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Lone wolves, mobilisers and organisers: learning from civic activists
Helen Bevan
@HelenBevan
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@HelenBevan #CoPro2016
“Tomorrow’s management systems will need to value diversity, dissent and
divergence as highly as conformance, consensus and cohesion.”
Gary Hamel
Image by neilperkin.typepad.com
is the new normal!
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Which kind of activists are most
successful at delivering change?
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@HelenBevan #CoPro2016
Which kind of activists are most successful at delivering change?
Lone wolvesBuild power by expertise and information — through advocacy, oversight, contributing to committees, public comments and other forms of consultation
Source: Hahrie Han How Organizations Develop Activists: Civic Associations and Leadership in the 21st Century
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@HelenBevan #CoPro2016
Patient leaders as “lone wolves”
“What I am ranting about is the way in which patients are being streamed into advisory sub committees, the way we are
being used as tokens and to help tick off the right box…..
Where is the attitude that patients are part of the team in healthcare, that we are partners? Why are we always asked to participate inside a pre-determined frame? When will we
see co-design of new policies, and ultimately co-production?”
Annette McKinnon
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@HelenBevan #CoPro2016
Which kind of activists are most successful at delivering change?
Lone wolvesBuild power by expertise and information — through advocacy, oversight, contributing to committees, public comments and other forms of consultation
MobilisersBuild power by mobilising people – being able to call on large numbers of people to contribute, engage in change and take action
Source: Hahrie Han How Organizations Develop Activists: Civic Associations and Leadership in the 21st Century
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@HelenBevan #CoPro2016
Which kind of activists are most successful at delivering change?
Lone wolvesBuild power by expertise and information — through advocacy, oversight, contributing to committees, public comments and other forms of consultation
MobilisersBuild power by mobilising people – being able to call on large numbers of people to contribute, engage in change and take action
OrganisersBuild power by growing leaders – identifying, recruiting and training future leaders in a distributed network: building a community and protecting its strength
Source: Hahrie Han How Organizations Develop Activists: Civic Associations and Leadership in the 21st Century
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@HelenBevan #CoPro2016
Which kind of activists are most successful at delivering change?
Lone wolvesBuild power by expertise and information — through advocacy, oversight, contributing to committees, public comments and other forms of consultation
MobilisersBuild power by mobilising people – being able to call on large numbers of people to contribute, engage in change and take action
OrganisersBuild power by growing leaders – identifying, recruiting and training future leaders in a distributed network: building a community and protecting its strength
Source: Hahrie Han How Organizations Develop Activists: Civic Associations and Leadership in the 21st Century
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@HelenBevan #CoPro2016
Which kind of activists are most successful at delivering change?
Lone wolvesBuild power by expertise and information — through advocacy, oversight, contributing to committees, public comments and other forms of consultation
MobilisersBuild power by mobilising people – being able to call on large numbers of people to contribute, engage in change and take action
OrganisersBuild power by growing leaders – identifying, recruiting and training future leaders in a distributed network: building a community and protecting its strength
Source: Hahrie Han How Organizations Develop Activists: Civic Associations and Leadership in the 21st Century
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@HelenBevan #CoPro2016
Focus on the “We”
“Great social movements get their energy by growing a distributed
leadership”
Joe Simpson
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@HelenBevan #CoPro2016
Research shows that diverse groups of people consistently make better
decisions than small groups of “experts”
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@HelenBevan #CoPro2016
Here Come The Patientistas!Now we need ‘inreach’ – we need to be like an octopus and reach into the systems and the organisational structures and change them. Ironically, the citadels of power are desperate to change. Healthcare professionals are beginning to reach out to work with us – can see that we can reframe problems, bring different solutions, change dynamics, etc…….
We don’t need permission. We are everywhere, working in diverse ways. But we have to step up and talk properly about power
David Gilbert
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@HelenBevan #CoPro2016
Building AGENCY in health & healthcare
Agency is about the patient being the "agent" (or person with the active role)
When patients have agency, they are making, creating, doing, sharing,
collaborating
Individual agency
versus
Collective agency
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Copyright: <a href='http://www.123rf.com/profile_iqoncept'>iqoncept / 123RF Stock Photo</a>
Beyond top down and bottom up change……. Beyond the service lens through which systems
leaders typically conceive the problems we’re trying
to solve….Bringing positive
disruption into the system for faster change & bigger
outcomes
Disruptive co-creation
Adapted from SOLACE
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@HelenBevan #CoPro2016
ReferencesHelen Bevan: What I learnt about disruptive co-creation of the health and care system at Stanford Medicine Xhttps://www.linkedin.com/pulse/what-i-learnt-disruptive-co-production-health-care-system-helen-bevan
David Gilbert: Let’s talk about power – here come the patientistas https://futurepatientblog.com/2016/10/19/lets-talk-about-power-here-come-the-patientistas/
Annette McKinnon: The authentic patient voice http://yourgoldwatch.blogspot.ca/2015/08/the-authentic-patient-voice.html
Nesta: Health as a social movement http://www.nesta.org.uk/sites/default/files/health_as_a_social_movement-sept.pdf