Delaware LifespanRespite Care NetworkDelaware LifespanRespite Care Network
Using Data to Support an Innovative Respite NetworkNovember, 2011
Using Data to Support an Innovative Respite NetworkNovember, 2011
When you need a breakWhen you need a break
Delaware Lifespan Respite Care NetworkDelaware Lifespan Respite Care Network
10/25/10 Delaware Lifespan Respite Network www.delrespite.org 2
Dr. Barbara Snyder Project Manager, Delaware Lifespan Respite Care
Network Director of Corp/Fdn. Relations, Easter Seals DE
& MD’s E. Shore
Janet Harper-Wooley Senior SW/Case Manager, Division of Service for
Aging and Adults with Physical Disabilities
Presenters
Delaware Lifespan Respite Care NetworkDelaware Lifespan Respite Care Network
10/25/10 Delaware Lifespan Respite Network www.delrespite.org 3
Program Overview:
Delaware Lifespan Respite Care Network
How We Got Started:
What We Do: Help Family Caregivers
Find Respite Care
Fund Respite Care
Where You Can Find Us
www.delrespite.org
Delaware Lifespan Respite Care NetworkDelaware Lifespan Respite Care Network
10/25/10 Delaware Lifespan Respite Network www.delrespite.org 4
Introduction/Overview of Data Collection
Why Use DataHow Do You Get StartedData Collection Points for DLRCNHow We Use Data Lessons Learned – Tips to Take Home
Delaware Lifespan Respite Care NetworkDelaware Lifespan Respite Care Network
10/25/10 Delaware Lifespan Respite Network www.delrespite.org 5
Program Development/Modification Customer Satisfaction Program Outcomes Accountability
Why Use Data
Delaware Lifespan Respite Care NetworkDelaware Lifespan Respite Care Network
10/25/10 Delaware Lifespan Respite Network www.delrespite.org 6
How Do You Get Started
What is the Question you want to answer?Who do you need to ask?What is the best way to ask?How will you use the information you gather?
Delaware Lifespan Respite Care NetworkDelaware Lifespan Respite Care Network
10/25/10 Delaware Lifespan Respite Network www.delrespite.org 7
What were the Questions We Wanted to Answer
Pre-Service Delivery How great is the need for respite care?
Are current programs meeting the need for respite care?
Delaware Lifespan Respite Care NetworkDelaware Lifespan Respite Care Network
10/25/10 Delaware Lifespan Respite Network www.delrespite.org 8
Who are We Going to Ask?
Delaware Lifespan Respite Care NetworkDelaware Lifespan Respite Care Network
10/25/10 Delaware Lifespan Respite Network www.delrespite.org 9
Quantitative
Qualitative
What is the best way to get information?
Delaware Lifespan Respite Care NetworkDelaware Lifespan Respite Care Network
10/25/10 Delaware Lifespan Respite Network www.delrespite.org 10
Pre-Service Deliver –
Focus Group – U of DE Task Force
Two surveys – Family Caregivers & Providers
Focus Groups – Coalition members
Annually –
Application for Financial Assistance
Customer Satisfaction Survey
Financial Accounting
Data Collection Points for DLRCN
Delaware Lifespan Respite Care NetworkDelaware Lifespan Respite Care Network
10/25/10 Delaware Lifespan Respite Network www.delrespite.org 11
Program Development/Modification Customer Satisfaction Program Outcomes Accountability
How We Use the Data
Delaware Lifespan Respite Care NetworkDelaware Lifespan Respite Care Network
10/25/10 Delaware Lifespan Respite Network www.delrespite.org 12
Participant Profile – Use by
county age disability
Program Modification
Delaware Lifespan Respite Care NetworkDelaware Lifespan Respite Care Network
10/25/10 Delaware Lifespan Respite Network www.delrespite.org 13
County Statistics
Co. Fin. Asst. Recipients Genl. Pop.
N Castle 70.6% 60%
Kent 14.7% 18%
Sussex 9.6% 21%
Delaware Lifespan Respite Care NetworkDelaware Lifespan Respite Care Network
10/25/10 Delaware Lifespan Respite Network www.delrespite.org 14
Age of Care Recipients
63.2%
13.2%
8.8%
8.8%
5.9%
0.0% 10.0% 20.0% 30.0% 40.0% 50.0% 60.0% 70.0%
0-12
13-20
21-50
51-75
76+
Delaware Lifespan Respite Care NetworkDelaware Lifespan Respite Care Network
10/25/10 Delaware Lifespan Respite Network www.delrespite.org 15
Program Modification
Financial Assistance Application:• Need a provider? 59.6% No
40.4% Yes
Delaware Lifespan Respite Care NetworkDelaware Lifespan Respite Care Network
10/25/10 Delaware Lifespan Respite Network www.delrespite.org 16
Did your respite time make you feel more refreshed and less stressed?
Results:2009 Yes No
91.7% 8.3%
2010 5-Point Likert ScaleVery Somewhat Not at All51.9% 25.9% 18.5% 3.7% 0.0%
Program Outcomes
Delaware Lifespan Respite Care NetworkDelaware Lifespan Respite Care Network
10/25/10 Delaware Lifespan Respite Network www.delrespite.org 17
For Whom – funders, key stakeholders
What – Outputs Outcomes Use of dollars
Accountability
Delaware Lifespan Respite Care NetworkDelaware Lifespan Respite Care Network
10/25/10 Delaware Lifespan Respite Network www.delrespite.org 18
Do it Make it simple Make changes Share what you learn
Lessons Learned – Tips to Take Home
Delaware Lifespan Respite Care NetworkDelaware Lifespan Respite Care Network
10/25/10 Delaware Lifespan Respite Network www.delrespite.org 19
Where you can go for resources
www.delrespite.org
History tab – reports that include data
Give me a business card, and I’ll email:
Initial family caregiver/provider surveys
Customer satisfaction survey
Financial Assistance application
Delaware Lifespan Respite Care NetworkDelaware Lifespan Respite Care Network
10/25/10 Delaware Lifespan Respite Network www.delrespite.org 20
Practice Activity
Thank YouThank You
Delaware Caregiver Support CoalitionContact me at:
Barb SnyderEaster Seals DE & MD’s E. Shore
Delaware Caregiver Support CoalitionContact me at:
Barb SnyderEaster Seals DE & MD’s E. Shore