End-User Co-Creation - How to reach Excellence and Impact:

Marc Lange, Secretary General

EHTEL’s mission: the European eHealth Stakeholder Platform

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Authorities and Payers

UsersIndustry

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Article 3, §4 of the 1999 bylaws:

This forum is therefore designed to improve the ties and the exchange of contacts between the different stakeholders of the healthcare sector, and to ensure the timely exploitation of appropriate information and communication technologies, directly or through their national and international associations, in particular:

Your health data available and shareable

when and where you need

Our key goals are

• To complement the current interoperability infrastructures

• With new technologies for health data exchange centered on the person,

• Based on a bottom-up approach that

• does not require the coordination by a superior authority

• and leaves more control of health data to the people

• To contribute to the digital transformation of health and care systems

and support patient empowerment policies

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VISION

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The project will release an open specification to securely exchange health data

using the InteropEHRate protocols between different persons’ S-EHRs, and different

applications of researchers and healthcare professionals of different countries.

Scenario 1

Device-to-device temporary sharing

InteropEHRate TECHNICAL APPROACH

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The prototype of a mobile app

• Patients are in control of all personal health data and can collect, see and

share it with healthcare professionals, researchers or whoever they want.

• People are hence mediators for health data exchange that can also be

transferred privately and securely through device-to-device protocols.

• The patient is not locked with one vendor and may change the S-EHR app or

move data between cloud storages.

• The S-EHR app and cloud vendors may be different.

• The cloud storage can be used for emergencies, like a national EHR.

• InteropEHRate will define vendor-independent protocols for direct

communication with patients and vendor-independent criteria to be fulfilled by

the apps and service providers for secure storage of health data on mobile and

on cloud.

CORE FUNCTIONALITIESScenario 2

Emergency consultation

of S-EHR cloud

Scenario 3

Sharing of personal health data for research05/01/2020

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• Critical step: define an IT solution implementing an

effective model of data exchange and management• In respect of medico-legal regulation

• In order to simplify the communication with final users,

the analysis of requirements is based on the specification of User Scenarios

• A “User Scenario” is a storyboard describing the interactions of different actors in a

particular situation to solve a specific problem. • In medicine, scenarios are currently used in clinical practice for teaching, both for physicians and nurses

• User scenarios involve access, by authorized people, to health data of patients

coming from different European countries.

END-USER CO-CREATION

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• Critical step: define an IT solution implementing an

effective model of data exchange and management• In respect of medico-legal regulation

• In order to simplify the communication with final users,

the analysis of requirements is based on the specification of User Scenarios

• A “User Scenario” is a storyboard describing the interactions of different actors in a

particular situation to solve a specific problem. • In medicine, scenarios are currently used in clinical practice for teaching, both for physicians and nurses

• User scenarios involve access, by authorized people, to health data of patients

coming from different European countries.

END-USER CO-CREATION

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How?

Nurses, patients and doctors have met in focusgroups to discuss the requirements for eachscenario, to view the mock ups and to providesuggestions on their improvements

Focus groups have been created in all pilot sites(i.e. Italy, Belgium, Greece and Romania)

• The technology is only an enabler for e.g. transforming usual practices and

processes to the benefit of people, healthcare providers, researchers• This is again an area where end-user co-creation matter and where health professionals, nurses in particular,

have a key role.

THE CASE OF DISRUPTIVE/TRANSFORMATIONAL INNOVATIONS

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Example of transformation digitally enabled Example of co-creation methodology

• For a technology to have a transformational potential, co-creation matters also with

businesses• It is about creating innovation hubs and open ecosystems to develop new services relying on this open source

technology

• Co-creation with businesses also matter policy-wise to contribute to the emergence

of a fair data economy, • Where people benefits from new services in exchange of data they agree to share

• To achieve this part of the work, InteropEHRate can count e.g. on the support of the

OPEN DEI project on digital platforms and innovation ecosystems.

THE CASE OF DISRUPTIVE/TRANSFORMATIONAL INNOVATIONS

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OPENDEI – Presentation Date 12

OPENDEI – Presentation Date 13

OPEN DEI will promote and

sustain examples/good practices

in business models based on

participation, collaboration and

knowledge sharing

www.interopehrate.eu

THANK YOU

HAPPY to ENGAGE in CONVERSATIONS