1Everybody Counts
Everybody Counts
Learnings from data disaggregated by disabilities (DDD) pilot
project
Archana Bhambal
2Everybody Counts
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• Our vision is of a world where no one is blind from avoidable causes and where visually impaired people participate equally in society.
• We are an international organization working with partners in developing countries to eliminate avoidable blindness and promote equality of opportunity for disabled people
Sightsavers Vision and Mission
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Why Disability Disaggregation Data• WHO Global Action Plan 2014- 2019 talks about Universal
Eye Health ‘A world in which nobody is needlessly visually impaired, where those with unavoidable vision loss can achieve their full potential, and where there is universal access to comprehensive eye care services’
• MDGs talked about ’universal’Universal is incomplete without the inclusion of Persons with Disabilities (PWDs)• For SDGs – DDD is essential requirement for all
development Programme
4Everybody Counts
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Disability Disaggregation Pilot Project
Project Objectives:
• To understand whether people with disabilities are accessing our services
• To build the evidence base on how to disaggregate routine data by disability and share with others
• To ultimately make Sightsavers projects more inclusive of people with disabilities.
5Everybody Counts
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Pilot Projects
• New eye health programme • Urban slums (Hospital and
Vision Centre)• Partners: local community
development organisation and an eye hospital
• India Census 2011: 2.1% prevalence of disability in MP (Q: ‘is X disabled?’)
• Legal definition (medical certification)
• Translate WG in to Hindi• Electronic tool (HMIS)
6Everybody Counts
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Washington GroupIntroductory phrase: The next questions ask about difficulties you may have doing certain activities because of a HEALTH PROBLEM. 1. Do you have difficulty seeing, even if wearing glasses? 2. Do you have difficulty hearing, even if using a hearing aid? 3. Do you have difficulty walking or climbing steps?4. Do you have difficulty remembering or concentrating?5. Do you have difficulty (with self-care such as) washing all over or
dressing? 6. Using your usual (customary) language, do you have difficulty
communicating, for example understanding or being understood? Response categories:
a. No – no difficulty; b. Yes – some difficulty; c. Yes – a lot of difficulty and d. Cannot do at all
The recommended Washington Group cut off is at least 1 c or d
7Everybody Counts
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Patient exit interviewsDaily diary of data collectors
Spot checks
• Key actors and decision makers on disability
Sensitisation
• Washington Group (WG) questionnaire translated into Hindi
Tool finalisation• On WG
questionnaire and data collection
Staff training
• Quality control and process monitoring
Data Collection• Integration in
MIS and use for planning Inclusive Eye Health programmes
Analysis
Gather evidence about process and experiences of stakeholders
Process
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• Data collected on over 20,000 patients above age of 18 years in India; 51.9 percent were females
when we ask them directly if they are disabled (as in the nationl census)
when we exclude slight domain
Project clients reporting severe or completely limiting difficulties in atleast one domain
0% 5% 10% 15% 20%
0.8%
8.5%
16.7%
Results
9Everybody Counts
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Useful lessons in SDG context
• Sensitisation and training ensure buy-in of the stakeholders• Different definitions of disability will give different results–
comparability of the data will be key.• There is no single approach to data collection, it needs to be
adapted to each context.• Integrate the questionnaire into existing practices to improve
efficiency and reduce workload and cost.• Train people on how to analyse the data so they can use it for
planning and decision making – ownership.• Developing a clear advocacy plan at the outset to make use of
the data, engaging policymakers.
10Everybody Counts
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Further information:http://www.sightsavers.org/everybodycounts/
[email protected]@sightsavers.org
Thank you!