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D4. Standard Process Evaluation Reportsl 1

EuroNeoNet Operating Grant 2014 Contract number: 530078 (BIOEF_FY2014)

D4. Standard Process Evaluation Reports:

Participating Units, Evaluation Reports and Quality

Checks Material


Participating Units

Nº Town Country Entity Name Responsible

1 Buenos Aires Argentina Hospital Sardá Guillermo Luchtenberg

2 Tucumán Argentina Maternidad Josefina Molina

3 Perth Australia King Edward Memorial Hospital Isabelle Hayim-Langridge

4 Graz Austria Med Uni Graz Karina Weniger

5 Graz Austria Medical University Graz, Department of Obstetrics Franz Moser

6 Graz Austria Klinische Abteilung fur Neonatologie Berndt Urlesberger

7 Klagenfurt Austria LKH-Klagenfurt Raimund Kraschl

8 Leoben Austria LKH Leoben Anna Trinkl

9 Salzburg Austria Salzburg Universitats-Kinderklinik Bernhard Kranebitter

10 Vienna Austria Kinderklinik Glanzing Wilhelminenspital Wien Andreas Weiss

11 Baku Azerbaijan Azerbaijan Medical University Saadat Huseynova

12 Anderlecht Belgium Hopital Erasme Bart Van Overmeire

13 Antwerpen Belgium Antwerpen Hospital Patrick Van Reempts

14 Brugge Belgium AZ Sint-Jan-Brugge Luc Cornette

15 Brussels Belgium Burson-Marsteller Anne Laumen

16 Brussels Belgium UZ Brussels Filip Cools

17 Brussels Belgium Hopital Universitaire des Enfants Reine Fabiola Anne Johansson

18 Bruxelles Belgium CHU Saint Pierre Inge Vanherreweghe

19 Bruxelles Belgium CHIREC (Edit Cavell) Marc Flausch

20 Bruxelles Belgium CHU Saint Luc Christian Debauche

21 Charleroi Belgium CHU de Charleroi Eric Cavatorta

22 Charleroi Belgium Grand Hospital de Charleroi Chantal Lecart

23 Genk Belgium Ziekenhius Oost-Limburg Claire Theyskens

24 La Louviere Belgium CHU Tivoli Genevieve Malfilatre

25 Leuven Belgium UZ Leuven Gunnar Naulaers

26 Liege Belgium CHU Citadelle Masendu Kalenga

27 Rocourt Belgium CHU Saint Vincent (Chetien) Pierre Maton

28 Wilrijk Belgium GZA Saint Agustinus Anne-Marie Dieltjen

29 Sofia Bulgaria Sheynovo Maternity Hospital Nikolay Drenchev

30 Nanchang China The third hospital NICU Ying Wu



31 Prague Czech Republic General Faculty Hospital Richard Plavka

32 Copenhagen Denmark Rigshospitalet Gorm Greisen

33 Cairo Egypt EL Gala teacing hospital Ahmed Baklola

34 Cairo Egypt Alazhar University Faculty of Medicine for Girls Safaa ElMeneza

35 Cairo Egypt Om-El-Atebaa Hospital Abeer Shafie

36 Mansoura Egypt MUCH Mohamed Reda Bassiouny

37 Tallinn Estonia East-Tallinn Central Hospital Pille Andersson

38 Oulu Finland Oulu University Hospital Mikko N Hallman

39 Brest France CHU Brest Jacques Sizun

40 CALAIS FRANCE CH Calais Pascal Tilmont

41 Colombes France Hopital Louis Mourier Catherine Huon

42 Dijon France CHU Dijon Francesco Bosante

43 Lyon France Hospital Edouard Herriot Olivier Claris

44 Marseille France Medecine Nenatale Hopital de la Conception Umberto Simeone

45 Saint Brieuc France Unitat de Reanimation Neonatale de Saint Brieuc Jean Baptiste Muller

46 Aachen Germany WIN Ralf Schmelter

47 Berlin Germany SHB Keine Keiner

48 Braunschweig Germany Klinikum Braunschweig Achim Sandvoss

49 Kiel Germany University of Kiel Lee Shaw

50 Leipzig Germany University Hospital Leipzig Thome Ulrich

51 Singen Germany HBH- Kliniken in Singen Andreas Trotter

52 Tuebingen Germany University Childrens Hospital Tuebingen Joerg Arand

53 Ulm Germany Childrens Hospital University of Ulm Helmut Hummler

54 Athens Greece Aguia Sophia Childrens Hospital Marietta Xanthou

55 Athens Greece Attikon University Hospital Georgia Niktari

56 Thessaloniki Greece Aristotle University of Thessaloniki Elisavet Diamanti

57 Budapest Hungary National Institute of Child Health Miklos Szabo

58 Delhi India Sunderlal Jain Hospital Sudarshan Darshan

59 New Delhi India AIIMS Dr G Shridhar

60 Jakarta Indonesia University of Indonesia Asril Aminullah



61 Tabriz Iran Tabriz University of Medical Sciences-Pediatric Department -Neonatology GroupAbdollah Jannatdoust

62 Cork Ireland Erinville Hospital Tony Ryan

63 Tel Hashomer Israel Neonatal Department Daniel Lubin

64 Ancona Italy Ospedali Riuniti Virgilio Carnielli

65 Ferrara Italy Aguia Sophia Childrens Hospital Pietro Guerrini

66 Pavia Italy Fondazione Policlinico San Matteo Lidia Decembrino

67 Roma Italy Ospedale San Giovanni Calibita - Fatebenefratelli Gerardo Piacentini

68 Roma Italy Bambino Gesu Pediatric Hospital Marina Cuttini

69 Rome Italy Department of Pediatrics Catholic University Valentina Cardiello

70 Amman Jordan Arabic Medical Center loay Alkamen

71 Prishtina Kosova Clinical Ceter Kosova Neonatology Lumnie Sutaj

72 Prishtine Kosovo Republic QKUK Pediatrics clinics Mustafa Burbuqe

73 Nabatieh Lebanon SRHH Hadi Fakih

74 Tripoli Libya Tripoli Children Hospital Amn Widad Nasuf

75 Kaunas Lithuania Kaunas Medical University Hospital Dalia Stoniene

76 Strassen Luxembourg Centre de Recherche Public de la Sante Aline Touvrey-Lecomte

77 Casablanca Morocco CHIC, NICU Mohamed Bayari

78 Utrecht Netherlands NJi Daphne Kann

79 Oslo Norway Ullevaal Univ. Hospital Tom Arne Stiris

80 Piura Peru Hospital EsSalud Cayetano Heredia Giancarlo Guffanti

81 Bydgoszcz Poland Departament of Neonatology University Hospital No 2 Iwona Sadowska Krawczenko

82 Katowice Poland Medical University Malgorzata Kowalska

83 Lodz Poland Ginekologiczno Polozniczy Szipital Kliniczny Marta Janowska

84 Poznan Poland Ginekologiczno Polozniczy Szipital Kliniczny Janusz Gadzinowski

85 Rzeszow Poland Department of Neonatology and NICU Witold Blaz

86 Warsaw Poland SGH Aleksandra Bielanska

87 Warsaw Poland Neonatal and Intensive Care Department Warsaw Medical University Maria Kornacka

88 Abrantes Portugal Abrantes Alexandra Almeida

89 Acores Portugal Funchal Alexandra Almeida

90 Alentejo Portugal Evora Alexandra Almeida



91 Alentejo Portugal Portalegre Alexandra Almeida

92 Alentejo Portugal Beja Alexandra Almeida

93 Algarve Portugal Faro Alexandra Almeida

94 Algarve Portugal Portimao Alexandra Almeida

95 Amadora Portugal Hospital Fernando Fonseca, EPE Manuel Cunha

96 Chaves Portugal Chaves Alexandra Almeida

97 Coimbra Portugal Leiria Alexandra Almeida

98 Coimbra Portugal Coimbra Hospitalar de Coimbra Alexandra Almeida

99 Coimbra Portugal Hospitais da Universidade de Coimbra Alexandra Almeida

100 Coimbra Portugal Hospital Pediatrico de Coimbra Alexandra Almeida

101 Coimbra Portugal Maternidade Bissaya Barreto Alexandra Almeida

102 Coimbra Portugal Maternidade Daniel de Matos Alexandra Almeida

103 Coimbra Portugal Viseu Alexandra Almeida

104 Coimbra Portugal Figueira da Foz Alexandra Almeida

105 Coimbra Portugal Aveiro Alexandra Almeida

106 Coimbra Portugal Lamego Alexandra Almeida

107 Coimbra Portugal Colvilha Alexandra Almeida

108 Coimbra Portugal Guarda Alexandra Almeida

109 Lisboa Portugal Maternidade Alfredo da Costa Alexandra Almeida

110 Lisboa Portugal SAMS Alexandra Almeida

111 Lisboa Portugal Hospital Dona Estefania Alexandra Almeida

112 Lisboa Portugal Santa Marta Alexandra Almeida

113 Lisboa Portugal Sao Jose Alexandra Almeida

114 Lisboa Portugal Portuguese Paediatrics Society Daniel Virella

115 Lisboa Portugal Garcia de Orta Alexandra Almeida

116 Lisboa Portugal Hospital de Sao Francisco Xavier Madalena Tuna

117 Lisboa Portugal Sao Francisco Xavier Alexandra Almeida

118 Lisboa Portugal Hospital da Luz Alexandra Almeida

119 Lisboa Portugal Hospital dos Lusiadas Alexandra Almeida

120 Lisboa Portugal Santa Maria Alexandra Almeida



121 Lisboa Portugal Hospital CUF Descobertas Alexandra Almeida

122 Lisboa Portugal Santarem Alexandra Almeida

123 Lisboa Portugal Caldas da Rainha Alexandra Almeida

124 Lisboa Portugal Torres Vedras Alexandra Almeida

125 Lisboa Portugal Vila Franca de Xira Alexandra Almeida

126 Lisboa Portugal Hospital Fernando Fonseca Alexandra Almeida

127 Lisboa Portugal Barreiro Alexandra Almeida

128 Lisboa Portugal Setubal Alexandra Almeida

129 Lisbon Portugal Santa Maria Francisca Morgado

130 lisbon portugal Maternidade Dr Alfredo da Costa Ana Bettencourt

131 Madeira Portugal Ponta Delgada Alexandra Almeida

132 Madeira Portugal Angra do Heroismo Alexandra Almeida

133 Madeira Portugal Horta Alexandra Almeida

134 Ponta delgada Portugal HDES Ana Maia

135 Porto Portugal Cascais Alexandra Almeida

136 Porto Portugal Oliveira de Azemeis Alexandra Almeida

137 Porto Portugal Maternidade Julio Diniz Alexandra Almeida

138 Porto Portugal Santo Antonio Alexandra Almeida

139 Porto Portugal Sao Joao Alexandra Almeida

140 Porto Portugal Matosinhos Alexandra Almeida

141 Porto Portugal Vila Nova de Gaia Alexandra Almeida

142 Porto Portugal Povoa de Varzim Alexandra Almeida

143 Porto Portugal Santa Maria da Feira Alexandra Almeida

144 Porto Portugal Vale do Sousa Alexandra Almeida

145 Porto Portugal Amarante Alexandra Almeida

146 Porto Portugal Barcelos Alexandra Almeida

147 Porto Portugal Santo Tirso Alexandra Almeida

148 Porto Portugal Braga Alexandra Almeida

149 Porto Portugal Guimaraes Alexandra Almeida

150 Porto Portugal Viana do Castelo Alexandra Almeida



151 Porto Portugal Vila Nova de Famalicao Alexandra Almeida

152 Porto Portugal Vila Real Alexandra Almeida

153 Porto Portugal Maria Pia Alexandra Almeida

154 Porto Portugal Bragansa Alexandra Almeida

155 Porto Portugal Mirandela Alexandra Almeida

156 Skopje Republic of MacedoniaUniversity Clinic for Obs Gyn Elizabeta Zisovska

157 Bucharest Romania Neonatal Intensive Care Unit Catalin Gabriel Cirstoveanu

158 Bucharest Romania Life Memorial Hospital Adrian Ioan Toma

159 Cluj-Napoca Romania Univ and Pharmacy Iuliu Hatieganu Florin Stamatian

160 Kirov Russia Kirov Regional Perinatal Care Center Denis Nikulin

161 Saint Petersburg Russia Childrens Hospital N1 Lyubimenko Viacheslau

162 Severodvinsk Russia Severodvinsk child hospital Olga Kiseleva

163 Hail Saudi Moh Moataz Abdelmagid

164 Belgrade Serbia Clinical Hospital Centre Zemun-Belgrade Maja Skender

165 Belgrade Serbia Embassy of Belarus to Serbia Grigory Gromiko

166 Kosice Slovakia Children University Hospital, Kosice, Slovakia - Neonatal Clinic NICU Vanda Chovanoca

167 Martin Slovakia University Hospital Martin Darina Chovancova

168 Nove Zamky Slovakia Faculty hospital Klaudia Demova

169 Ljubljana Slovenia University Medical Center Irena Stucin Gantar

170 A Coruña Spain Complejo Hospitalario Universitario de A Coruña (CHUAC) Jose Luis Fernandez Trisac

171 Alicante Spain Hospital General Universitario de Alicante Remedios Garcia Martinez

172 Badajoz Spain Hospital Universitario Materno Infantil Emilia Martinez Tallo

173 Badalona Spain Germans Trias i Pujol Wifredo Coroleu Lletget

174 Barakaldo - Bilbao Spain Hospital de Cruces Begoña Loureiro

175 Barcelona Spain Instituto Universitario Dexeus Roser Porta Rivera

176 Barcelona Spain SCIAS Hospital de Barcelona Frederic Raspall

177 Barcelona Spain Hospital Santa Creu i Sant Pau Gemma Ginovart

178 Barcelona Spain Hospital Clinic Josep Figueras Aloy

179 Bilbao Spain Hospital de Basurto Alberto Perez Legorburu

180 Burgos Spain Hospital General Yagüe de Burgos Bruno Alonso Alvarez



181 Caceres Spain Hospital San Pedro de Alcantara Valentin Carretero Diaz

182 Cadiz Spain Hospital Universitario Puerta del Mar Simon Lubian Lopez

183 Castellon de la Plana Spain Hospital General de Castellon Ramon Aguilera Olmos

184 Ciudad Real Spain SESCAM Ignacio Salazar

185 Ciudad Real Spain Hospital General de Ciudad Real Miguel Angel Garcia Cabezas

186 Cordoba Spain Hospital Reina Sofia Juana Guzman Cabañas

187 Cuenca Spain Virgen de la Luz de Cuenca Elisa Cueto Calve

188 Elche Spain Hospital General Universitario de Elche Carolina Vizcaino Diaz

189 Esplugues de Llobregat Spain Hospital Sant Joan de Deu Xavier Krauel Vidal

190 Getafe Spain Hospital Universitario de Getafe Roberto Ortiz Movilla

191 Gijon Spain Hospital Cabueñes Adela Rodriguez Fernandez

192 Girona Spain Hospital Universitario Doctor Josep Trueta Alberto Trujillo

193 Granada Spain Hospital Universitario San Cecilio Angeles Ruiz Extremera

194 Granada Spain Hospital Virgen de las Nieves Luis Molto Ripoll

195 Granollers Spain Hospital General de Granollers Israel Anquela Sanz

196 Huelva Spain Hospital Juan Ramon Jimenez Ana Isabel Garrido Ocaña

197 La Laguna. Santa Cruz de TenerifeSpain Hospital Universitario de Canarias (HUC) Pedro Fuster-Jorge

198 Las Palmas de Gran Canaria Spain Hospital Universitario Materno Infantil de Canarias Fermin Garcia Muñoz Rodrigo

199 Leganes Spain Hospital Severo Ochoa Mª Jose Santos Muñoz

200 Leon Spain Hospital de Leon Emilio Alvaro Iglesias

201 Lleida Spain Hospital Universitari Arnau de Vilanova Eduard Sole Mir

202 Logroño Spain Hospital San Pedro Mª Yolanda Ruiz del Prado

203 Madrid Spain Hospital Universitario de Mostoles Juan Carlos Tejedor

204 Madrid Spain Universidad Complutense de Madrid Lourdes Leon

205 Madrid Spain Hospital Madrid Monteprincipe Isabel Llana Martin

206 Madrid Spain Hospital 12 de Octubre Carmen Rosa Pallas Alonso

207 Madrid Spain Hospital Universitario La Paz Jesus Perez Rodriguez

208 Madrid Spain Hospital Clinico San Carlos Tamara Carrizosa Molina

209 Madrid Spain Hospital Universitario Gregorio Marañon Vicente Perez Sheriff

210 Madrid Spain Hospital Madrid Torrelodones Isabel Llana Martin



211 Madrid Spain H.U. Fundacion de Alcorcon Antonio Cuñarro Alonso

212 Malaga Spain Hospital Materno Infantil Carlos Haya Tomas Sanchez Tamayo

213 Murcia Spain Hospital Universitario Virgen de la Arrixaca Vicente Bosch

214 Navarra Spain Clinica Universitaria de Navarra Valentin Alcina Aguilar

215 Oviedo Spain Hospital Universitario Central de Asturias Belen Fernandez Colomer

216 Pamplona Spain Hospital Virgen del Camino Concepcion Goñi Orayen

217 Ponferrada Spain Hospital del Bierzo Rosario Velasco Garcia

218 Pontevedra Spain Complejo Hospitalario de Pontevedra Javier Vilas Gonzalez

219 Sabadell Spain Corporacio Parc Tauli Joan Badia Barnusell

220 Salamanca Spain Hospital Universitario de Salamanca Pilar Garcia Gonzalez

221 San Juan de Alicante Spain Hospirtal San Juan de Alicante Jose Luis Mestre Ricote

222 San Sebastian Spain Hospital Donostia Luis Paisan Grisolia

223 Santander Spain Hospital de Cantabria. Marques de Valdecilla Javier Gomez Ullate Vergara

224 Santiago Spain Complejo Hospitalario Universitario de Santiago Jose Mª Fraga Bermudez

225 Sevilla Spain Hospital Universitario Virgen del Rocio Antonio Losada Martinez

226 Sevilla Spain Hospital Universitario Valme Javier Casanovas Lax

227 Sevilla Spain Hospital Universitario Virgen Macarena Mercedes Granero Asencio

228 Sta. Cruz de Tenerife Spain Hospital Universitario Nuestra Señora de la Candelaria Santiago Lopez Mendoza

229 Tarragona Spain Hospital Joan XXIII Ricardo Closa

230 Toledo Spain Virgen de la Salud de Toledo Antonio Arroyos Plana

231 Valencia Spain Hospital La Fe Vicente Roques Serradilla

232 Valencia Spain Hospital Clinico de Valencia Javier Estañ Capell

233 Valladolid Spain Hospital Univ. Rio Hortega de Valladolid Carmen Gonzalez Armengod

234 Velez-Malaga Spain Hospital Comarcal de la Axarquia Jose Manuel Roman Salguero

235 Vigo Spain Complexo Hospitalario Xeral Ana Cacheiro Guisan

236 Vila-Real Spain Hospital de la Plana Jorge Colomer Pellicer

237 Vitoria Spain Hospital de Txagorritxu Mª Mercedes Martinez Ayucar

238 Zamora Spain Hospital Virgen de la Concha Victor Marugan

239 Zaragoza Spain Hospital Universitario Miguel Servet Segundo Rite Garcia

240 Zaragoza Spain Hospital Clinico Universitario Lozano Blesa M. Purificacion Ventura Faci



241 Ferrol Spain Complejo Hospitalario A Marcide Jose Luaces Gonzalez

242 Göteborg Sweden Boras Lasarett, Sweden Stellan Hakansson

243 Göteborg Sweden Göteborg, Drottning Silvia/ÖM, Sweden Stellan Hakansson

244 Göteborg Sweden Skövde, Kärnsjukhuset, Sweden Stellan Hakansson

245 Göteborg Sweden Trollhättan, NÄL, Sweden Stellan Hakansson

246 Göteborg Sweden Varberg Sjukhuset Stellan Hakansson

247 Linköping Sweden Jönköping, Länssjukhuset Ryhov, Sweden Stellan Hakansson

248 Linköping Sweden Kalmar, Länssjukhuset, Sweden Stellan Hakansson

249 Linköping Sweden Linköping, Universitetssjukhuset, Sweden Stellan Hakansson

250 Linköping Sweden Västerviks Sjukhus, Sweden Stellan Hakansson

251 Linköping Sweden Norrköping Vrinnevisjukhus, Sweden Stellan Hakansson

252 Linköping Sweden Eksjö/Nässjö, Höglandssjukhuset, Sweden Stellan Hakansson

253 Linköping Sweden Värnamo Sjukhus, Sweden Stellan Hakansson

254 Linköping Sweden Visby Lasarett, Sweden Stellan Hakansson

255 Lund Sweden Halmstads Länssjukhus, Sweden Stellan Hakansson

256 Lund Sweden Kristianstads Sjukhus, Sweden Stellan Hakansson

257 Lund Sweden Lund, Universitetssjukhuset, Sweden Stellan Hakansson

258 Lund Sweden Malmö, Universitetssjukhuset MAS, Sweden Stellan Hakansson

259 Lund Sweden Växjö Centrallasarett, Sweden Stellan Hakansson

260 Lund Sweden Helsingborgs Lasarett Stellan Hakansson

261 Örebro Sweden Órebro, Universitetssjukhuset, Sweden Stellan Hakansson

262 Stockholm Sweden Stockholm, DS Stellan Hakansson

263 Stockholm Sweden Stockholm, KS Huddinge Stellan Hakansson

264 Stockholm Sweden Stockholm, KS (ALB) Stellan Hakansson

265 Stockholm Sweden Stockholm, Södersjukhuset Stellan Hakansson

266 Stockholm Sweden Södertälje Sjukhus, Sweden Stellan Hakansson

267 Stockholm Sweden Stockholm, BB Stockholm Stellan Hakansson

268 Stockholm Sweden Stockholm, Danderyds AB Stellan Hakansson

269 Umea Sweden Gällivare Sjukhus, Sweden Stellan Hakansson

270 Umea Sweden Skelleftea Lasarett Stellan Hakansson



271 Umea Sweden Östersunds Sjukhus, Sweden Stellan Hakansson

272 Umea Sweden Sunderby Sjukhus, Lulea, Sweden Stellan Hakansson

273 Umea Sweden Sundsvalls Sjukhus, Sweden Stellan Hakansson

274 Umea Sweden Umea, Norrlans Universitetssjukhus, Sweden Stellan Hakansson

275 Umea Sweden Lycksele lasarett, Sweden Stellan Hakansson

276 Umea Sweden Örnsköldsviks Sjukhus Stellan Hakansson

277 Uppsala Sweden Uppsala, Akademiska Barnsjukhuset Stellan Hakansson

278 Uppsala Sweden Falu Lasarett, Sweden Stellan Hakansson

279 Uppsala Sweden Gälve-Sandviken Länssjukhuset, Sweden Stellan Hakansson

280 Uppsala Sweden Karlstad, Centralsjukhuset, Sweden Stellan Hakansson

281 Uppsala Sweden Mälarsjukhuset, Eskilstuna, Sweden Stellan Hakansson

282 Uppsala Sweden Västeras, Centrallasarettet, Sweden Stellan Hakansson

283 Uppsala Sweden Mora Lasarett, Sweden Stellan Hakansson

284 Uppsala Sweden Hudiksvalls Sjukhus, Sweden Stellan Hakansson

285 Uppsala Sweden Nyköpings Lasarett, Sweden Stellan Hakansson

286 Sweden Övrigt/Okänt, Sweden Stellan Hakansson

287 Aarau Switzerland Hospital of Aarau Georg Zeilinger

288 Basel Switzerland Hospital of Basel Sven Schulzke

289 Bern Switzerland Inselspital, Childrens Hospital, Departement of Neonatology Olaf Ahrens

290 Berne Switzerland Hospital of Berne Mathias Nelle

291 Chur Switzerland Hospital of Chur Walter Bar

292 Geneva Switzerland Hospital of Geneva Riccardo Pfister

293 Lausanne Switzerland Hospital of Lausanne Jean-Francois Tolsa

294 Luzern Switzerland Kinderspital Luzern Thomas Berger

295 St. Gallen Switzerland Hospital of St. Gallen John Micallef

296 St.Gallen Switzerland Eastern Swiss Childrens Hospital St.Gallen PICU/NICU Norbert Lutsch

297 Zurich Switzerland Clinic for Neonatology Hans Ulrich Bucher

298 Nijmegen The Netherlands Radbon University Nijmegem Medical Center Djien Liem

299 Zwolle The Netherlands Isala klinieken Locatie Sophia Harry Molendijk

300 Tunis Tunisia CMNT Myriam Cheour



301 Ankara Turkey Kecioren Education and Research Hospital, NICU Fatih Kislal

302 Ankara Turkey Ministry of Economy Arzu Yildirim

303 Ankara Turkey Gazi University Hospital, Division of Newborn Medicine Ebru Ergenekon

304 Konya Turkey Selcuk University Elanur Yeniterzi

305 Konya Turkey Selcuk University Elanur Yeniterzi

306 Konya Turkey Meram Medical Faculty Rahmi Ors

307 Mersin Turkey Mersin Private Yenisehir Hospital M Yurt Ozmen

308 Antrim UK Neonatal Unit, Antrim Area Hospital Sanjeev Bali

309 Basingstoke UK Basingstoke & North Hampshire Hospital Foundation Trust Ravi Manikonda

310 Belfast UK Royal Jubilee Maternity Hospital Henry L Halliday

311 Craigavon UK Craigavon Area Hospital Phil Quinn

312 Dundonald UK Ulster Hospital Nita Saxena

313 Liverpool UK Liverpool Womens Hospital Jane Saltmarsh

314 Londonderry UK Altnagelvin Area Hospital Des Brown

315 Southampton UK University of Southampton Mike Hall

316 Luhansk Ukraine Luhansk State Medical University Marina Kogutnitska

317 Rivera Uruguay Comeri Jorge Ospitaleche

318 San Francisco Venezuela Noriega Trigo Hospital Rafael Piñeiro


Evaluation Reports

Evaluation reports are used to report any deviation from the expected path of the

network activities identified and analysed during the consecution of the project.

They mainly focus on quality of data collected, progress of the network in relation

with the original work-plan and appropriateness of developments for the consecution

of the project activities.

On December 2013, Prof. Valls i Soler passed away, after a quick and sudden illness.

Even though other people in the coordinator group in Bilbao was much involved in the

network and SC members always have had an active participation, the transition period

has influenced in some of the expected results of the network in the first months of the

year.

During the first months of the year coordinator group informed the European

Commission and ENN SC members, of the bad news and explained that the initiative

will continue with its activities until it has funds to do so, and new funding will be seek.

An extraordinary meeting was set in London to reorganize and discuss ENN’s future. It

was decided that neonatologist Begoña Loureiro and epidemiologist Jose Ignacio

Pijoán, from the Coordination group in Bilbao would lead the network in Prof. Vall’s

place and assured that at least compromises with the European Commission for 2014

would be fulfilled. It was considered that 2014 should have to be a transition year for

ENN and some adaptations are required in order to be able to face new challenges.

Succession of events since then have proven that new coordinator group in Bilbao is

very much interested in continuing ENN’s initiative work and is firmly working to fulfil

grant requirements.

Since 2010, number of data collected annually reached over 7,000 registers and has

remained stable until now. At the end of the first semester of the present year, data

collection for 2013 should have been at ¾ of the completeness (this is almost 5,300

registers), and real number of registers collected for 2013 reached 4,276 (Deliverable 3

data).

Quality of data collected.

The number of data we have received in 2012 is of 7.588 cases and in 2013 4.991 cases,

but we continue receiving data from 2013 year yet.

Nº Units Nº Registers

2006 98 4,766

2007 108 5,731

2008 108 6,241

2009 116 6,746

2010 151 7,738

2011 122 7,458

2012 124 7,588

2013 85 4,991

2014 7 375


TOTAL 206 51,634

In addition to the natural transition period after Prof. Valls i Soler passed away, we

speculate that number of units, regions and networks recruited have stopped growing

since 2010, due to inappropriateness of web based data collection methods and

automatic reports. Nowadays, interactive methods are well established world-wide, so,

web based data collection methods and reporting are the most requested. Our website

was developed in 2006 and updated during the following years, but programming codes

used have become obsolete. Software available at the moment is simpler and results

obtained are better in terms of easiness and information provided to stakeholders. The

network is considering adapting and updating the website on the near future by

subcontracting an external company or adding qualified IT personnel to the network’s

coordination team. This should be discussed within the SC members and agreed during

the next year.

The data quality control process is done as an internal validation process described in

SOP’s (SOP’s document Section: “Unit Data Quality Checks”) using an automated

programmed procedure whose results are written in a report delivered to each

participating unit used to check, clean and validate data at entry. This is explained in

more detail in next section of this report (Quality Checks Material).

Progress of the network.

Although number of registers collected for 2013 is less than expected according to past

years, during the second semester of the present year, the ENN 2013 Standard

Benchmarking Report was performed over existent data at August 2014 and we expect

to register the remaining data shortly to reach past years number of annual collected

data and deliver Final ENN 2013 Standard Benchmarking Report on time.

On top of this standard analysis done over ENN cohort data, complete database is also

exploited to answer research questions proposed by external and/or internal SC

Members researchers interested in VLBW/VLGA infants health care. Scientific

production at this moment has exceeded our expectations; there is a PhD project,

“Displasia Broncopulmonar. Factores predisponentes, medidas terapéuticas y evolución.

Departamento de Cirugía, Radiología y Medicina Física. UPV/EHU.01/2012”, and

several papers in preparation, so it should be considered to create some sort of structure

(i.e. Scientific Production/Research Committee/Working Group) in order to centralize,

organize and agree upon scientific research interest areas, documents’ review and

scientific journals to be approached.

The main activities of the network for 2014 are continuing with general activities such

as perinatal data collection for VLBW/VLGA infants in order to produce the ENN

Annual Standard Benchmarking Report and on top of that, introduce new items on SES

indicators and nosocomial infection surveillance system in a pilot phase. This started at

the beginning of the year and will be reviewed in Deliverable 5 (Information System

Evaluation Report) to be delivered at the end of the year.

At August 2014, six units participated with data on SES from UK and France in a pilot

phase and 50 Spanish units were recruited to implement the nosocomial infection


surveillance system. In deliverable 5 this data will be updated and pilot phase results

described.


Appropriateness of developments for the consecution of the project activities.

Project main vision is, in summary, that every VLBA/VLGA infant receives the best

possible health care no matter where it happens to be born. The project has been

delivering an annual report with the intention of benchmarking and that each unit could

detect areas of improvement, implement changes or new strategies and evaluate in

following reports if those ended in a better result (as reported in benchmarking reports).

Statistical methods and item definitions need to be reviewed in order to satisfy

stakeholders needs and help units identify, plan, implement and evaluate areas of

improvement in health care delivered to VLBW/VLGA infants.

To evaluate the appropriateness of the developments of the network according to main

project aims, all SC members suggestions and comments on those issues will be

collected, analysed, taken into account and summarized in the evaluation report

(Deliverable 8: Network Final Management, Evaluation and Dissemination Report) at

the end of the year.

The increase or even the stabilization of number of data collected, units, regions and

countries participating in the network can be used as an external evaluation indicator

(see section “participating units” on this report and Deliverable 3).

Above all in the next SC members meeting, (17th

October, Barcelona), network’s

coordinators will evaluate the whole networks’ achievements and propose changes for

the future that will be summarized in Deliverable 8, at the end of the year.


Quality Checks Materials

ENN has developed several quality checks procedures to assure data is as clean as

possible, assuming that not everything can be under our control.

There are some simple stages when data arrives to ENN Coordinator centre in Bilbao.

Independently of the data collection method used by the unit, region and/or network

participating with data, this is mechanized and transformed to SPSS database format.

SPSS format is the one selected because programmed code for defining items, giving

formats and looking for errors, missing values and inconsistencies are programmed in

SPSS code. Data is also analysed mainly using SPSS statistical package, although some

procedures are performed with other statistical packages (R, Stata,…).

The first step is to name items, give formats and label categories if items are categorical

according to ENN items format definitions (Formats Syntax at the end of this section).

Item names and number and codification of items are compared to ENN formats.

Deviations detected are reported in the Queries Report (An example at the end of this

section).

After this, the queries programmed SPSS code is run over data and a list of

inconsistencies found is written and delivered to each participating unit that has

collaborated with data (Queries Report).

The number of queries per unit depends on unit’s performance. Some collect data

correctly since the beginning and other always have data to check. Of course units

experienced in ENN data collection procedures, have fewer checks than inexperienced

ones.

ENN haven’t found any increase in number of queries and type of errors since the

beginning of the initiative. If something should be highlighted is the consolidation of

data collected methods for senior units.

This year data collection for new items on SES and the nosocomial infection

surveillance system is being piloted. So a programmed code to check consistency for

these items is being developed and will be piloted. Results will be written in Deliverable

8.


Documents:

Formats Syntax

FORMAT CODE (F12.0).

FORMAT A_AGE_H (F3.0).

FORMAT A_AGE_MIN (F2.0).

FORMAT G_AGE_W (F2.0).

FORMAT G_AGE_D (F1.0).

FORMAT B_WEIGHT (F4.0).

FORMAT B_LENGTH (F4.1).

FORMAT B_H_CIR (F4.1).

FORMAT D_DEATH (F1.0).

FORMAT LOC_BIRTH (F1.0).

FORMAT LOC_BIRTH1 (A40).

FORMAT PRE_CARE (F1.0).

FORMAT PRE_STE (F1.0).

FORMAT STE_DOSE (F2.0).

FORMAT D_MODE (F1.0).

FORMAT SEX (F1.0).

FORMAT B_MULT (F1.0).

FORMAT N_FETUS (F1.0).

FORMAT D_ORDER (F1.0).

FORMAT APGAR1 (F2.0).

FORMAT APGAR5 (F2.0).

FORMAT D_OXY (F1.0).

FORMAT D_MASK (F1.0).

FORMAT D_INTU (F1.0).

FORMAT D_ADRE (F1.0).

FORMAT D_COMP (F1.0).

FORMAT AD_OXY (F1.0).

FORMAT AD_NCPAP (F1.0).

FORMAT AD_VENT (F1.0).

FORMAT AD_VENTNONAG (F1.0).

FORMAT AD_HIFI (F1.0).

FORMAT AD_HIFINONAG (F1.0).

FORMAT AD_ENDO (F1.0).

FORMAT SURFAC (F1.0).

FORMAT S_HOURS (F2.0).

FORMAT S_MIN (F2.0).

FORMAT S_DOSE (F1.0).

FORMAT D28_OXY (F1.0).

FORMAT W36_OXY (F1.0).

FORMAT STEROIDS (F1.0).

FORMAT IN_PRO (F1.0).


FORMAT IN_THE (F1.0).

FORMAT PDA_LIG (F1.0).

FORMAT ROP_SUR (F1.0).

FORMAT NEC_SUR (F1.0).

FORMAT OTH_SUR (F1.0).

FORMAT DESC_OTH (A30).

FORMAT RDS (F1.0).

FORMAT PNEUMO (F1.0).

FORMAT NEC (F1.0).

FORMAT GAST_PER (F1.0).

FORMAT IMAGING (F1.0).

FORMAT PIH_GRADE (F1.0).

FORMAT LEUKO (F1.0).

FORMAT AGE_LEUKO (F3.0).

FORMAT SEPSIS_B3 (F1.0).

FORMAT PATH_B (F2.0).

FORMAT SEPSIS_A3 (F1.0).

FORMAT PATH_A1 (F2.0).



FORMAT ROP (F1.0).

FORMAT ROP_GRADE (F1.0).

FORMAT ROP_PLUS (F1.0).

FORMAT LTE (F1.0).

FORMAT D_AGE_D (F3.0).

FORMAT D_AGE_H (F2.0).

FORMAT D_CAUSE (F1.0).

FORMAT D_CAUSE1 (A30).

FORMAT AUTOPSY (F1.0).

FORMAT B_DEFECT (F1.0).

FORMAT B_DEFECT1 (A6).





FORMAT DI_OXY (F1.0).

FORMAT DI_APNEA (F1.0).

FORMAT DISPOSITION (F1.0).

FORMAT DI_AGE_D (F3.0).

FORMAT DI_WEIGHT (F4.0).

FORMAT DI_LENGTH (F4.1).

FORMAT DI_H_CIR (F4.1).

FORMAT DI_feeding (F1.0).

FORMAT NOTES (A255).

FORMAT T_REASON (F1.0).

FORMAT T_REASON1 (A30).

FORMAT T_UNIT (A30).

FORMAT T_DISPOSITION (F1.0).


FORMAT T_STAY (F3.0).

FORMAT T_WEIGHT (F4.0).

FORMAT T_LENGTH (F3.1).

FORMAT T_H_CIR (F3.1).

FORMAT T_NOTES (A255).

FORMAT T_W36_OXY (F1.0).

FORMAT T_ROP (F1.0).

FORMAT T_ROP_GRADE (F1.0).

FORMAT T_ROP_PLUS (F1.0).

FORMAT T_FEEDING (F1.0).

***VARIABLE LABELS

VARIABLE LABELS CODE 'Code'.

VARIABLE LABELS a_age_d 'Age at admission (days)'.

VARIABLE LABELS a_age_h 'Age at admission (hours)'.

VARIABLE LABELS a_age_min 'Age at admission (minutes)'.

VARIABLE LABELS g_age_w 'Gestational Age (weeks)'.

VARIABLE LABELS g_age_d 'Gestational Age (days)'.

VARIABLE LABELS b_weight 'Birth Weight (grams)'.

VARIABLE LABELS b_length 'Birth length'.

VARIABLE LABELS b_h_cir 'Birth Head Circumference'.

VARIABLE LABELS d_death 'Death in Delivery Room'.

VARIABLE LABELS loc_birth 'Location at birth'.

VARIABLE LABELS loc_birth1 'Unit of Birth'.

VARIABLE LABELS pre_care 'Prenatal Care'.

VARIABLE LABELS pre_ste 'Prenatal Steroids'.

VARIABLE LABELS ste_dose 'Total number of steroids courses'.

VARIABLE LABELS d_mode 'Mode of Delivery'.

VARIABLE LABELS sex 'Gender'.

VARIABLE LABELS b_mult 'Multiple Birth'.

VARIABLE LABELS n_fetus 'Total number of fetuses'.

VARIABLE LABELS d_order 'Order at Delivery'.

VARIABLE LABELS apgar1 'Apgar test at 1 minute'.

VARIABLE LABELS apgar5 'Apgar test at 5 minutes'.

VARIABLE LABELS d_oxy 'Oxygen in DR'.

VARIABLE LABELS d_mask 'Any Non Aggressive Positive Ventilation in DR'.

VARIABLE LABELS d_intu 'Endotracheal Intubation in DR'.

VARIABLE LABELS d_adre 'Adrenaline/Epinephrine in DR'.

VARIABLE LABELS d_comp 'Cardiac Compression in DR'.

VARIABLE LABELS ad_oxy 'Oxygen after leaving DR'.

VARIABLE LABELS ad_ncpap 'Nasal-CPAP after leaving DR'.

VARIABLE LABELS ad_vent 'Conventional Ventilation after leaving DR'.

VARIABLE LABELS ad_ventnonag 'Non - Aggressive Conventional Ventilation after

leaving DR'.

VARIABLE LABELS ad_hifi 'High Frequency Ventilation after leaving DR'.

VARIABLE LABELS ad_hifinonag 'Non - Aggressive High Frequency Ventilation

after leaving DR'.


VARIABLE LABELS ad_endo 'Endotracheal Intubation after leaving DR'.

VARIABLE LABELS surfac 'Surfactant at any time'.

VARIABLE LABELS s_hours 'Hours of life at first surfactant dose'.

VARIABLE LABELS s_min 'Minutes of life at first surfactant dose'.

VARIABLE LABELS s_dose 'Total number of surfactant dose'.

VARIABLE LABELS d28_oxy 'Supplemental Oxygen on day 28'.

VARIABLE LABELS w36_oxy 'Oxygen at week 36 adjuted gestational age'.

VARIABLE LABELS steroids 'Steroids for BPD - CLD'.

VARIABLE LABELS in_pro 'Indomethacin/Ibuprofen (Prophylactic)'.

VARIABLE LABELS in_the 'Indomethacin/Ibuprofen (Therapeutic)'.

VARIABLE LABELS pda_lig 'PDA Ligation'.

VARIABLE LABELS rop_sur 'ROP Surgery'.

VARIABLE LABELS nec_sur 'NEC Surgery'.

VARIABLE LABELS oth_sur 'Other Major Surgery'.

VARIABLE LABELS desc_oth 'Other Major Surgery (desciption)'.

VARIABLE LABELS rds 'RDS'.

VARIABLE LABELS pneumo 'Pneumothorax'.

VARIABLE LABELS nec 'NEC'.

VARIABLE LABELS gast_per 'Focal Gastrointestinal Perforation'.

VARIABLE LABELS imaging 'Cranial Imaging'.

VARIABLE LABELS pih_grade 'PIVH Grade (0-4)'.

VARIABLE LABELS leuko 'Cystic Periventricular Leukomalacia'.

VARIABLE LABELS age_leuko 'Age at diagnoses of PVL (days)'.

VARIABLE LABELS sepsis_b3 'Early Bacterial and/or meningitis (before day 3)'.

VARIABLE LABELS path_b 'Pathogen code'.

VARIABLE LABELS sepsis_a3 'Late Sepsis and/or meningitis (after day 3)'.

VARIABLE LABELS path_a1 '1st Episode Pathogen (Code)'.

VARIABLE LABELS path_a2 '2nd Episode Pathogen (Code)'.

VARIABLE LABELS path_a3 '3rd Episode Pathogen (Code)'.

VARIABLE LABELS rop 'ROP (Retinal Exam)'.

VARIABLE LABELS rop_grade 'ROP Grade (0-5)'.

VARIABLE LABELS rop_plus 'ROP Plus disease'.

VARIABLE LABELS lte 'Therapeutic efforts limited?'.

VARIABLE LABELS d_age_d 'Age at death (days)'.

VARIABLE LABELS d_age_h 'Age at death (hours)'.

VARIABLE LABELS d_cause 'Cause of death'.

VARIABLE LABELS d_cause1 'Cause of death (description)'.

VARIABLE LABELS autopsy 'Autopsy/Necropsy'.

VARIABLE LABELS b_defect 'Major Birth Defect'.

VARIABLE LABELS b_defect1 'Major Birth Defect (description)'.





VARIABLE LABELS di_oxy 'Oxygen at disposition'.

VARIABLE LABELS di_apnea 'Apnea Monitor or cardio - respiratory monitor at

disposition'.

VARIABLE LABELS disposition 'Initial disposition form your Hospital'.


VARIABLE LABELS di_age_d 'Age at disposition (days)'.

VARIABLE LABELS di_weight 'Weight at initial disposition (grams)'.

VARIABLE LABELS di_length 'Length at initial disposition'.

VARIABLE LABELS di_h_cir 'Head Circumference at initial disposition'.

VARIABLE LABELS di_feeding 'Enteral feeding at initial disposition'.

VARIABLE LABELS notes 'Notes'.

VARIABLE LABELS t_reason 'Reason for Transfer'.

VARIABLE LABELS t_reason1 'Reason for Transfer (description)'.

VARIABLE LABELS t_unit 'Units Transfer Name'.

VARIABLE LABELS t_disposition 'Last transfer disposition'.

VARIABLE LABELS t_stay 'Total length of stay'.

VARIABLE LABELS t_weight 'Weight at last disposition'.

VARIABLE LABELS t_length 'Length at last disposition'.

VARIABLE LABELS t_h_cir 'Head Circumference at last disposition'.

VARIABLE LABELS t_notes 'Notes (Transferred Sheet)'.

VARIABLE LABELS t_w36_oxy 'Oxygen on week 36 adjusted gestational age

(Transferred Sheet)'.

VARIABLE LABELS t_rop 'ROP (Retinal Exam) (Transferred Sheet)'.

VARIABLE LABELS t_rop_grade 'ROP Grade (0-5) (Transferred Sheet)'.

VARIABLE LABELS t_rop_plus 'Rop Plus Disease (Transferred Sheet)'.

VARIABLE LABELS t_feeding 'Enteral feeding at last disposition'.

****VALUE LABELS

VALUE LABELS d_death 0 'No' 1 'Yes'.

VALUE LABELS loc_birth 1 'Inborn' 0 'Outborn'.

VALUE LABELS pre_care 0 'No' 1 'Yes'.

VALUE LABELS pre_ste 0 'None' 1 'Incomplete' 2 'Complete'.

VALUE LABELS d_mode 0 'Vaginal' 1 'Caesarean Section'.

VALUE LABELS sex 0 'Male' 1 'Female'.

VALUE LABELS b_mult 0 'No' 1 'Yes'.

VALUE LABELS d_oxy 0 'No' 1 'Yes'.

VALUE LABELS d_mask 0 'No' 1 'Yes'.

VALUE LABELS d_intu 0 'No' 1 'Yes'.

VALUE LABELS d_adre 0 'No' 1 'Yes'.

VALUE LABELS d_comp 0 'No' 1 'Yes'.

VALUE LABELS ad_oxy 0 'No' 1 'Yes'.

VALUE LABELS ad_ncpap 0 'No' 1 'Yes'.

VALUE LABELS ad_vent 0 'No' 1 'Yes'.

VALUE LABELS ad_ventnonag 0 'No' 1 'Yes'.

VALUE LABELS ad_hifi 0 'No' 1 'Yes'.

VALUE LABELS ad_hifinonag 0 'No' 1 'Yes'.

VALUE LABELS ad_endo 0 'No' 1 'Yes'.

VALUE LABELS surfac 0 'No' 1 'Yes'.

VALUE LABELS d28_oxy 0 'No' 1 'Yes' 2 'Not Applicable'.

VALUE LABELS w36_oxy 0 'No' 1 'Yes' 2 'Not Applicable'.

VALUE LABELS steroids 0 'No' 1 'Yes'.

VALUE LABELS in_pro 0 'No' 1 'Indomethacin' 2 'Ibuprofen' 3 'Both'.


VALUE LABELS in_the 0 'No' 1 'Indomethacin' 2 'Ibuprofen' 3 'Both'.

VALUE LABELS pda_lig 0 'No' 1 'Yes'.

VALUE LABELS rop_sur 0 'No' 1 'Yes'.

VALUE LABELS nec_sur 0 'No' 1 'Yes'.

VALUE LABELS oth_sur 0 'No' 1 'Yes'.

VALUE LABELS rds 0 'No' 1 'Yes'.

VALUE LABELS pneumo 0 'No' 1 'Yes'.

VALUE LABELS nec 0 'No' 1 'Yes'.

VALUE LABELS gast_per 0 'No' 1 'Yes'.

VALUE LABELS imaging 0 'No' 1 'Yes'.

VALUE LABELS leuko 0 'No' 1 'Yes' 2 'Not Applicable'.

VALUE LABELS sepsis_b3 0 'No' 1 'Yes'.

VALUE LABELS sepsis_a3 0 'No' 1 'Yes'.

VALUE LABELS rop 0 'No' 1 'Yes'.

VALUE LABELS rop_plus 0 'No' 1 'Yes'.

VALUE LABELS steroids 0 'No' 1 'Yes'.

VALUE LABELS lte 0 'No' 1 'Yes'.

VALUE LABELS d_cause 1 'Respiratory Failure' 2 'Sepsis' 3 'Neurological' 4

'Congenital Malformation' 5 'Unknown' 6 'Other'.

VALUE LABELS autopsy 0 'No' 1 'Yes'.

VALUE LABELS b_defect 0 'No' 1 'Yes'.

VALUE LABELS di_oxy 0 'No' 1 'Yes'.

VALUE LABELS di_apnea 0 'No' 1 'Yes'.

VALUE LABELS disposition 1 'Transferred to another Hospital' 2 'Home' 3 'Died' 4

'Still hospitalized as of first Birthday'.

VALUE LABELS di_feeding 0 'None' 1 'Human Milk Only' 2 'Formula Only' 3 'Both'.

VALUE LABELS t_reason 0 'Growth/Discharge Planning' 1 'Surgery' 2 'Chronic Care'

3 'Medical/Diagnosric Services' 4 'Other'.

VALUE LABELS t_disposition 2 'Home' 3 'Died' 4 'Still hospitalized as of first

Birthday'.

VALUE LABELS t_w36_oxy 0 'No' 1 'Yes' 2 'Not Applicable'.

VALUE LABELS t_rop 0 'No' 1 'Yes'.

VALUE LABELS t_rop_plus 0 'No' 1 'Yes'.

VALUE LABELS t_feeding 0 'None' 1 'Human Milk Only' 2 'Formula Only' 3 'Both'.


Perinatal Quality Checks Syntax (Example for several items, complete document is over

50 pages)

***Birth Weight Missing

USE ALL.

COMPUTE filter_$=(SYSMIS(b_weight)).

VARIABLE LABEL filter_$ 'SYSMIS(b_weight) (FILTER)'.

VALUE LABELS filter_$ 0 'Not Selected' 1 'Selected'.

FORMAT filter_$ (f1.0).

FILTER BY filter_$.

EXECUTE .

SUMMARIZE

/TABLES=Code b_weight

/FORMAT=VALIDLIST NOCASENUM TOTAL

/TITLE='Case Summaries'

/MISSING=VARIABLE

/CELLS=COUNT .

***Inconsistencies for Prenatal Steroids and doses

USE ALL.

COMPUTE filter_$=(Ste_dose> 0 & (pre_ste= 0 or SYSMIS(pre_ste))).

VARIABLE LABEL filter_$ 'SYSMIS(ste_dose) & pre_ste > 0 (FILTER)'.



FILTER BY filter_$.

EXECUTE .

SUMMARIZE

/TABLES=Code pre_ste ste_dose



/MISSING=VARIABLE

/CELLS=COUNT .

**Inconsistencies in multiple birth and number and foetuses order.

USE ALL.

COMPUTE filter_$=((b_mult = 1 & (SYSMIS(n_fetus) | SYSMIS(d_order) | n_fetus =

0 | d_order = 0)) | (b_mult = 0 & (n_fetus > 1

| d_order >= 1)) | (SYSMIS(b_mult) & (n_fetus > 1 | d_order >= 1))).

VARIABLE LABEL filter_$ '(b_mult = 1 & (SYSMIS(n_fetus) | SYSMIS(d_order) |

n_fetus = 0 | d_order = 0)) | (b_mult = 0 &'+


' (n_fetus > 1 ... (FILTER)'.



FILTER BY filter_$.

EXECUTE .

SUMMARIZE

/TABLES=Code b_mult n_fetus d_order



/MISSING=VARIABLE

/CELLS=COUNT .

***Problems in Late Sepsis Items

USE ALL.

COMPUTE filter_$=((((sepsis_a3 = 0 | SYSMIS(sepsis_a3)) & (path_a1 > 0 | path_a2 >

0 | path_a3 > 0)) | (sepsis_a3 = 1 &

(SYSMIS(path_a1) | SYSMIS(path_a2) | SYSMIS(path_a3))))& d_death= 0 &

(di_age_d >=3 or d_age_d >= 3)).

VARIABLE LABEL filter_$ '((sepsis_a3 = 0 | SYSMIS(sepsis_a3)) & (path_a1 > 0 |

path_a2 > 0 | path_a3 > 0)) | (sepsis_a3 = 1 &'+

' (SYSMIS... (FILTER)'.



FILTER BY filter_$.

EXECUTE .

SUMMARIZE

/TABLES=Code sepsis_a3 path_a1 path_a2 path_a3



/MISSING=VARIABLE

/CELLS=COUNT .

***PATTERNS

***Admitted in NICU at 28 day of life so can answer to Oxygen on day 28

**Admitted at day 28

USE ALL.

COMPUTE filter_$=(di_age_d >= 28).

VARIABLE LABEL filter_$ 'di_age_d <= 28 (FILTER)'.



FILTER BY filter_$.

EXECUTE .


FREQUENCIES

VARIABLES=d28_oxy

/ORDER= ANALYSIS .

***List of inconsistencies for this case.

USE ALL.

COMPUTE filter_$=(di_age_d >= 28 & d28_oxy = 2).

VARIABLE LABEL filter_$ 'di_age_d <= 28 & d28_oxy = 2 (FILTER)'.



FILTER BY filter_$.

EXECUTE .

SUMMARIZE

/TABLES=Code d28_oxy di_age_d



/MISSING=VARIABLE

/CELLS=COUNT .

**Babies dicharged before day 28

USE ALL.

COMPUTE filter_$=(di_age_d <28 & (d28_oxy = 0 | d28_oxy = 1)).

VARIABLE LABEL filter_$ 'di_age_d <=28 & (d28_oxy = 0 | d28_oxy = 1)

(FILTER)'.



FILTER BY filter_$.

EXECUTE .

SUMMARIZE

/TABLES=Code d28_oxy di_age_d



/MISSING=VARIABLE

/CELLS=COUNT .


Queries Report Example

ENS CODE CCC/RR/UU/13/037: Enteral feeding at initial disposition is missing. ENS CODE CCC/RR/UU/13/041: Enteral feeding at initial disposition is missing. ENS CODE CCC/RR/UU/130/43: Steroids for BPD-CLD is missing. Indomethacin/ibuprofen therapeutic is missing. ENS CODE CCC/RR/UU/130/45: Birth length is missing. Death in delivery room is missing. Location at birth is missing. ENS CODE CCC/RR/UU/13/046: You have put rop retinal exam and rop plus disease no, what’s wrong? ENS CODE CCC/RR/UU/13/049: Initial disposition form your hospital is missing. The baby was discharged before the week 36 adjusted to gestational age. According to ENS Manual, oxygen on week 36 should be Not Applicable. Form reads No. ENS CODE CCC/RR/UU/13/054: Total number of surfactant dose is missing. ENS CODE CCC/RR/UU/13/055: Rop retinal exam at transferred sheet is missing. Reason for transfer is missing. Units transfer name is missing. Last transfer disposition is missing. Total length of stay is missing. Weight at last disposition is missing. Length at last disposition is missing. Head circumference at last disposition is missing. Enteral feeding at last disposition is missing. ENS CODE CCC/RR/UU/13/059: The baby was discharged before the week 36 adjusted to gestational age. According to ENS Manual, oxygen on week 36 should be Not Applicable. Form reads No.


The data number of data collection of 2013 is 4,991 cases less than 2012, in this

year we had 7,588 cases, but we hope to continue receiving data.

Participating units are asked to check, complete and validate its data quarterly.

Internal validation continues by controlling missing values, inconsistencies, strange

patterns and extremely low/high rates. An evaluation report is delivered to each unit

with problems encountered and possible solutions. For that purpose, Standard

Operating Procedures (SOP’s) have been developed and implemented in

EuroNeoNet network. SOP’s are based in a systematic, stepped sequence of

validations, and information flows, from the auto-evaluation of each activity, to the

periodic evaluation of the overall network execution at the management meetings.

1- The Network is still using the procedures defined in the SOP’s, to detect

systematic errors in data collection for any individual units/regional or national

networks. These are communicated to IT responsible for that individual

unit/regional or national network and corrected. These methods will be reviewed

during this year and modified if considered to be necessary. Checks over data

are continuously evaluated and retested. Introduction of new units with its own

particularities force us to detect and modify checks to assure data compliance.

The reduction on the amount of data to be checked out is used as an evaluation

measure. To evaluate performance the number of newborns reported per unit

yearly is used individually and compared to the number of expected babies as a

process indicator expressed as a %. If deviations arise, the unit is queried for

that. Number of reporting units per country and number of countries will

evaluate network’s coverage and consequently reliability/consistency of data.

2- Network’s progress is periodically compared to the work-plan by the data

manager team, Coordinator and Consortium, on a pyramidal sequence of

validations and information flows, from the self-evaluation of networks

activities, to the periodic evaluation of the overall network performance. These

procedures are strongly related to management activities. If aroused, this will be

discussed in the SC Members biannual Meetings and agreed in the specific

Meeting Agreements. We also monitor the quality of the data, outcomes and

usefulness for stakeholders.


Our website has 2,336 visits since 2013. There have been an 82.4% of new visitors and

a 17.6% of returning visitors.

Here you have a map with the visits and a table with the different countries that have

visited our website.


EuroNeoNet

General Contact Information

Hospital Universitario Cruces

Unidad Neonatal 5-D

Plaza de Cruces s/n

48903 Barakaldo

Bizkaia (Spain)

Phone: +34 94 600 63 94

Fax: +34 94 600 60 76

e-mail: [email protected]

mailto:[email protected]