fetal alcohol canadian expertise (face) research roundtable international fas day - sept 2002...
TRANSCRIPT
Fetal Alcohol Canadian Expertise (FACE)
Research RoundtableInternational FAS Day - Sept
2002
Christine A. Loock, MD, FRCPCChristine A. Loock, MD, FRCPC
Associate Professor, UBCAssociate Professor, UBC
CCSA Board & FAS NAC CCSA Board & FAS NAC Member, BC FAS Provincial Member, BC FAS Provincial
Medical Consultant, Medical Consultant,
The Pediatrician’s Dilemma
Pediatrician
Today’s Goals for Today’s Goals for Research Roundtable Research Roundtable
Overview of current Canadian FAS research Overview of current Canadian FAS research (Awareness, At-Risk , Affected, Basic Science)(Awareness, At-Risk , Affected, Basic Science)
Discuss trends in nomenclature (“FASD”)Discuss trends in nomenclature (“FASD”) Interventions for women at riskInterventions for women at risk Standardizing FAS diagnosis and reporting (Health Standardizing FAS diagnosis and reporting (Health
Canada)Canada) – TelediagnosisTelediagnosis– BC’s HSR (Vital Statistics); UW DPN 4 Digit CodeBC’s HSR (Vital Statistics); UW DPN 4 Digit Code ; ; – Education and Training : UBC Curricula; Education and Training : UBC Curricula;
Provincial Initiatives; March of Dimes CD ROM Provincial Initiatives; March of Dimes CD ROM trainingtraining
Basic Science : Anti-oxidants; Meconium ScreeningBasic Science : Anti-oxidants; Meconium Screening BC Initiatives and RecapBC Initiatives and Recap
YELLOW POINT
Take Home PointsTake Home Points
My role in closing today’s My role in closing today’s Roundtable: Roundtable: – Stand Up, Speak up, Shut upStand Up, Speak up, Shut up
IT TAKES A COMMUNITY :IT TAKES A COMMUNITY :– Every child needs a familyEvery child needs a family– Every mom needs a momEvery mom needs a mom– Every person needs a communityEvery person needs a community
Guiding PrinciplesGuiding PrinciplesRespectRespectUnderstandingUnderstandingCompassionCompassionHopeHope
Common
Expensive
Preventable
Bottom Line
FETAL ALCOHOL SPECTRUM FETAL ALCOHOL SPECTRUM DISORDERDISORDER
Fetal Alcohol Syndrome (FAS)Fetal Alcohol Syndrome (FAS)
BrainBrain GrowthGrowth
Facial featuresFacial features“Fetal Alcohol Effects” (FAE) = Partial FAS & Alcohol
Related Neurodevelopmental Disorder (ARND)
Research Intervention
Prevention requires Coordination
Education & Training
AWARENESS (primary)
AFFECTED (tertiary)
AT-RISK (secondary)
PREVENTION STRATAGIES
The Scream,
Edvard Munch
In the beginning (of our FAS work )
~ Early 1990’s
Who is at risk?
“If you drink, don’t
screw: or if you screw, don’t
drink!
MOD~ 1996”
Or if you do, please
use effective
contraception!
CL 2002from
Time 2002
Henri de Toulouse-Lautrec ~1895
Who’s at higher risk?: Who’s at higher risk?: Remember the “10 P’s” !Remember the “10 P’s” !
povertypoverty poor prenatal carepoor prenatal care poor nutrition and healthpoor nutrition and health poly-drug usepoly-drug use prostitution (sex trade) prostitution (sex trade) parent, partner, peer problems (A&D) parent, partner, peer problems (A&D) psychiatric concerns ( mood, anxiety, psychiatric concerns ( mood, anxiety,
thought disorders)thought disorders) prior abuse (childhood sexual+/- physical)prior abuse (childhood sexual+/- physical)
““Mother – Baby Diad”Mother – Baby Diad”
Issues around Issues around “Mothering” and “Mothering” and Substance AbuseSubstance Abuse
AWARENESSAFFECTED
AT-RISK
ACCOUNTABILITY
Guiding PrinciplesGuiding PrinciplesRespectRespectUnderstandingUnderstandingCompassionCompassionHopeHope
Common
Expensive
Preventable
Bottom Line
YWCA Crabtree Corner, Downtown Eastside