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Oulun yliopisto
Data Driven
healthcare
‒ Nordic Model
Moderator: Maritta Perälä-Heape
Centre for Health and Technology,
University of Oulu,
Oulu, Finland
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The status of big data solutions in the healthcare in Nordic countries
1. The activities already in place or are in planning phase
Nard Schreurs, CEO IKT Norway Claus Duedal Pedersen, CIO, Odense University Hospital , DenmarkJaana Sinipuro, Senior Lead, Sitra, Finland Patrik Georgii-Hemming, MSci, MD, PhD, CMIO, SLL,
Sweden
2. Work shop: What are our needs and expectations for big data in healthcare3. Results of the work shop to create the Nordic vision for the Data driven healthcare
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Big Data awaits transformation into biomedical knowledge
From a static health system to a learning one that improves individual, community and population health
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Big Health Data
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Genomic knowledge will Transform the daily practices of medicine Change medicine and make it far more precise and
individualized
Consumer-driven medicine Direct-to-consumer tests From population cohorts to participatory medicine
Eric Topol (an American cardiologist, geneticist and digital medicine researcher; Scripps Translational Institute, San Diego):”Deep personal data from an individual is a comprehensive picture of health”
Future genomics medicine
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Modernisation of data channels Data privacy (security and data portability)Data qualityCross sectorial data governanceCross broder data governance
Is there a Big Health Data strategy in place ?
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Coordination of careVirtual human centric care modelCross sectorial patient pathwaysPatient information flow across choice of hospital/ region/country
Data as a fuel of future digital eServices
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Data protection: Personal data legislation will be unified by the general data protection regulation of EU:Data portability :The right for an individual to have access to one’s respective data in a digital formInto power on the 28th of May, 2018
Personal Data as a source
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My Data: Empowering All Americans with Personal Data Access
"Because we want every American ultimately to be able to securely access and analyze their own health data, so that they can make the best decisions for
themselves and for their families." - President Barack Obama
January 30, 2015
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"People’s right to decide about and monitor their personal information will be enhanced, while ensuring the smooth
transfer of data between the authorities." - Strategic Programme of Prime Minister Juha Sipila’s Government
May 29, 2015
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The status of big data solutions in the healthcare in Nordic countries
1. The activities already in place or are in planning phase
Nard Schreurs, CEO IKT Norway Claus Duedal Pedersen, CIO, Odense University Hospital , DenmarkJaana Sinipuro, Senior Lead, Sitra, Finland Patrik Georgii-Hemming, MSci, MD, PhD, CMIO, SLL,
Sweden
2. Work shop: What are our needs and expectations for big data in healthcare3. Results of the work shop to create the Nordic vision for the Data driven healthcare
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What we are expecting from big data
To identify the patient at risk
To provide specific diagnostics tests and treatment recommendations,
To aggregate data of patient demographics, medication lists, lab data, allergies, etc
To find problems in routine processes
Future of genomic medicine
Population health management
New forms of clinical trials
Crownd sourcing for drug development
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Opportunities
Rich data
• Longitudinal record
• Self- generated data
•Holistic view of thedata
Risk evaluation
•New care models: Proactive intervention
•New dignostic tools: Predictive analytics
Diseasemanagement
•Better quality of care
• Lower cost
•Treatment plans
•Decision support
•Precision medicine
Research
•Next generation of drug development & clinical trials
•Personalized medicine
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Big data
Healthcare
lvm.fi
Assesing
measures to
attract R&D
funding
Horizon2020
Assessing
regulation
affecting
data value
chain
Promoting the
availability
and use of
personal data
Models for
MyData
development
Government
proposal for
Transport-
code
3rd phase
Big data action areas
Internationalization
of services
ehealth strategiesR&D cooperation
Data collaborationand sharing
Common practicesEU Data protection
regulation
MyDataHuman-centric
data management Personal data
operating models
Directives,National legislation,
Standards,Deregulation
Developing
peer network
activities
Practices for
data
management
lvm.fi
The aim is to increase the understanding on data-driven healthcare opportunities
Cross
broader
cooperation
and R&D of
data-based
healthcare
solutions
Strategic
principles on
big data usage
impact
assessment
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MyData – a model for human-centered personaldata management and processing
Images from Poikola, Kuikkaniemi & Honko 2015: http://urn.fi/URN:ISBN:978-952-243-455-5
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MyData Principles
● Human Centric: right to data, individual in control,
privacy
● Usability of Data: machine readable, open formats,
APIs, standards
● Transparent relationship management
● Open Business Environment: interoperability,
possibility to change services without “data locks”
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MyData vs. Current Models