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TRANSCRIPT
e----JI THE SHHH CALIFORNIANA Newsletter of, by and for the California State Association of Self Help for Hard of Hearing People, Inc.
The Future of SHHHVolume 10, Issue 2
Summer 2000
Inside this Issue
Contacts 2
Chapters 6
Desks 7
e ThankYou's 11
Clockwise from top: SHHH
National Executive Direetar,
John Jacoj SHHH CA VP,Grace Tiessenj SHHH Orange
County VP Elect, Caroline Mar
tin and President Elect, Toni
Barrient, meet to discuss SHHH
rearganization plans, including
the hope that all chaPters be
come one nationwide carparation
with a single 501(c) (3) status.
I n mid-June, SHHH held a Town Hallmeeting in St. Paul to grapple with a
new strategic plan that will shape its programs and services in the future. RockyStone, who has been brought into thestrategic planning process by the Board ofTrustees, addressed the audience andasked that those present demonstrate leadership and participate in developing theplan. John Jaco, the SHHH Executive Director, presented a progress report.Among the highlights:- Strategic plan has been evolving through12 months of discussion.- Publications Dept. has reproduced"Selecting and Purchasing a Hearing Aid"and "Preparing for and Getting the MostOut of a Visit to a Hearing Aid Dispenser"- A new 8-page newsletter for chaptersstarted in May and is available at the website (www.shhh.org).- A bimonthly newsletter is being plannedfor all members.- A book was prepared and released on theResearch Symposium.- Bequests made up 18% of SHHH's revenue in 1999.- Fundraising has become more challenging due to company mergers and electionyear; the 2000 convention was the first in5 years to have an increased registrationfee.- During the past 5 months, SHHHgained 500 new members.- The web page received 93,645 hits onthe day in April that a letter about SHHHwas published in Ann Landers' column;web hits averaged 6.001 hits per day inMay.
- The amount of time people are spendingon the web page has been increasing also.- SHHH has been involved in proceedingssuch as the FCC's captioning for emergency warnings, review of the ADA accessibility guidelines (Access Board), insurance coverage of hearing aids for federalemployees, movie captioning.- The bill to amend Title Five of the U.S.Code to require hearing aid coverage under the Federal Employees Health BenefitPlan has been introduced in the House ofRepresentatives with 19 cosponsors, andhas been referred to the Civil ServiceCommittee for consideration.- SHHH has subcontracted with PEPNet'sNortheast Technical Assistance Center,which provides technical assistance to students in postsecondary education institutions who are deaf and hard of hearing.- SHHH has subcontracted with the Rehabilitation and Research Training Centerin San Diego on employment needs ofpeople with hearing loss.- A day-long workshop was held on advocating for children who are hard of hearing in the school system.- Three sites have maintained Heroes withHearing Loss mentoring programs.- The National Center on Assistive Technology has presented 11 workshops in thefirst 5 months of 2000, and exhibited atthe AARP convention.- The third SHHH leadership training willbe held September 15-17 through a grantfrom the AT&T Foundation.
- Thanks to Cheryl Heppner of NVRC News
Page 2 The SHHH Californian
- Caroline MartinEditor,SHHHCA
Californian since moving toCA three years· ago, I havealways been impressed by thequality newsletter Don haspublished. Clearly, I willhave a hard time fillingDon's shoes!'
So, I guess this all comesback to change. Change isinevitable and we face it taday-with having a new editorfor the SHHH Californian tochanges at the NationalSHHH level in terms of sttategic planning. Whateverour future holds, I look forward to us walking into ittogether... Supporting eachother through positive feedback, teamwork, mentorship,and dedication...
I would like to take this opportunity to thank Don Senger for all his wonderful workputting together this newsletter for you year after year. Asa subscriber to the SHHH
Granted, change will not takeplace overnight. Nor will ittake place without effort.But, with forward, positivethinking and lots of teamwork, we can make a difference.
The saying, "United westand, divided we fall" certainly holds true in our case.In a time when advocacy andchange is so desperatelyneeded, our SHHH membership is spiraling downward.It is up to you and me tochange this.
newsletter a product of, byand for SHHH Chapters andAffiliates across the GoldenState as well as a means tokeep in touch with what isgoing on at the NationalSHHH level.
In my new role as Editor, Ihope to eventually make this
Well, for starters is a newlook fot the SHHH Californian. You may also noticethat the articles will hold asttong focus on advocacy andsupport for all of the wonderful, hardworking SHHHChapters and Affiliates acrossthe State of CA
D oes your SHHH Chapter need copies of the 2000 SHHH PublicationsCatalog or Membership Brochures? If so, send a self-addressed, busi
ness-size envelope with two sramps to: SHHH Publications, 7910 WoodmontAvenue, Suite 1200, Bethesda, MD 20814. 301/657-2248 Voice; 301/657-2249TTY. Catalogs and membership brochures can be ordered in bulk for no charge.
As a person who is HOH andactive with SHHH for manyyears, I hope that this newsletter will inspire you to keeppositive within your own personal life as well as take anactive role within your localSHHH Chapter. Withoutyou, there is no SHHH.
Greetings everyone from yournew editor for the SHHHCalifornian!
From the Editor's Desk
Your long awaited newsletterhas arrived to your door, andyou are probably wonderingwhat holds in store for youreyes to feast upon.
SHHH
Darlene Fragale,Corresponding Secretary
818-242-2218 [email protected]
Lucy Case, Northern CAState Chapter Coordinator707-226-7784 [email protected]
Richard Matthews, Presidem818-242-2770 Voice818-547-3666 [email protected]
Bob Wistort, Southern CAState Chapter Coordinator
John Darby415-447-5757 Voice415-447-5766 FAX
Jim Montgomery,Immediate Past Presidem
925-370-2256 Voice925-944-1380 FAX
CALIFORNIA
Leo Maggio, Southern CAState Chapter Coordinator818-340-1503 V!ITYIFAX
Barbara Bishop925-846-9518 V!ITYIFAX
Grace Tiessen, Vice Presidem626-796-0034 Voice626-795-2663 FAX
BOARD OF TRUSTEES
Tom Goulder858-623-2777 x 408 Voice
858-642-0266 [email protected]
Colette Noble530-622-2243 Voice
Bob Rennie714-870-9135 Voice
The SHHH Californian is published quarterly in mid February, May, August and November.
Annual Subscriptions (No back issues will be mailed):Paid before January 30th: Bulk Rate: $7.50/First Class: $9.50
Paid before April 30th (3 issues): $5.75/$7.25Paid before July 30th (2 issues): $3.75/$4.25
Paid before October 30th (1 issue): $2.00/$2.50
Make your check payable to: SHHH-California andmail to SHHH CA, c/o Grace Tiessen, 714 Prospect Blvd, Pasadena 91103
Tom Walsh, Ex-officio member805-253-0287 Voice
Mention of goods or services does not imply endorsement,nor does exclusion suggest disapproval.
Volume la, Issue 2
SHHH California Appoints New Editor
Page 3
Ms. Caroline A. Martin of theSHHH Orange County Chapterhas been appointed to Editor ofthe SHHH Californian Newsletterand will fill the vacancy created bythe recent resignation of Mr. DonSenger.
Editor Caroline recently broughtnational recognition to the OrangeCounty Chapter by having beenawarded the SHHH National 1999
Best Overall Newsletter Award.We are indeed honored that
she will now be in charge ofour SHHH CalifornianNewsletter!
In reviewing her accomplishments, one cannot be
more impressed withher outreach and
commitment to theHard-of-HearingCommunity
right from the start at age 16 whenshe was diagnosed with a progressive hearing loss. Caroline holds aMaster's Degree from New YorkUniversity in Deafness Rehabilitation, and she received her undergrad degree from Arizona StateUniversity, graduating Magna CumLaude.
Professionally, she has been deeplyinvolved in hard-of-hearing!deafissues throughout her career. Sheis currently a Rehabilitation Counselor for the Deaf within the Stateof California Department of Rehabilitation. Prior to her current position, she has held several key employment responsibilities includingDirector of a Residential Programand Casemanager with NYC ChildWelfare. She has a substantial history of personal accomplishments.
Her youthful attitude and outlook
will be of great benefit to the development of our newsletter and theentire SHHH CA program.Frankly, it is hard to contain herenthusiasm! Her forthright commitment to change and improvements will be wonderful as weguide SHHH CA to meet theneeds of our hard-of-hearing membership.
Caroline can be reached via emailat: [email protected]. HerFAX number is: (877) 461-7995,and home telephone is: (949) 7683990 Voice.
Please join me in welcoming Ms.Martin to our SHHH CA Management!
·4/11/00Richard Matthews, President,SHHH California
New Appointment to SHHH California Board
Mr. Robert E. Rennie of the Orange CountySHHH Chapter has been appointed to the SHHHCA Board of Trustees to fill the vacancy created bythe recent resignation of Mr. Don Senger. Thisappointment is in accordance with our Bylaws, Section 6.15. In Addition, Mr. Rennie is hereby appointed as the Board of Trustees State ConventionLiaison and will be working directly with Ms. SandiStreeter, Convention Chairperson, on our upcoming February 2001 State Convention to be held inOntario, CA.
Mr. Rennie has served in many management capacities within the Orange County Chapter, andcurrently serves on their Board of Directors. Hewas Chapter President, 1994-1996. SHHH StateConvention Chairperson, 1994-1996, and he currently serves as Parliamentarian. Mr. Renniebrings a wealth of experience to our Board. Hisaccomplishments with the widely recognized andsuccessful Orange County SHHH State Convention will be of great benefit as we plan our next
convention. In addition, with his SHHH experience and professional career in finance, he will beof direct benefit to the Board as we plan the futuredevelopment of SHHH within California.
In Mr. Rennie's own words: "It has been my privilege to serve the Orange County SHHH in a number of ways, and I would like to see the StateSHHH grow. It is important that we get the message out about the 'Hard-of-Hearing' populationas a large group of people that is often misunderstood, and SHHH CA is the way to educate thecommunity at large."
Please join me in welcoming Mr. Rennie to theBoard of Trustees. I am very pleased and confident about his commitment to our goal of increasing our membership and outreachwithin the State of California.
. 4/11/00, Richard Matthews,President, SHHH California
Photo Captions:Caroline Martin, Editor
and Bob Rennie,SHHHCA
Board of Trnstees
The SHHH Californian
Reaching Out to SHHH Members Online... Free!
The SHHH Advocatesprogram is a network ofSHHH members all acrossthe country that haveexpressed interest inadvocating for issues ofimportance to people withhearing loss. If you wouldlike to be added to theSHHH Advocates databasesend your name and emailaddress to Jackie Sternberg<[email protected]>
1) Start an eGroup Discussion/AnnouncmentList for your Chapter. Visit ..www.egroups.com..for more info and to set up your Chapter'seGroup.2) Set up a toll-free phone number/FAX and anemail address that can remain with your chaptereven when there is a "changing of theguards." (www.ureach.com)3) Mail your Chapter's newsletter and flyers viaemail (email as an attachment).4) Save important files with Adobe Acrobat (.pdffile) and upload them to your eGroup.5) Distribute info from SHHH National's onlinenewsletter for chapters titled "News You CanUse" found at "www.shhh.org".6) Sign up to receive the latest news about opencaptioned movies by sending an email to major[email protected] with only the words(minus the quotes) "subscribe deaf-movies" in themessage BODY, not the subject line. Or send email to [email protected]) Develop a website for your Chapter and include information such as meeting times, dates,announcements, etc. (Check out some of theexisting SHHH sites found on the last page ofthis newsletter for some examples.)8) Check Tripod's website ..www.tripod.org.. before your chapter meetings and distribute infoabout the latest, up and coming open captionedmovies in your area.9) Visit the Northern Virginia Resource Centerfor Deaf and Hard of Hearing Persons (NVRC)at ''http://www.nvrc.org'' and join their mailinglist. Contact [email protected] for details.The NVRC is an excellent resource for information.10) Direct chapter members to ''http://www.
usdoj.gov/crtlada" and ''http://www.adainfo.org" for valuable info related to the Americans with Disabilities Act.11) Encourage your Chapter's members tojoin SHHH Advocates, a network of mem-
bers from all across the country volunteeringto work together on issues of importance topeople who are hard of hearing (see sidebar).
12) Visit the Captioned Media Program ontheir web site at "www.cfv.org", or call
them toll-free at 1-800-237-6213 (V)or 1-800-237-6819 (TTY). Individuals can join this program and receive free captioned videos fortheir educational and viewing
pleasure.13) Start a lending library for your Chapter andpost some of the titles offered on your website.The following are some great resources youmight want to consider for a library (as well as tomention/offer at Chapter meetings:- The "new and improved" 5th Edition of "LegalRights: The Guide for Deaf and Hard of HearingPeople". Info on this book can be found onlineat ''http://gupress.gallaudet.edu/LRS.html".- A new video offered by the League for the Hardof Hearing titled "A Guide to Assistive Devicesfor People who are Deaf or Hard of Hearing."The video is open captioned and costs $20.00US, plus shipping. Visit ''http://www.lhh.org/catalog/comehear.htm" for more info or to order.- Consumers Guide To Telecommunications Relay Service Available now available from theFCC's Disabilities Rights Office to aid consumers in how to use the telecommunications relayservice. Visit ''http://www.fcc.gov/ db/dro/trs/con_trs.html" (print for your Chapter's lendinglibrary).14) Encourage members to join an onlinelistserve and/or newsgroup concerning HOHissues. Some worthy lists to join? Deaf California News (email "deafcalifornia[email protected]"), Larry Sivertson'sHOH/Late Deafened news list (email "HOH[email protected]"), BeyondHearing News (email "bhNEWS[email protected]") or the Beyond-HearingListserve (visit ..http://www.geocities.com/Heartland/Prairie/4n 7/bhframe.htm"). As aword of caution, sign up for "digests" as opposedto individual emails to avoid becoming overwhelmed by too many individual emails.15) Direct job seeking or working members to anew website "For Employers on AccommodatingPeople with Vision or Hearing Loss" which canbe found at ''http://www.ilr.comell.edu/ped/accessforall."16) Point members to "http://gri.gallaudet.edu/Demography/factsheet.html" for demographicinfo on those with hearing loss.17) Receive late-breaking news about SHHH andHOH topics from Dana Mulvany by emailing"[email protected]".18) Encourage Chapter members and visitors tovisit SHHH National's website at "www.shhh.org" and to join SHHH National!
Volume 10, Issue 2
CA. Courts Violate the ADANote-The ADA is a complaint driven law. As such, representing organizations of Californians with disabilties need to complain together to get USDOJ to fix the problem. If the courts donot implement the ADA in our courts then why should theyrule in any cases involving the ADA for appropriate auxiliaryaids and services? Compliance of the CA courts with the ADA isparamount!
Committee for the ADA Compliance Review of the CaliforniaCourts, 20 Sunnyside Ave., Suite A-336, Mill Valley, CA 94941.Contacts: Carin Memmer - (707) 825-7421 and Perry M. Hall (800) 408-4322. Visit Advocacy Action - www.dizbiz.com
Californians are organizing a statewide ADA Compliance Review of the California Courts because the courts are not in compliance with the Americans with Disabilities Act (ADA) of 1990.The statewide Compliance Review will be performed by the U.SDepartment of Justice. The basis of the Compliance Review isADA Title II Complaints filed by organizations representingCalifornians affected by disabilities, and most importantly, ADATitle II Complaints filed by individuals who have been deniedequal access to court proceedings because they were not accommodated effectively nor in a timely manner.
By 1995 all 58 County Courts were to have a program in placewhich makes available appropriate auxiliary aids and services tobe utilized by the courts as reasonable accommodations duringcourt proceedings for Californians with disabilities.
In March of 1999, a Statewide Telephone Survey of the 58 California County Courts was performed. The survey results showthat the courts have a haphazard program for the hearing impaired. Not one of the 58 county courts have a program whichmakes available trained court personnel, appropriate auxiliaryaids and services to accommodate for any other impairmentsuch as: sight, speech, cognitive, environmental sensitivities, developmental, et cetera.
Final reports are available from the Judicial Council at no cost.The Publications Hotline is (800) 900-5980 press #2 and leaveyour request on the recording. The conclusion of the survey results are outlined in 19 detailed recommendations in the Summary Report made by the Subcommittee to the California Judicial Council.
These 19 recommendations would improve Access and Fairnessin CA Courts, however, none of the 19 Recommendationslisted in the Summary have been implemented by the JudicialCouncil in the California Courts. The courts remain inaccessi-
_ ble to six million Californians affected by disabilities.
To remediate this public injustice, as well as noncompliance ofthe CA Courts please fill out an ADA Title II Complaint which
Page 5
can be printed from the website http://www.usdoj.gov/crt/adalt2cmpfrm.htrn. Organizations (such as SHHH) representingCalifornians affected by disabilities, please state that there is noprogram in place which makes available trained court personnel,appropriate auxiliary aids, and services to be utilized by thecourts as reasonable accommodations for disabled Californiansduring court proceedings except for the hearing impaired. Mostimportantly, individuals please explain on an ADA Title IIComplaint Form the incident(s) during court proceedings whenyou were not reasonably accommodated, subjected to prejudicialjudicial demeanor, judicial bias, or non-statutory decisions bythe court.
To be sure these important complaints do not get lost in piles ofcomplaints received daily at the Department of Justice, pleaseboth FAX (202) 307-1198, Subject: CA Courts and mail (thefollOwing address is different from the address listed on thecomplaint form) a signed copy of an ADA Title II Complaint to:John Wodatch, Chief, US Department of Justice Civil RightsDivision, Disability Rights Section 1425, New York Ave. NW,Washington, DC 20035, Subject: CA Courts. And retain theoriginal for your records.
To date, organizations representing 100,000 Californians affected by disabilities have filed ADA Title II Complaints withDOJ and sixty individuals have filed Complaints describing theincidents in which they were not reasonably accommodated byCA Courts during court proceedings. By filing ADA Title IIComplaints with DOJ outlining your experiences of noncompliance of the CA Courts you are supporting this undertaking, aswell as making a profound difference in the future conduct ofthe California Courts towards six million Californians affectedby disabilities.
Your assistance is appreciated,Carin Memmer, Chair
** Please contact Perry Hall, a member of the Committee for theADA COMPLIANCE REVIEW of the California Courts at(888) 715-1378, and/or carinmemm@aoLcom, if you have participated in the CA Courts and the outcome of your involvement has been affected by you having a disability. With yourhelp, this advocacy project will bring our court system up todate!
**An ADA Act Information line at the U.S. Department of Justice can be reached at (800) 514-0301. ADA Specialists are available to answer questions about Title II of the ADA includingquestions about ADA Compliance Reviews performed by the U.S. Department of Justice.
** All SHHH Chapters-please check ..http://www.ocnow.com/community/groups/shhhoc/Advocacy.htrnl" for a sample letteryour chapter can use to join in this advocacy project!
Page 6
SHHH Chapters & Affiliates Across California
The SHHH Californian
I
NORTHERN CALIFORNIA
Northern CA Chapter CoordinatorLucy Case, LCase94559®aol.com1537 East Ave, Napa, 94559707-226-7784 TIT/FAX
Diablo Valley ChapterDon Ray, [email protected] Ryan Road, Concord, 94518925-682-0170
East Bay GroupPat Boese, patboese®aol.com6840 Colton Blvd., Oakland, 94611510-339-8374 V
Fresno ChapterAnne Betancourt, [email protected] No. Woodrow, Clovis, 93710559-299-4607 V 559-297-8990 FAX
North Bay Chapterlone Mason, 707-226-1239V4458 Tanglewood Way, Napa, 94558Bern Klein, [email protected]
Peninsula ChapterHazel Becks, 650-366-9652 V950 Main St, #216, Redwood City, 94063Marjorie Heymans650-593-6760 V [email protected]
Sacramento ChapterJim Ray, [email protected] Varley, [email protected]
San Francisco ChapterRonda Bonati,935 Diamond Street, San Fran, 94114415-705-0550 [email protected]
San Jose ChapterRichard Stefanko,1914 Murguia Ave, Santa Clara, 95050408-249-0354 [email protected]
SHHHasta ChapterLyman Miles,19393 Covey Lane, Redding, 96007530-275-5727 V [email protected] Peterson,P.O. Box 864, Anderson, 96007530-365-0790 [email protected]
Tri.Valley ChapterHiram Van Blarigan,716 Katrina, Livermore, 94550Barbara Bishop, [email protected] V/TTY/FAX
SOUTHERN CALIFORNIA
Southern CA Chapter CoordinatorLeo Maggio, [email protected] Kittridge, West Hills, 91307818-340-1503 V/TTY/FAXorBob Wistort, [email protected]
Burbank. SHHH GroupLeo Maggio, [email protected] Kittridge, West Hills, 91307818-340-1503 V/TTY/FAX
Casta del Sol Group (Mission Viejo)Pril Worcester, [email protected] Barbosa, Mission Viejo, 92692949-587-1344 V 949-470-0721 TIT/FAX
Chula Vista GroupNick Nichols, [email protected] E. Fifth Ave, Escondido, 92125760-745-4577
Conejo Valley GroupMarjie J. Alger, [email protected] EI Monte Dr, Thousand Oaks, 91362805-495-6380 V/TTY
Escondido ChapterDorothy Wormser, [email protected] Concerto Glen, Escondido, 92025760-747-3813 V/TTY 760-737-9149 FAX
Inland Empire ChapterBetty Hemm,36612 Carter, Yucaipa, 92399909-797-1692 [email protected]
Leisure World /laguna Woods GroupWoodley Butler,2248-A Via Mariposa East, Laguna Woods,92653-2179 [email protected] V 949-699-2931 FAX
Long Beach/Lakewood ChapterRaye Fairchild, [email protected] Blue, RBlueI243®aol.com
Los Angeles GroupDarlene Fragale, [email protected] W. California St, #2B, Glendale, 91203,818-242-2218 V
Orange County ChapterToni Barrient and Caroline [email protected] V/FAX
Redlands Area GroupJim Koski, [email protected] Tereticornis Ave, Lake Elsinore, 92532
San Diego Student SffiIHNick Nichols,819 E. Fifth Ave, Escondido, 92125760-745-4577 Nicknfreda®aol.com
San Fernando Valley ChapterPhilip Kaplan,9262 Pebble Beach PI, Northridge, 91326818-368-1303 philillini®aol.com
Santa Barbara GroupDorothy Holland-Kaupp,5140 San Lorenzo Dr, Santa Barbara, 93111805-967-5241 [email protected]
Santa Maria Area ChapterNorman Larson, [email protected] Allen St, Arroyo Grande, 93420805-481-9369Enid M. Gilham, [email protected] Via Mavis, Orcutt, 93455805·937-9869 V/TIT
SHHH NATIONAL
7910 Woodmont Avenue, Suite 1200Bethesda, Maryland 20814301-657-2248 V 301-657-2249 TIT301-913-9413 FAX [email protected]
Thank you Grace Tiessen & Joan Irelandfor giving us these pages.
Both the Chaprers/Groups and Desks arecurrent as of May 2000. If you see anychanges/additions needed, please contact
Grace at [email protected] Joan at [email protected].
Volume 10, Issue 2
Desks are Volunteer Resources Just For You!
Page 7
Do YOlt have questions needing answers? PTOblems you'd like to discuss? Opinions you want to express? Desks are very special people with expertise in subjects ofinterest to hard of hearing people. They will find the answers for YOU-OT know where to go for assistance. They will listen to your comments and provide feedbackto the SHHH-CA board so that you will be better served. It's up to you.!
Advocacy & Legislative IssuesPhil Kaplan, [email protected]
Audiology IssueslEthicsfTrainingKenneth 1. Billheimer, MA. CCC925-484-3507 V 925-484-3556 [email protected] Black Ave. Suite CPleasanton 94566
California (Northern):The What, Where & When of SHHHLucy Case, [email protected] East Ave., Napa 94559
California (Southern):The What, Where & When of SHHHLeo Maggio, 818-340-1503 V/TIY/FAX23410 Kittridge, West Hills 91307
Cochlear ImplantsDarlene Fragale, [email protected] [email protected] W. California Ave., Glendale 91203
Coping with Hearing LossCarren J. Stika, Ph.D.858-623-2777 x.386 V; 858-554-1540 TTY858-642.-0266 [email protected] Cornerstone Court EastSan Diego 92121-3725
Education: Hard of Hearing ChildrenGrace Tiessen, [email protected] V 626-795-2663 FAX714 Prospect Blvd, Pasadena 91103Helen Walter, [email protected] V4325 Mockingbird Lane, Banning 92220
Email Alerts (to receive late-breaking newsabout SHHH and HOH topics)Dana Mulvany, [email protected]
Health Care Access and AdvocacyMargaret Azcona, [email protected] 1-6183 V; 51Q.531-6788 TTY ans.51Q.531-SHHH Vans, FAXl ~ S'ndrin""'" Rd, P'edmon' 94611
Jean Puffer, 5 1Q.53Q.84233827 Linwood Ave., Oakland 94602
Hearing Aids & ALD'sEllen Baker, [email protected] V; 805-584-1505 FAX2541 N. Clearfield Pl., Simi Valley 93065
Hearing DogslLip ReadingBarbara Bishop, [email protected] V/TIY/FAX848 Abbie Street, Pleasanton 94566
Independent Living CentersMary Skyer, 415-543-6698 TTY649 Mission St., San Francisco 94105415-543-6222 V 415-543-6318 FAX
Newsletter DevelopmentCaroline and Alan Martin949-768-3990 V 877-461-7995 [email protected]
PALS-Places with Assistive ListeningSystems (customized lists available for $2.)Richard Panzer, [email protected] TTY, V, FAX1315 Lorna Vista Dr., Napa 94558-9443
SHHH California State AssociationRichard Matthews, President818-242-2770 V short msg. onlyRelay calls welcome! 818-547-3666 [email protected]. O. Box 1107, Glendale 91209-1107
SHHH NationalTom [email protected], Inc. (the National office)301-657-2248 V; 301-657-2249 TTY301-913-9413 [email protected] Woodmont Ave., Ste. 1200Bethesda, MD 20814
Telecommunications &California Relay Service:Deaf & Disabled TelecommunicationsProgram Administrative CommitteeJohn L. Darby, [email protected]
415-447-5757 V; 415-447-5766 FAXSan Francisco Towers1661 Pine St., Apt. #443, San Fran, 94109
Telephone EquipmentDana Mulvany408-379-6065 V 209-396-8050 [email protected]
Work Related Issues:Getting & Keeping a Job when HOHRobyn Tenensap310-641-3214 TTY; 310-417-8326 [email protected] S. Sepulveda Blvd., Ste. 300Los Angeles 90045orCindy Jagger, [email protected] Pheasant Drive, Suisun, CA 94585
Would like to be a Desk?Do you have any suggestions?
If so, please contact:
Joan Ireland,[email protected]
858-485-5189 TrYIFAX 858-485-7684 V12276 Casero Ct., San Diego 92128
orBarbara Bishop,
[email protected] VrITYlFAX
848 Abbie St., Pleasanton 94566
Call for SHHH California Nominations
Page 8
Wishing Robyn Well. ..I had a very cordial and pleasant meeting withour recently elected SHHH CA Treasurer(Ontario Board Meeting election), Ms. RobynTenensap, on Wednesday, May 17, 2000.The reason for our meeting was to discuss Ms.Tenensap's decision to resign from the SHHHCA Board of Trustees Treasurer Position dueto numerous family emergencies and currentwork schedule conflicts. At this time, Robynjust simply cannot fulfill the responsibilities ofTreasurer. It was with great reluctance, buttotal understanding that I accepted Robyn'sresignation with the agreement she will onceagain assist SHHH CA in the future with hermany talents when she is more capable.Please join me in wishing Robyn all the bestand looking forward to seeing her back withus soon.
-Richard Matthews, President, SHHH CA
The SHHH Californian
CA State Conference...Be sure to mark your calendars for the SHHH CAState Conference coming our way February 9th tothe 11th, 2001! Want to learn more about volunteering, donating, attending, etc.? Be sure to keepyour eyes peeled for the next SHHH Californian.Sandy Streeter who is "in charge" of pulling everything together will be providing us "the scoop!"
Congratulations!Congratulations to the Long Beach/LakewoodChapter for winning the Best Overall NewsletterAward for Year 2000! This is an award well deserved by the Chapter and Editor, Raymond Blue!And given this is the 2nd year in a row a CA Chapter has been chosen for this award, one must ask,"who will be awarded next year?" Questions aboutNewsletter Development? Feel free to contact yourSHHH Californian Editor by email at SHHHCAe[email protected] or by phone: (949) 768-3990.
UpcomingSHHHCAElections!Seeking
Nominations
Applications are invited for people wishing to serve as one of the nine members of the SHHH Cali- afornia State Association. Any California resident who is a member in good standing of SHHH Na- ..tional and is personally committed to the mission and philosophy of SHHH may apply. The term ofoffice is three years. At least two all-day board meetings will be held in the state with some reimburse-ment for travel.
To receive an application, send a self addressed stamped #10 envelope to Darlene Fragale, Corresponding Secretary, 356 West California St, #2B, Glendale, CA 91203, [email protected]. Returned applications must be postmarked on or before October 10, 2000.
- Grace Tiessen, Vice-President, SHHH CA
Introducing Bob Wistort - South CA. Co~CoordinatorI would like to introduce you to Bob Wistort,Southern CA Co-Coordinator with Leo Maggio.Bob lives in Poway, near San Diego, and is looking forward to meeting all of the southern CASHHH people as he travels from chapter to chapter. Bob is a retired engineer, recently moved tosouthern CA from northern CA to be close tohis daughter and her family. Bob is hard of hearing, smile, a past president of a chapter, DiabloValley Chapter, and a former treasurer of theCA state association. He brings a desire to connect all the CA chapters to one another in spirit,keep you informed on what is happening nationally for SHHH, and work at problem-solving
with you. He is a great person and I know thatyou will enjoy working with him. His email address is "btort®pacbell.net". Leo also has anemail [email protected]... Leo andBob will be working together with you and yourmembers to increase SHHH presence for hard ofhearing people in southern CA- through education, information, and support. Please feel freeto contact either of them.
Sincerely,Marilyn Finn,Chapter Development CoordinatorSHHH National
California Relay Service (CRS)Dedicated Number forVoice Carry Over (VCO) users!
• Automatic connection to veo agents-no more asking for "veo"• Works with PBX (office) or home phones-anytime• Easier connection using new veo equipment without keyboards
...~ · t.•- (Jprm ®
The point of contact'" CRS is funded by the CA Relay Service and Communications Device Fund CRS
Page 10 The SHHH Californian
Captioning Contacts When looking for a RTC...
Enjoy every conversationCrystal Clear!
Your "Single Source" for Assistive Devices2716 Ocean Park Blvd.. Ste. 100 • Santa Monica. ('.\90405TOLL FREE: 1·800·233·9130 (VI11Y)(310) 452-8613 (VfITY) • FAX (310) -150-9918E-Mail: [email protected]·w..~v.weitbrecillcom.com
Additional questions or comments you would like to see
here? How about a "dictionary" of commonly used words
specific to HOH issues? Please forward your recommen
dations to the Editor at SHHHCAeditor@aoLcom
* What is the captionist's training and experience?* Does his/her experience include work for hearingimpaired individuals/audiences?* What experience do they have captioning thetopic that is to be captioned? (Le.: Do they havesufficient dictionaries to do the captioning well?)* Will they provide their own equipment? (ie: Overhead screen, LCD display, projector and/or overhead, etc.)* Can they provide references/recommendationsfor their work? Is it possible to see a demo of theirwork?* What are their prices?* What happens if the captionist can't make it?Will a substitute be provided?* Provide the captionist/agency a list of SHHHvocabulary/dictionary whenever possible
Pageant of the Masters Real-Time Captioned!
IVisit ..http://www.ocnow.com/community/
groups/shhhoc/Special_Events.htrnl" for info!
WEITBRECHTCOMMUNICATIONSINCORPORATED
Enjoy phone conversations - crystal clear - with thepowerful CrystalTone ThI amplified phone. It not onlyincreases the volume up to 35dB (one of the mostpowerful amplifiers available!) it actually enhancesthe sound quality for crystal clear reception.The unique combination of amplification andsound enhancement lets you select thevolume, tone, and frequency rangethat work best for you.
For more information or answers to frequently asked questions about the Rear
Window Captioning (RWC) system,contact WGBH or visit their WebSite:Mary Watkins, Outreach Manager
WGBH/Media Access Group125 Western Avenue,
Boston, MA 02134(617) 300-3400 V
(617) 300-2489 [email protected]
\ www.wgbh.org/access\_, or wv.,-w.mopix.org
\
-: \
Have concerns about captioning? Please visiteither www.wgbh.org/caption (follow thelinks to FCC and captioning) or the FCC'ssite, www.fcc.gov, to find the background infoon the mandates and what broadcasters/cablecompanies can and cannot do. There is alsoinfo there on the guidelines you should followto submit your complaint and the variousdeadlines and procedures to eventually contact the FCC if the problem is not resolvedand/or you do not hear back from the station.
Volume 10, Issue 2 Page 11
lfhank You The Spirit of SHHH... Do You Have It?The SHHH CaliforniaBoard of Trusteeswishes to thank thefollowing people fortheir generous donations that help SHHHCA serve hard of hearing people throughoutthe State of California:
$50 - $100Richard MatthewsStephen Morley-MowerN. Arden Danekas
$25 -$49Helen SpiesFrances MarsolaisRichard R. Ballinger
There is a national SHHH Committee currently working on plans for thefuture of our organization, simplifying some of the rules, encouraging moreof the 26 million Hard of Hearing people to become members, trying tobuild the constituency Rocky Stone spoke of at the beginnings twenty yearsago.
In these twenty years, changes have really happened, thanks to SHHH. Better hearing aids, new assistive technology, help with telephones, lots ofthings we appreciate. There are also more big issues, many reflecting theefforts and advocacy of the national staff-see the report from Brenda Battat, Deputy Executive Director, in the last issue of this newsletter.
We couldn't have envisioned all the progress made since then, but we doremember the excitement of finding other people in the same situation withhearing loss, finding help in books and articles by experts in the Journal,learning about confirmed methods of coping with our hearing loss. Leaderswere all sent a closely-typed mimeographed newsy letter from Joan Kleinrock, full of advice in getring groups involved, exchanges of ideas from others, making our group feel like a warm, helpful family.
$10-$24Laine WaggonerNorman LarsonAlice Fischgrundulie Mason
Mrs. Edwina CampbellJoan FleerViolette BenhamBob & Marjie AlgerWilliam BaileyMolly CorumPatricia ChalmersMargaret WonnellTerry WohlbergEdith SchneiderNick NicholsBeverly WallyMr Soenke BoysenMiriam FishmanJames BeauchampRonda BonatiDonna Eskwitt
It is important to recall that early enthusiasm and to appreciate that we haveall made good friends, working with local chapters, the state association,and being part of the national effort.
One aspect that gives us pause is that so many of the "old timers" arestill working as leaders. Some have grown a bit cynical and don't project the right spirit. Others seem to use their positions as ego-tripsor have social problems that lend little credence to the self-helpphilosophy that may even lead to the end of a group. These peo-ple need to move over and let others take on the job. We need toencourage the "Spirit of SHHH" as exemplified in the annualawards given at the National Convention.
Didn't mean to lecture here, but I find that sometimespeople forget what a wonderful thing we have inSHHH~ So please pass the word, let everyone whoneeds it know about it! It's important!
-Lucy Case, Northern CA State Chapter Coordina-
SHHH in Lieu of FlowersOne of our members (who prefers to remain anonymous) recently completed his funeral arrange
ments. It's what the funeral industry calls, "Pre-Need Planning." There weremany questions to be answered to assure that one's wishes are followed tothe letter. One of the issues was flowers for the funeral. Our far-thinkingmember opted that "In lieu of flowers, donations be made to SHHH NationaL" Not a bad idea. However, it is estimated that only 1 in 1,000 peopletake the time and trouble to have a pre-need plan prepared. 999 choose theeasy way and leave the details to their survivors. That is a bad idea.
To learn how your state is doing on UniversalNewborn Hearing Screening, Click on:
http://www.infanthearing.org/status/unhsstate.htmL Information from the national center for
earing Assessment and Management, www.
infanthearing.org at Utah State University.
THE SHHH CALIFORNIANA NEWSLETTER FOR THE
SELF HELP FOR HARD OF HEARING PEOPLE,
CALIFORNIA STATE ASSOCIATION
Postman, please forward return mail to:
Colette Noble3741 Missouri Flat Road
Placerville, CA 95667
SHHHCALlFO.IIA
Supporting SHHH Chaptersthroughout California
11111111111 !111111111111111111 i 1111111,1/ I,I! 11111 11111 I! I1I1I
About SHHH CASelf Help for Hard of Hearing People,Inc. is an international, non-sectarian,educational, consumer organization ofhard of hearing people, their relativesand friends. It is devoted to the welfare and interests of those who cannothear well but are committed to participating in the hearing world. Its address is: 7910 Woodmont Ave., Suite1200, Bethesda, MD 20814; telephone (301) 657-2248 V or (301) or657-2249 TrY.
SHHH Webpages are for You!
Have a computer? Are you linked to the Internet?
Be sure to visit SHHH at the following addresses!
SHHH California: http://www.shhhca.orgSHHH National: http://www.shhh.org, email [email protected]
Chapter Website Addresses:Orange County: http://www.ocnow.com/community/groups/shhhocLong Beach/Lakewood: http://www.geocities.comllb_shhh/
** For contact and email addresses of SHHH CA board members, see page 2.** For contact and email addresses of SHHH CA Chapters, see page 6.
SHHH-California, Inc., is affiliatedwith and sanctioned by SHHH National as a state-level organization.Both are non-profit and tax-exempt.All persons residing in California whoare members in good standing ofSHHH National are considered members of SHHH California with fullvoting privileges.
Is it true that only two chapters have websites?If your Chapter has a website and it is not listed here, please send
the name of the Chapter and its website link/address to the Editor.
** To reach the SHHH Californian Editot,email [email protected].