eurocat data management program edmp. what is edmp? designed for eurocat by biomedical computing...
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EUROCAT Data Management Program
EDMP
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What is EDMP?
Designed for EUROCAT by BioMedical Computing Limited, East Sussex
Written in Access Designed as a flexible tool to assist in
the collection, management, reporting and analysis of congenital anomaly data
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Would EDMP be useful to you?
Are you interested in membership of EUROCAT? Please see the website for different membership categorieswww.eurocat.ulster.ac.uk/memberreg
Are you able to follow the guidelines as described in Guide 1.3?
Please note that there is not an automatic malformation coding system
Malformations are coded to ICD10 with BPA one digit extension. Anomalies of interest to EUROCAT are those with codes in the Q chapter of ICD10 and a very limited set of conditions coded outside the Q chapter
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Coding of EUROCAT Subgroups
EUROCAT subgroup
ICD10-BPA ICD9-BPA Comments
All cases Q-chapter, D215, D821, D1810, P350, P351, P371
74, 75, 27910, 2281, 7710, 7711, 77121
Nervous system Q00, Q01, Q02, Q03, Q04, Q05, Q06, Q07
740, 741, 742
Neural Tube Defects Q00, Q01, Q05 740, 741, 7420
Anencephalus and similar
Q00 740
Encephalocele Q01 7420 Exclude if assoc. with anencephalus
Spina Bifida Q05 741 Exclude if assoc. with anencephalus or encephalocele
….Continued for 95 subgroups Ref: EUROCAT Guide 1.3, Chapter 3.3
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Main Menu
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Dataset Choices
Core data – essential for all EUROCAT registries to collect
Non-core data – not mandatory to collect
Local variables – not sent to EUROCAT
User specific variables – allows flexibility
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Add/Edit Cases
There are a number of data entry screens, subdivided to collect information on:
Baby & Mother Malformations Exposure Family History & Sociodemographic Local Variables
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View a Case
There are a number of ways to retrieve the case of interest:
Local ID number if known Date of birth Place of birth
etc
As the name suggests you can not edit data in this mode
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Shows all the information held on a case
Same format as entry screens
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Importing Data You can use EDMP as your sole data
collection tool Or you may wish to keep your existing
data collection system However Central Registry can only
accept data that has been verified by use of EDMP
Variable names need to match EUROCAT guidelines (see chapter 2.2.1a of the EUROCAT User Guide 1.3)
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Error Log
EDMP has a number of validation tools to help ensure data is as accurate as possible
After import, run the Error Log This highlights any errors which can then
be checked
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Data Validation
Each time you enter a new case, Central Registry recommends the use of:
‘Duplicate Check’ button ‘Validation’ button
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Results of Validation
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Reports
You have a wide range of reporting functions
Web Site Style Tables Reports by Criteria:
FrequenciesList – Case ID & SummaryList – Malformation Codes By CaseExport All or Selected Variables
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Example of Website Style Report Showing Prevalence Rates Per 10,000 Births
Excluding Chromosomal
Anomaly Subgroup
LB (n) FD (n) TOP (n) LB+FD+TOP (n)
LB+FD+TOP (rate)
LB+FD+TOP(n)
LB+FD+TOP (rate)
All anomalies 486 7 98 591 222.01 518 194.59
Nervous System 18 3 29 50 18.78 44 16.53
Neural Tube Defects
3 1 16 20 7.51 19 7.14
Anencephalus & similar
0 0 7 7 2.63 7 2.63
….Continued for 95 subgroups
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Exporting Data
Central registry only accepts data that has been verified by EDMP and data exported in the form of a .csv file
Because of changes in fields of information collected, data before 2005 has to be exported separately from 2005 onwards
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Denominators
To allow EDMP to calculate prevalence rates, the denominators for the registry area have to be entered.
Live births Stillbirths Total births
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Statistical Surveillance
This allows you to scan your data for trends and clusters
You can specify the time period Output can be for all anomaly subgroups
or an individual subgroup A detailed protocol is available to
members on EUROCAT website
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Example of Statistical Surveillance Output to Excel
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Results of Trend Test Analyses
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Results of the Cluster Monitoring
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Graphical Representation of Trend Surveillance
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System Menu
A range of administrative functions Data location – this shows you the
directory where your EDMP data file is stored. It is vital to regularly back up this file so that data is not lost
Users & Passwords – this allows you to set passwords and different levels of access for different users
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Assistance
Training can be provided at Central Registry
Workshops are held annually at the EUROCAT conference
Regular updates to the software are provided