focus ms: accessing the use of a patient centric model when treating multiple sclerosis
DESCRIPTION
The Focus MS team conducted focus group research by targeting and recruiting six different people including patients with RRMS, patients with mild RRMS and caregivers. We studied the current marketing and patient support programs used within this paradigm to see if they were adequate and realistic interpretations of the patients' journey throughout the disease state.TRANSCRIPT
Assessing the Use of a Patient Centric Model When Treating
Multiple SclerosisAdvanced Pharmaceutical Marketing Research
April 24th, 2012
Focus MS Team PresentersChristian O’Brien ‘13
Courtney Shannon ‘12
Diana Sulecki ‘12Emma Venditti ‘12
No such thing as “Everlasting Love” with Multiple Sclerosis
Listen to Audio
Discussion of Findings Agenda
Methodology Key Observations Participant Profiles
Neurology Analysis1. Current Standard2. Comparison of Therapy Options Message3. Recommendations for Achieving Patient Centric Model
• This assignment called for female patients within the age range of 41-55 years old, and their caregivers
• Recruitment methods utilized: Social Media (LinkedIn & Facebook MS Groups) & Original webpage
• Specific Brands Analyzed: Gilenya, Avonex, Copaxone
• All messages and promotional themes, will be identified and analyzed
Methodology
Original Recruitment Website
Key Observations: Current literature is not directed towards patient’s emotional
rollercoaster with MS
• Gilenya is close, but Avonex, Copaxone and Tysabri missed by a mark as big as the Grand Canyon
• What can we do differently to make the initial discussion and later discussions more meaningful?
• How should doctors who specialize or treat MS more be trained? • Should there be an investment in an MS institute? Constraints?
• Based on words that patients used are the current terms correct -- initial, relapse, remitting?• How can we adapt their language so that real people with real disease can relate to it? • Similar diseases that may benefit from updated patient centric model
Focus MS Participant ProfilesMaria
• 41-55 years old, NY, SPMS
Jeri
•51 years old, FL, RRMS
Faye
•41-55 years old, PA, RRMS
Focus MS Participant ProfilesDebbie
•56 and older, PA, RRMS
Kelli
•20-30 years old, PA, Caregiver
Jill
•41-55 years old, NY, RRMS
Current Standard of Literature • Comparative claims are good to defend market share against direct competitors • Gilenya offers many resources through their Go Program, such as transportation,
exercises, wheelchairs and more• Gilenya images and copy provided hope without being misleading• Fragmented support program, so resources and support are tailored for the different
phases of therapy and disease progression
What works
• No elaboration of typical disease progression, especially because MS is so personalized
• Current support materials do not address the roadblocks to starting therapy• The safety claims that were made were not impactful• Images and copy were highly disconnected from patients’ day-to-day management
What doesn’t
Case Study: Avonex
“Start Early & Stay Active Longer”
Case Study: Avonex
Case Study: Avonex
Case Study: Avonex
Case Study: Copaxone
“Making Smart Choices for the Future ”
Case Study: Copaxone
Case Study: Copaxone
Case Study: Gileyna
“Discover your Possibilities”
Case Study: Gileyna
Case Study: Gileyna
Case Study: Gileyna
Case Study: Gileyna
Case Study: Gileyna
Recommendations for Improvement• One person- or concierge, if you will-that each patient deals with so they
are familiar with that patients case instead of a different person each time they call the hotline
• Continuous education• Work with DO to find a BEST-FIT therapy and exercise/lifestyle change
combo to help patient live their life to fullest potential with this new diagnosis – DOs are generally more in synch with RX and alternative therapies
combined• Current terms are OK, but glossary is helpful to help patient dialogue with
doctor• Work with disability foundations for other disease to help patient keep
their autonomous so they do not feel like they have lost their identity and independence
Patients Are Yearning for Support