fall2006newsletter

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By Ehud Yairi, Ph.D., University of Illinois A person’s stuttering is not random. Linguistic factors have been consid- ered relevant to stuttering especially since early research (Brown, 1937, 1945) demonstrated their strong influ- ence on the occurrence of stuttering events, or “moments of stuttering,” in specific locations of the speech stream (e.g., the beginning of sentences and phrases) and in words of certain grammatical classes (e.g., verbs and ad- jectives). The link between stuttering and language is es- pecially intuitive in young children. Several scholars have noted that stuttering onset, typical- ly between ages 2 and 4, coincides with the critical period of accelerated expansion in children’s expressive and receptive language (Levina, 1963; Yairi, 1983, Ratner, 1997). Thirty years ago, Cheverkeva (1977) proposed that stut- tering is basically a disorder of lan- guage development, an idea recently echoed by Bloodstein (2002). The possible stuttering-language link has become a focus of scientific inter- est, reflected in several stuttering mod- els with psycholinguistic viewpoints. Among these are the Demands-Capac- ity Model (Starkweather, 1987), the Covert-Repair Hypothesis (Postma & Kolk, 1993), the Trade-Off Hypothesis A Nonprofit Organization Since 1947. .. Helping Those Who Stutter www.stutteringhelp.org 1-800-992-9392 www.tartamudez.org FALL 2006 T HE S TUTTERING F OUNDATION Inside... SFA at 5th World Congress . . . . 2 Speech/language processes . . . . 2 Journalists honored . . . . . . . . . . 3 Help for back-to-school season . 4 Workshops . . . . . . . . . . . . . . . 5, 9 Kids use art to express feelings . 6 Teen speaks out . . . . . . . . . . . . . 7 News from Russia . . . . . . . . . . . 9 T he Stuttering Foundation and the Michael Palin Centre for Stammering Children have joined forces in a groundbreaking al- liance to help children who stutter through research, treatment and training programs. The Michael Palin Centre, based in Lon- don, England, is widely considered one of the premier treatment cen- ters in the world for child- hood stuttering; and it is active in research and the training of speech-lan- guage therapists. While the Centre is based in London, it provides treatment for children as well as training for therapists from all over the United Kingdom. The Memphis-based Stuttering Foundation is one of the leading U.S.-based nonprofit organizations dedicated to the prevention and treatment of stuttering. Its publica- tions reach people in more than 100 countries each year, and it is also active in training speech lan- guage pathologists by sponsoring training courses for those who spe- cialize in stuttering. More than 800 therapists have participated in SFA workshops dur- ing the past 20 years, including 145 from 32 countries around the world. However, this will be the first direct involvement of the Stut- tering Foundation in a treatment program. “We are very excited at the prospect of working togeth- er with SFA to promote and provide a first class service for children and young adults who stammer,” said Frances Cook, M.Sc., manag- er of the Michael Palin Centre. “This partnership be- tween our two orga- nizations will combine our strengths and serve to benefit our clients and therapists on both sides of the Atlantic.” “The alliance of the two organi- zations makes perfect sense,” said Jane Fraser, president of the Stut- tering Foundation. “The Palin Cen- tre’s top-notch treatment facility means hope for thousands of chil- dren who stutter and for some time now has provided an essential training ground for researchers and clinicians.” The Michael Palin Centre for Stammering Children was official- ly opened in 1993. British comedi- an Michael Palin agreed to the cen- ter being named after him following Ehud Yairi, Ph.D. Is language a risk factor in stuttering? Geneticist Dennis Drayna joins SFA board Dennis Drayna,Ph.D., has joined the SFA Board of Directors. Dr. Drayna received his B.A. from the University of Wisconsin in 1976, and his Ph.D. from Harvard Univer- sity in 1981. Internationally recog- nized for his work in ge- netics, he currently serves as Section Chief in the Na- tional Institute on Deafness and Other Communication Disorders, NIH, where he pursues studies on the genet- ics of human communication disorders. Drayna Continued on page 3 Continued on page 8 Transatlantic alliance will help researchers, clinicians and children

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  • www.stutteringhelp.org 1-800-992-9392 www.tartamudez.org T HE S TUTTERING F OUNDATION A Nonprofit Organization FA L L 2 0 0 6 Since 19 47. .. Helping Those Who Stutter Is language a risk Transatlantic alliance will helpfactor in stuttering? researchers, clinicians and childrenBy Ehud Yairi, Ph.D., T he Stuttering Foundation and world. However, this will be theUniversity of Illinois the Michael Palin Centre for first direct involvement of the Stut- A persons stuttering is not random. Stammering Children have tering Foundation in a treatmentLinguistic factors have been consid- joined forces in a groundbreaking al- program.ered relevant to stuttering especially liance to help children who stutter We are very excited at thesince early research (Brown, 1937, through research, treatment prospect of working togeth-1945) demonstrated their strong influ- and training programs. er with SFA to promoteence on the occurrence of stuttering The Michael Palin and provide a firstevents, or moments of stuttering, in Centre, based in Lon- class service forspecific locations of the speech stream don, England, is c h i l dr e n an d(e.g., the beginning widely considered y o u ng a du l t sof sentences and one of the premier who stammer,phrases) and in treatment cen- said Franceswords of certain ters in Cook,grammatical classes t h e M.Sc.,(e.g., verbs and ad- world manag-jectives). The link for child- er of thebetween stuttering hood stuttering; Michael Palinand language is es- and it is active in Centre. Thispecially intuitive in research and the partnership be-young children. Ehud Yairi, Ph.D. training of speech-lan- tween our two orga-Several scholars guage therapists. While nizations will combinehave noted that stuttering onset, typical- the Centre is based in London, our strengths and serve toly between ages 2 and 4, coincides it provides treatment for children as benefit our clients and therapists onwith the critical period of accelerated well as training for therapists from all both sides of the Atlantic.expansion in childrens expressive and over the United Kingdom. The alliance of the two organi-receptive language (Levina, 1963; Yairi, The Memphis-based Stuttering zations makes perfect sense, said1983, Ratner, 1997). Thirty years ago, Foundation is one of the leading Jane Fraser, president of the Stut-Cheverkeva (1977) proposed that stut- U.S.-based nonprofit organizations tering Foundation. The Palin Cen-tering is basically a disorder of lan- dedicated to the prevention and tres top-notch treatment facilityguage development, an idea recently treatment of stuttering. Its publica- means hope for thousands of chil-echoed by Bloodstein (2002). tions reach people in more than dren who stutter and for some time The possible stuttering-language link 100 countries each year, and it is now has provided an essentialhas become a focus of scientific inter- also active in training speech lan- training ground for researchers andest, reflected in several stuttering mod- guage pathologists by sponsoring clinicians.els with psycholinguistic viewpoints. training courses for those who spe- The Michael Palin Centre forAmong these are the Demands-Capac- cialize in stuttering.ity Model (Starkweather, 1987), the Stammering Children was official- More than 800 therapists have ly opened in 1993. British comedi-Covert-Repair Hypothesis (Postma & participated in SFA workshops dur-Kolk, 1993), the Trade-Off Hypothesis an Michael Palin agreed to the cen- ing the past 20 years, including ter being named after him following Continued on page 8 145 from 32 countries around the Continued on page 3 Inside... Geneticist Dennis Drayna joins SFA board SFA at 5th World Congress . . . . 2 Dennis Drayna,Ph.D., nized for his work in ge- Speech/language processes . . . . 2 has joined the SFA Board netics, he currently serves Journalists honored . . . . . . . . . . 3 of Directors. as Section Chief in the Na- Help for back-to-school season . 4 Dr. Drayna received his tional Institute on Deafness Workshops . . . . . . . . . . . . . . . 5, 9 B.A. from the University of and Other Communication Kids use art to express feelings . 6 Wisconsin in 1976, and his Disorders, NIH, where he Teen speaks out . . . . . . . . . . . . . 7 Ph.D. from Harvard Univer- pursues studies on the genet- News from Russia . . . . . . . . . . . 9 sity in 1981. ics of human communication Internationally recog- disorders. Drayna
  • 2 www.stutteringhelp.org 1-800-992-9392New windows SFA at 5th World Congresson the onset Workshop specialists of stuttering meet World Congress of the In- again in Dublin he 5thDublin conference brings Tternational Fluency Association was held at Trinity College in Dublin, researchers together Ireland, July 25-28, 2006. It brought to-By Anne Smith, Ph.D., gether more than 300 people, many ofPurdue University them experts in the field of stuttering. In July of this year, I was honored Participants came from 34 countriesto be a keynote speaker at the meet- around the world and more than 15 per- JoAnne Wilding, Canada; Peter Tonev, Bul-ing of International Fluency Associ- cent of all participants had attended garia; Beatriz de Touzet, Argentina; Lisa Av- ery, Canada; Merethe Moerk, Norway; Steenation in the wonderful city of Dublin, the Stuttering Foundation/Northwest- Fibiger, Denmark; Jane Fraser, U.S.A.; Yu-Ireland. In my talk, Physiological ern/Iowa Workshop for Specialists! lia Filatova, Russia; Anne-Marie Simon,Indices of Speech This group met for several photos in France; David Shapiro, U.S.A. Florence-and Language Pro- honor of Dr. Hugo Gregory who direct- Juillerat, Switzerland.cesses: New Win- ed the Northwestern Workshopdows on the Onset for 16 years. of Stuttering inYoung Children,I reviewed someof the accomplish-ments of the Pur-due Stuttering Pro-ject and outlined Anne Smith, Ph.D.our ongoing re-search studies. Here are some of thehighlights from that talk: Blanca Gonzalez, SFA founder Malcolm At Dublin Castle opening reception, Joe Spain . Frasers granddaugh- First, to let you know our point of Fulcher, U.S.A.; Beatriz deTouzet, Ar- ter Celia Gruss, France,view about stuttering Despite the gentina; Peter Tonev, Bulgaria; Jane Fras- and Yulia Filatova, Rus-diversity of the disorder in different er, U.S.A.; and Ma Carme Junca, and sia, at Dublin Castle.people who stutter, all individuals Marina Llobera, Spain.who stutter exhibit breakdowns in themotor processes necessary for speak-ing. The factors that influence these Ruth Ezrati, Israel; and Claudia Furquim debreakdowns in speech are complex. Andrade, Brazil; andWe have proposed that a complete Isabella Reichel, U.S.A. Suzana Jelcic Jaksic,model of stuttering must incorporate Croatia.motor, linguistic, cognitive, psychoso-cial, and genetic factors, and that themodel must explain how these factorsinteract during childhood to producethe disruptions in speech that makesone a person who stutters. What we know from studies ofadults who stutter Much of ourearlier work on the Purdue Stutter- Joseph Nsubuga,ing Project was focused on adults Uganda; Janewho stutter. These studies were es- Fraser; and Yukisential to establish what the physio- Hara, Japan. Front row: Lisa Avery, Canada; Simona Bernardini, Italy; Jane Fraser; and Massim-logical bases of the disorder are in in- iliano Marchiori, Italy. Back row: Suzanadividuals with chronic stuttering. Jelcic Jaksic, Croatia; JoAnne Wilding,Our findings, in addition to those Canada; Isis Meira, Brazil; Beatriz de Touzet,from many other research groups, Argentina; Peter Tonev, Bulgaria; Merethemapped the differences in speech Moerk, Norway; Steen Fibiger, Denmark;movement and muscle activity that Anne-Marie Simon, France; David Shapiro,occur during disfluent speech in the U.S.A; Florence Juillerat, Switzerland andface, voice, and breathing areas. We Mirjana Lasan, Croatia.also looked at language processingin adults who stutter when they are Continued on page 4 Joseph Agius, Malta, at the SFA booth.
  • FA L L 2 0 0 6 1-800-992-9392 3Quality journalism honored Childhood For the 15th year, the Stuttering article gave read- stuttering part ofFoundation recognizes excellence in ers the tools theynews reporting. need to identify The 2006 Media Awards go to five stuttering in young U.S. Congressman Frank R. Wolfdistinguished journalists. children and offers of Virginia read the article about Each winning entry successfully useful advice on Tiger Woodsenhanced public understanding of how to improve from the summerthis complex speech disorder during fluency. newsletter andthe past year. Culp Mildred L. Culp submitted re- Journalists in a variety of media took first place for marks to thehave done an outstanding job of her nationally syndicated column Congressionalfocusing on the causes and treat- Workwise. In her inspirational col- Record to drawment of stuttering over the past umn, Dr. Culp explained how peo- attention toyear, said Jane Fraser, president of ple who stutter can childhoodthe 59-year-old nonprofit founda- make it in the stuttering.tion. We were particularly pleased workplace. On June 20, this year to see in- Joy ce L a i n the congress- creased focus on Kennedy earned man said, Mr stuttering in the second place. Her Speaker, I rise to- workplace, an area nationally syndi- day to bring the at- Wolf thats previously cated column Ca- t en t i o n o f t h e not received much reers Now helped House to an article I recently read attention. a reader who stut- Kennedy about Tiger Woods in the Stutter- T. Grant Fitch ters prepare for a job interview. ing Foundations summer newslet- of the Post-Tri- In t h e t el ev i s i o n cat eg o ry, ter. I stuttered as a child and I think Fitch bune, Merrillville, Janelle Wolfe of Comcast Tonight, its important for kids to know that Ind., received first Reading, Pa., re- they can overcome this complexplace in the daily newspaper cate- ceived first place disorder. Tiger Woods is an excel-gory for Saving stutterers. The for a lively seg- lent example of the many peoplearticle provided readers with time- ment feat u ri n g who have led successful lives de-ly information that parents can use speech-language spite struggling with stuttering asto help their children overcome pathologist Joseph a child. stuttering, includ- Donaher of Chil-ing taking advan- drens Hospital oftage of resources Philadelphia and Wolfeoffered by their lo- the DVD Stutter- Transatlantic Continued from front pagecal schools. ing: For Kids, By Kids. Donaher Dorothy P. and Wolfe shared timely resources his role in A Fish Called Wanda, inDougherty, for children who stutter. which he portrayed a characterArchives of Pedi- The awards were announced dur- called Ken who stuttered. He basedatrics & Adoles- ing Stuttering Awareness Week, the role on his own father who suf-cent Medicine Dougherty May 8-14. 20/20s co-anchor John fered from stuttering all his life.earned first place Stossel led this years awareness Palin is best known for his comicfor magazine articles. Doughertys campaign. roles as part of the Monty Python comedy group. Speaking wasnt always easy for Damon New York Daily News writer Antho-ny McCarron inspired people of all ageswith a July article that told of Yankeesoutfielder Johnny Damon and stuttering. ...speaking didnt used to be soeasy for Damon. For several years asa child, he stuttered so badly he wasafraid to introduce himself. Some-times, there was cruel teasing fromother kids, McCarron wrote. My mind was going a thousand and got better, recalled Damon, who Diana de Grunwald, Willie Botterill andmiles an hour and my mouth would started speech therapy in second grade. Frances Cook of the Michael Palin Cen-say whatever came to it. I slowed down, A link to the complete article is at tre for Stammering Children with Janetook my time, connected my words www.stutteringhelp.org. Fraser of the Stuttering Foundation.
  • 4 www.stutteringhelp.org 1-800-992-9392Rabinowitzs podcast Help for back-to-school season World-renowned wildlife conserva-tionist Alan Rabinowitz has been lead- With school back in session, the Stut- Recently, it was featured in Teach-ing the fight to tering Foundation offers materials that ing Pre K-8, on several Web sites andsave tigers in are helpful for teachers and students. in a number of other publications.the remote Stuttering: For Kids, By Kids is a Complete with handbook, thisHukaung Val- 12-minute DVD that features an an- DVD helps answer common ques-ley in northern- imated basketball speaking with chil- tions educators may have when teach-most Mynmar. dren of various ages ing a child who stutters. Now, you about their stuttering. By presenting acan listen to all Brooklyn-based range of perspectives,of the details speech pathologist Peter Stuttering: Straight Talkof Alans fascinating journey on a Reitzes, M.A., lets his for Teachers can build apodcast at www.audible.com/tiger- students bring friends to shared dialog and a strongman. There is also a link directly to his view the video with. He educational partnershippodcast at www.stutteringhelp.org. provides doughnuts and that includes the thera- Rabinowitz has previously said milk for the party. pist, teachers, parents andstruggling with stuttering helped During and after the student, writes reviewershape his life. A DVD of an inspirational keynote video, Reitzes keeps an MaryAnn Byrnes, Ed.D.,address by Rabinowitz is also avail- open discussion with students of top- University of Massachusetts, Boston.able from the Foundation. ics discussed on the video such as She adds shell be recommending it to what is stuttering?, does stuttering her colleagues in schools. bother you?, is stuttering a big deal Both videos can be ordered in VHS for you?, teasing, talking open- and DVD. They are also available as Translation for ly about stuttering, and advice for free streaming video at www.stut- Russian teachers children who go to speech therapy. After watching the video, he asks teringhelp.org. Notes to the Teacher brochure is Vyatcheslav V. Lep- each student to write down two things another great resource. It answerstyukhov, author of the they liked or learned from the film. questions educators may have andWeb site www.stut- He then collects the responses and includes 9 Tips for Talking With thetering.ru, is translat- reads them aloud. Child Who Stutters.ing Stuttering: Stuttering: Straight Talk for Teach- Visit www.stutteringhelp.org to seeStraight Talk for ers is another popular DVD that has these products or call toll-free 800-Teachers handbook received nationwide attention. 992-9392. into Russian. Web conference to Windows Continued from page 2 support the later years!). We know from earlier researchexplore stuttering not speaking. One surprising finding that approximately half of the chil- was that when adults who stutter are dren who are stuttering at 4-5 In October individuals interested in reading, their brains are processingstuttering, professional therapists as years, will persist and have a some aspects of language very differ- chronic stuttering problem, whilewell as clients and their ently compared to control partici-support persons, will approximately half of these chil- pants who do not stutter. dren will recover. By using newdiscuss this much mis- What we are doing now Weunderstood speech dis- experimental windows on how all know that stuttering starts in veryorder in one of the young children. Over the past five y o u n g b rai n s a re d ev el o pi n glargest professional con- years, we have been developing speech, we hope to develop meth-ferences of the year. But ods by which we can predict whichnot face-to-face this ways to gather the same physiolog- ical measures from young children. children are likely to have a chron-conference is freely- ic stuttering problem. In additionavailable on the Internet. By adapting our methods and mak- ing them kid friendly, we have been we will attempt to determine the The ninth annual International Stut- factors that play a critical role intering Online Conference runs from able to test children as young as four. In the current phase of the Pur- the development of chronic stut-October 1-22 at the Stuttering Home tering so that better therapies forPage, www.stutteringhomepage.com. due Stuttering Project, we are bring- Conference presentations are posted ing in a group of 50 children who young children will be available. stutter ages 4-5 years. We plan to test Thanks to the National Institute on Deaf-for reading on the web site. Presenta- ness and Other Communicative Disorderstions are designed for a general audi- these children and a matched group and to the Malcolm Fraser Foundation forence, and feedback and discussion is in- of non-stuttering children over a their support of the Purdue Stuttering Pro-vited through an Internet bulletin board. five-year period (please note that ject, which is co-directed by Anne Smith, Past conferences have drawn par- the NIH, because of budget re- Ph.D., and Christine Weber-Fox, Ph.D. Itticipation from more than 130 differ- straints, only gave us 3 years of has been exploring new frontiers in theent countries around the world. funding , and we hope to get them to physiology of stuttering since 1989.
  • FA L L 2 0 0 6 1-800-992-9392 5Workshop enriching, engrossing, enlightening In June, Childrens Hospital ofPhiladelphia (CHOP), Florida StateUniversity, and the Stuttering Foun-dation co-sponsored the first Mid-Atlantic Workshop in Philadelphia. Twenty-one speech-languagepathologists from California, Illi-nois, Kentucky, Maryland, Okla-homa, New Jersey, New York, Penn-sylvania, South Dakota, Virginia,Canada, and South Africa met June21-25 on the CHOP campus to learnhow to assess and treat preschool-ers, school-age children, and adoles-cents who stutter. The workshop was led by co-instruc-tors Joe Donaher, Childrens Hospitalof Philadelphia; Kristin Chmela, private Front row (seated): Lisa Scott, Kristin Chmela, Jane Fraser, Joe Donaher; Second row:practice, Long Grove, Ill.; and Lisa Kate Eichstadt, Brett Kluetz, Anne Marie Wagener, Astrid Cordero, Lonnie Harris, Rox-Scott, Florida State University. anne Fleck, Joanne Summer, Terri Hessler, Jennifer Kleinow, Jim Mancinelli, Diedre Den- The goals of the workshop were nis, Lori-Ann Acenas Mauricio, Carol Ellis, Kris Kelley, Lori Graca Griffin; Back row:to increase participants skills and Kris Baines, Stacey Simpson, Dina Lilian, Steffi Schopick, Carolyn Belle, and Maya Brown.confidence in communicating ef-fectively with children, diagnosethe extent and severity of the disor-der, develop appropriate treatmentplans, design meaningful therapyactivities, and learn to model bothfluency shaping and stuttering mod-ification tools. Emphasis was placed on creatingrelationships with children, families,and teachers that would facilitate the A time to talk about caseloads and network is part of the conference. Participants watch a video of a therapygreatest success for children who are session.working to improve their communi-cation skills. Learning opportunities Dr. Judyincluded traditional lectures, guided Gravel andcase planning, daily small-group Joe Donaherpractice of the various clinical and re- of thelationship skills, and watching video- Childrens Hospital oftapes of therapy sessions. Philadelphia. The participants and instructors allagreed that the workshop was a greatsuccess. We were so thrilled to haveso many clinicians from a variety of Jennifer Kleinow, LaSalle University; Kriswork settings devote a week of their Baines, California; and Brett Kluetz, Balti-summer to learning more about stut- more, share ideas.tering, said Kristin Chmela. Maya Brown, ucation experience of my profes- Nova Scotia, Joe Donaher was especially en- Canada, andthused about hosting so many indi- sional career. Thank you for making Lonnie Har-viduals interested in helping children it possible! ris, Kentucky.who stutter, saying that The dedica- James Mancinelli of La Salle Uni-tion of these SLPs to helping kids is versity said, My experience at theinspirational. Many children will ben- 2006 Mid-Atlantic Workshop wasefit from the talents and interest of enriching, engrossing, enlightening, ists held at the University of Iowa.these individuals. and certainly enticed me to learn For applications or more informa- Feedback from workshop partic- more about stuttering and ways to tion, contact the Stuttering Founda-ipants was outstanding, and includ- better serve people who stutter. tion at 1-800-992-9392, downloaded comments such as I really think Additional five-day workshops are applications on the web at www.stut-this week will stand out as perhaps being planned for Summer 2007, as well teringhelp.org, or email info@stutter-the most significant continuing ed- as the two-week Workshop for Special- inghelp.org.
  • 6 www.stutteringhelp.org 1-800-992-9392 Dear SFA: Reader Response Send letters to SFA, P.O. Box 11749, Memphis, TN 38111-0749 or email [email protected] on stuttering Greetings from overseas Wonderful Web siteDear SFA, Dear SFA, Hi my name is Alicia and Im 13 I want to thank you for creating ayears old. Ive been stuttering since I wonderful Web site that helps peoplewas 5 years old. Im from Virginia with their stuttering. I have been stut-Beach, Va. Here is a poem I wrote: tering ever since kindergarten and The Stuttering Ways now I am in high school. By Alicia Ive had great speech teachers. I Coming home, covered in tears had hard-talking stuttering from age Life swept away by fear 4 to age 10. Now my speech is clear- Cant even say my name ing up slowly. To worried about playing games It really hurts me that I cant talk Friends and Family Day in Mauritius. like other students. Youre always put on the spot Dear SFA: I just want to say I do not feel badPretending to be someone youre not I would like to thank you for all the about stuttering. Avoiding words that you cant say materials I have received in good or- Jonathan, 14 Is getting worse day by day der. I have added them to our library so Greenville, Miss. What is happening to my brain? that every member of Parole dEspoir It causes so much pain can use them. I am also glad to in- Mission to Togo Trying to give a class presentation clude a photo of our group which was Just ruins your reputation taken during Friends and Family Day. Trying to do something new Jim Caroopen Is hard while kids are teasing you Mauritius Always fluent when singing Never while mingling Fan of James Earl Jones Never press hardly Dear SFA, Always try to touch lightly I really like your newsletter and brochures that you I went to Togo on behalf of the ISA Speech is like a river flowing have about stuttering. Until a rock falls in and keeps it to give conferences on stuttering and The brochure that train students of the first generation of from going tells different facts speech therapists in West and Central Ill never be a lawyer or vet about stuttering is Africa. I am happy to announce the Ill deserve more than what Ill get great. I did not know Togolese Stutterers Association wasWhy did this have to happen to me? that so many people created in June 06 in Lom.Cant you see that it isnt easy being stuttered. James Earl James Earl Anne Marie Simon like me? Jones is my favorite. Jones Paris Take a walk in my shoes for a day Damarius Editors note: Anne Marie attended the SFA/NU Workshop for Specialists in 1988 and carries the Would you want to live my way? Greenville, Miss. torch worldwide. A pictures worth... The artwork at the left is by Bryce, 8, Amagansett, N.Y., who wrote, When I talk, a really mean monster sneaks up on me and shoves a rock in my throat. Everything gets tight and I cant talk. Tne more rocks begin coming up. I sometimes get scared and want to run away. My speech teacher has taught me ways to help when this happens. I take a deep breath and stretch out the begin- nings of my words and sentences and then I spit up the rocks! Then I feel much better and I can talk again. I also Above: Gage, 10, writes, My stutter try not to speak too fast when I get is a car driving on a bumpy road. mad or excited. If you try really hard, you can get the monster and stuttering Do you have artwork to share? You to go away too. can e-mail it to [email protected].
  • FA L L 2 0 0 6 1-800-992-9392 7Singer Withers overcame stuttering While Bill Withers has long been My Love and Who Is He (And Who Ison the SFA list of Famous People He to You). However, it is the classicWho Stutter, many people proba- song Lean On Me, which is most re-bly didnt realize he stuttered. membered, topping the Billboard Hot The April/May 2006 issue of the 100 charts for three weeks in July 1972magazine Waxpoet- in addition to topping the R & B charts.ics sheds some light Between 1972 and 1979, Witherson the brilliant career put out five albums. In 1981, heof the famed singer teamed up with saxophonist Groverand songwriter. Washington Jr., both writing and per- Daniel Altman is interviewed by WAVE 3 Born in 1938 in forming lead vocals on Washingtons TV News.Slab Fork, W.V., hit Just the Two of Us, which spentWithers was theyoungest of six chil- Withers three weeks at number two. Just the Two of Us garnered him Teen speaks outdren. When his fatherdied when Withers was small, he was four Grammy nominations that year. In 1987, Withers received his ninth about stutteringraised by his mother and grandmother, Grammy nomination and won his third Daniel Altman, 13, decided toboth of whom worked as domestics. Grammy award on account of Club make stuttering awareness the focus Not motivated in school and strug- Nouveau covering Lean On Me and of the community service project forgling with stuttering, Withers taking it to number one on the Bill- his upcoming bar mitzvah. His goaldropped out after ninth grade, later to board charts. It marked the fifth time is to tell as many people as possiblejoin the Navy. It was in the Navy in the rock era that a song had reached in the Louisville, Ky., area that stut-that for the first time he was able re- number one by two different artists. tering is nothing to be ashamed of.ceive adequate speech therapy. In this case, it was the first time that Daniel took his campaign to The article in Waxpoetics lists, both artists who recorded the song Louisville Mayor Jerry Abramson,...his chronic stutter as one of the were African-American. Withers who issued a proclamation declar-possible reasons he stayed in the ser- songs have been recorded over the ing the Week of May 8 as Stutteringvice for so long, because he used the last 36 years by hundreds of artists, Awareness Week in Louisville andtime to become comfortable with such as Barbra Stresiand, Michael Southern Indiana.speech and gain self-confidence. Jackson, Aretha Franklin, Sting, The teenager also hung this years After his hitch in the Navy, With- Temptations, Paul McCartney, Tom Stuttering Awareness Week poster fea-ers worked in jobs ranging from air- Jones, Joe Cocker and Mick Jagger. turing 20/20s John Stossel around town.craft repairman to milkman. Finally Some articles from past decades Daniel wants to place stutteringin 1967, at age 29, he decided to pur- credit the newfound fluency that With- resource materials in every public li-sue his interest in music. ers received from his speech therapy brary in Louisville before his bar The famed Booker T. Jones pro- in the Navy as giving him the confi- mitzvah, which is on Nov. 4.duced his first album, Just As I Am, dence to pursue a career in music. In order to further his efforts,which was recorded with the MGs Unlike many other artists, Withers Daniel wrote local TV and radio sta-as the backing band along with was able to retain much of his song- tions asking them to publicize stutter-Stephen Stills. Ironically, the lead sin- writing and publishing rights. Lean ing awareness week.gle Harlem failed to chart, but its B- On Me alone is said to have turned At least one local station, WAVE 3,side, Aint No Sunshine went gold. into a multi-million dollar goldmine featured Daniel and his efforts onThe song also catapulted Withers to over the years with use in movies their newscast and Web site.stardom in the music world, as he won and advertisements, as well as ex- Daniel knows firsthand how diffi-his first Grammy as a songwriter. tensive radio play. cult stuttering can be. But he told the Withers follow-up album Still Bill He hopes to soon release his first NBC station he doesnt try to hide ityielded hits such as Use Me, Kissing album of new material since 1985. when others try to embarrass him. I just kind of lay it out I stut- ter and I dont appreciate it that youWoolwine takes her message on the road make fun of me. Please stop. Eva Woolwine, who ran for Miss requests and invitations to speak and Daniels efforts are especially forKansas this summer, is taking time perform, she said. other kids who are not yet braveoff from pageants I have been going everywhere: enough to take a stand.to focus on college, civic groups, senior citizen groups, Its a sad thing, which is why Iand stuttering classrooms, Retired Teachers Asso- need to further educate people so thatawareness. ciation of Kansas. I have many more people wont have to cower inside Woolwine, who coming up in the fall. corners. People can feel more com-also performs mag- Woolwine has served as junior fortable about who they are, he toldic tricks, says shes spokesperson for the SFA and partic- the Louisville station.been very busy. ipated in last years National Associ- In addition to the on-air segment, This summer I ation of Young People Who Stutter: reporter Lori Lyle provided links tohave received more Woolwine Friends Convention. resources online.
  • 8 www.stutteringhelp.org 1-800-992-9392Ehud Continued from front page ency) and that recovery from stuttering sistency or recovery. would occur as these children reduce In summary, although we believe that(Ratner, 1997) and the Cognitive Inter- their early accelerated rate of language associations between stuttering and sev-ference Model (Bosshardt, 2002). Inves- development. If our findings are valid, eral linguistic variables do exist, so far notigators have focused their studies on they will have important clinical impli- clear causal relations have been estab-five distinct linguistic variables: (a) cations for parent counseling and thera- lished, and there is no consensus on theirphonological aspects, (b) loci of stutter- py programs. precise role or contributions as risk fac-ing, (c) language complexity, (d) prag- To be sure, there is no consensus at this tors for the onset of stuttering and itsmatics (childs use of language), and (e) juncture concerning advanced language persistence, or their influence on naturallanguage skills. For example, research skills as a risk factor in early childhood recovery. This and several other aspectsconcerned with the first variable listed stuttering. Recently, a few studies report- of the stuttering-language connectionabove has provided evidence that stut- ed some results that differ from the Illi- continue to be the subject of scientific dis-tering is increased as a function of lan- nois findings. These studies, however, cussions and controversies (Nippold,guage complexity (Logan & Conture, 2004; Wingate, 2001). Fortunately, it has1995, Zackheim & Conture, 2003). ... high language attracted very rich and varied research ac- Regarding language as risk factor, tivities, the fruits of which should signif-perhaps most interesting to clinicians skills rather than icantly enhance our understanding andand parents has been a relatively long- low ones might treatment of stuttering.standing view that stuttering children be a risk factor REFERENCESare more likely than normally speaking Anderson, J., & Conture, E. (2000). Language abilities ofpeers to have language learning diffi- for stuttering, children who stutter: A preliminary study. Journal of Fluen- cy Disorders, 25, 283-304.culties or impairments (see reviews by particularly for Andrews, G., Craig, A., Feyer, A., Hoddinott, S., Howie, P., & Neilson, M. (1983). Stuttering: A review of researchAndrews, et al., 1983, and Ratner, 1997). persistent, chronic findings and theories circa 1982. Journal of Speech and Hear- ing Disorders, 48, 226-246.A few current articles continue to prop-agate this view (Arndt & Healey, 2001; stuttering. Arndt, J., & Healey, C. (2001). Concomitant disorders in school-age children who stutter. Language, Speech and Hear- ing Services in Schools, 32, 68-78.Wingate, 2001). On the other hand, over Blood, G., Ridenour, V. J., Qualls, C. D., & Hammer, C. S.the past 15 years, extensive longitudinal raise questions concerning their methods. (2003). Co-occurring disorders in children who stutter. Journal of Communication Disorders, 36, 427-448.studies at the University of Illinois Stut- For example, Anderson and Conture Bloodstein, O. (2002). Early stuttering as a type of lan- guage difficulty. Journal of Fluency Disorders, 27, 163-167.tering Research Program have revealed (2000) noted that although all their par- Bosshardt, H. (2002). Effects of concurrent cognitive pro-no delayed language development in ticipants had language abilities at or above cessing on the fluency of word repetition: Comparison between persons who do and do not stutter. Journal of Fluency Dis-young children who stutter. To the con- normal limits, the stuttering children still orders, 27, 93-114.trary, we have found that near onset they demonstrated somewhat lower skills in Brown, S. (1937). The influence of grammatical function on the incidence of stuttering. Journal of Speech Disorders,fall within normal range; in fact, often certain areas than normally speaking 3, 223-230. Brown, S. (1945). The locus of stuttering in the speech se-well above normal (Watkins, Yairi & peers. Watkins and Johnson (2004), how- quence. Journal of Speech Disorders, 10, 181-192.Ambrose, 1999). Recent research in oth- ever, pointed out that in many past stud- Chevekeva, N. (1967). About methods of overcoming stuttering: A survey of the literature. Spetsial Shkola, 3, 9-15.er laboratories in the U.S.A. and Eu- ies reporting lower language skills in Hge, A. (2001). Knnen kognitive und linguistischerope supports this finding (Anderson & children who stutter, the comparison Fhigkeiten zur Verlaufsprognose kindlichen Stotterns beitra- gen? (Cognitive and linguistic abilities in young children: AreConture, 2000; Hge, 2001; Miles & groups of normally speaking subjects they able to predict the further development of stuttering?). Sprache Stimme Gehr, 25, 20-24.Ratner, 2001), which seems to agree were selected in biased ways, often com- Levina, R. (1966). Study and treatment of stammeringwith many parents reports that their ing from appreciably higher social groups children. In A. Dyachov (Ed.), Specialized Schools, 120, (4). Moscow: Education Publishing House. (Translation publishedchild had a spurt of language develop- known to have richer language. In con- in Journal of Learning Disabilities (1968), 1, 26-29.) Logan, K. & Conture, E. (1995). Relationships betweenment just prior to the onset of stuttering, trast, the Illinois studies addressed this length,grammatical complexity, rate, and fluency of conversation-speaking in longer sentences and using problem by comparing the performance al utterances in children who stutter. Journal of Fluency Disorders, 20, 35-61.new words. (They often say that his of the stuttering children to a much broad- Miles, S., & Ratner, N. B. (2001). Parental language in-brain seemed to be working faster than er base of well-established normative put to children at stuttering onset. Journal of Speech, Language and Hearing Research, 44, 1116-1130his mouth could manage.) Further- data. It is possible, however, that further Nippold, M. (2004). Phonological and language disorders in children who stutter: Impact on treatment consid-more, we have found that children who research with preschool children using erations. Clinical Linguistics and Phonetics, 18(2), 145-159.eventually persist in stuttering tend to per- more sensitive tools will reveal discrete Ratner, N. (1997). Stuttering: A psycholinguistic perspec- tive. In R. F. Curlee and G. M. Siegel (Eds.) Nature and Treat-form above normative expectations at the language differences between groups. ment of Stuttering: New Directions. Boston: Allyn & Bacon.early stage of stuttering and maintain Other examples of disagreement are seen Postma, A., & Kolk, H. (1993). The covert repair hypoth- esis: Prearticulatory repair in normal and stuttered disfluen-that level over time. Children who even- in studies with school aged children who cies. Journal of Speech and Hearing Research, 36, 472-487. Starkweather, W. (1987). Fluency and Stuttering. Engle-tually recover, however, tend to perform stutter reporting between 9 and 13% of wood Cliffs, NJ: Prentice-Hall.above normal at the early stage of the dis- the children to exhibit concomitant lan- Watkins, R. , & Johnson, B. (2004). Language abilities in young children who stutter: Toward improved research and clinical ap-order but approach the norm as they re- guage difficulties (Blood, Ridenhour, plications. Language, Speech and Hearing Services in Schools. Qualls, & Hammer, 2003). Keep in mind Watkins, R., Yairi, E., & Ambrose, N. (1999). Earlycover (Watkins et al., 1999, Yairi & Am- childhood stuttering III: Initial status of expressive languagebrose, 2005). Strangely, then, high lan- however, that by this age at least 75% of abilities. Journal of Speech, Language, and Hearing Re- search, 42, 1125-1135.guage skills rather than low ones might the original stuttering population had dis- Wingate, M. (2001). SLD is not stuttering. Journal ofbe a risk factor for stuttering, particular- appeared due to natural recovery. The Speech, Language, and Hearing Research, 44, 381-383. Yairi, E. (1983). The onset of stuttering in two- and three-ly for persistent, chronic stuttering. It is remaining (persistent) minority has been year-old children: A preliminary report. Journal of Speech and Hearing Disorders, 48, 171-177.intriguing to theorize that the emergence reported to possess some different genet- Yairi, E. & Ambrose, N. (2005). Early Childhood Stut-of stuttering involves some type of trade- ic components. All in all, at the present, tering. Austin: Pro Ed. Zackheim, C. & Conture, E. (2003). Childhood stutteringoff in linguistic resources (e.g., advanced language alone is insufficient for making and speech disfluencies in relation to childrens mean lengthlanguage at the expense of motoric flu- strong early predictions of eventual per- of utterance: A preliminary study. Journal of Fluency Disor- ders, 28, 115-142.
  • FA L L 2 0 0 6 1-800-992-9392 9School clinician conference gets high marks The Marriott Conference Centerin Lisle, Ill., was the setting for theStuttering Foundations annual con-ference for school clinicians, Stut-tering Therapy: Practical Ideas forthe School Clinician. Eighty-five people attended thisconference representing 13 states anda variety of employment settings, in-cluding schools, university clinics,and private practice. Participants heard presentations Conference leaders: Mary Mantilla, Ann McKeehan, Bill Murphy, Susan Hamilton, Jen-from Tricia Zebrowski, Charlie nifer Watson, Charles Healey, Kristin Chmela, Susan Cochrane, Carolyn Gregory,Healey, Peter Ramig, Bill Murphy, Kevin Eldridge, Elise Kaufman, Peter Ramig, and Lisa Scott.Lisa Scott, and Kristin Chmela ontopics such as current research inchildhood stuttering, practical strate-gies for therapy, functional methodsfor measuring progress, counselingchildren and their families aboutstuttering, treating children with con-comitant communication disorders,and dealing effectively with guiltand shame. New this year, guided practice ses- Time was set aside during the conference forsions were held in the main session attendees to share stories.room with guided practice leadersseated at each table. This created an The unique combination of pre- Several Watson and Carolyn Gregory. Back Jennifer 2006 conference leaders. Seated:intimate and personalized learning sentations balanced with small group row: Ann McKeehan, Susan M. Cochrane,environment that made discussion guided practice make this confer- Patricia Zebrowski, Jane Fraser, and Eliseand practice easy. Small group guid- ence one of the premier continuing S. Kaufman.ed practice leaders included Susan education opportunities available toCochrane, Kevin Eldridge, Susan school-based speech pathologists.Hamilton, Elise Kaufman, Mary Evaluations by attendees were con-Mantilla, Ann McKeehan, and Jen- sistently positive: This conferencenifer Watson. was a huge energizer for me. Proba- Presenters profiled children who bly the best Ive ever been to, Thisstutter through the use of video seg- conference was one of the most infor-ments and examples of child re- mational and inspirational ones Ivesponses. The audience responded been to, The hands-on discussionenthusiastically to these strategies groups were wonderful and were sowhich facilitated greater understand- helpful in being able to share anding. Many clinicians were happy to learn from others.have the opportunity to see tech- Another attendee remarked, Thisniques and ideas being demonstrat- conference has changed my perspec-ed as well as to ask questions of tive of my own abilities to help chil- New format makes it easier to exchange ideasleading experts in stuttering. dren and adults who stutter. during guided practice sessions. For Combined Federal Campaign Exciting news out of Russia donors, please note that our code For the first time ever, the SFA is in- and a more recent number for the 20062007 cluded in the Russian Journal of Spe- photo from the Iowa CFC campaign is cial Education. workshop. The article, by Yulia Filatova, tells Filatova, who re- CFC #2539. the history of the Foundation, describes sides in Moscow, We are proud that over 95 cents the workshops for specialists in stutter- also wrote a book of every dollar goes directly into ing, and outlines the SFAs outreaches. about cluttering that helping those who stutter. The article includes a picture of the will be published Foundations first conference in 1957 in the fall.
  • 12 www.stutteringhelp.org 1-800-992-9392 NEWSBRIEFS The Stuttering Foundation Five Day Eastern Workshop, Diagnosis and Treatment of Chil- Books on Stuttering or Related Topics Available from Bookstores: donations dren and Adolescents Who Stutter: Practical Our thanks to the University of Strategies, will be held at Boston University, Stuttering: An Integrated Approach to Its Nature and Cincinnati and Nova Southeastern June 20-24, 2007. Workshop leaders are Diane Treatment, Third Edition by Barry Guitar. 2006. Available University chapters of the National Parris, M.A., Sheryl Gottwald, Ph.D., and Adri- from Lippincott, Williams & Wilkins, 800-638-3030, Student Speech-Lan- ana DiGrande, M.A. with guest speaker Edward G. Conture, Ph.D. The Stuttering Foundation www.LWW.com guage-Hearing Asso- Stuttering Recovery Personal and Empirical Perspectives ciation for their recent pays all tuition costs as well as room and board by Dale F. Williams. 2006. Available from Lawrence Erl- for this exceptional in-depth workshop. gifts to the SFA. baum Associates, Mahwah, NJ, www.erlbaum.com The Stuttering Foundation Five Day West- Speech Therapy for the Severe Older Adolescent and The generous gift ern Workshop, Diagnosis and Treatment of Adult Stutterer: A Program for Change by George Helliesen. from the student Children and Adolescents Who Stutter: Prac- 2006. Available from Apollo Press, Newport News, VA, chapter at the Univer- tical Strategies, will be held at Portland State sity of Cincinnati will 800-683-9713, www.apollopress.com. University in Portland, Oregon, June 20-24, The Child and Adolescent Stuttering Treatment and Ac- help children who stutter. 2007. Workshop leaders are Susan Hamilton, M.A., Jennifer Watson, Ph.D., and Ellen tivity Resource Guide by Peter Ramig and Darrell Dodge. A student at Nova contributed $300 Reuler, M.A. The Stuttering Foundation pays 2005. Available from Thomson Delmar Learning, Clifton in honor of her fellow students. all tuition costs as well as room and board for this ex- Park, NY. I hope this will encourage others ceptional in-depth workshop. Early Childhood Stuttering: For Clinicians by Clini- to do the same, she wrote. The The Stuttering Foundation two-week Workshop for cians by Ehud Yairi and Nicoline Grinager Ambrose. Stuttering Foundation is certainly a 2005. Available from ProEd, Austin, TX and amazon.com. Specialists will be held at the University of Iowa, Iowa cause that NSSLHA students can City, Iowa, June 17-29, 2007, directed by Patricia Ze- Begaiement: Intervention preventive precoce chez le je- une enfant by Anne Marie Simon et al. 2005. Available from support and know that their gift is browski, Ph.D. and Toni Cilek, M.A. Guest speakers in- the Association Parole Begaiement, www.begaiement.org making a difference. clude Lisa Scott, Ph.D., and others to be announced. This unique workshop brings together speech-language pathol- Teach Me How To Say It Right, Helping Your Child With ogists from all over the world for its 18th year. As in the Articulation Problems by Dorothy P. Dougherty, M.A. five-day workshops, the Stuttering Foundation pays all 2005. Published by New Harbingers Publications, Oakland, tuition costs and room and board for the two weeks. CA. Available at www.newharbinger.com. Drug results promising The 2006 National British Stammering Associa- Troys Amazing Universe, by S. Kennedy Tosten. 2002. Indevus Pharmaceuticals an- tion (BSA) Conference will be held at the Telford Published by Brite Press. Order from www.TroysAmazingU- campus of the University of Wolverhampton, England, nounced the results niverse.com or amazon.com. A story about a seven year old Sept. 15-17, 2006. who stutters. of a Phase II trial The Annual Convention of Friends will be held in late The Strong Silent Type, by C. Kelly Robinson. A grip- for pagoclone in June or early July 2007 in St. Louis. For information and ping novel about a young NFL star coming to grips with stuttering and the registration, visit www.friendswhostutter.org or call his stuttering. Available from New American Library, New data were quite promising. 866-866-8335. York, and www.amazon.com. Indevus said it was very encour- First World Conference on Cluttering: Its about Experiencias para compatir entre padres e hijos by Ka- aged by the results of the trial on a time will be May 12-14, 2007, in Razlog, Bulgaria. rina Couselo Rios, Maria Marta Gebara and Mariela number of levels. Very importantly, The International Stuttering Association will hold the 8th Congress for People Who Stutter Ginhson. Order from [email protected]. the safety profile of pagoclone was May 6-10, 2007, in Dubrovnik, Croatia. Visit Stuttering Therapy: Rationale and Procedures by Hugo excellent, as it has been in previous H. Gregory, June H. Campbell, Diane G. Hill, and Carolyn trials, the drug company reported. www.isa.org. B. Gregory. Available from Allyn and Bacon, Boston, Dave Germeyer offers a repair service for the Ed- Indevus will be meeting with FDA MA; www.ablongman.com. 2003. inburgh Masker. Contact him via e-mail at dgerm- Les begaiements: Histoire, psychologie, evaluation, va- to define the pathway for further devel- [email protected], write G.D. Germeyer, 306 S. rietes, traitements by Anne Van Hout and Francoise Esti- opment of pagoclone for stuttering. Baltimore St., Dillsburg, PA 17019-1011, or call Stay tuned at www.stutteringhelp.org (717) 432-3103. enne. Published by Masson, S.A., 120 boulevard Saint Germain, 75280 Paris Cedex 06, France. for more information. LISTSERV for doctoral students specializing in stut- tering. The intent of this list is to serve as an open fo- Forty Years After Therapy: One Mans Story by George rum for doctoral students. Membership is limited to Helliesen, M.A. Available from Apollo Press, Inc., 1-800- 683-9713 or www.apollopress.com. The Stuttering Foundation of America is a tax- doctoral students only. To subscribe, send the follow- exempt organization under section 501(c)(3) of ing message to [email protected]: subscribe Understanding Stuttering by Nathan Lavid. 2003. Uni- the Internal Revenue Code and is classified as stutterdoc firstname lastname or contact Joe Donaher versity Press of Mississippi, Jackson, MS. Order from a private operating foundation as defined in at [email protected]. bookstores or amazon.com. section 4942(j)(3). Charitable contributions and For those interested in joining Toastmasters Inter- Programmed Stuttering Therapy for Children and Adults bequests to the Foundation are tax- national as a way to improve fluency, communication by Bruce Ryan, Ph.D. Available through publisher Charles deductible, subject to limitations under the Code. or public speaking skills, their address is: Toastmas- C. Thomas or online at www.amazon.com ters International, Inc., Attention: Membership De- Making a Difference for America Children: SLPs in the THE partment, P.O. Box 9052, Mission Viejo, CA 92690, Public Schools by Barbara Moore-Brown and Judy Mont- Telephone: (714) 858-8255; Fax: (714) 858-1207. gomery. Available from Thinking Publications, Eau Claire, STUTTERING WI. 715-832-2488. Ben Has Something To Say by Laurie Lears, illustrations FOUNDATIONYou can give online by Karen Ritz. A book for children ages 5-9. Albert Whit- A Nonprofit Organization Since 1947 Helping Those Who Stutter You can make a one-time donation or man & Co., Morton Grove, IL. 800-255-7675. 3100 Walnut Grove Road, Suite 603set up monthly and quarterly recurring Sharing the Journey: Lessons from my Students and P.O. Box 11749 Memphis, TN 38111-0749 Clients with Tangled Tongues by Lon Emerick, Ph.D., gifts by clicking on the Dona- available from North Country Publishing, 355 Heidtman tion tab or Make A Gift at 1-800-992-9392 1-800-967-7700 Road, Skandia, MI 49885, for $13.95 plus $2. postage and www.stutteringhelp.org. handling, call toll-free 1-866-942-7898; or from the Stut- www.stutteringhelp.org www.tartamudez.org You can donate with a credit card or tering Foundation at 800-992-9392. [email protected] checking account.