getpersonalized! building finland’s national genome strategy, liisa-maria voipio-pulkki
TRANSCRIPT
Building Finland’s National Genome strategy
Liisa-Maria Voipio-PulkkiDirector, The Ministry of Social Affairs and Health (Finland)
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Building Finland´s Genome Strategy
Liisa-Maria Voipio-Pulkki Director, CMOMinistry of Social Affairs and Health
Helsinki 25.5.2015
What is Personalized Medicine?
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”An approach to medicine which uses molecular analysis as well as other personal information to customize health care”
”Innovative medical interventions tailored to the specific needs of individual patients”
”An approach to provide better prevention and treatment, and preventing undesirable adverse reactions, while fostering a more efficient and cost-effective health(care) systems”
Does not change the fundamental ethos of medicine: promoting health and well-being, and avoiding harm
Finland’s strengths in Personalized Medicine
Reliable and comprehensive registries and population databases since the 1950’s
Nationwide electronic patient data repository and MyData Strong IT management capabilities Relatively isolated gene pool Existence of a legal framework for biobanking and
willingness to further develop the legislative framework Strong tradition of genetics research Active research in the field of personalized medicine Very positive attitude of the population towards research
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Formulation of Finland´s Genome Strategy
A working group of civil servants and top experts was established in 2014 ”to formulate the national strategy for realizing the potential of genomics in healthcare”
September−November 2014: 6 thematic workshops
January 2015: Larger meeting to invite feedback from stakeholders
March 2015: Public consultation
30.4.2015: strategy finalized
11.6.2015: official launch
Why do we need a genomics strategy?
To take full advantage of the potential benefits of the genomics era
Fostering research and innovation policies
Mainstreaming genomic technologies in the Finnish health system Ensuring equitable access to and rational use of the technologies
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Phases of the economic and needs pressure
Pensions on the increase
Increasing need of care
2010
Economic burden
Building phase of the welfare society
70 children and elderly per 100 persons in working age
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60
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80indeksi
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80indeksi
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203020202000199019801970 2040year00
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Our vision
By the year 2020, genomic data will be effectively used in healthcare and in the promotion of health and wellbeing
to achieve population health benefits
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By the year 2020, genomic data will be effectively used in healthcare and in the promotion of health and wellbeing Ethical principles and legal
framework are available for the application of genomics
Genomics research is integrated into healthcare
Healthcare workforce have the knowledge and skill to apply genomic information
Informatics infrastructure is in place for effective application of genomics
Genomic information is widely used in healthcare to meet the needs of individuals and the population
People understand and are able to make effective use of genomic information to improve their own health
In genomics, Finland is an attractive research and innovation environment for collaboration and investment
Joint strategy created and implemented by 3 ministries together with Tekes and Academy of Finland – Min. Employment and the Economy– Min. Social Affairs and Health– Min. Education and Culture
For the first time the strategy examines the health sector from the perspective of innovation and business growth.
Ecosystem and value chain based approach
National Health Sector Growth Strategy for Research and Innovation activities
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More information: http://www.tem.fi/files/40138/TEMrap_16_2014_web_09062014.pdf
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The key is to improve the operating environmentof the whole ecosystem
Funding ofR&D&I
activities
Marketing: Invest in & Export
Demand driven
innovation
Research Infrastructures
Networks across the industries, research, public and private
Policyand regulation
Competences
GROWTHAND
RENEWAL
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Therapy / disease clusters:- FICAN- Neurology, Diabetes, CVD- Connected Health (e/m/tele)- Generic clinical research
infrastructure (?)
New national actors / competent bodies to manage:- Technology transfer - Drug development
- BBMRI.fi- Genome Centre
- Data base management- Technical research operations
Role of governmental actors and funding organizations
NETWORKING AND JOINT PLATFORMS IN STEAD OF COMPETITION
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Genomic medicine in the service of better health and health care
Official launch date:June 11th, 2015