ehdi information management les r. schmeltz, ms, ccc-a iowa les r. schmeltz, ms, ccc-a iowa

EHDI Information Management

EHDI Information Management

Les R. Schmeltz, MS, CCC-A

Iowa

Les R. Schmeltz, MS, CCC-A

Iowa

Looks like a simple, linear process:

Looks like a simple, linear process:

• Collect hospital information:

• Identify hearing losses

• Refer for early intervention services

• Collect and report statistics

Good work,but I think we mightneed just a little moredetail right here.

EHDI Data and Patient Information Management

Then amiracleoccurs

out

Start

Joint Committee on Infant Hearing 2000 Position

Statement

Joint Committee on Infant Hearing 2000 Position

Statement

• Uniform state registries and national information databases

• Use of information generated

Uses of Information Management:

Uses of Information Management:

• To improve services to infants and their families

• To assess the quality of screening, evaluation and intervention

• To facilitate collection of data on demographics of neonatal and infant hearing loss

Improving Services to Infants and Their Families

Improving Services to Infants and Their Families

• Multiple system components must be integrated

• Each service provider participates

• Tracking and follow-up

• Monitoring of outcomes

Integrating Multiple System ComponentsIntegrating Multiple System Components

• Seamless system to infants and their families

• Provider participation

Service Provider Participation

Service Provider Participation

• Hospitals and other birthing facilities

• Primary care providers

• Service providers

• Early intervention and educational facilities

Tracking and Follow-UpTracking and Follow-Up

• Timely and accurate description of services provided to each infant

• Documents recommendations for follow-up and referral to other providers

• Tracking

Monitoring of Outcomes Monitoring of Outcomes

• Effective information management used to promote program measurement and accountability

• Factors contributing to delay in providing EHDI services

• Measurement of quality indicators

Effective Information Management

Effective Information Management

• Capable of aggregating data

• Provides evaluation data

• Centralized

Information CollectionInformation Collection

• Federal to state level

• State to hospital & practitioner level

• Hospital level

JCIH Quality Benchmarks & Quality Indicators

JCIH Quality Benchmarks & Quality Indicators

• Benchmarks

• Quality Indicators

• Review process

CDC Pilot National Data Set


• Number of live births

• Number screened prior to discharge

• Number screened before 1 month of age

• Total number referred from initial or multiple screenings for audiologic evaluation



• Number with diagnostic audiological evaluation by 3 months of age

• Number of children with permanent congenital hearing loss aged 0-7



• Hearing loss must be classified by type, degree and laterality

• Average/median age in months of diagnosis of hearing loss

• Number of infants receiving intervention by 6 months of age

Handouts:Handouts:

• JCIH Benchmarks and Quality Indicators

• CDC Data Set Items