Supporting research to make patients, and the NHS, better
Open Data within Clinical ResearchRichard Corbridge
Evolution & Creation of Research Capability
George Dyson - Turing’s Cathedral
Unattributed quote - Clinical Research Community
There are two types of creation myths:those where life arises from mud, and those where life falls from the sky. In our myth computers arose from the mud, and code fell from the sky.
Successful clinical research outcomes happen in two ways: moments of unplanned genius occurring under pressure and as a reaction to
environments, and those where organisational intelligence is applied to ensure that delivery of a health outcome is probable and possible and
where evidence is overwhelming to prove the benefit.
Evolution & Creation of Research Capability
Sir Andrew Witty, CEO, GlaxoSmithKline
Clinical research is most akin to a mine, a great deal of waste rock requiring huge effort has to be removed before the rich seam of discovery
can be got at.
Three things we have to do with informatics to hit the rich seam
Innovate, INNOVATE, Innovate
Remove COMPLEXITY for researchers and participants
Increase TRANSPARENCY of inputs and outputs
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The needle in the BIG DATA haystack
Ope
n Da
ta P
latfo
rm (O
DP)
Higher Quality Lower Cost Quicker
The needle in the BIG DATA haystack
What is OPEN DATA?
The comedy answer is DATA that is OPEN…
But it is as simple as that…
Open data - data that can be made use of by anyone through analysis, linkages, and evidence based delivery.
Real World Data – the Big Data of 2013!
The needle in the BIG DATA haystack
John Wilbanks, VP Science, Creative Commons
Until now…
UK PLC and a number of global Pharma all now have an Open Data strategy and will, in 2013, move to facilitate the use of BIG DATA in an
OPEN way
Numerous scientists have pointed out the irony that right at the historical moment when we have the technologies to permit worldwide availability and
distributed process of scientific data, broadening collaboration and accelerating the pace and depth of discovery we are busy locking up that data
and preventing the use of correspondingly advanced technologies on knowledge
Blackpool Rock
DataInformation
InsightIntelligence
Supporting research to make patients, and the NHS, better
Open Data within Clinical ResearchRichard Corbridge