Reinventing Cancer Support
Ciarán Devane Chief Executive
Number of deaths from cancer per million persons living, 2009:
Copyright © Experian Ltd 2010, Copyright © NAVTEQ 2010, Based on Crown Copyright material Experian: County & Unitary Authority geography
Some of our achievement in 2008
Patient experience is poorer for rarer cancers
Breast cancer patients have the best experience while sarcoma patients have the worst
Rank Tumour 1 Breast
2 Skin3 Prostate
4 Lung5 Colorectal / Lower Gastro
6 Head & Neck7 Upper Gastro
8 Gynaecological9 Haematological
10 Urological*11 Brain / CNS
12 Other13 Sarcoma
*Urological excludes Prostate cancer which was included as a separate tumour group in the survey.# 32 questions identified significant differences. Factual questions were excluded as Trusts are not been rated on their performance for these.Source: Analysis by Macmillan Cancer Support based on Department for Health - National Cancer Patient Experience Programme – 2010 National Survey Report
Example: There is large variation in GP visits and subsequent health depending on cancer
A separate study found that a third of patients were reassured and not asked to return at the end of the initial appointment with their GP but
were subsequently diagnosed with a rarer cancer (not the top 4)Source: Department for Health - National Cancer Patient Experience Survey 2010; Rarer Cancers Foundation. 2011. Primary Cause? An audit of the experience in primary care of rarer cancer patients
Patient experience is poorer for those with a recurrence
Given written information about type of cancer Given name of CNS 0%
10%
20%
30%
40%
50%
60%
70%
80%
90%
100%
Questions with biggest difference in scores between patients first treated in the last year compared to those first treated 5 or more years
ago
<1yr
1 to 5yr
> 5yr
We don’t know exactly how many people have a recurrence in England BUT we do know that their experience is worse than those more recently diagnosed
Source: Analysis by Macmillan Cancer Support based on Department for Health - National Cancer Patient Experience Survey 2010
Patients with long-term conditions are less likely to be positive about their experience than those without
Source: Analysis by Macmillan Cancer Support based on Department for Health - National Cancer Patient Experience Survey 2010
Example: from questions around
experience of deciding the best
treatment for people with select
long-term conditions
This effect is true for those patient both with and without a CNS BUT experiences are significantly worse for all those without a CNS
Deafn
ess o
r sev
ere
hear
ing im
pairm
ent
A long
-sta
nding
phy
sical
cond
ition
A long
-sta
nding
illnes
s
No lon
g-te
rm
cond
ition
0%
20%
40%
60%
80%
100%
Q18 Given written information about the side effects of treatment by long-term condition and CNS/No CNS
CNS
No CNS
Patient experience is poor for some information related questions & there is huge variation between Trusts
Q51 Family definitely given all information needed to help care at home
Q49 Given clear written information about what should / should not do post discharge
Q31 Patient given written information about the operation
Q26 Hospital staff gave information on getting financial help
Q25 Hospital staff gave information about support groups
Q18 Patient given written information about side effects
Q15 Patient given written information about the type of cancer they had
0% 40%
80%
120%
160%
200%
240%
280%
320%
360%
400%
440%
480%
520%
560%
600%
640%
680%
x Lowest scoring 20% of all trusts Middle 60% of trusts Average score
Largest variation is for experience of receiving written information on their operation – 70 percentage points between the lowest and highest scoring Trusts
Source: Analysis by Macmillan Cancer Support based on Department for Health - National Cancer Patient Experience Survey 2010
Some of our achievement in 2008
@macmillacancer @ciarandevane
• Deliver the 9 outcomes. Do more things we know to be right. Build great community services. Change 3 things radically. This saves money too!