family!caregiver! community!of!interest webinarseries ... · promising)and)established)...
TRANSCRIPT
Promising and established prac3ces for family caregiver
engagement
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Family Caregiver Community of Interest
Webinar Series
Breaking Barriers St. Joseph’s Health Centre Family Naviga3on
• The audio is being streamed via your computers. For op3mal sound, please use external speakers or earphones. If you are s3ll having trouble hearing our presenters, you can dial into 1-‐800-‐509-‐6600 Par3cipant PIN: 67628496#
• This webinar is being recorded and will be posted on www.eenet.ca.
• We would appreciate having your feedback on today’s
webinar. A link to an online survey will be provided towards the end of the webinar. Thanks in advance for the 5 minutes of your 3me to complete our online feedback survey. Some collected data from the webinar might also be used for repor3ng (e.g. poll ques3ons).
Housekeeping
OUR MANDATE • We are a provincial forum for knowledge exchange and collabora3ve knowledge crea3on focused on issues related to family caregivers of individuals with mental health and addic3ons issues.
• We convene a range of stakeholders from across and beyond Ontario’s mental health and addic3ons system to share and build on exis3ng forms of evidence to improve planning, prac3ce and policy.
Family Caregiver Community of Interest
www.eenetconnect.ca/g/caregivers
Join our online community!
This webinar is supported by EENet
www.eenet.ca
• PSSP houses EENet • PSSP moves evidence to ac3on
to transform MHA systems and improve lives
• Supports Ontario’s 10-‐year Mental Health and Addic3ons Strategy
• Capacity and exper3se in knowledge exchange, implementa3on, equity & engagement, informa3on management, evalua3on, and coaching
Ontario Family Caregiver Advisory Network
in support of Mental Health and Addic3on
Lead Agency for the Family Caregiver Community of Interest
OUR PURPOSE: TO build a strong network of family groups who have the shared goal of enhancing mental health care and addic3on services; TO foster rela3onships and the exchange of informa3on between individuals and organiza3ons involved in the provision of mental health and addic3on care; and TO educate and encourage communica3on and partnerships between family caregiver groups.
OUR VISION: An Ontario Mental Health and Addic3ons healthcare system that values and empowers family caregivers.
OUR MISSION: To develop a community of Ontario family caregiver organiza3ons in mental health and addic3ons through informa3on sharing, suppor3ng strong partnerships and providing a collec3ve voice.
Please visit our website
www.ofcan.org
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Please answer the following poll quesXons
IntroducXons • Justean Lebel, Family Mental Health Recovery Navigator, CMHA Toronto – Family Outreach and Response Program
• Elly Litvak, Family Mental Health Recovery Coordinator, CMHA Toronto – Family Outreach and Response Program
• Rhea, Family Member
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Breaking Barriers St. Joseph’s Health Centre Family Naviga3on
1. To provide an overview of the St. Joseph’s Health Centre Family Naviga3on Program
2. To encourage replica3on of the Family Naviga3on model in your community.
3. To offer the St. Joseph’s template as a model for ge]ng started
ObjecXves
What is Family NavigaXon?
v Family centered care in primary care se]ngs v “When one person in the family is struggling everyone is” v Recovery educa3on v Informa3on and support re: Mental Health Act v Support in accessing resources in hospital and in the community v Family Naviga3on is in the pioneering stages
1. Grey Bruce Health Services
2. Sunnybrook Health Sciences
3. St. Joseph’s Health Centre
ExisXng Models
v Community-‐Hospital partnership
v Partnership between FOR, a program of CMHA Toronto and St.
Joseph’s Health Centre mental health services – started in March 2014
v Family support for clients of St. Joseph’s mental health services v Funded by the Toronto Central LHIN
St. Joseph’s Health Centre
Program Development
Funding
Connec3ng with St. Joe’s & Charter Development
Outreach & Promo3on
Program Logis3cs
Advocacy & Educa3on
1. To improve system naviga3on for families 2. Reduce isola3on and increase sense of ability
to cope via family groups 3. Reduce wait 3mes for service 4. Reduce ED visits 5. Promote self care
Charter ObjecXves
v Mindful of hospital culture
v Be aware of the impacts of staff turnover
v Program development requires skillful outreach and advocacy
v Reduce red tape!
Need to Know
Referrals and ConfidenXality v Face to face contact; program card offered. You do not need to ask for pa;ent consent.
v If no face to face contact, seek paXent consent to either:
1. Provide the family with Navigator’s contact informa3on OR
2. Ask family if they want their contact info given to Navigator. If yes, leave # on intake line.
v Use of discre3on when pa3ent refuses consent.
Families receive: v Catchment area is Toronto; we serve families outside of the GTA on a
short term basis un3l referrals can be made v Info and support naviga3ng the hospitaliza3on & community resources
v Support understanding the implica3ons of the Mental Health Act (ogen most salient re: consent & confiden3ality)
v Support in communica3ng effec3vely with hospital clinicians v 1:1 and group support group support which is trauma informed and
recovery based.
Nuts and Bolts: Services
v 10 week Recovery Educa3on support group v A mix of process oriented support and skills based
v Goals:
1. To help families understand and support their loved one’s mental health
2. To provide families with skills necessary for their own self care and wellbeing
Recovery for Families Support Group
What FOR Offers
“When one person in a family is struggling, everyone is”
Recovery-‐oriented mental health support to family members
v Individual counselling
v Group support
v Dialec3cal Behavioural Therapy Informed Support
v Early Interven3on
FOR...
Advocacy Efforts v All staff have lived experience of mental health or are suppor3ng a family member
v Promo3on of recovery alterna3ves locally and globally
v Promo3on of family mental health services in wider system
FOR...
Outcomes
• Family Naviga3on Program has served 379 families to date
• Average of 220 families served/year • Program successfully reduces family wait Xme for service by responding to clients within 3 business days of referral date
Referral Source
Self or Family Member
Hospital staff
Other (ex -‐ internal referral, community support)
Primary Mental Health Concern of RelaXve
0
20
40
60
80
100
120
140
Unknown/Not Specified
Mood Disorder Psychosis Anxiety Substance Use Personality Disorder
Developmental Disability
Demen3a Ea3ng Disorder
Pilot Year Surveys v A 75% reducXon in ED visits for the family
member’s struggling loved one v 65% agreed or strongly agreed they felt beeer
equipped to support their rela3ve and navigate the hospital system if their rela3ve entered ED/hospital again
v 78% of clients reported improved self care v 70% of clients reported decreased isolaXon in
dealing with mental health concerns of their loved one
• Goal of the survey was to evaluate how frequently hospital staff are using the program & how they perceive the service
• Respondents – 42% Social Work – 25% Nurses – 25% Physicians – 8% Other
• Rate of referrals – 25% refer a few 3mes a week – 50% refer weekly – 25% refer a few 3mes a year
St. Joe’s staff survey (Winter 2017)
• 92% agree/strongly agree that the program has improved their ability to offer supports to families
• 75% agree/strongly agree that the program has improved their ability to recognize the needs of families and importance of family support
• 75% agree/strongly agree that the program has improved their ability to communicate & collaborate with families
• Evalua3on of family groups with support of quan3ta3ve & qualita3ve researchers
Key messages from evalua;on:
• Shiging from a medical model to recovery-‐based approach gave family members hope
• Ability to implement knowledge & strategies learned in group at home – self care, communica3on, recognizing rela3ve’s strengths
• For some families, group par3cipa3on led to a shig in their rela3ve. Rela3ve having hope that recovery is possible & a closer connec3on with family (very exci3ng!)
Family Group Outcomes
Unexpected Outcomes v Role with pa3ent rela3ons v ED staff educa3on
v Hospital focus group on the family experience facilitated by lead psychiatrist
v Community Engagement: Healing Happens Event
Next Steps
v Recovery educa3on of hospital clinicians v Educa3ng ED staff on working with families v It is our hope to develop peer support within the hospital
Family Member Experience
Elly Litvak, (Pronouns -‐ she, her, hers) Ph.D., TLE (The Lived Experience) Family Mental Health Naviga3on Coordinator CMHA Toronto, Family Outreach & Response Program In partnership with St. Joseph’s Health Centre 2333 Dundas St W, Suite 501 Toronto, ON M6R 1X6 Phone: (416) 539-‐9449 ext 225 [email protected]
Justean Lebel (pronouns she, her, hers) B.A., Hons, MSW Candidate Family Mental Health Recovery Navigator CMHA Toronto, Family Outreach & Response Program In partnership with St. Joseph's Health Centre 2333 Dundas St. W. Suite 501 Toronto, ON M6R 1X6 Phone: (416) 539-‐9449 ext. 228 [email protected]
Contact Us
QuesXons?
For more informa3on about this webinar series or the Family Caregiver CoI, please contact [email protected].
SAVE THE DATE
WEBINAR 2 – PERSPECTIVES ON FAMILY CAREGIVER PEER SUPPORT: • Family Members and Supporters as Clients
from a Recovery Perspec3ve • Family Peer Support in a First Episode
Psychosis Clinic • Family Peer Support: A Rural Perspec3ve
MARCH 29TH 12-‐1:30 PM STAY TUNED FOR REGISTRATION!