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Organ Donation: AIM
Organs are a National Resource,
Not even a single one to be wasted
Let The Life Bloom
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Pledge to Donate Organs ≥ 18 years
• The person who donates is DONOR
• Who receives is RECIPIENT
Just One Donor can
save the lives of more
than eight people and
improve the quality of
life of many others
In case of Brain-Death
Any age group
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Types of Donors
Living Donors ( ≥ 18 years)1. Near Relative - Includes grandparents,
grandchildren, in addition to spouse, son daughter, father, mother, brother or sister
2. Other than near relative (Distant relative/Friends etc)
3. Swap Translation
Cadaver/ Deceased Donors (Any Age)
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Living Organ Donation
Kidney
Liver
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Huge gap between demand and supply of Human Organs for Transplantation
Organs Requirement Availability
Kidney 2,00,000 6,000
Liver 30,000 1,500
Heart 50,000 15
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Why We Need Deceased Donation?
Living donation alone
can not fulfill requirement
Certain organs cannot
be taken from living source
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Deceased Organ Donation
Two Lungs Intestine
Heart Two Kidneys
Liver Pancreas
Organs can not be stored
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Preservation Time of donated Organs
0 10 20 30 40 50 60
Kidneys
Pancreas
Liver
Intestin…
Lungs
Heart
Hours
Hours
4-6
4-8
6-10
12-15
12-24
24-48
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Tissues donation
Cornea Heart Valves
Skin Bone
Tendon Cartilage
Tissues can be stored in Tissue Bank
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State-wise Deceased Organ Donor
S. No State 2014 2013 2012 ODR
1 Andhra Pradesh 52 40 13 0.6
2 Chandigarh 6 N A N A 5.7
3 Delhi - NCR 20 27 12 1.2
4 Gujrat 28 25 18 0.5
5 Karnataka 39 18 17 0.6
6 Kerala 58 35 12 1.7
7 Maharashtra 52 35 29 0.5
8 Puducherry 13 2 N A 10.4
9 Tamil Naidu 136 131 83 1.9
10 U. P. 7 N A N A 0.04
TOTAL 411 313 196 0.16
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0
20
40
60
80
100
120
140
160
2014
2013
2012
State-wise Deceased Organ DonorThree years trends
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State-wise Organ donated in year 2014
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State-wise Organ donated in year 2014
0
50
100
150
200
250
Kidney
Liver
Heart
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Organ Failure
Organ failure is serious illnesses
Responsible for significant morbidity and mortality across the world.
Can be prevented: Organ transplantation
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Causes of Organ Failure
Kidney
Diabetes & High B.P. common causes
Liver
Hepatitis B common cause
Hepatitis C
Alcoholic Liver disease
Cirrhosis
Liver Cancer
Heart failure
Cardio-myopathy
Ischemic heart disease
pmp-per million population
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Reasons of Organ shortage
Family resistance to give consent
Negative attitude
Poor awareness
This could be due to the following reasons –
Religion
Myth & Fear
Legal aspects
Media report on Organ
Trafficking
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Deceased Donation Rate per million population
World Deceased Donation Status
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How can we increase the donors?
• By Giving Group talks about Deceased Organ donation
Religious Heads
School/ Colleges/ Universities Work Place/ Office etc
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DO WE HAVE POTENTIAL DONORS?
YESPatients of
Stroke, Hemorrhage, Trauma etc.
According to WHO (status on road safety 2013)
In India highest absolute number of deaths
due to road accidents : 1.3 lakhs (approx 10%)
deaths out of total world’s 12.4 lakhs
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Road Accident in India/year
• Approximately 1.3 Lakhs
• Which age Group majority victims ??????
• Suppose 10% are Brain Dead
• How many Organs we have ??????
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Eye donation
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India Total Population 118 Crore
Daily Death -- 62389
Daily Birth --86853
Total Blind --682497
If daily death people donate their eyes within 11 days all blinds will be able to see.
Then in India there will be no blinds.
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Need for the Act
Gross imbalance between the new
patients being added for transplant and available donors
To protect vulnerable poor
from organ trafficking
Awareness and positive attitude
towards deceased organ donation
Organize a system of organ and tissue procurement and
distribution for transplantation
Donor
Recipient
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THOA came into existence in year 1994
THOA was amended in year 2011 &
come into force with effect from
10-1-2014.
Transplantation of Human Organs and
Tissues Rules 2014 have been notified
on 27-3-2014.
Transplant of Human Organs Act
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Transplantation of Human Organ Act
Purpose:
Regulation of removal, storage & transplantationof human organs/tissues for therapeuticpurposes
Prevention of commercial dealings in humanorgans
Highlight: “Brain-Stem Death (BSD)”
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Highlight of Act: Recognition of BSD
“Brain-Stem Death (BSD)” means the stage atwhich all functions of the brain stem havepermanently and irreversibly ceased and is socertified
Brain Stem dead Patient can not breathe on hisown and is put on ventilator and othersupports to keep the circulation and heartmoving which maintains viability of organs
Brain Death
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Punishment for Violation
Whosoever carries out removal or transplantationswithout authority is punishable for up to 5 years and a fine of
up to Rs. 10,000
Now enhanced to 10 years and 5 lacs
in transplantation of Human Organ Act
2011
As per Act 1994
Amended Act 2011
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Punishment for Violation
Commercial dealings, like indulging in monetary
transaction for trading in human organs are punishable with
imprisonment ranging from 2 - 7 years, and a fine of Rs.
10,000 to Rs. 20,000
Enhanced to 5-10 years and a fine
between 20 lakhs to 1 crore in
Transplantation of Human Organ Act
2011
As per Act 1994Amended Act 2011
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Establishment of NOTTO
• What: NOTTO is an Apex National Networking Organization, established under DGHS, MoHFW, GOI
• When: NOTTO was established under the aegis of DGHS in November, 2010 (EFC)
• Why: To organize a system of organ procurement & distribution & networking
• Where: 4th & 5th Floor, ICMR Building, SafdarjungHospital
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Mandate of the NOTTO
To Create National Networking & Registry
To Provide a system for Procurement & Distribution of Organs & Tissues
To Promote Deceased Organ and Tissue Donation
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NOTTO
National Human Organ & Tissue
Removal & Storage Network
Biomaterial Centre
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National Human Organ & Tissue Removal & Storage Network
• Apex Centre for all India activities as under
– For Coordination & Networking
– Procurement, Distribution of Organs and Tissues
– Registry of Organ & Tissue donation & Transplantation
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Transplant/Retrieval
Hospitals must be
registered with State
Appropriate Authority
Registration with NOTTO
Mandatory under THOA Act
to create National Networking
Creation of National Networking
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SOTTO SOTTOSOTTO
T R T R T R
SOTTO
RTT R
SOTTO
ROTTO ROTTOROTTO ROTTO ROTTO
B B BB B
NOTTO
T – Transplant, R – Retrieval , B –Biomaterial Centre
Networking with Regional & State level organizations
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Identified Regional & State level organizations
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Procurement & Distribution Protocol
Local Level
SOTTO/ State Level
ROTTO/ Regional Level
Person of Indian Origin
Foreigner List
Availability of Donor
Check for Recipient
availability
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Co-ordination from procurement to transplantation
24 X7 Helpline No.-1800-11-4770
Information to NOTTO call
centre
Brain Dead Donor available with details of
blood Group, Age
Information to State
Networking Organization or Nodal Officer
Check for availability of Recipient in
the District or State
Transport feasibility to other State
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Maintain National data-bank
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Waiting list Registry Patient waiting with a potential Living donor Patient waiting for Deceased Donor
Donor Pledge Registry Organ and tissue pledge through Form 7 Online & Offline Pledger demographic details
Transplantation Registry Living donor details
related donorother then near related donor
Cadaver donor details Recipient details Transplant & Follow-up details
Building a National Registry
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Waiting List Registry
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National Waiting List of Patients
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Pledge Registry
• Pledge with NOTTO (≥ 18 Years age)
– Offline by Filling Form 7
– Online by visiting NOTTO
Website www.notto.nic.in
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ONLINE PLEDGE
Mode of Pledging
OFFLINE PLEDGE
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Pledging
Who has not consentedis not a donor, Choose toregister as donor
Presumed Consent i.ewho has not refused is adonor, you can registernot to be a donor
India
Spain
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Transplant Registry
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Transportation of Organs
Green Corridor
Organs are a National Resource,
Not even a single one to be wasted
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Success Story on Green CorridorMessage from Dr. Balakrishnan,
Chief Heart Transplant Surgeon, Chennai
The recipient is the 16 years old boy from Delhi withsevere ventricular dysfunction due to dilatedcardiomyopathy and was very sick. We used a Dornieraircraft from the Indian navy coast guard. It took off fromChennai Arakkonam airbase at 4 am and reachedAurangabad by 7 am. By 9 am the organ harvest was overand the return flight landed here by 12:45 pm and theheart implant was over in half an hour by 13:15 hours. Inanother one and half hours, he was in the ICU. He is fine.This is the longest air transfer of a heart in this country of1800 kms and ischemic time of over four and half hours.We thanks NOTTO for the wonderful organization to makethis donation possible to save a young boys life. We arevery grateful.
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Donor-Recipient
Donate Organs-Save Lives
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Consultancy support on the legal and non-legal aspects
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Capacity Building
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National Biomaterial Centre
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Four Tissue banks
VALVES
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Four Tissue banks continued..
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NOTTO CALL CENTRE 24X7
Toll-free Helpline No. 1800-11-4770
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Identifying potential donor Counseling & Motivation
Consent Brain death certification
Arrangements for organ harvesting Liasoning with the police
Arranging for the postmortem, early release of the body & transport
Recipients and arrangements for transplant
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Advocacy & Awareness
IEC and information campaign for
Prevention of organ trafficking
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Celebrity Pledged for Organ Donation
Promotion of organ donation
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Celebrity Pledged for Eye Donation
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–Felicitation and award for donor families and promoters
Advocacy & Awareness Contd…
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I E C
Information
• Required Request Board
• Developed IEC material
• FAQs • SOPs for
Retrieval of Organs to transplant
Education
• Training of Transplant Coordinators
• National Standardized Course Curriculum for Transplant Coordinators
Communication • Competition of
LOGO, Slogan & Background of Donor Card through My.gov
• Audio Video spots script finalization
• Poster and slogan Competition at VMMC & SJH Hospital
• National advocacy Conference for sensitization of State Health Secretaries, Director Health Services and other Stakeholders on NOTP
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Required Request
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PM’s Mann Ki Baat
Hon’ble Prime MinisterShri. Narendra Modigave inspiring talk inMann Ki Baat on 25thOct 2015 & 29th
November, 2015 topromote OrganDonation and itsimportance from BrainStem Death Cases.
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Average Calls in Call Centre
11 14 27 26 50 41
654
1867
707
976
0200400600800
100012001400160018002000
Call
Call
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6th Indian Organ Donation Day on 27th
November 2015 at Vigyan Bhawan
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All Religions Support Organ Donation
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Exhibition at VAMSCON 29th Jan- 31st Jan
2016
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Movie Making Competition on Organ Donation
at VAMSCON 2016
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First Health Cricket Tournament by MoHFW to
Promote Organ Donation in 2015-2016
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Sense of Urgency
Almost half a million people per year are dyingof end stage organ failure.
Only a handful of transplant are being offeredat the moment.
The focus should not be on how manytransplant are done, but how many patientsare not getting transplant done.
A sense of urgency has to develop among allof us.
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Be an Organ DonorShare your life
Share your decision
Sign a Donor card
Website: www.notto.nic.in
Helpline: 1800-11-4770
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Thanks
And it is expected you will Opt In
(For Organ Donation)
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Any Questions are Welcome
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Death is not the last sleep, It’s the final awakening
.
Don’t take your Organs to Heaven, Heaven knows we need
then Here