genetic testing: how does the health system · is no longer adding value in the health system and...
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Genetic Testing: How does the health system introduce and sustain genetics testing?
• SUMMARY• Genetictestingisevolvingquicklyandchoosingtherighttestfortherighttherapiesiscomplexasaresult.
• Itiscriticalthatstakeholderscontinuetomeetandfindinnovativepathwaysforstoppingwhatisnolongeraddingvalueinthehealthsystemandfreeingupfundingfornewprecisionmedicinepathways,testingandtherapies(recognizingthismedicineiscompetingwithotherhealthsystemneeds).
• Complexityofgenetictestingandtherapieswillcontinuetoputpressureonhealthsystembudgetsandtrade-offswillbenecessary;changesinstandardsofpracticewillneedtobemodifiedtoensurethetherapyisrespondingtochangesintestcapabilities;
• CollaborationwithinBC,Canadaandgloballyisneededtodemonstrateclinicalefficacyofprecisionmedicine,achieveimprovedpatientoutcomesandensuresustainablefunding
• AnumberofagenciesinBCandAlbertaareactivelyengagedinprecisionmedicine;attractingandretainingtalentsuchasgeneticcounsellorsandbioinformaticsisachallenge
• ACTIONSTEPS• Continuetoutilizecollaborationopportunitieswithhealthsystemstakeholderswithafocusonimprovingpatientoutcomes
• PHSAprecisionmedicinestrategydevelopmentandplanningunderway;moretocome
CarolynBell
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The Modern Patient • Ourpatientswanttothanktheamazingscientistsandindustrypartnerswhoareworkingsohardtomakethistypeofcareareality.Withoutbelabouringthepoint,ourpatientsareimportant.Theyhaveavoiceandtheysupportandthankyouallforyourhardworkinmovingscienceforward.
SUMMARY• Personalizedmedicinehasthepotentialtogreatlyaffectthepatientjourneyinapositiveway• Patientswithcomplexacuteandchronicdiseasesundergotraumasaroundtheircareeveryday.Invasiveprocedures,dangeroustreatmentsandencounterswiththehealthsystemallhavethepotentialtocauseemotionalandphysicalharm.
ACTIONSTATEMENT• Includepatientstoriesinfutureresearchandmarketing.Peoplereallyneedtohearthehumansideoftheworkthatyoudo.
• Ourpatientshavealottoofferintermsofinvolvementinresearchideas,design,marketing.Involvepatientpartnersineveryaspectofcare.ThePatientVoicesNetworkisaBCbasedgroupofpeoplewhohaveencounteredthehealthsystemandwouldliketogivebacktomakehealthcaremoreinlinewithwhatourpatientswantandneed.
AnnemarieKaan
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Personalized Medicine & Oncology - Key Points SUMMARY• Highlystratifiedcancercareistoday’sbestmedicine–needforstratificationwillincrease• Continuedchallengesofhowtoproveatargetthroughgenomicstreatmentapproachworksinaverysmallcohort(evenasinglepatient)andhowtogetregulatoryandfundingapprovalmaybegreaterthanhowtointerrogatethecancers
ACTIONS• Patientadvocatesmaybekeytoaligningregulatoryprocessestotodaystreatmentopportunities
• Thepediatriconcologyworldcouldbeusedasthepioneerforsharingdataacrossboardersandmorepersonalizedapproaches
• Datasharingandaggregation,bothforindividualpatientsandacrosspopulations,isessentialifwearetofullytakeadvantageoftoday’sopportunities
DavidHuntsman
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Data Analytics: An Exciting Frontier! SUMMARY• Thedigitizationofsocietyismovingaheadwithorwithoutinputfromvarioussectors.Thehealthsectorislaggingothersectors.Healthhasthepotentialtobealeaderorlag–inwhichcaseothersectors/jurisdictionswillsettheprinciplesthatgovernhealthdata
ACTIONSTEPS• Determiningtheprinciplesrespectingownership,security,access,sharing,leveragingandevencommercializinghealthdataneedstobedoneona‘holistic’basiswhereoldboundariesbetweenprivateandpublic,largeandsmalletcareerased
• Canadahasthepotentialto‘win’inthedatamanagementandgovernancespaceandsetthestagefortheworld!
SuePaish
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Artificial Intelligence & Machine Learning in Health Care SUMMARY• Rapidgrowthanddevelopmentofpotentialapplicationsacrossoursystem• Significantpotentialforsystemtransformationalopportunities-butneedalsotobeawareofprivacyandethicalissuesaswell.
NEXTSTEPS• Industrykeentopartnerandcollaborate• Ciscoannounced$10minvestmentinCapacitybuildinginwesternCanada• Sightlines-launchinganewsecuredatatrustplatformthisweek• Splunk-keentocollaboratewithCanadianHealthcareonrangeofinitiatives
HowardWaldner
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Virtual Health: From Good Practices to Adoption
• SUMMARY• Virtualhealthhasdemonstrateditsvalueforpatientcentredcare.Whatdoweneedtodonowtoincreaseadoptionandscaleupofvirtualhealth?
• CONSIDERATIONStowardsACTIONSTEPS
• Movetowardsanonlinehealthrecordsforpatients’access?• Leveragetechnologiestostrengthenrelationships:healthprofessionals&patients,interprofessionalteammembers
• Tailorvirtualhealthapproachesandcontenttooptimizeengagementandinvolvementofusersattheircomfortlevelintechnologyuse
• Encouragesustainabilityofproventechnologies,andinnovationsofnewtechnologiestomeethealthgapsorprovideunprecedentedcarepathways
• Ensureappropriateandhighqualityvirtualcaremodelstomaximizevalueandcosteffectiveness
KendallHo
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Post-Secondary Healthcare Training Educational Requirements for Genomic Medicine in 2020 • SUMMARY
• Canadashoulddevelopaneducational“omics”platformthatwillenablemultiplecurriculaforpostsecondaryhealthcareprofessionals,andpatients.
• ACTIONSTEPS• Writeanopinionpiecethatincludestheimportantstepsrequired
• WorkwitheducationalandindustrypartnersacrossCanada• UseresourcesthatalreadyexistinothercountriessuchasNIH• Enablecustomizationofcontenttogroupsofusersincludingpatients• Enablenewknowledgetoinformtheeducationalprograms• Explorewheretostartsuchaspharmacogenetics• Lookatclinicalutilityincludingbioinformatics• Considerdifferenteducationalstrategiessuchasthoseemployedbyindustry
MartinDawes
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Personalized Medicine Through Innovation • SUMMARY
• BCisavibranthubforprecisionmedicinesandanascenthubforcompaniesfocusedonmolecularlybasedpreventivemedicine.
• ACTIONSTEPS• Needtopublicizeoureffortsprovincially,nationallyandinternationally• Conferencessuchasthisone..,lobbyforpreferentialtreatmentbyprovincialgovernment,federalgovernment…,attractPharmaandbigbiotech….
• Worktoattractventurecapitaltoscaletheseenterprises• Focusacademiaandfundingbodiestosupporttheseindustriesofthefuture
PieterCullis
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How to Deliver Personalized Medicine Today! • SUMMARY
• Makethedataaccessibleandeasytouseandputitinthecontrolofthepatient
• ACTIONSTEPS• StartwithPharmacogenomicsandCancertherapies• Provideeasytousetoolsforpractitionersandpatients• Partnerwithcorporationsandinsurancegroups
RobFraser
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Decentralizing and Democratizing Genomics with Blockchain
• SUMMARY• Blockchainhasthepotentialtohelpusaddresschallengesingenomicdatamanagement(datasilos,dataprivacy,dataownership,datasecurity)
• Facilitatepatientdrivensystemsorinitiatives• Activeanddynamicpatientconsent–patientcontroltheirdata• Potentialbarriers:regulatory,education,userinterface
• ACTIONSTEPS
• NeedtocreatecapacityandexpertiseinblockchaininBC• Advanceacademicprogramsandtrainingsinthefieldofgenomics,blockchain,AIandmachinelearning
• AttractinternationalcompaniestostartdevelopingbusinessinBC• Identifyopportunitiesforpatient,cliniciansresearchersinteractionssupportedbyblockchain(BCthePharmacogenomicsprovince!)
CatalinaLopez-Correa
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Where do we go now? Ø Stoptakingmyblood!Ø Weneedastrategy!Ø Weneedtocollaborate!==================================================
• PHSAmandatetobuildonthegenomicsandgeneticstestingframework• Relationships,collaborations,engagement• Strengthenconnections:clinical-research-academia
• Pathwaytoclinicaluse• Workwithstakeholderstodevelopa“ProvincialClinicalGenomicsTestingStrategy”• UndertakeaninventoryofcurrentstateofclinicalgenomicstestinginBC• Developevaluationcriteriafornewandexpandeduseofclinicalgenomicstesting
• Datadriven,evidencebased,outcomesfocus• Clinicalvalue,clinicalutility,actionable(ClinicalValueProposition)
• Businesscase• Operationalcostsandimpacts• SystemROI
JimSlater
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Panel Session Moderator Genetic Testing in the 21st Century Carolyn Bell
The Modern Patient Annemarie Kaan
Personalized Medicine & Oncology David Huntsman
Data Analytics: An Exciting Frontier Sue Paish
Artificial Intelligence & Machine Learning Howard Waldner
Virtual Health Kendall Ho
Post-Secondary Healthcare Training Martin Dawes
Personalized Medicine Through Innovation Pieter Cullis
How to Deliver Personalized Medicine Today Robert Fraser
Blockchain in Genomics Catalina Lopez-Correa
Where Do We Go Now? Jim Slater