ethics and social research chapter 3. introduction ethical principles in research the set of values,...
TRANSCRIPT
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Ethics and Social Research
Chapter 3
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Introduction
Ethical principles in research The set of values, standards, and principles
used to determine appropriate and acceptable conduct at all stages of the research process
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Introduction
Stop and Think Do you know of any research projects in the
social sciences, medicine, or biology where researchers did something that was ethically questionable?
What was it about the study that raised questions for you?
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Introduction
Historical perspectives on research ethics American Psychological Association (APA) American Sociological Association (ASA)
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Introduction
Historical perspectives on research ethics Total disregard for the human dignity perpetrated
during World War II by researchers in concentration camps controlled by Nazi Germany
Air pressure Cold water Treatment of wounds Exposure to chemical-warfare agents Essential to have voluntary consent of human
subjects
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Introduction
• Historical perspectives on research ethics
• Nuremberg Code • Principles about research on human beings
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Introduction
• Historical perspectives on research ethics Atomic Energy Commission
Conducted research on the effects of radiation on human subjects, including medical research on using radioisotopes to diagnose or cure disease
Semi-comatose cancer patients were injected with plutonium to determine how much uranium was needed to produce kidney damage
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Introduction
• Historical perspectives on research ethics The Tuskegee Syphilis Study
Conducted by the United States Public Health Service to study the effect of untreated syphilis to determine the natural history of the disease
Project began in 1932 and lasted 40 years Sample began with 399 poor black men with late-stage
syphilis. In the end, the study included a total of 600 men. Offered free medical care in exchange for their medical
data. None were told that they had syphilis. More than 400 were not offered the standard treatment for
syphilis. They were also not provided penicillin when it became available as a cure.
Many of the men died of the disease and some unknowingly transmitted the disease to their wives and children.
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Introduction
• Historical perspectives on research ethics Institutional review board (IRB)
The committee at a college, university, or research center responsible for evaluating the ethics of proposed research
Levels of IRB review
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Quiz – Question 1
What is the primary factor to consider in determining the needed level of IRB review?
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Introduction
Focal research “Ethical Concerns and Researcher
Responsibilities in Studying Women with HIV/AIDS”
Process of conducting research Ethical practices
Using informed consent procedures Respondent’s privacy and confidentiality Preserving the integrity of the respondent’s
narratives
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Principles for Doing Ethical Research
Ethics A set of moral and social standards that
includes both prohibitions against and prescriptions for specific kinds of behavior in research
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Principles for Doing Ethical Research
Principles regarding participants in research Protect study participants from harm
The principle that participants in studies are not harmed, physically, psychologically, emotionally, legally, socially, or financially as a result of their participation in a study
Milgram experiment
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Principles for Doing Ethical Research
Principles regarding participants in research Voluntary participation and informed consent
The principle that study participants choose to participate of their own free will
Informed consent A statement that describes the study and the
researcher and formally requests participation
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Principles for Doing Ethical Research
Stop and Think Who should give informed consent in a study
involving students under 18? The students? Their parents? Both?
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Principles for Doing Ethical Research
Principles regarding participants in research Voluntary participation and informed consent
Passive consent When no response is considered an affirmative
consent to participate in research; also called “opt out informed consent
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Principles for Doing Ethical Research
Principles regarding participants in research Voluntary participation and informed
consent Are participants really volunteers?
Have you ever been asked by an instructor while your were his or her student to participate in a study they were conducting?
Were you ever asked while in a class to complete a questionnaire or participate in an interview?
Did you feel an pressure or did you feel you could decline easily?
Are students in these situations truly volunteers?
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Principles for Doing Ethical Research
Principles regarding participants in researchVoluntary participation and informed
consent Is it ethical to observe people in public,
without there knowledge? Study college students by letting them assume
you are one of them Gather data by attending an AA meeting
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Principles for Doing Ethical Research
Principles regarding participants in research Anonymity and confidentiality
Anonymity When no one, including the researcher, knows the
identities of research participants
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Principles for Doing Ethical Research
Principles regarding participants in research Anonymity and confidentiality
Confidentiality (privacy) When no third party knows the identities of the
research participants Keeping the information disclosed by study
participants, including their identities, from all other parties
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Principles for Doing Ethical Research
Principles regarding participants in research Anonymity and confidentiality
Tearoom Trade - Humphreys
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Quiz – Question 2
What two principles did Humphrey’s violate?
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Principles for Doing Ethical Research
Ethical issues concerning colleagues and the general public Honest reporting
The ethical responsibility to produce and report accurate data
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Principles for Doing Ethical Research
Ethical dilemmas during and after data collection Who owns the data? Whose interpretation counts? Who has veto power? What are the researcher’s obligations after the data are
collected? Can the data be used against the participants? Will the data be used on their behalf? Do researchers have an obligation to protect the
communities and the social groups they study or just to guard the rights of individuals?
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Principles for Doing Ethical Research
Ethical dilemmas during and after data collection Conflicts between ethical principles
Research by Ptacek (1988) Research by Yassour-Borochowitz (2004)
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Conflicts Between Ethical Concerns and Legal Matters Research by Calvey (2008) Research by Leo (1995) Research by Scarce (1995)
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Conflicts Between Ethical Principles and Research Interests Research by Jackall (1998) Research by Frankenberg (1993) Research by Rollins (1985) Research by Lauder (2003) Research by Ward and Henderson (2003)
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Ethics and Publishing Results
Research by Ellis and colleagues (2008)
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Making Decisions to Maximize Benefit and Minimize Risk Think about the consequences of doing a
given study as opposed to not doing the study
Consider all options and methods to find a research strategy that balances being ethical, being practical, with the likelihood of obtaining good quality data
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Summary
Protect research participants from harm Get informed consent Be sure the study participants have not been
pressured into volunteering Collect data anonymously or keep data confidential Submit the research proposal to a review board Provide accurate research findings Consider responsibilities to research colleagues and
the general public Maximize benefits and minimize risks
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Quiz – Question 3
Of the following ways to do research, which is likely to involve the most serious ethical concerns?
a. In person interviews
b. Mail in questionnaires
c. Observation in a public place
d. Analyzing data from a secondary source
e. Content analysis