experiences from integrated health data does it …€¦ · experiences from integrated health data...
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EXPERIENCES FROM INTEGRATED HEALTH DATA – DOES IT WORK TODAY?
Maritta Perälä-Heape
@ Insert Twitter Handle Here
INDIVIDUALS
ENTERPRISES PUBLIC ORGANIZATIONS
Citizen-owned health data repositories
The health data transaction platforms
Patient data repositories, Portals for own medical records
New health services store and combine user´s health information
“Lack of validation of the data provided by customers “
Will consumers make treatment decisions based on the information provided on-line?
“Personal data can reveal much more than even our doctors may know”
“The power of personal data is ignored in organizations”
”The data industry is selling your life”
”Personal data is my currency”
• Contributes to the change in the control of data in favor of the individual
• Explores the health data from genomics to digital foot print
• Uses personal data in service design in chosen use cases
• Studies the business logics and consumer involvement
• Builds a human-centered Mydata ecosystem
COORDINATOR: Centre for Health and Technology FUNDING: The Finnish Funding Agency for Innovation WEB: www.digitalhealthrevolution.fi
MAKING VALUE
OF PERSONAL
ANALYTICS
CONNECTING
DATA TO
SERVICES
LIBERATING DATA
MY
DATA
General structure of the project
Support to and Learning from Use/Pilot Cases
Use cases/Pilots
Technology Services
Research in Strategically Prioritized Issues
Systemic change
Benchmarking, following and interacting with key systemic change and innovative health business activities in Finland and abroad
Business Models
Poikola, Kuikkaniemi & Honko 2015: http://urn.fi/URN:ISBN:978-952-243-455-5
Use case: Health Check-up 2.0
• A completely new, in-depth health and lifestyle survey with 120 people • Modelling the 4P (Preventive, predictive, personalized and partisipatory)
service design and personal data management
MyData operator
Data sources:
Health check-ups (taken
samples);
Self taken samples;
Activity and sleep
measurements;
Digital footprint data;
Work time (computer
time);
Fitness tests
Data source:
eQuestionnaires
Data sink:
Health account (Terveystili UI)
Data sink:
Biobank
Your Dashboard
Your personalized
services
Your Care Providers
Your Wearables/Apps
Your Prescriptions
Your IoT Devices
profile
Usability of Data: guarantee data portability, machine readable, open formats, APIs, standards
• Strengthening of consumer trust and engagement
• Tools to integrate third party complementary services into core services
• Personal data exploited in new care models
• Better ways to interact with companies and public organizations
• Secure access to information needed for life time
• Better privacy and transparency
• Creation of new businesses, based on end user needs
• New tools for decision-making based on rich data
• New risk management tools
THANK YOU! Maritta Perälä-Heape
Director, Centre for Health and Technology (CHT), University of Oulu
@ Insert Twitter Handle Here