What is standardized REL data?Specific method of collecting, recording and reporting REL data that is the
same across all areas (uniform questions and categories)
REL data is reported by the individuals served (“self-reported”) or their families and/or caregivers
Standardized method collects, records, stores and reports REL data that is accurate, comparable, and consistent (electronic vs. manual)
Develop strategy to prepare, implement, monitor and sustain adherence to standardization guidelines
What is the rationale?To make certain all individuals served receive high-quality
care
To identify and reduce disparities
To provide culturally and linguistically appropriate services and materials
To ensure equitable access to health care
To develop quality improvement programs
To comply with regulations
National Movement for REL Data Collection
American Recovery and Reinvestment Act (ARRA) 2009 requires hospitals and providers to collect REL data as part of the eligibility for meaningful use payments
Patient Protection and Affordable Care Act of 2010 requires health care programs that receive federal funds to collect REL data
Title VI of the Civil Rights Act of 1964 requires agencies that receive federal funds must provide interpretation to individuals with Limited English Proficiency
Joint Commission requires hospitals to collect race, ethnicity, and preferences for spoken language and written information
U.S Department of Health and Human Services, Office of Minority Health, National Partnership for Action to End Health Disparities Goal #5 Research and Evaluation – improve coordination and utilization of research
and evaluation outcomes
REL Workgroup
• Purpose• Explore current methods of race ethnicity data
collection and make recommendations to state and local agencies about the collection of race ethnicity data
• Goal• Standardize collection and reporting of race
ethnicity data across the state
Literature ReviewRace and ethnicity are not genetic but rather social
constructs that evolve over time
Broad racial groups do not adequately describe diversity of population
Collection of socio-economic information is important
Evidence supports inclusion of Hispanic Latino category within the race question
Race ethnicity data collection is dynamic
Community Input
Obtain feedback from the community through focus groups
REL workgroup developed focus group script to understand what people think about race, ethnicity and language questions asked in a hospital or clinic
Focus Groups Twelve focus groups conducted with 124 participants
Selected counties in Central, Northern and Southern regions of Indiana
LanguagesEnglish and Spanish
Participant demographicsAgeGenderRace/EthnicityEducational attainment
Highlights When asked about the benefits of collecting REL information:
Many participants indicated REL data in health care will help to provide culturally competent care
Majority of participants reported it is important to ask REL questions in hospital or clinic to make certain that appropriate care and services are provided
Many participants would like to report this information on paper rather than verbally
When asked getting reassurance that the REL information will not affect health care Majority racial/ethnic minority participants indicated that it is very to extremely
important that they receive reassurance that REL data will not affect health care
When asked about collecting race and ethnicity information: Some participants expressed concern, suspicion and lack of trust about the collection
of race/ethnicity data reporting that this information would negatively impact on care
When asked about collecting language information: Majority of participants were not concerned about the collection of data on language
REL data collection projectsNational:
Aligning Forces for Quality and Hospital Quality Network projects funded by the Robert Wood Johnson Foundation
Health and Human Services, Office of Minority Health REL projectState
Indiana Hospital Association planning to roll-out REL project statewide
RegionalCentral Indiana Alliance for Health project funded by the Robert
Wood Johnson Foundation
Questions
Thank youAdrienne Durham, MPHHealth Disparities EpidemiologistIndiana State Department of HealthEpidemiology Resource Center2 North Meridian StreetIndianapolis, IN 46204317.233.7895 Fax [email protected]
Thank YouChandana Saha, PhD, MPHResearch AssociateIndiana Minority Health Coalition3737 North Meridian Street, Suite 300Indianapolis, IN 46208 317.920.4011 Fax 317. 926.4012 [email protected]