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10 years of the Aspergillus
Website
1998-2008
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Evolution and revolution
Original summary of purpose
“This site is designed to provide information on pathogenic Aspergilli for clinicians and scientific researchers. The site includes DNA sequence data, a comprehensive bibliographic database, laboratory protocols, treatment information and discussion groups.”
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Evolution: 10 years ago…
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Evolution: 5 years ago…
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Evolution: 4 years ago…
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Evolved: Now…
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Evolution: Statistics
• 1999– Nearly 4000 members– 500 pages per day– 71 countries reached
• 2008– 35 000 members– 12 000 pages per day
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Latest figures
• 14 000 page requests per day (up to 5 million per year)
• 26 000 distinct IP addresses per month• 110-120 countries reached each month
(2/3rds of the total number of countries in the world)
• 1975 sites link to website (20th Feb 2008)
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Evolution: Sections
Diagnosis: 3800ppm Treatment: 2400ppm
Research: 500ppm Articles:25 000ppm Conferences: 4600ppm
6700 ppm
33 000 images per month
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Revolution: new sections and services
21 000 pages downloaded per month
23 000 pages downloaded per month
A search is carried out every 2-3 seconds somewhere in the world
37 000 pages downloaded per month
12 000 pages downloaded per month
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The Aspergillus Search Engine
•68 000 readable files indexed by Google(html, php, pdf, ppt, doc)•17 requests per minute•Used twice as much in UK night-time (USA/Asia users)
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Search terms – WWW Google
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Nova Plantarum Genera
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Site structure
•40 indexed sections•5 forums for questions & answers•Patients support group (very active with 539 members and 10-20 messages per day •Technical support group (73 members)•Active collaboration with the Aspergillus Trust (UK patients only)
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A. fumigatus sequence release
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Doing well so far – what next?
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The Way Forward
•Quality and ‘added value’ of content•Newsletters•Better internal searching – better internal navigation•Better external indexing (Domain names, specific pages aimed at improving ranking)
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The Way forward•Better public relations•Improve existing sections for existing audiences – Patients (50% of audience)•More sections designed to attract new audiences (Industrial applications)
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Acknowledgments
Present sponsors•Schering-Plough •Pfizer Inc•The CGD Research Trust •The Moulton Trust•Biocompare
Past sponsors•Alza•OrthoBiotech•Merck & Co Inc. •AB Biodisk
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Patients website – the beginning
•Discussion group – simple email based group allowing group ‘conversations’•Around 100 members•Demanding on moderator & editors
•Bulletin board – 2 subjects (allergic & invasive) Questions & answers•Not popular – 1 or 2 questions a week•No group support
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Bulletin Board
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Shortcomings
• For me– Repetitive – tending to answer the same or similar
questions– Text only
• For patient– Not easy to find (have to find website, then the right
section)– Not easy to understand – Difficult to find information you want
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Improvements
• Patients website– Contains fact sheets on all repeated information, links to
useful websites– Open to all, no membership required– Data gathering to profile users– Aspergillus Support Group
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What is Aspergillus?
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Non-English page requests
•Italian•Polish•Spanish•Dutch•Chinese•Arabic
Top 6 downloaded ‘What is aspergillus’ in January 2008
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Essential Information
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Advice
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Aspergillus Support Group
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Success of Patient Sections
•37 000 website pages requested•543 members of the support group•10-20 messages per day
•Far less time spent answering repetitive questions (Patient moderators)•‘Body’ of information supported by Patients group•The Aspergillus Trust
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Public Relations
Patients section is a good potential source of stories for journalists, as well as a good source of ideas for story lines and pictures that will be of interest to wider audiences.
•Patient stories – successful treatment•Flood damage – better ways to clean up•Building work – ways to protect the vulnerable•Composting – sensitivity of siteing
Increased public interest = increased viewing figures
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The Aspergillus Trust•Rose out of the Aspergillus Support Group•Led by UK based people suffering from Aspergillus illnesses•Originally envisaged (by me) to be a group offering the patients perspective on what information is given to patients during their illnesses, how to improve that information and even how to improve the treatments offered (ABPA/itraconazole)•A think tank to suggest new areas to cover•But they became so much more…
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Trust website