local authority, iwi, corporate, business and community sectors. Interns from corporate organisations have the chance to spend time working in NGOs on a defined piece of work.

Key information:

Applications for full-time internships of three or six months are preferred, but part-time internships of up to 12 months may be considered.

The start date should be between 1 January 2017 and 1 June 2017. DIA covers the secondees salary for the duration of the secondment. The host organisation needs to identify its area for development and be clear

about what it wants the intern to do during the internship. For instance, an internship may focus on developing policies and procedures, planning, or developing systems that build the host organisation's capacity and capability to operate more effectively.

Go to the DIA website to find out more about the programme - http://www.communitymatters.govt.nz/Funding-and-grants---Crown-Funds---Community-Internship-Programme

Here's a link to an article about internships this year. https://national.org.nz/news/2015-12-10-skilled-interns-hired-for-local-communities .

If you are interested in finding out more about this, please contact Caroline Speight, NGO Relationship Manager (Caroline_Speight@moh.govt.nz). Caroline will be working across the Ministry of Health to find possible interns for this programme.

You can also contact staff at the Department of Internal Affairs if you have questions about the programme. The best point of contact would be the closest DIA regional office to your NGO. Contact details can be found here: http://www.communitymatters.govt.nz/Working-with-communities---Advice-support-and-information .

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Important noticeThe views and opinions expressed in this newsletter do not necessarily reflect the views of the Ministry of Health.

While every effort has been made to ensure the accuracy of the information contained in this newsletter, the Ministry of Health is not responsible for any omissions, inaccuracies or changes that may have taken place after publication.

If you do not wish to receive the MoH-NGO email update any longer, please reply to ngo@moh.govt.nz with unsubscribe as the subject.

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