Download - Fiona O’Malley
1
It doesn’t have to be like this
Fiona & Joe O’Malley
NSPKU 35th Annual Conference
2nd March 2008
Fiona O’Malley
Return to Diet
2
It doesn’t have to be like this
Fiona & Joe O’Malley
NSPKU 35th Annual Conference
2nd March 2008
Non-PKU sibling
Joe O’Malley
3
It doesn’t have to be like this
Fiona & Joe O’Malley
NSPKU 35th Annual Conference
2nd March 2008
Introduction
• How has PKU affected me…
– 7 year age gap
– Random “Here Taste this…”
4
It doesn’t have to be like this
Fiona & Joe O’Malley
NSPKU 35th Annual Conference
2nd March 2008
Tipping Point
• Autumn 2005
– Returned from University
– What’s wrong with Fiona?
5
It doesn’t have to be like this
Fiona & Joe O’Malley
NSPKU 35th Annual Conference
2nd March 2008
Tipping Point
• Autumn 2005
– Lethargic
– Irritable
– Lack of concentration
– Off diet
6
It doesn’t have to be like this
Fiona & Joe O’Malley
NSPKU 35th Annual Conference
2nd March 2008
Turning Point
– Adult PKU study day November 2005
– “It doesn't have to be like this”
7
It doesn’t have to be like this
Fiona & Joe O’Malley
NSPKU 35th Annual Conference
2nd March 2008
Winter 2005
• Taking Stock
– One year to the next PKU study day
– Who do we want to be?
– What can be done in a year?
8
It doesn’t have to be like this
Fiona & Joe O’Malley
NSPKU 35th Annual Conference
2nd March 2008
Spring 2006
• Researched
• Gained Knowledge
• Tailored a plan
9
It doesn’t have to be like this
Fiona & Joe O’Malley
NSPKU 35th Annual Conference
2nd March 2008
Evaluating our progress
14/0
1/20
04
30/0
3/20
04
12/0
6/20
04
26/0
8/20
04
12/1
0/20
04
22/1
2/20
04
07/0
4/20
05
06/0
6/20
05
14/0
8/20
05
09/1
1/20
05
01/0
1/20
06
10/0
3/20
06
16/0
5/20
06
23/0
6/20
06
04/0
9/20
06
28/1
1/20
06
19/0
2/20
07
15/0
5/20
07
PH
E
400
600
800
1000
1200
1400
1600
1800
Date
PHE PHE
IDEAL
10
It doesn’t have to be like this
Fiona & Joe O’Malley
NSPKU 35th Annual Conference
2nd March 2008
0 3 6 9 12 15 18 21 24 27 30 33 36 39 4270
75
80
85
90
95
100
105
110
115
Weight (Kg)
Weeks
Joe Fiona
Evaluating our progress
Buy 1 get 1 free…
Wedding in Ireland…
Weekend in Paris…
11
It doesn’t have to be like this
Fiona & Joe O’Malley
NSPKU 35th Annual Conference
2nd March 2008
Spring 2007
• Goals Achieved
– Phe Levels below UK recommended adult range
– Lost almost 3 stone (19 Kg)
– Brighter, Confident & Happy
12
It doesn’t have to be like this
Fiona & Joe O’Malley
NSPKU 35th Annual Conference
2nd March 2008
Side Effects
– Got to know who Fiona is…
– Better understanding of PKU
– Lost 6 stone (38 Kg)
– Personal Total Weight loss 10 stone (63 Kg)
13
It doesn’t have to be like this
Fiona & Joe O’Malley
NSPKU 35th Annual Conference
2nd March 2008
Looking Back
14
It doesn’t have to be like this
Fiona & Joe O’Malley
NSPKU 35th Annual Conference
2nd March 2008
Looking Back
15
It doesn’t have to be like this
Fiona & Joe O’Malley
NSPKU 35th Annual Conference
2nd March 2008
Looking Back
16
It doesn’t have to be like this
Fiona & Joe O’Malley
NSPKU 35th Annual Conference
2nd March 2008
Looking Back
17
It doesn’t have to be like this
Fiona & Joe O’Malley
NSPKU 35th Annual Conference
2nd March 2008
Looking Back
18
It doesn’t have to be like this
Fiona & Joe O’Malley
NSPKU 35th Annual Conference
2nd March 2008
Looking Back
19
It doesn’t have to be like this
Fiona & Joe O’Malley
NSPKU 35th Annual Conference
2nd March 2008
Looking Back
20
It doesn’t have to be like this
Fiona & Joe O’Malley
NSPKU 35th Annual Conference
2nd March 2008
Looking Back
21
It doesn’t have to be like this
Fiona & Joe O’Malley
NSPKU 35th Annual Conference
2nd March 2008
Looking Back
22
It doesn’t have to be like this
Fiona & Joe O’Malley
NSPKU 35th Annual Conference
2nd March 2008
So what now?
– Lift 18 metric tonnes per week (average)…
– Run Hill sprints 3 mornings per week
– Pyramid Sprint Row 15 miles per week
– Krav Maga – Israeli Commando Fighting System
– “No overhangs except what nature intended…”
23
It doesn’t have to be like this
Fiona & Joe O’Malley
NSPKU 35th Annual Conference
2nd March 2008
60 Seconds…
• Fill the unforgiving minute with sixty seconds' worth of distance run
25
It doesn’t have to be like this
Fiona & Joe O’Malley
NSPKU 35th Annual Conference
2nd March 2008
Thank You
• For listening
• To Eleanor Weetch & the NSPKU Team
• To everyone who helped us to get where we are today.
26
It doesn’t have to be like this
Fiona & Joe O’Malley
NSPKU 35th Annual Conference
2nd March 2008
It doesn’t have to be like this…