“END FALLS, THIS FALL!”Conference

• Hawkridge Golf ClubOrillia, Ontario

Wednesday, September 25, 2013•

Network: My Parkinson's Team

Me & My

Family

Neurologist or M.D.S.

General Practitioner

Nurse & Nutritionist

Physio- therapist

& O.T.

P.S.C-C.N.O.

Counsellor & Social Worker

C.C.A.C. & Home Care

Pharmacist

My Mission

• Safety: avoid potential falls

• Convenience: simple, least effort

• Quality of Life: quality of daily living

In The Home• Most familiar place

• Often assistance by spouse, family, friends & neighbours

• Perhaps; financially cheaper to patient and system

• Happy patient & Carer

General Assistance & Technology!

Entrances & Doors!• Good lighting; working at all entrances• Eaves troughs; cleaned & in good repair• Proper locks & keys, perhaps push button• Proper handles; lever not turn type• Proper width of doors• Non slip mats• Free of clutter• Ramps, if necessary!

My Special Project: Government Grant!

Ontario Renovates!

My Bathroom• Non slip mat or strips for tub or shower?• Shower seat or bench?• Good lighting, including night light?• Grab bars or rails?• Easy to reach & turn taps?• Gadgets including long handle brushes, soap

mitts, tap turners, tooth paste squeezers & electric brusher?

• Newly designed walk-in tubs?• Portable phone?

Your Medicine Cabinet• Only medication that is prescribed for you.• Are your medications clearly labelled?• Have discussed your Meds with your pharmacist?• Do you know the side affects of your meds?• Do you have an updated list of your meds handy?

My Bedroom• Good lighting with easy to reach switches from

bed or hand remote switch?• Accessible phone with special safety features?• Lots of moving space, non cluttered floor?• Night light & accessible flashlight?• Good ventilation• Assistive transfer aids, such as a lift bar, side

bar or bedside pole?• Functional bedding such as satin sheets & a

light duvet?

Kitchen & Dinning Area• Items using often within easy reach?• A step stool, with rail, to reach higher?• All switch easy to reach and put of & on?• Non slip place mats with adaptive dishes and

cutlery• Adaptive prep tools and small appliances?• Easy to use taps with grab tools?• Clutter free and non slip flooring?

Other living Space!• Good lighting in all rooms & hallways?• Furniture, proper height & easy to exit?• Clear pathway to phone &/or hands free?• Important numbers posted & easily seen?• Medical information posted &/or easy to

access by all?• Add electrical outlets & jacks to avoid

extension cords. • Consider other technical gadgets (T. V. or

door security) for easier living?

Service Directory!North Simcoe & Muskoka• Bracebridge Fire & Emergency Service............ 911• Bracebridge O.P.P............................. 705-645-2211• South Muskoka Memorial Hospital.. 705-645-4404• My Doctor; Phillips.......................... 705-645-2223• My Pharmacy; Rexall....................... 705-645-8738• CCAC...................................................... 310-2222• Meals on Wheels (Red Cross).......... 705-721-3313• Poison Information....................... 1-800-268-9017• Senior Safety Line......................... 1-866-299-1011• Simcoe Health Unit....................... 1-888-225-7851• Environment Spill......................... 1-800-268-6060

Outside Your Home!• Opportunities in your neighbourhood - the support of friends & family?

• Opportunities in your community- support from your doctor, dentists, drug store, service clubs, health clubs & services such as hospitals, health charities, CCAC & other local government agencies?

• On-line support from Provincial or Federal Government Agencies and programs.

• Other registered non-for-profit charitable organizations.

• Keep a list of important website; P.S.C.; CCAC; Assistive Dev.; Gov. Health links; Seniors gc.ca; Specialty care; Travel specialists; etc.

S - smile O - openly L - laugh O - often !!

Living Alone With Parkinson's Disease

F - freedom L - listen Y - yahoo I -independence N -network G -goal setting

FREEDOMLike incoming waves, many choices, you select the one you want to ride!Ability to do as you choose!Choose your battles & your friends!Your responsibility!Focus on “self”

Listen!- be an active listener- don’t trust all words, trust actions!- If a person speaks bad of others, perhaps he speaks bad of you!?

YAHOO!• Communication tool• Information & people only a click away!• Many social networking options!• Varied “apps” to assist doctors & patients with

record keeping!

Independence! Just like “freedom” and doing things at your own pace!

Enjoy life; it’s all about the journey, not the destination! Walk, don’t run; use all your senses!

Tough times don’t last, tough people do!

Goal Setting!A goal without a plan is just a wish!

If you want a happy life, tie it to a goal, not things or people!

Smile; Don’t Worry, Be Happy!Make your smile change the world, don’t let the world

change your smile!It shows your optimism & confidence!

Openness; is a part of sharing!Be proud of what you do, say and think!

Speak your mind, unless it is hurtful.Good friends share the truth to each other.

Open doors provide opportunity & remove old walls.Ask questions & search for answers!

Laughter and Humour!An expression of happiness!The best medicine available!

If laughing for no reason; take your meds!

OFTEN; do it again repeatedly!We learn through repetition!

“Don’t give up, endurance wins the race!”We get better with practice.

Exercise, regularly; “use it or loose it!”Repeat the positive & forget the negative!

Renewal Room Activities

• The Renewal Room is:

• a safe and dynamic space• short interactive sessions• delegates can nourish your mind, body and spirit • activities include humour, tai chi, yoga, dance, pilates,

drumming, drawing, vocal/singing & other artistic skills; plus relaxation/massage!

Social Networking at WPC 2013• Facebook: for information, links, photos &

messaging with Parkinson’s globally. Like!• Twitter: WPC 2013s hashtag is #wpc2013; our

“Handle” is @WorldPDCongress• You Tube: home of our “Video Competition

Promotion” & other popular video uploads.• Linkedin: a professional business com. site to

find people, companies, jobs, etc.• Instagram: to capture & share videos & pics,

with Tumblir, Twitter & Facebook for free!

The Top 12 Videos for People’s Choice!

#10 A Physiotherapist's Journey with Parkinson's Disease by Jillian Carson#27 Larry Schneider Jr. To Givers of Care#45 Bostjan Colaric; Telling the tales to live#56 Darren Howarth; Pop, Lock and Tremor#59 Serge Cloutier; Parkinson au jour le jour#65 Heather MacTavish; Secret Shames & Parkinson's Perils#71 Margaret Mullarney; Something Inside So Strong#74 Sharon Kha; Change Your Brain#79 Andy McDowell; Smaller: A Poem about Parkinson's#94 Brian Grant; Power Forward!#96 Pamela Quinn; With Grace!#106 Sonia Gutierrez; Planting Hope!

WPC 2013 Documentary Films: very powerful stories about P.L.W.P.

Capturing Grace by David IversonTime: 70 minutesHosted by David Iverson & Dave LevanthalThe Healthiest Man On EarthTime: 26 minutesHosted by Gary TurchinUndefeated: An Intimate Portrait of Parkinson’sTime: 60 minutesHosted by Diane Robinson & Bob KuhnI'm Here It's Me Can You See Time: 26 minutesHosted by Ruth Peyser & Pam QuinnThe Astronaut’s Secret by Zach JankovicTime: 60 minutesHosted by Zach Jankovic & Rich Clifford

The place to find out everything about WPC 2013

www.worldpdcongresss.org

ARE THERE ANY...QUESTIONS?