Who are we?The Parents Association for Seriously Ill Children provide practical, financial and social supportto children and young people with cancer, their family and carers. Based at NottinghamChildren’s Hospital we aim to give children and families the means to build support networks,reduce isolation and offer financial assistance, helping to make a positive difference to familieswhose children’s lives have been impacted by childhood cancer.

What do we do?We are a parent led charity with direct experience of such illnesses and the difficulties faced. Ourexperience working with families over the past 35 years has highlighted the issues that familiesface following diagnosis. We use our understanding to support the whole family unit by:• Helping parents’ deal with the financial hardships they often suffer as a result of

needing to reduce, or give up work by providing access to PASIC grants; • Help the affected children and their parents deal with the impact of diagnosis and

associated isolation of hospital stays, sometimes long distances away from home,through one to one support;

• Improve the wellbeing of the affected children and their families by arranging parties, social events and day trips allowing them to forget their illnesses for at least a few hours, and enjoy quality family time together;

• Provide practical support, advice and ‘signposting’ services to other sources of assistance

Why do we need YOUR help?To be able to offer the services that we do, and to continue supporting families who aredesperately in need of our help, we require sustained funding and ongoing financial support.We, and the families that we support are incredibly grateful for the generous support that wecontinue to receive but unfortunately, there is always a need for more!PASIC ensures that your donations go directly to supporting families. Because we are primarilyrun by volunteers, our overheads are exceptionally low, ensuring that the funds donated to usmake the maximum difference to those they are intended for.YOUR help is needed to ensure we can continue our fantastic work, to help those that currentlyneed our services and those that, unfortunately, we know will come to need it in the future.

Parents’ Association for Seriously Ill Children

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Helping to make a positive difference to families whose children's lives have been impacted by cancer

Fundraise for PASIC

Twin-sister Darcey was only atiny 2-years-old when she had ahigh temperature. Her mum Samhad an uneasy feeling anddecided to take her straight toA&E. A mother’s instinct wasright on this occasion, because aconsultant immediately indicatedthat something was terriblywrong.

Darcey had little pinprick dots allover her body, and Sam thoughtshe was assuming the worstwhen meningitis entered hermind. Cancer was never aconsideration.The next morning, Darcey wasdiagnosed with AcuteLymphoblastic Leukaemia. In thismoment, everything changed forthe Ince family, including hertwin-brother Harrison. Allnormality fell away, and theywere thrown into an alien worldof illness, hospitals andtreatment. Sam recalls themorning, “It was a blur, I kept hearingthe word ‘cancer’ but couldn’tassociate with my child. Ididn’t know what AcuteLymphoblastic Leukaemiawas, I didn’t understand howit could be treated.” Yet within12 short hours of diagnosis,Darcey began chemotherapy.

In that first terrible week oftreatment, PASIC got involvedstraight away, talking themthrough the diagnosis and wasthere every step of the way. Thejourney was long – Darceyunderwent 3 intensive blocks oftreatment, each lasting 10weeks. She couldn’t walk andlost her hair three times. Thehair loss had a deep impact onthe family, especially her twinbrother Harrison who wasdevastated when her hair fellout. However, Darcey didn’t carewhen her long locks disappeared.She was just too poorly to notice.Darcey was a smiley happy littlegirl, but in hospital begancovering her face and refusing tospeak to doctors. PASIC helpedto change this, but it was a slowroad as Darcey had lost trust inadults. PASIC also helped thefamily to cope with herpersonality change when thesteroids took their toll.Harrison was affected by Darcey’sillness – he became a nervouslittle boy affected by separationanxiety after always being usedto Darcey being around. PASIChelped with this problem too, andsuggested he saw the hospitalplay therapist which helped toalleviate the problem.More than anything, the trips andactivities were absolutely crucialfor maintaining an element ofnormality for the Ince family. Mum Sam said, “When your child is ill,everything you once did as afamily becomes impossible.No soft-play, no outdoorpaddling, no swimming, notrips away or going onholiday. You have to take timeoff work which means yourincome drops, and suddenlyyou have very little money tospend on day-trips. Lifequickly becomes very grim.Every time you leave thehouse, it’s to go to hospital.”

This is why going to DraytonManor was really important forthe Ince family… Darcey was sopoorly, she had to stay in abuggy all day, but she wasalways smiling. It was wonderfulfor Mum to see the twins dosomething normal together.Many organisations that help sickchildren only support the childwith the illness – PASIC isdifferent. They allow families tomaintain their bond, which isespecially important for twinsDarcey and Harrison.The Christmas and Easter partieswere a god-send for the family…it meant they could have fun andforget about their problems. Itwas a very special time for theInce family. Everyone is thesame, no one is pointed out forlooking different. It meanschildren can go along even whenthey are very ill.Darcey had her last treatment inJune 2012, and a year on she isgradually becoming stronger andexperiencing lots of ‘firsts’. Sheswam last weekend and is hopingto begin gymnastics soon too. During her entire treatment overtwo years and three months,Darcey had 19 lumberpunctures, 6 blood transfusions,8 platelet transfusions. WithPASIC’s constant support andhelp, they were able to make itthrough this very difficult time.

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Case Study: Darcey’s Story ...

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You may have already decided on your fundraising event or challenge but if not, there aremany ways you can get involved and raise money for PASIC – we have a dedicated teamwho can help you with fundraising ideas, support your events, and help you with materialsand offer support and advice along the way. By fundraising for PASIC you are not only helping to raise vital funds but also helping toraise awareness of childhood cancer - from cake sales to running marathons, whatever youdecide we are here to support you with your fundraising.

How You Can Get Involved ...

With FriendsGet together with your friends, group, club orcommunity and organise a fundraising event.There are many things you can do, from smallto big, such as: cake sales, coffee mornings,raffles, quiz nights or an Open Garden Party.

At WorkA charity partnership with PASIC will focus onthe joint objectives of both us and yourbusiness. It can bring together many of thecomponents of your CSR goals and can alsointroduce new ways of working. Supporting alocal charity can help with staff engagementand team building. We have a great wealth ofexperience in developing and supportingmutually beneficial charity partnerships.

Be ActiveTake part in a challenge - local or nationaland push yourself to the limit! Taking part ina sponsored event is a great way to raisemoney and get fit. Run, Walk, Cycle, DressUp, Skydive or Climb, simply set up an onlinefundraising page at www.justgiving.com/pasicand help to make a difference.

With SchoolInvolve staff, pupils and parents with fundraising activities such as; dress down days,concerts, fun runs and sponsored silences. Fundraising is a fantastic way to teachchildren about helping others, teamwork and charity. There are lots of fun activities yourclass or school can do to help raise money for PASIC, turn fundraising into FUNdraising!

More Fun IdeasBring & Buy Sale, Comedy Night, Disco, Family Fun Day, Fun Run, Jumble Sale, NonUniform Day, Quiz Night, Raffle, Sponsored – Silence, Swim, Run, Talent Contest,Skydive, marathons – you can visit our website for further fundraising ideaswww.pasic.org.uk

Joanne heard about our charity from oneof our volunteers and chose to raisemoney for PASIC by organising an OpenGarden at her home. Joanne displayedher award winning garden to the public,sold cakes and tea and organised atombola and raised a fantastic £157!

GET INVOLVED through fundraisingactivities, sponsorship opportunities,staff engagement, volunteering, payrollgiving; there are lots of wayscompanies could partner with PASIC!

Martin Said ‘I wanted to support a localcharity which helps children and theirfamilies. I hope whatever I raise canhelp make life a little better at whatmust be a very difficult time’

SponsorshipSetting up your own online sponsorshippage is the easiest and quickest way to raisefunds from your friends, family andcolleagues. Setting up a page is quick andeasy and the money collected will comedirectly to PASIC. There are two optionswhere you can set up your own fundraisingpage, you can go to www.justgiving.com/pasicand promote your challenge on facebook,twitter or at work.

PubliciseTo help maximise your fundraising it’simportant to tell everybody what you aredoing. There are many ways you can raiseawareness about your event or challenge fromword of mouth to press releases. Contactyour local paper or radio station and tell themabout what you are doing, they might beinterested in covering your story. We can helpyou with posters to put up around your localarea or workplace or you can post your eventon your own social networking pages.

Keep it legal When you are fundraising for PASIC you areoperating independently rather than ‘onbehalf of’ or ‘representing’ PASIC. You arefundraising ‘in aid of’ PASIC and it is

important that you use this wording on anycorrespondence along with the registeredcharity no: 506778

First Aid Ensure you have adequate cover dependingon the scale of your event, if you’re unsure,check with your local council.

CollectionsIf you are planning on organising a collectionat a public event or on the street you willneed to contact your local council for alicense. If you want to do a collection onprivate property, for example; a supermarketor shopping centre, you will just need thepermission of the manager and PASIC will beable to provide a letter of authority to confirmthat you are collecting in aid of our charity.

Food & Alcohol Check if the venue is licensed to sell alcoholor contact your local council about atemporary license. If you are selling foodyou will need to ensure you have aremeeting hygiene regulations, you cancontact your local council or visitwww.food.gov.uk

Fundraising Tips ...

And finally …We can’t thank you enough for choosing to support PASIC with your fundraising event orchallenge, we hope it’s a huge success and look forward to hearing all about it. After yourevent remember to send your donation in to PASIC, we can arrange a cheque presentation ifyou like and we’d love to feature your fundraising story in our newsletter so remember tosend us some photos!

Telephone 07874 223462 Web www.pasic.org.uk Email mail@pasic.org.ukFor all PASIC's latest news, follow us at:

facebook.com/pasic.charity.1977 or twitter.com/Pasic_1977Registered office: PASIC, Ward E39, Nottingham Children's HospitalQueen’s Medical Centre, Nottingham NG7 2UH Registered charity no. 506778

And finally …We can’t thank you enough for choosing tosupport PASIC with your fundraising event orchallenge, we hope it’s a huge success andlook forward to hearing all about it. After yourevent remember to send your donation in toPASIC, we can arrange a cheque presentation

if you like and we’d love to feature yourfundraising story in our newsletter soremember to send us some photos!For more information about how you cansupport PASIC, visit www.pasic.org.uk