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Supporting community action on AIDS in developing countries
Understanding and challengingHIV stigmaToolkit for action
• General stigma pictures• Rights pictures
PICTURE BOOKLET
Booklets in Understanding and challenging HIV stigma: Toolkit for action include:
IntroductionUsing the toolkitModule ANaming the problem
Module BMore understanding, less fearModule CSex, morality, shame and blame
Module DThe family and stigmaModule EHome-based care and stigma
Module FCoping with stigmaModule GTreatment and stigma
Module HMSM and stigma
Module IChildren and stigma
Module JYoung people and stigma
Moving to action moduleThinking about changeMoving to actionDeveloping skills for advocacy
Picture bookletGeneral stigma picturesRights pictures
Additional booklets will be published as new modules are developed.
SDT 06/07
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About the organisations involved
Academy for Educational DevelopmentFounded in 1961, the Academy for Educational Development (AED) is an independent, non-profit organisation committed to solving critical social problems and building the capacity of individuals, communities, and institutions to become more self-sufficient. AED works in all the major areas of human development, with a focus on improving education, health, and economic opportunities for the least advantaged in the United States and developing countries throughout the world. www.aed.org
International Center for Research on WomenSince its founding in 1976, International Center for Research on Women (ICRW) has worked with partner organisations and governments throughout the world to promote gender equitable development, reduce poverty, and change the lives of millions of women and girls and their communities – undertaking focused, evidence-based, action-oriented research; providing technical assistance to partner organisations, donors and governments; and advocating for new or improved policies and programmes.www.icrw.org
International HIV/AIDS AllianceEstablished in 1993, the International HIV/AIDS Alliance (the Alliance) is a global partnership of nationally based organisations working to support community action on HIV and AIDS in developing countries. Our shared mission is to reduce the spread of HIV and meet the challenges of AIDS. To date, over $140 million has been channelled to more than 40 developing countries in support of over 3,000 projects, reaching some of the poorest and most vulnerable communities with HIV prevention, care and support, and improved access to treatment.Registered charity number 1038860www.aidsalliance.org
For more information about Alliance publications, please go to www.aidsalliance.org/publications
© Text: Academy for Educational Development, International Center for Research on Women and International HIV/AIDS Alliance, 2007
Developed by Ross Kidd, Sue Clay and Chipo Chiiya
© Illustrations: Petra Röhr-Rouendaal, 2006
First edition published September 2003Revised edition published June 2007
ISBN: 1-905055-28-5
Information and illustrations contained in this publication may be freely reproduced, published or otherwise used without permission from Academy for Educational Development, International Center for Research on Women and International HIV/AIDS Alliance. However, these organisations request that they be cited as the source of the information.
The first edition of this resource was made possible by the generous support of the American people through the United States Agency for International Development (USAID). This revised edition was made possible by the Swedish International Development Cooperation Agency (Sida). The contents are the responsibility of the authors and do not necessarily reflect the views of USAID or Sida.
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1
Understanding and challenging HIV stigma: Toolkit for action
Senegal: Alliance Nationale Contre le SIDA (ANCS)Tanzania: Kimara, Muhimbili Medical College of Health Sciences (MUCHS)Uganda: The AIDS Support Organization (TASO)Zambia: International HIV/AIDS Alliance in Zambia, Network of Zambian People Living with HIV (NZP+)
This edition, developed and written by
Ross Kidd, Sue Clay and Chipo Chiiya
Acknowledgements
Key collaborators who have helped with its development during the two phases have included:Botswana: Oratile Kidd-Moseki, Sam SetumoEthiopia: Aklilu Kidanu, Awraris Alemayehu, Berhanu Zenbere, Dagmawi Selamssa, Hailom Banteyerga, Ethiopia Tilahun Mozambique: Amos Simbamba, Carlos Mussua, Emedius Teixeira, Sonia Almeida Tanzania: Gad Kilonzo, Jessie Mbwambo, Judith Mulundu, Mboni Buyekwa, Naomi Mpemba, Peter Kopoka, Pfiriael Kiwia, Sabas Masawe, Willbroad Manyama Uganda: Florence Ayo, Jacinta Magero, James Byakiika, Richard SerunkuumaUnited Kingdom: At the Alliance secretariat, Liz Mann for her support throughout this project and to the Communications team who co-ordinated the design development and production of this toolkitUSA: Anton Schneider, Gayle Gibbons, Jessica Ogden, Kerry MacQuarrie, Laura Nyblade, Rohini Pande, Sanyukta MathurZambia: Aggrey Chibuye, Clement Mufuzi, Estella Mbewe, Gertrude Mashau, Levy Chilikwela, Martin Chisulu, Mary Mweemba, Mutale Chonta, Sidney Sipia Mwamba, Titus Kafuma, Victoria Chivunga, Virginia Bond.
Design by Jane Shepherd www.coroflot.com/janeshep Illustrations by Petra Röhr-Rouendaal Printed by Dexter Graphics in the UK www.dextergraphics.com
In memory of Martin Chisulu, Chama Musoka, Hamelmal Bekele (Happy), Andrew Mukelebai and Regina Mulope.
About this toolkit
This toolkit was written for and by HIV trainers in Africa. It has been designed to help trainers plan and organise educational sessions with community leaders or organised groups to raise awareness and promote practical action to challenge HIV stigma and discrimination.
The toolkit evolved out of a research project on ‘Understanding HIV-related stigma and resulting discrimination’ that was conducted in Ethiopia, Tanzania and Zambia from 2001 to 2003. The research was implemented by the International Center for Research on Women (ICRW) in collaboration with research institutions in the three participating countries. The first edition of this toolkit was developed by the CHANGE Project AED (Academy for Educational Development) and ICRW in partnership with the research institutions and non-governmental organisations (NGOs) in these three countries who helped to design the original toolkit. It was developed and written by Ross Kidd and Sue Clay.
This edition was revised by the International HIV/AIDS Alliance country office in Zambia, building on the original toolkit, and includes experience of the Alliance’s Regional Stigma Training Project, which has introduced the toolkit to many countries in Africa through a training of trainers (TOT) and networking process. The national TOT workshops and follow-up workshops conducted by members of the growing anti-stigma network have created a base of experience for revising and updating the toolkit. At a regional workshop in Zambia in August 2005, members of this network helped to review the toolkit and make changes and additions.
By the end of 2006, more than 300 anti-stigma trainers from many organisations have been trained by the Alliance using this toolkit. These include the following key partner organisations:Burkina Faso: Initiative Privée et Communautaire Contre le VIH/SIDA au Burkina Faso (IPC)Côte d’Ivoire: L’Alliance Nationale Contre le SIDA en Côte d’Ivoire (ANS-CI)Ethiopia: ActionAid, Hiwot, Save Your Generation Association (SYGA)Kenya: Regional AIDS Training Network (RATN), Network of people with HIV/AIDS in Kenya (Nephak)Mozambique: International HIV/AIDS Alliance in Mozambique, Rede Nacional de Associcoes de Pessoas Vivendo Com HIV/SIDA (Rensida) Nigeria: Network on Ethics, Human Rights, Law, HIV/AIDS Prevention, Support and Care (NELA)
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This booklet contains pictures that are intended to be photocopied by the facilitator and used alongside the exercises. Additional pictures can be found in their respective module booklets: Context cards – Module ACharacter cards – Modules B & CSilhouettes – Modules D & ETreatment story – Modules F & GMSM pictures – Module H Children and stigma pictures – Module IYoung people pictures – Module J
General stigma pictures 3 Rights pictures 45
Other booklets in Understanding and challenging HIV stigma: Toolkit for action include:
Introduction Using the toolkit Module A Naming the problem
Module B More understanding, less fear Module C Sex, morality, shame and blame
Module D The family and stigma Module E Home-based care and stigma
Module F Coping with stigma Module G Treatment and stigma
Module H MSM and stigma
Module I Children and stigma
Module J Young people and stigma
Moving to action module Thinking about change Moving to action Developing skills for advocacy
Additional booklets will be published as new modules are developed.
Contents
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Pictures
General stigma pictures
The general stigma pictures show different forms of stigma or discrimination and are used as a starting point for a discussion. They can be used as a set or as individual pictures for specific exercises. They include pictures showing the stigma that some children face.
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rights
Rights pictures
Each of these pictures represents a human right – the right to health care, to have children, etc. Some of these rights are threatened by stigma – if we are living with HIV we can lose these rights. Some of the rights might be violated by family members, community members and professionals in various settings.
The pictures can be used in exercises which focus on rights, stigma and advocacy (see Module F – Coping with stigma). For example, they can be displayed and participants might be asked, “What are some of the rights that can be violated if we are living with HIV?”
The pictures contrast with the general stigma pictures. Instead of showing stigma and discrimination, they show how people should be treated, whether living with HIV or not – the right to be accepted, loved, cared for, have safe sex, have children, be provided with food, medicine, clothing, shelter, etc.
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Supporting community action on AIDS in developing countries
Understanding and challengingHIV stigmaToolkit for action
• General stigma pictures• Rights pictures
PICTURE BOOKLET
Booklets in Understanding and challenging HIV stigma: Toolkit for action include:
Introduction Using the toolkit Module A Naming the problem
Module B More understanding, less fear Module C Sex, morality, shame and blame Module D The family and stigma Module E Home-based care and stigma Module F Coping with stigma Module G Treatment and stigma Module H MSM and stigma Module I Children and stigma Module J Young people and stigma Moving to action module Thinking about change Moving to action Developing skills for advocacy Picture booklet General stigma pictures Rights pictures
Additional booklets will be published as new modules are developed.
SDT 06/07