emerging psychological perspectives on disability ... · “the nature of suffering and. the goals...
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Kevin E. Vowles, Ph.D.
Associate Professor Departmentof Psychology
June 2014
Emerging PsychologicalPerspectives on
Disability & Rehabilitationin Chronic Pain
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Radical Idea?
• or many with chronic pain, pain intensity may be viewed as an untreatable symptom.
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Consider this:
• Chronic pain is frequent.e.g., Breivik et al., 2005, Eur J Pain
• For approx 85% of chronic pain sufferers, pain appears permanent.
e.g., Andersson, 2004, Eur J Pain; Elliott et al., 2002, Pain
• There are no medical interventionsavailable that reliably reduce the severity of pain (or improve functioning).
e.g., . . .
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Opioids
• No supportive evidence for long-term painreduction (i.e., > 15 weeks).
• No more effective than placebo or non-opioidalternative.
• Up to 25% of patients engage in behavioursthat may “be interpreted as signs of(substance) abuse (p. 123)”*
*Martell et al., 2007 – Ann. of Internal Medicine – Systematic Review Chou et al., 2007 - Ann. of Internal Medicine – Clinical Guidelines
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Surgery• Even in carefully selected cases, continuing pain and
disability are common.Hoffman et al., 1993; Turner et al., 1992
• 20% (or less) of all lumbar surgery patients return to work. Fewer than 31% of spinal cord stimulator patients return to work.
Franklin et al., 1994; Turk, 2002; Turner et al., 1995
• In comparison to physio alone, spinal cord stimulation+ physio was not associated with any improvements infunctioning or quality of life. Differences in pain levelswere absent 3, 4, & 5 years post-SCS placement
Kemler et al., 2000 NEJM; 2002 J Neurosurgery; 2006 NEJM;2008 J Neurosurgery
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Epidural Steroid Injections
• Lumbar Pain• Possibly effective for short-term (2-6 weeks) pain
reduction.• Small effects (Mean improvement: 15 mm on a 100 mm
VAS)
• Probably not effective for:• Long-term pain relief, Functioning, Need for surgery
• Cervical Pain• No evidence available upon which to base a conclusion
Armon et al., 2007 – Neurology – Systematic Review &Clinical Guidelines commissioned by the Amer. Acad. of Neurology
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Is Pain Relief Necessary?
• Strongest predictors of satisfaction withtreatment through an Anaesthesiology-basedservice:
• Perceiving evaluation as complete.• Feeling they received explanation for treatment.• Believing that treatment improved daily activity.
(McCracken et al. 2002)
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Pain and Functioning
• Studies show no evidence for a positive relationship between reported pain intensity and direct measures of:
• daily activity, medication use, health careuse or observed behavior.Fordyce et al., 1981, 1984
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A question then . . .
• What are we treating?
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“My Migraine”
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Excerpts from patientletter:
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“trying to do more to take load off of husband/daughter”
“If there are no carers and I’m bad, I don’t wash, eat, etc.”
“(Pain is) ok, but neck hurts, tight chest and cough, startsin spine, pins/needles in arms/hands”
“I can cope with the pain . . . but clumsiness and weaknessis dangerous!”
“the house is a mess, (husband) is stressed/depressed,(daughter) stays away”
“I’m very positive and cheery (driven) and I think it doesme no favours as I think people think I am ok”
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“The Nature of Suffering andthe Goals of Medicine”
Eric J. Cassell“…people in pain often report suffering
from pain when they feel out of control, when the pain is overwhelming, when the source of the pain is unknown, when the meaning of pain is dire, or when the pain isapparently without end.” (2004, p. 35)
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Willingness
will·ing (adj.)• Disposed or inclined; prepared: I am willing to
overlook your mistakes.• Done, given, accepted, or borne voluntarily or
ungrudgingly. See Synonyms at voluntary.• Of or relating to exercise of the will; volitional.
Will (noun)• The mental faculty by which one deliberately
chooses or decides upon a course of action: championed freedom of will against a doctrineof predetermination.
•The American Heritage® Dictionary of the English Language, FourthEdition. Ret 05 Feb 2008, from:
http://dictionary.reference.com/browse/willing
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Pain and Suffering
Pain Suffering
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The Natural Response toPain
• “Its important to keep fighting thispain.”
• Endorsed as “Always True” or “AlmostAlways True” by 92% of patients
McCracken, Vowles, & Eccleston, 2004, Pain
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The Impact of FrequentStruggling
Single best predictor of:•Worse Pain•Poorer Activity•Greater Disability•Worse Depression•Greater Avoidance
This seems to be true cross-sectionally, prospectively, and over the course of treatment.
McCracken, Eccleston & Bell, 2005, Eur J Pain;McCracken, Vowles, & Gauntlett-Gilbert, 2007, J Behav Med;Vowles & McCracken, 2010, Beh Res & TherVowles et al., Clinical J Pain, 2014
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Pain and Suffering18
Pain Suffering
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Pain and Suffering19
Strugglingwith Pain
Failure
SufferingMultiplied
Lost Freedom &Opportunity
Pain
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Pain and Suffering20
Strugglingwith Pain
Failure
SufferingMultiplied
Lost Freedom &Opportunity
Pain
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Pain and Suffering21
Strugglingwith Pain
Failure
Lost Freedom &Opportunity
SufferingMultiplied
Pain
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Pain and Suffering22
Maintained Life Direction
Failure
SufferingMultiplied
Lost Freedom &Opportunity
Pain
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Pain and Suffering23
MaintainedLife Direction
Success
Lost Freedom &Opportunity
SufferingMultiplied
Pain
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Pain and Suffering24
SufferingMultiplied
MaintainedLife Direction
Success
Pain
Freedom &Opportunity
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Pain and Suffering25
MaintainedLife Direction
Success
Freedom &Opportunity
SufferingReduced
Pain
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Within this,• there can be an augmentation of willingness to have unpleasant
and aversive experiences . . .
• in the service of what we hold to be important . . . and a behavioral
commitment to move towards
• what we value with ongoing unwanted• experiences.
• This is what is referred to by the name “Acceptance
and Commitment Therapy”
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Data on the treatment approach
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ACT Treatment Outcomes
• 14 published studies, which showimprovements in:• Pain• Disability• Distress (i.e. Depression, Anxiety)• Healthcare Utilization• Physical Performance• Work & School Attendance
• Acceptance (Willingness and Awareness)• Values-based action
• In comparison to “treatment as usual” or waitlists.• Gains persist (usually 3-9 months; longest f/u is 3 years);
e.g., Dahl et al., 2004; McCracken et al., 2005; 2007; 2011;Vowles et al., 2007a; 2007b; 2008; 2009;2010; 2014;Wicksell et al., 2007, 2008, 2009.
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Summary
• In at least some patients, at least some of the time, pain nolonger appears to be the paramount problem.
• In responding normally to pain, behaviour often is directed towards pain control and away from areas that bring meaning and importance to living.
• Treatment methods can:• directly target these losses and restrictions in living.• work towards willingness to have the thoughts and feelings
associated with them in the service of improving living.• measure outcomes in terms of successful living, not severity of
symptoms.
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“People who have something better to do don’t suffer as much.”
- Wilbert Fordyce (1988)
“Friendship in adversity”,Ray Bne,
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General ACT References
Hayes, Strosahl, & Wilson. (1999). Acceptance and Commitment Therapy: An experiential approach to behaviour change. Guilford Press. New York.
Harris (2008). The Happiness Trap. RobinsonPublishing.
Luoma, Hayes, & Walser. (2007). Learning ACT: AnAcceptance and Commitment Therapy skills training manual for therapists. New Harbinger. Oakland, CA.
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ACT & Chronic PainReferences
McCracken, L. M. (2005). Contextual cognitive-behavioral therapy for chronic pain. Seattle,WA: IASP Press.
Vowles, K. E., & Thompson, M. (2011).Acceptance and Commitment Therapy forchronic pain. In L M McCracken (Ed.) Mindfulness and Acceptance in behavioral medicine: Current theory and practice.Oakland: New Harbinger Press.