1st EuRRECa Project Group Meeting

Monday 11th March, 11:00-17:00 CETDanubius Hotel Helia, Budapest

Programme09:00 Business Meetings

09:00 - 10:00 Project Governing Board Business Meeting (Mercure conference room)

09:00 - 10:00 Independent Advisory Board Meeting (Mars Meeting Room)

10:30 - 11:00 Coffee & Registration For Project Group Meeting (Foyer, Gallery)

11:00 Start Of EuRRECa Project Group Meeting (Mercure conference room)

11:00 - 11:15 Introduction to EuRRECa and its coordination (WP01) - FA

11:20 - 11:30 Dissemination & Access (WP02) - OH

11:30 - 11:40 Quality Assurance & Evaluation (WP03) – YK

11:40 - 11:50 Core Outcomes (WP04) - OD

11:50 - 12:00 Patients, Parents & Ethics (WP05) - MC

12:00 - 12:30 Discussion

12:30 - 13:30 Lunch (Episode Restaurant)

13:30 – 13:50 e-Reporting of Rare Endocrine Conditions (WP06) – FA, JB, JBe, SA

13:50 - 14:15 Discussion

14:15 - 14:30 Core Endocrine Registry (WP06) – FA, TM

14:30 - 14:45 Discussion

14:45 – 15:30 Expert Working Group Updates – ALL EWG leads (or deputies)

15:30 – 16:30 Coffee and small group interaction (“C” lobby Gallery)

16:30 - 17:00 Summing up - FA

17:00 Close of EuRRECa Project Group Meeting

17:00 - 17:30 Independent Advisory Board Meeting