Personalised medicine education & training

Macro challenges and the path forward

Jami Taylor EuroBioForum Annual Conference Munich, Germany ▪ May 2013

www.janssendiagnostics.com

www.epemed.org

Macro challenges: An overview

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Knowledge gaps are not clearly identified

The guiding lexicon is not yet standardised

The technology is advancing rapidly

Three challenges that complicate personalised medicine education & training today

Identifying stakeholder knowledge gaps

Meeting the challenges of personalised medicine education and training in Europe will first require a clearer understanding of where the gaps in knowledge lie, the extent of those gaps and their associated implications.

The evolving lexicon

Personalised medicine

Precision medicine

P4 medicine

Individualized medicine

Stratified medicine

Targeted therapy

Terms used to describe this trend in medicine have yet to be standardised or fully clarified

Personalised medicine confounds familiar categories, and as such will continue to drive a new vocabulary in medicine aiming to capture the phenomena it enables

therapeutics diagnostics theranostics? +

e.g.,

Rapidly advancing technology

“One could argue that these technologies are advancing so rapidly that what we teach today will be obsolete by the time personalised medicine is in common practice.” - Kenneth Cornetta, MD & Candy Gunther Brown, PhD

Academic Medicine. 2013;88(3):309-313.

The path forward

Starting options for consideration

Assessing the knowledge gaps

• Using a range of tools, conduct a series of personalised medicine knowledge audits among key stakeholders

• Analyze information collected, identify needs

• Develop personalised medicine education strategy according to the audit’s findings; refine continually based on built-in feedback mechanisms, new information and insights

Recommendations for managing knowledge gaps:

Personalised medicine knowledge audits among key stakeholders

Patients & patient advocacy groups

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Medical school students

Medical societies & guideline committees

Practicing clinicians

Surveys

Interviews

focus groups

social listening

Managing a lexicon in flux

• Allow for a multiplicity of terms while striving for some standardisation

• Be open to introducing new terms as the technology evolves and as older terms prove inadequate

• As a community, push for clarity as new terms are introduced; test new terms vigorously within and beyond the community to determine which best illuminate the concepts at hand

Recommendations for managing the lexicon:

Keeping pace with the technology

Recommendations for educating amid rapid change:

• More powerfully and consistently convey the larger vision of personalised medicine and its transformative potential

• Create resources to help stakeholders keep pace with advances in personalised medicine technology

And more fundamentally:

• Draw from best practices used in other high-tech fields

Creating resources to inform stakeholders of new advances in real-time

Drawing on best practices in other high-tech fields

- Steve Jobs Co-founder, Apple 1955-2011

Simple can be harder than complex: You have to work hard to get your thinking clean to make it simple. But it’s worth it in the end because once you get there, you can move mountains.

Conveying the larger vision

A vision for all patients, everywhere…

Thank you