ehealth - tfhc · 2018-07-06 · dutch ambitions on ehealth 1. by 2019 80% of the chronically ill...
TRANSCRIPT
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@T
FH
ealth
care
eHealth
International Visitors Programme 2017
Break-out session
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@T
FH
ealth
care
Agenda
MAIN ROOM
eHealth
10:45 eHealth PolicyRon Roozendaal, Chief Information Officer, Ministry of Health, Welfare & Sport
11:10 Q&A
11:20 eHealth in Practice: Go-FAIR & Personal Health TrainErik Schultes, Dutch Techcentre for Life Sciences
11:40 eHealth in Practice: Privacy & InnovationMichaël Stekkinger, MRDM
12:00 End
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@T
FH
ealth
care
eHealth Policy
Ron Roozendaal, Chief Information Officer, Ministry of Health, Welfare & Sport
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Ron Roozendaal
Director of Health Information Policy, Chief Information Officer
Ministry of Health, Welfare and Sport
The Netherlands
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5
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From the waiting room to the living room
Cold technology for warm care
eHealth = regular healthcare
Low-tech, high impact
Everybody CEO of their own health
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Dutch ambitions on eHealth
1. By 2019 80% of the chronically ill have direct electronic access to some of their medical data, such as medication data, vital functions and test results, and is able to use this data in mobile apps or internet applications.
2. Of the chronically ill (diabetes, COPD) and vulnerable elderly 75% who are willing and
able can take their own measurements by 2019, mostly in combination with remote monitoring by a professional.
3. By 2019 everyone in need of care at home will be able to communicate by video with their care professional remotely 24 hours a day. Also, smart home technology will be used to support home care.
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Healthcare in The Netherlands
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Flourishing ecosystemGood climate and fertile ground
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Health deals
Decision support for oncologyChronic pain managementAcademy The Village “Het Dorp”
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Fast track eHealth
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Voettekst14Sustainable healthinformation complex
Standards
Unity in language
Trusted authentication
Safe communication
Frameworks
Patient access
Fertile groundNational Health Info Council Registers
Indicators
Purchasing
Monitoring Enforcement
Coreinfrastructure
Good climate
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2011: Senate votes NO on law for
National Electronic Patient Record System
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National Health Information Council:Whole system in a room
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Medicatieproces
Actieprogramma
iWlz
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Four outcome goals1. Medication safety: standardized patient verified medication data for
exchange used everywhere by 2019
2. Patient empowerment: patients equal in collaboration with healthcare providers, digital copy of their data to be used in a personal health environment by 2020
3. Exchange: digital exchange of patient data is part of the norm for quality of care, with patient informed consent
4. Registration: point of care is primary source of health data, secondary use for purchasing, research, transparency, quality and governance by 2021
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Cross-border exchange
Interoperability standards
- Semantic (SNOMED, LOINC, NANDA)
- Structure (Clinical building blocks, MedMij, PatientSummary, ePrescription, FAIR)
- Communication (FHIR, HL7, IHE, eIDAS)
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Digital Health Society (Estonia)
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Coalition of the willingdoing
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International collaboration
a. eHealth Network
b. CEF NCP eHealth
c. Digital Health Society (Estonia/ECH Alliance)
d. BeNeLux
e. HIMSS Europe 2018
f. Learning from the ONC (USA)
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To create sustainablesolutions we need to worktogether.
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@T
FH
ealth
care
Agenda
MAIN ROOM
eHealth
10:45 eHealth PolicyRon Roozendaal, Chief Information Officer, Ministry of Health, Welfare & Sport
11:10 Q&A
11:20 eHealth in Practice: Go-FAIR & Personal Health TrainErik Schultes, Dutch Techcentre for Life Sciences
11:40 eHealth in Practice: Privacy & InnovationMichaël Stekkinger, MRDM
12:00 End
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@T
FH
ealth
care
eHealth in Practice:
Go-FAIR & Personal Health Train
Erik Schultes, Dutch Techcentre for Life Sciences
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@T
FH
ealth
care
Agenda
MAIN ROOM
eHealth
10:45 eHealth PolicyRon Roozendaal, Chief Information Officer, Ministry of Health, Welfare & Sport
11:10 Q&A
11:20 eHealth in Practice: Go-FAIR & Personal Health TrainErik Schultes, Dutch Techcentre for Life Sciences
11:40 eHealth in Practice: Privacy & InnovationMichaël Stekkinger, MRDM
12:00 End
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@T
FH
ealth
care
eHealth in Practice:
Privacy & Innovation
Michaël Stekkinger, MRDM
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Privacy & Innovation
Friend or Foe?
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✤Michaël Stekkinger✤ Chief Privacy & Information Security Officer✤Medical Research Data Management✤[email protected]
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Research Data
Quality Registries
Value Based Healthcare
Decision Support
MRDM
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People who underwent a breast reduction surgery were also interested in:
An extra sandwich with chocolate sprinkles
An extra night at the intensive care department
A shot of morfine
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Privacy 101
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Personal Identifiable Information (PII)
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Informational Privacy only concerns PII
Social security number / Name / Patient ID / Date of birth
Direct vs Indirect identifiable
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Data controllervs.
Data Processor
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Legal basis for gathering data
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OECD Guidelines
Collection limitationData qualityPurpose specificationUse limitation
Security safeguardsOpennessIndividual participationAccountability
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•Helen Nissenbaum•Professor of Media, Culture, and
Communication & Computer Science•Author of Privacy in Context:
Technology, Policy, and the Integrity of Social Life
•Contextual Integrity Theory
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Solutions
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EHR WearablesR&D
Experts PatientsSensors
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Manage the patients’ information in a portal provided by the healthcare institution.
Using the portals to manage consent, PROMs or provide data upload/download services.
Patient Portals
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Status:18-08-2016
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• Patient journeys• Watson For Oncology
Big data
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Cognitive Decision Support System
PersonalisedInformation
EvidenceBased
MedicalScientificLiterature
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Health Deal Collaboration between industry, healthcare sector,
government and patient organisations.
Policy framework for decision support systems
Decision support
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Healthcare institutions united in a processing model contract to ensure baseline compliance with GDPR.
Processing model contract
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Grey areas
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No personal identifiable information = No applicable privacy law
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Law does not prevent big data use and regulates only
slightly
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8743b52063cd84097a65d1633f5c74f5
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Anonymous public transport dataAnonymous cell towers data
Re-identification risk
Anonymous mobility data?
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Anonymous public transport dataAnonymous cell towers data
Re-identification risk
All transportation movements via vehicles
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Car insurance increases when your address contains a letter
(182a instead of 182)
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Take away(1) Governments
Facilitate by guiding innovation & respecting patient privacy.
(2) Industry Lead by example - true innovation breaks boundaries, but adheres to
others. Strike a balance by adding true value.
(3) Healthcare industry Think smart! - Combining data is the way forward.
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@T
FH
ealth
care
Thank you!Let’s have some lunch