A continuous state of beta
Designing and implementing a learning exchange for chronic care
Daniel McLinden, EdD Senior Director, Learning & Development Associate Professor, General & Community Pediatrics Cincinnati Children’s Hospital Medical Center.
Sarah Myers, RN, MPH Senior Quality Improvement Consultant James M Anderson Center for Health Systems Excellence Cincinnati Children’s Hospital Medical Center.
Academy for Healthcare Improvement May 30, 2014
And the ICN Exchange project team
Transform the health, care and costs for all children and adolescents
with Crohn’s disease and ulcerative colitis by building a sustainable
collaborative chronic care network, enabling patients, families,
clinicians and researchers to work together in a learning health care
system to accelerate innovation, discovery and the application of new
knowledge.
The context
Make it possible for a geographically
dispersed community of clinicians,
scientists, patients, and parents to pool
their knowledge and learn from each
other to improve outcomes.
The Challenge
“Once you open the
possibility that people are
not only using the web as a
platform … but to pool their
efforts, knowledge, and
resources … the
possibilities for what they
can create are astounding
(Benkler, 2001)."
Create a learning resource that will radically change for
the better what people know about how to implement an
effective and reliable care delivery system to treat and
manage chronic disease beginning with pediatric
inflammatory bowel disease.
Inspirations
Aim
There needs to be a
place to exchange
tools, processes,
stories and lessons
learned?
What would that place be like?
Beliefs
Physician Sandy Roan.
M.D. Pediatric GI Doctor,
specializing in IBD at a
hospital outpatient clinic
Nurse- Veronica
Mayfield, RN: One of
four nurses at a
Pediatric GI clinic
Uri Sternberg, Age 17:
Diagnosed 8 years ago
with Crohn’s
Healthcare Ecology Model. (2010). Clinical Collaborative Care Network (C3N).
Cooper, A. (2004). The inmates are running the asylum: Why High-Tech Products Drive Us Crazy and Ho to Restore the Sanity. Indianapolis, IN: SAMS.
Pruitt, John & Adlin, Tamara. The Persona Lifecycle : Keeping People in Mind Throughout Product Design. Morgan Kaufmann, 2006.
Our Approach: Focus on Design
Planning the design: Inspired by Pinterest, the popular social media site and informed by Network users.
Doing iterative tests: Site design and functionality are adapted and refined.
Studying and acting on what we learn from site metrics and user feedback:
• Growing use among each professional group.
• Continual need to re-organize and optimize content
• Co-production of features and functionality with the community.
Our Approach: Focus on Improvement Science
http://c3nproject.org/innovations/qi-and-chronic-illness-care-support/improvecarenow-exchange
Where We are Today
• Scaling up to meet the needs of a growing
Network.
• Incorporating or connecting with patient and
parent partners.
• Making sure the best resources are the easiest to find.