Public Health Data Standards: Partner Perspectives
National Association of Health Data Organizations
Denise LoveMarch 17, 2004
NAHDO’s Standards Perspective • Public health is broader than communicable
disease reporting and epidemiology• The source of public health’s data is the private
sector• Technological and political barriers require
innovative solutions• The Public Health Data Standards Consortium is
unique---composed of organizations representing diverse niches of expertise
NAHDO and Standards• NAHDO is actively engaged in health care data
standards activities• State health care data systems are based on UB-
92 or the UHDDS plus local fields• State health care data needs are evolving:
– e.g. nosocomial infections, race/ethnicity– Pharmacy, patient safety, and outpatient data initiatives
• Balancing reporting burden with benefits:– Reasonable and appropriate reporting requirements– Industry gets something in return or buys into the “public
good”
PatientDemographics
Patient StatusVariables
Clinical Variables
Linkage Variables
Financial Variables
Other Variables
Race/ Ethnicity
County Code
Marital Status
Patient Living Arrangement
Homeless indicator
Education
Occupation
Present on Admission Indicator
Do Not Resuscitate
PatientFunctional Status
Number of E-codes
Pharmacy Values
Gestational Age/newborn
Birth weight/Newborn record
Admitting vitals
Lab Values
Unique Patient ID
Physician ID
MMR on newborn record
EMS Run Number/record
Payer Field
Total Provider Paid Amount
Dates/Times of admit, discharge, procedures
Physician ID for each operating physician
UB-92-based Reporting Plus: Fields added byStates and Tracked by NAHDO
Data elements in red/bold are sought by National Purchasers for Quality
NAHDO’s Standards Activities Support our Base Constituencies
• AHRQ/HCUP National Data Standards Project (listserv, technical assistance)
• NCHS/CDC Education materials for Health Data Reporting Guide and E-codes
• AHRQ and CDC funding for NAHDO’s National Standards Consultant to attend: NUBC, X12N, HL7
• Consulting with Consumer-Purchaser Disclosure Group to expand UB-04 to support quality-based purchasing
• National testimony on state positions • Training Workshops: teleconferences and in-person
funded by CDC, AHRQ/BRIC, membership funds
How the Consortium Fits with NAHDO’s Standards Initiatives
• NAHDO seeks Consortium support for its members’ health care data agenda
• NAHDO is a founding member of Public Health Data Standards Consortium
• The Consortium has the power:– To address cross-cutting standards issues– To combine voices around critical data needs
• Examples:– Unique patient identifier – Independent assessment of the PHIN and NHII