experiences from a specialized regional clinic for

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Experiences from a Specialized Regional Clinic for Patients with Persistent Neck Pain and Disability after Trauma Hans Westergren M.D., Ph.D. Senior Consultant and Medical Director Specialist in Neurosurgery, Rehabilitation Medicine and Algology Department of Pain Rehabilitation, Skane University Hospital, Lund, Sweden Regional Pain Center of Knowledge and Development

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Page 1: Experiences from a Specialized Regional Clinic for

Experiences from a

Specialized Regional Clinic for

Patients with Persistent Neck Pain and Disability after Trauma

Hans Westergren

M.D., Ph.D. Senior Consultant and Medical Director

Specialist in Neurosurgery, Rehabilitation Medicine and Algology

Department of Pain Rehabilitation, Skane University Hospital, Lund, Sweden

Regional Pain Center of Knowledge and Development

Page 2: Experiences from a Specialized Regional Clinic for

The situation 10 years ago…

• Some patients were referred to us and treated…

• Many patients were ”hidden” in several clinics under several diagnoses

• Earlier treatment algorithms focused on physiotherapy (only)…

• Patient organizations recommending surgery…

Page 3: Experiences from a Specialized Regional Clinic for

- So, in 2010 we said:

Send them to us!

Page 4: Experiences from a Specialized Regional Clinic for

- So, in 2010 we said:

Send them to us!

…and there were no protests…

Page 5: Experiences from a Specialized Regional Clinic for

The Skåne Region 1.2 million inhabitants

Page 6: Experiences from a Specialized Regional Clinic for

General outline of treatment algorithm

Trauma

Eme

rgen

cy p

has

e

Recovery phase Chronic phase

Primary care Pain rehabilitation unit

3-6 months

Current condition

Page 7: Experiences from a Specialized Regional Clinic for

General outline of treatment algorithm

Trauma

Eme

rgen

cy p

has

e

Recovery phase Chronic phase

Primary care Pain rehabilitation unit

3-6 months

Cross-section observation studies

Current condition

Page 8: Experiences from a Specialized Regional Clinic for

Call center

Health care providers

Patients

Relatives

Lawyers

Approx 150 calls a year

Page 9: Experiences from a Specialized Regional Clinic for

(F)riskfactors = Health factors

• Previously healthy

• Adequeate care in the emergency phase

• Good sleep

• Stable home and job situation with possibilties to recover

• Good body awareness

• Good response to treatment

• High self-efficacy

• Stable social/economic situation

• No problems in the insurance process

• Good coping mechanisms and knowledge about pain

• Etc…

Page 10: Experiences from a Specialized Regional Clinic for

(F)riskfactors = Health factors

• Previously healthy

• Adequeate care in the emergency phase

• Good sleep

• Stable home and job situation with possibilties to recover

• Good body awareness

• Good response to treatment

• High self-efficacy

• Stable social/economic situation

• No problems in the insurance process

• Good coping mechanisms and knowledge about pain

• Etc…

- What about the other way round?

Page 11: Experiences from a Specialized Regional Clinic for

Analysis • Questionnaires • Clinical assessment • Additional examinations

Individual treatment • Pharmachology • Physiotherapy (SMIL)

• Psychology

Rehabilitation • Mixed groups • CBT • ACT

Re-referral to Primary care

Patient flow in Pain Rehabilitation

Page 12: Experiences from a Specialized Regional Clinic for

ICF- domains

Structure/ Function

Activity/ Participation

Environment and

Personal factors

Page 13: Experiences from a Specialized Regional Clinic for

ICF- domains

Activity/ Participation

Environment and

Personal factors

Social

factors

CNS

reaction

s

Pain-

genera

tors

Psychol

ogical

factors

Page 14: Experiences from a Specialized Regional Clinic for

Social

factors

CNS

reactions

Pain-

generators

Psychological

factors

Key-areas for assessment of complex persistent pain Department of Painrehabilitation , Lund, Sweden

Westergren et al Scand J Pain, 2014

Page 15: Experiences from a Specialized Regional Clinic for

• Muscles

• Deep, stabilizing

• Global

• Joints

• Hypomobile

• Hypermobile

• Segments

• Nerves

• Rizopathy

• Myelopathy

• Plexus pain

• Coordination

• Sensitization

• Pain Distribution

• Local

• Regional

• Wide-spread

• Sleep

• Concentration

• Memory

• Dizziness

• Trigger-points

• Vegetative symptoms • Sadness

• Depression

• Worry

• Anxiety

• Catastrophizing

• PTSD

• Coping

• Self image

• Aimlessness

• Stress sensitivity

• Own demands

• Demands from others

• Relations

• Family situation

• Work situation

• Economy

• Insurances

Social

factors

CNS

reactions

Pain-

generators

Psychological

factors

Key-areas for assessment of complex persistent pain Department of Painrehabilitation , Lund, Sweden

Pain interference Activity

Participation Limitations

Westergren et al Scand J Pain, 2014

Page 16: Experiences from a Specialized Regional Clinic for

The patients….

Page 17: Experiences from a Specialized Regional Clinic for

Sex and age distribution of 1443 individuals recieving diagnosis ICD 10 – S13.4 During the year 2008. Jöud et al BMJ Open, 2013

Page 18: Experiences from a Specialized Regional Clinic for

Sex and age distribution of 1443 individuals recieving diagnosis ICD 10 – S13.4 During the year 2008. Jöud et al BMJ Open, 2013

Sex and age distribution of 745 patients with persistent pain after neck trauma. 2010-14 Westergren et al Disability and Rehabilitation, 2017

Page 19: Experiences from a Specialized Regional Clinic for

Number of patients referred and assessed

Westergren et al Disability and Rehabilitation, 2017

Page 20: Experiences from a Specialized Regional Clinic for

Types of trauma

Type of trauma Males Females Total

Car crashes

In striking vehicle 69 125 194

In struck vehicle 139 223 362

N/A 6 20 26

582

Other neck trauma

Bicycle accidents 5 14 19

Motor-cycle crashes 5 0 5

Pedestrians 1 5 6

Miscellaneous vehicle accidents 1 9 10

Horse accidents 0 4 4

Sports-related accidents 7 15 22

Falls 13 31 44

Direct head or neck traumas 8 12 20

Assaults or scuffles 8 9 17

Miscellaneous (e.g. exertions,

heavy lifting) 7 9 16

163

Total 745 Westergren et al Disability and Rehabilitation, 2017

Page 21: Experiences from a Specialized Regional Clinic for

Pain distribution

43%

48%

9%

29%

53%

18%

12% 50% 38%

Page 22: Experiences from a Specialized Regional Clinic for

Pain distribution vs type of trauma

Page 23: Experiences from a Specialized Regional Clinic for

Conclusions

• No sex distribution difference in initial trauma diagnosis

• Twice as many females with persistent pain after neck trauma

• Regional or wide-spread pain in allmost 90% of the patients

Page 24: Experiences from a Specialized Regional Clinic for

Why?

• Higher female vulnerability for neck injury for anatomical reasons

• Higher prevalence for psychological distress in the female population

• Higher risk for females to develop sensitization

• Gender differences in social rolls giving women less opportunity for recovery

Page 25: Experiences from a Specialized Regional Clinic for

Pain distribution…....and so what?

Page 26: Experiences from a Specialized Regional Clinic for

• Pain distribution

• Activity

• Pain severity

• Health factors

• Number of reported pain sites

Versus

Clinical assessment Patient reported data

Persson et al in prep

MPI and SF-36

Page 27: Experiences from a Specialized Regional Clinic for

Pain factors vs Psychological factors

• Pain distribution (clinical assessment)

• Pain interference (MPI)

• Pain severity (MPI)

• Depression (HAD)

• Anxiety (HAD)

• Acceptance (CPAQ)

Åkerblom et al in prep

Page 28: Experiences from a Specialized Regional Clinic for

• Muscles

• Deep, stabilizing

• Global

• Joints

• Hypomobile

• Hypermobile

• Segments

• Nerves

• Rizopathy

• Myelopathy

• Coordination

• Sensitization

• Local

• Regional

• Wide-spread

• Sleep

• Concentration

• Memory

• Dizziness

• Trigger-points

• Vegetative symptoms

• Sadness

• Depression

• Worry

• Anxiety

• Catastrophizing

• PTSD

• Coping

• Self image

• Aimlessness

• Stress sensitivity

• Own demands

• Demands from others

• Relations

• Family situation

• Work situation

• Economy

• Insurances

Social

faktors

CNS

reaktions

Pain-

generators

Psychological

faktors

Key-areas for assessment of komplex persisting painDepartment of Painrehabilitation , Lund, Sweden

Pain experienceActivity

ParticipationLimitations

Westergren et al Scand J Pain, 2014

Page 29: Experiences from a Specialized Regional Clinic for

Outcomes in Pain rehabilitation…

• Neck trauma patients lower activity than Fibromyalgia (without trauma)

• No difference in activity related outcome after Multiprofessional Rehabilitation

Persson et al PM&R 2011

Page 30: Experiences from a Specialized Regional Clinic for

Conclusions

• 250 100 patients a year per million inhabitants

• Clear cut rules about responsibility for the patient care

• Defined ”care-chain”

• Multiprofessional team assessment

• Individual treatment options

• Pain rehabilitation

Page 31: Experiences from a Specialized Regional Clinic for

Inglehart–Welzel cultural map of the world

Page 32: Experiences from a Specialized Regional Clinic for