evidence aid: the need for systematic reviews in the humanitarian sector and related areas tcd 2011...

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EVIDENCE AID: The need for systematic reviews in the humanitarian sector and related areas TCD 2011 Bonnix Kayabu, MD Evidence Aid Coordinator Cochrane Collaboration & CGH TCD

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Page 1: EVIDENCE AID: The need for systematic reviews in the humanitarian sector and related areas TCD 2011 Bonnix Kayabu, MD Evidence Aid Coordinator Cochrane

EVIDENCE AID: The need for systematic reviews in the humanitarian sector and related

areas

TCD 2011

Bonnix Kayabu, MDEvidence Aid Coordinator

Cochrane Collaboration & CGH TCD

Page 2: EVIDENCE AID: The need for systematic reviews in the humanitarian sector and related areas TCD 2011 Bonnix Kayabu, MD Evidence Aid Coordinator Cochrane
Page 3: EVIDENCE AID: The need for systematic reviews in the humanitarian sector and related areas TCD 2011 Bonnix Kayabu, MD Evidence Aid Coordinator Cochrane

Where are we coming from?

• Indian Ocean Tsunami (Dec 26th 2004)• Cochrane Collaboration and others to strengthen

the use and the usefulness of SR• Realise special collections of Cochrane Reviews • Formal evaluation of Evidence Aid in 2008/9

(Turner 2009)• Needs assessment of the use of systematic

reviews in disasters settings and related areas

Page 4: EVIDENCE AID: The need for systematic reviews in the humanitarian sector and related areas TCD 2011 Bonnix Kayabu, MD Evidence Aid Coordinator Cochrane

Reasons to use evidence (1)

• If an intervention is unsuccessful, the evidence should help to determine whether the intervention was inherently at fault or just badly delivered

• Secure resources for policy and account for how money is spent

• Relief agencies’ interventions tend to be ad hoc and would be more effective if they were based on the most up-to-date and available knowledge bases

Page 5: EVIDENCE AID: The need for systematic reviews in the humanitarian sector and related areas TCD 2011 Bonnix Kayabu, MD Evidence Aid Coordinator Cochrane

Reasons to use evidence (2)

• Evidence will help us understand the risks, benefits and consequences of humanitarian choices. Evidence is most likely to correctly explain successes and failures of interventions (Bradt 2009)

• Good evidence can ameliorate or neutralise political obstacles (Gary Banks 2006)

Page 6: EVIDENCE AID: The need for systematic reviews in the humanitarian sector and related areas TCD 2011 Bonnix Kayabu, MD Evidence Aid Coordinator Cochrane

Reasons for not using evidence (1)• Evidence-based policy as an idea, but something

that is rarely possible in reality (rhetorical device)• Unfocused and contradictory evidence with lack

of clarity about its robustness• Very limited access to research evidence• Research findings without take-home message

(Lavis et al. 2004)• “Many policy analyses occur behind closed doors

and a political need for speed, or defence against opportunistic adversaries, are often behind that”. (Gary Banks 2006)

Page 7: EVIDENCE AID: The need for systematic reviews in the humanitarian sector and related areas TCD 2011 Bonnix Kayabu, MD Evidence Aid Coordinator Cochrane

Reasons for not using evidence (2)

• Consultants or NGO Advisors with vested interest

• Increasing recognition of other factors

• Public health approach vs. Rights-based approach

Page 8: EVIDENCE AID: The need for systematic reviews in the humanitarian sector and related areas TCD 2011 Bonnix Kayabu, MD Evidence Aid Coordinator Cochrane

Potential roles of Systematic Reviews

• Summarise the existing knowledge

• Show which interventions work, which don’t work, which are potentially harmful for people in need

• Research gap

• Mean decisions are not made based on the findings of a singular study, etc.

Page 9: EVIDENCE AID: The need for systematic reviews in the humanitarian sector and related areas TCD 2011 Bonnix Kayabu, MD Evidence Aid Coordinator Cochrane

Purpose of the survey

• To identify the attitudes towards systematic reviews and research of those involved in humanitarian responses to disasters and other crises

• To identify their priorities for evidence

• To identify their preferences for ways to access the information

Page 10: EVIDENCE AID: The need for systematic reviews in the humanitarian sector and related areas TCD 2011 Bonnix Kayabu, MD Evidence Aid Coordinator Cochrane

Quotes from earlier semi-structured interviews

• Poor Evidence “Evidence-based practice in humanitarian response is

very poor. We do most things because we have been doing them year after year, we don’t do them because we have proven they are right. Very few have been really proven…”

• Problems with Guidelines “ … Most of the indicators are not measurable. And it

doesn’t tell you how to measure them either. Even for the few, which are measurable, it doesn’t give any methodology…”

Page 11: EVIDENCE AID: The need for systematic reviews in the humanitarian sector and related areas TCD 2011 Bonnix Kayabu, MD Evidence Aid Coordinator Cochrane

Quotes...• Weaknesses in reporting system

“It is important to start analysing the effectiveness of interventions, it is challenging but possible. The problem with aid in general is that it is made by a lot of anecdotal reports. There are more opinions than really hard data in NGO reports…”

• Problems with the quality of data“People using data from CRED sit in nice offices in London, Geneva or New York, they write their brilliant scholarly papers. They don’t understand just how unrepresentative this information is.”

Page 12: EVIDENCE AID: The need for systematic reviews in the humanitarian sector and related areas TCD 2011 Bonnix Kayabu, MD Evidence Aid Coordinator Cochrane

Suggestions for priorities

• Effects of targeted supplementary feeding programs • Political management of potable water • Evaluation to ensure greater accountability for

expenditure• Reproductive, maternal and newborn health care

focus in acute emergencies (it is often not prioritized)

• Culture norms (e.g. food preservation)• Value of various interventions in lowering mortality • Impact of training during emergencies • Best practices in the use of social media in disaster

response (e.g. for warning and evacuation), etc.

Page 13: EVIDENCE AID: The need for systematic reviews in the humanitarian sector and related areas TCD 2011 Bonnix Kayabu, MD Evidence Aid Coordinator Cochrane

Rank these different types of evidence that might influence your decisions

• Anecdotal evidence 6.8% (4)

• Intuition 1.7% (1)

• Personal experience 11.9% (7)

• Scientific evidence 76.3% (45)

• Cultural norms 0.0%

• Organisation usual practice 3.4% (2)

Page 14: EVIDENCE AID: The need for systematic reviews in the humanitarian sector and related areas TCD 2011 Bonnix Kayabu, MD Evidence Aid Coordinator Cochrane

How useful do you think SR can be in disaster settings?

• 81.4% SR are useful

• 18.6% Not sure if SR are useful

• No one said SR are not useful

Action: increase access to reviews in these settings

Page 15: EVIDENCE AID: The need for systematic reviews in the humanitarian sector and related areas TCD 2011 Bonnix Kayabu, MD Evidence Aid Coordinator Cochrane

Need for Reviews: Preliminary Results

Have you used systematic reviews as a source of evidence in decision-making Yes : 52.5% No: 25.4% Not sure: 22.0%

(N=59)

Page 16: EVIDENCE AID: The need for systematic reviews in the humanitarian sector and related areas TCD 2011 Bonnix Kayabu, MD Evidence Aid Coordinator Cochrane

If you needed to access the findings of systematic reviews, how would you like them to be presented to you?

• Whole review: 45.1% (23) • Whole review plus comments from experts in

the humanitarian sector: 56.9% (29) • Review summary on its own: 21.6% (11) • Summary and context specific information:

47.1% (24)

(N=59)

Page 17: EVIDENCE AID: The need for systematic reviews in the humanitarian sector and related areas TCD 2011 Bonnix Kayabu, MD Evidence Aid Coordinator Cochrane

If you needed to access the findings of systematic reviews, how would you like to do this? [Answers]

• Full systematic review online: 82.2% (37)• Summaries of systematic reviews online: 60% (27)• Full systematic review by email: 35.5% (16) • Summaries of systematic reviews on CD or DVD: 6.6% (3)• Summaries of systematic reviews via mobile technology:

8.8% (4)

(N=59)

Page 18: EVIDENCE AID: The need for systematic reviews in the humanitarian sector and related areas TCD 2011 Bonnix Kayabu, MD Evidence Aid Coordinator Cochrane

Access to systematic reviews to improve responses to natural disasters

Page 19: EVIDENCE AID: The need for systematic reviews in the humanitarian sector and related areas TCD 2011 Bonnix Kayabu, MD Evidence Aid Coordinator Cochrane

Donors want reviews

Questions to donors: Would the use of systematic reviews help to assess the likely effects of projects

before providing funding to agencies?

Yes: 85% No: 10% I don’t know: 5%

(N=20)

Page 20: EVIDENCE AID: The need for systematic reviews in the humanitarian sector and related areas TCD 2011 Bonnix Kayabu, MD Evidence Aid Coordinator Cochrane

Conclusions• Humanitarian aid workers are aware that

evidence based practice in disasters is very poor• Humanitarian aid workers and donors need

systematic reviews to improve their interventions and assess the impact of their efforts

• They want reviews, comments from experts in the field and context-specific information to be accessed online or via mobile phone technology

• They have many uncertainties for which they need research evidence

• Evidence Aid should engage with aid workers to prioritise their needs on systematic reviews

Page 21: EVIDENCE AID: The need for systematic reviews in the humanitarian sector and related areas TCD 2011 Bonnix Kayabu, MD Evidence Aid Coordinator Cochrane

Next steps for the survey

• Encourage more participants• Comprehensive data analysis• Key informant interviews• Disseminate summary, interim reports• Use the findings to inform the development of

the future strategy for Evidence Aid

Page 22: EVIDENCE AID: The need for systematic reviews in the humanitarian sector and related areas TCD 2011 Bonnix Kayabu, MD Evidence Aid Coordinator Cochrane

Priorities

• Identify new funding opportunities for EA

• Identify relevant SR

• Formal partnerships for EA

• Identify academic courses and provide training materials

Page 23: EVIDENCE AID: The need for systematic reviews in the humanitarian sector and related areas TCD 2011 Bonnix Kayabu, MD Evidence Aid Coordinator Cochrane

THANK YOU!