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Exploring Social Determinants of Health by Race and Ethnicity in Medicare using ACS-CMS Linked Data Shondelle Wilson-Frederick, PhD Statistician Office of Minority Health Centers for Medicare & Medicaid Services Sharon R. Ennis, MS Statistician Data Governance and Analytics Department of Veterans Affairs ACS Data Users Conference, Washington DC| Using the ACS to Study Racial, Ethnic, and Geographic Variations in Health | May 14, 2019

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Page 1: Exploring Social Determinants of Health by Race and ... · Ethnicity in Medicare using ACS -CMS Linked Data . Shondelle Wilson-Frederick, PhD. Statistician . Office of Minority Health

Exploring Social Determinants of Health by Race and Ethnicity in Medicare using ACS-CMS Linked Data

Shondelle Wilson-Frederick, PhDStatistician

Office of Minority HealthCenters for Medicare & Medicaid Services

Sharon R. Ennis, MSStatistician

Data Governance and Analytics Department of Veterans Affairs

ACS Data Users Conference, Washington DC| Using the ACS to Study Racial, Ethnic, and Geographic Variations in Health | May 14, 2019

Page 2: Exploring Social Determinants of Health by Race and ... · Ethnicity in Medicare using ACS -CMS Linked Data . Shondelle Wilson-Frederick, PhD. Statistician . Office of Minority Health

• The views expressed in this presentation are solely those of the presenter and not those of CMS, CMS OMH, Dept of Veteran Affairs, or the federal government.

• I have no financial interests or other relationships with the manufacturers of commercial products, suppliers of commercial services, or commercial supporters.

Disclaimer

Page 3: Exploring Social Determinants of Health by Race and ... · Ethnicity in Medicare using ACS -CMS Linked Data . Shondelle Wilson-Frederick, PhD. Statistician . Office of Minority Health

Offices of Minority Health Within HHS

2

Page 4: Exploring Social Determinants of Health by Race and ... · Ethnicity in Medicare using ACS -CMS Linked Data . Shondelle Wilson-Frederick, PhD. Statistician . Office of Minority Health

CMS Path to Equity

4

Increasing understanding and awareness

of disparities

Developing and disseminating

solutions

Implementing sustainable

actions

Page 5: Exploring Social Determinants of Health by Race and ... · Ethnicity in Medicare using ACS -CMS Linked Data . Shondelle Wilson-Frederick, PhD. Statistician . Office of Minority Health

Addressing Health Disparities at All Levels

5Division of Cancer Prevention and Control, National Center for Chronic Disease Prevention and Health Promotion. (2011). Social Ecological Model. Retrieved March 17, 2015. From http://www.cdc.gov/cancer/crccp/sem.htm.

Page 6: Exploring Social Determinants of Health by Race and ... · Ethnicity in Medicare using ACS -CMS Linked Data . Shondelle Wilson-Frederick, PhD. Statistician . Office of Minority Health

Increasing Understanding and Awareness of Disparities

Page 7: Exploring Social Determinants of Health by Race and ... · Ethnicity in Medicare using ACS -CMS Linked Data . Shondelle Wilson-Frederick, PhD. Statistician . Office of Minority Health

What are Social Determinants of Health?

• Conditions in the environments in which people:– live – learn– work – play

7

SDOH

Neighborhood & Built

Environment

Health & Health Care

Social & Community

ContextEducation

Economic Stability

Available from: https://www.healthypeople.gov/2020/topics-objectives/topic/social-determinants-of-health

Page 8: Exploring Social Determinants of Health by Race and ... · Ethnicity in Medicare using ACS -CMS Linked Data . Shondelle Wilson-Frederick, PhD. Statistician . Office of Minority Health

What is the Chronic Conditions Data Warehouse (CCW)?

• The CCW is CMS’ research data warehouse designed to support bothexternal and internal CMS research and analytic functions

8

CCW

Assessment

Medicaid

Medicare

Page 9: Exploring Social Determinants of Health by Race and ... · Ethnicity in Medicare using ACS -CMS Linked Data . Shondelle Wilson-Frederick, PhD. Statistician . Office of Minority Health

BENEfits of the CCW

• One unique BENE_ID for each individual enrolled and eligible for Medicare and/or Medicaid

• Individual beneficiaries tracked and linked – Over time – Across claim types– Across programs

(Medicare and Medicaid)

9

Page 10: Exploring Social Determinants of Health by Race and ... · Ethnicity in Medicare using ACS -CMS Linked Data . Shondelle Wilson-Frederick, PhD. Statistician . Office of Minority Health

What Kinds of Data are Available?

10

Patient Level variablesDemographics Geography, Birth and Death Dates, Age, Sex, and Race – both SSA and

RTI

Part A & B Coverage Start, Reasons for Entitlement, ESRD indicator, Status Code, Dual-Eligible

Part C HMO indicator, Coverage months, Contract ID

Part D Contract ID, Coverage months

Cost and Use variablesCost or Payments Medicare, beneficiary and other primary payers

Utilization Stays, Covered Days, Readmissions, Visits including Emergency Room, and Events such as physician face-to-face visits

Part D Summary cost and use

Page 11: Exploring Social Determinants of Health by Race and ... · Ethnicity in Medicare using ACS -CMS Linked Data . Shondelle Wilson-Frederick, PhD. Statistician . Office of Minority Health

Geographical Variation Beneficiary File

11

Comparisons using Geographic Files

• Geographic identifiers• Standardized payments • Service categories • Health status • Quality measures

Specific Geographic Variables

• Zip code• State• County• State/County FIPS code• Core-Based Statistical

Area• Metropolitan• Micropolitan• Non-CBSA

• Hospital Referral Region• Hospital Service

Page 12: Exploring Social Determinants of Health by Race and ... · Ethnicity in Medicare using ACS -CMS Linked Data . Shondelle Wilson-Frederick, PhD. Statistician . Office of Minority Health

Chronic Conditions Available in the CCW

• Additional chronic conditions can be found at www.ccwdata.org 12

27 Chronic Conditions

• Acute Myocardial Infarction

• Alzheimer’s Disease• Cancer (multiple types)• Cataracts• Chronic Kidney Disease• Depression• Diabetes• Heart Failure• Stroke

35 Other Chronic or Potentially Disabling Condition Variables

• Alcohol Use Disorders• HIV/AIDS• Mobility Impairments• Obesity• Opioid Use Disorder• PTSD• Sensory Impairments• TBI• Viral Hepatitis (General)

Page 13: Exploring Social Determinants of Health by Race and ... · Ethnicity in Medicare using ACS -CMS Linked Data . Shondelle Wilson-Frederick, PhD. Statistician . Office of Minority Health

Opioid Use Disorder

• About 2.1 million Americans had opioid use disorder (OUD) in 2016.

• OUD is defined as a problematic pattern of opioid use leading to clinically significant impairment or distress.

• OUD has also been referred to as "opioid addiction.“

• CCW OUD Flags include Medication Assisted Therapies

13Available from: https://www.cdc.gov/drugoverdose/training/oud/

Page 14: Exploring Social Determinants of Health by Race and ... · Ethnicity in Medicare using ACS -CMS Linked Data . Shondelle Wilson-Frederick, PhD. Statistician . Office of Minority Health

Data Sources

• 2016 CMS Medicare Geographical Variation Beneficiary File (GV_ BENE)– Beneficiary enrollment information (A/B/C/D)

• 2016 CMS Medicare Beneficiary Summary File –Other Chronic and Potentially Disabling Conditions Segment (OTCC)– OUD flags– Linked by BENE_ID (unique identifier)

• 2016 5-year ACS– Available from American FactFinder (AFF)

• Linked CMS data to ACS using ZCTA/Zip Code14

Page 15: Exploring Social Determinants of Health by Race and ... · Ethnicity in Medicare using ACS -CMS Linked Data . Shondelle Wilson-Frederick, PhD. Statistician . Office of Minority Health

Research Plan for Medicare-ACS Data Linkage

15

Downloaded 2016 5-yr ACS tables from AFF

Uploaded excel tables to CCW

Imported excel tables as SAS data sets

Recoded ACS variables, create percentages

Merged individual ACS data sets by ZCTA

Merged Medicare beneficiary data (GV BENE and OTCC) by BENE_ID

Linked ACS and Medicare by ZCTA/zip code

Page 16: Exploring Social Determinants of Health by Race and ... · Ethnicity in Medicare using ACS -CMS Linked Data . Shondelle Wilson-Frederick, PhD. Statistician . Office of Minority Health

Developing and Disseminating Solutions

Page 17: Exploring Social Determinants of Health by Race and ... · Ethnicity in Medicare using ACS -CMS Linked Data . Shondelle Wilson-Frederick, PhD. Statistician . Office of Minority Health

Racial and Ethnic Distribution of Medicare Beneficiaries by OUD Status

7581

10 12

3 1

95

1 12 1

All beneficiariesN = 58 million

Beneficiaries with OUDN = 598,000

White Black A/NHOPI Hispanic AIAN Other/Unknown

17

Page 18: Exploring Social Determinants of Health by Race and ... · Ethnicity in Medicare using ACS -CMS Linked Data . Shondelle Wilson-Frederick, PhD. Statistician . Office of Minority Health

Percent of Medicare Beneficiaries in Zip Codes that Speak English only (mean)

818586 87

82 83

62

71

47

64

7886

7883

All Beneficiaries Beneficiaries w/ OUD

Perc

ent

Total White Black A/NHOPI Hispanic AIAN Other/Unknown

Page 19: Exploring Social Determinants of Health by Race and ... · Ethnicity in Medicare using ACS -CMS Linked Data . Shondelle Wilson-Frederick, PhD. Statistician . Office of Minority Health

Percent of Medicare Beneficiaries in Zip Codes that are Married (mean)

19

54 5355 54

45 44

54 5350 5050 51

54 53

All Beneficiaries Beneficiaries w/ OUD

Perc

ent

Total White Black A/NHOPI Hispanic AIAN Other/Unknown

Page 20: Exploring Social Determinants of Health by Race and ... · Ethnicity in Medicare using ACS -CMS Linked Data . Shondelle Wilson-Frederick, PhD. Statistician . Office of Minority Health

Percent of Medicare Beneficiaries in Zip Codes with Less Than High School Education (mean)

20

13 13

1113

17 17

1413

22

19

1615

11 12

All Beneficiaries Beneficiaries w/ OUD

Perc

ent

Total White Black A/NHOPI Hispanic AIAN Other/Unknown

Page 21: Exploring Social Determinants of Health by Race and ... · Ethnicity in Medicare using ACS -CMS Linked Data . Shondelle Wilson-Frederick, PhD. Statistician . Office of Minority Health

Percent of Medicare Beneficiaries in Zip Codes with a Disability (mean)

1415

141514 15

10

12

14 14

15 16

12

13

All Beneficiaries Beneficiaries w/ OUD

Perc

ent

Total White Black A/NHOPI Hispanic AIAN Other/Unknown

Page 22: Exploring Social Determinants of Health by Race and ... · Ethnicity in Medicare using ACS -CMS Linked Data . Shondelle Wilson-Frederick, PhD. Statistician . Office of Minority Health

Percent of Medicare Beneficiaries Living in Zip Codes Below 100% FPL (mean)

1516

1315

22 23

1314

23

19

2221

1314

All Beneficiaries Beneficiaries w/ OUD

Perc

ent

Total White Black A/NHOPI Hispanic AIAN Other/Unknown

Page 23: Exploring Social Determinants of Health by Race and ... · Ethnicity in Medicare using ACS -CMS Linked Data . Shondelle Wilson-Frederick, PhD. Statistician . Office of Minority Health

Summary

• Compared to all beneficiaries, more Whites, Blacks and AIAN resided in zip codes with a higher mean English-only speaking population.

• Compared to all beneficiaries a greater percentage of Blacks, Hispanics and AIAN beneficiaries w/ and w/o OUD lived in zip codes with higher mean rate of less than HS education.

• Compared to the total a higher percentage of AIAN beneficiaries w/ and w/o OUD lived in zip codes with higher mean disability rates.

• A lower percentage of White, NHOPI, and Other beneficiaries resided in zip codes below 100% FPL compared to Black, Hispanic, or AIAN beneficiaries.

Page 24: Exploring Social Determinants of Health by Race and ... · Ethnicity in Medicare using ACS -CMS Linked Data . Shondelle Wilson-Frederick, PhD. Statistician . Office of Minority Health

Implementing Sustainable Action

Page 25: Exploring Social Determinants of Health by Race and ... · Ethnicity in Medicare using ACS -CMS Linked Data . Shondelle Wilson-Frederick, PhD. Statistician . Office of Minority Health

This roadmap details our three-pronged approach to combating the opioid epidemic, focusing in on prevention, the treatment of patients and the utilization of data .

Available from: https://www.cms.gov/About-CMS/Agency-Information/Emergency/Downloads/Opioid-epidemic-roadmap.pdf

Page 26: Exploring Social Determinants of Health by Race and ... · Ethnicity in Medicare using ACS -CMS Linked Data . Shondelle Wilson-Frederick, PhD. Statistician . Office of Minority Health

• Roadmap to Better Care and a Healthier You• 5 Ways to Make the Most of Your Coverage• Managing Your Health Care Costs• A Roadmap to Behavioral Health• Videos• Enrollment Toolkit• Prevention Resources• Partner Toolkit• Community Presentation

From Coverage to Care (C2C) Resources

26

http://go.cms.gov/c2c

Page 27: Exploring Social Determinants of Health by Race and ... · Ethnicity in Medicare using ACS -CMS Linked Data . Shondelle Wilson-Frederick, PhD. Statistician . Office of Minority Health

Connected Care Resources

27

• Information for Health Care Professionals • Access resources and tools explaining the benefits of

CCM and how to implement this service

• Information for Patients• Access easy-to-read information on the benefits of

CCM for Medicare beneficiaries living with two or more chronic conditions

• Campaign Partnership Resources• Access information about partnering to bring

awareness to CCM through the Connected Care campaign

go.cms.gov/CCM

Page 28: Exploring Social Determinants of Health by Race and ... · Ethnicity in Medicare using ACS -CMS Linked Data . Shondelle Wilson-Frederick, PhD. Statistician . Office of Minority Health

Join Us on the Path to Equity

Page 29: Exploring Social Determinants of Health by Race and ... · Ethnicity in Medicare using ACS -CMS Linked Data . Shondelle Wilson-Frederick, PhD. Statistician . Office of Minority Health

• NPRMs and RFIs – Tell us what you think!• CMS Open Door Forums – Find out about upcoming

changes and get your questions answered.• Medicare Learning Network and MLN Connects®

Provider eNews – Get provider resources on CMS programs, policies and initiatives, such as Medicare Shared Savings Program, DMEPOS Billing Procedures.

• Health Care Payment Learning and Action Network – Share best practices and connect with your peers. Register at http://innovationgov.force.com/hcplan.

• Join Us! – Participate in a model and sign up for the news you need.

Get Involved!www.cms.gov

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Page 30: Exploring Social Determinants of Health by Race and ... · Ethnicity in Medicare using ACS -CMS Linked Data . Shondelle Wilson-Frederick, PhD. Statistician . Office of Minority Health

Contact Information

CMS OMH website: go.cms.gov/cms-omh

Shondelle [email protected] 30