dni2009 phr workshop peter part2

20
Web 2.0, Health 2.0 - and what they might mean for PHRs Peter J. Murray

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Presentation by Peter Murray for PHR workshop at NI 2009, Helsinki, Finland

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Page 1: Dni2009 Phr Workshop Peter Part2

Web 2.0, Health 2.0

- and what they might mean for PHRs

Peter J. Murray

Page 2: Dni2009 Phr Workshop Peter Part2

What is Web 2.0?

Web 2.0, refers to a supposed secondgeneration of Internet-based services

emphasizing

on-line collaboration AND

sharing among users

Ref: An introduction to Web 2.0 (The user's voice in the second generation of the WWW) – Francisco Llaneras Estrada (Nov. 2006)

http://www.slideshare.net/kikollan/an-introduction-to-web-20-the-user-role/

Page 3: Dni2009 Phr Workshop Peter Part2

What is Web 2.0?

• Improved communication & collaboration between people via social-networking technologies

• Improved communication between separate software applications (“mash-ups”) via open Web standards for describing and accessing data, and

• Improved Web interfaces mimicking real-time responsiveness of desktop applications within a browser window.

Ref: Social technologies (aka Web 2.0) for ehealth-Gunther Eysenbach (after Barreto) (March 2008), www.webcitation.org/5W9GcYyWN

Page 4: Dni2009 Phr Workshop Peter Part2

… or we can view Web 2.0 as ...

web-applications that get more useful the more

people use them ...

- and apply this to health

(Chris Paton – personal email discussion)

Page 5: Dni2009 Phr Workshop Peter Part2

http://simplecomplexity.net/natural-language/what-is-web-30/

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SINI2008 - 18th Annual Summer Institute in Nursing Informatics

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Web 2.0 claims:

Applications will provide benefit to the international health,biomedical and nursing informatics communities

- will allow users to interact with a dynamic, multimedia, and engaging Web platform

- will foster interaction, communities, etc.

- will change the way we work

- will change healthcare, medicine, nursing, informatics

Page 8: Dni2009 Phr Workshop Peter Part2

Web 2.0 claims:

But ....... are any of these true? do we have any evidence?

How much do health and/or informatics professionals actually use them?

Plenty of consumers of content – not so many producers or much real interaction

The 1% rule - if you get a group of 100 people online then one will create content, 10 will "interact" with it (commenting or offering improvements) and the other 89 will just view it.

Page 9: Dni2009 Phr Workshop Peter Part2

What is Health 2.0?

Shreeve:

Health 2.0 is “all about Patient Empowered (not the misnomer 'Consumer Directed') Healthcare- whereby patients have the information they need to be able to make rational healthcare decisions”, - and interoperability of health information will be a crucial determinant of success or failure of the movement.

O'Grady:

...the most important aspect of using Web 2.0 in health care is the use of social software, which will promote collaboration between patients, their caregivers, and health professionals.

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Health (or Medicine) 2.0 applications, services and

tools are Web-based services for health care consumers,

caregivers, patients, health professionals, and biomedical

researchers, that use Web 2.0 technologies as well as

semantic web and virtual reality tools, to enable and

facilitate specifically social networking, participation,

apomediation, collaboration, and openness within and

between these user groups.

Eysenbach - http://www.jmir.org/2008/3/e22/

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How is Health 2.0 changing things?

 

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How is Health 2.0 changing things?

 

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Views from an opportunistic email discussion

1. what will be the main changes to, or implications for, healthcare as a result of Web 2.0 in the next 5-10 years?

2. what will be the main implications of these changes for the ways in which health professionals work?

(discussion was mainly about medics – but ? same issues apply for nurses – what do they imply for informatics?)

Page 19: Dni2009 Phr Workshop Peter Part2

Healthcare will be more person-centred, and more personalised

Rise of e-patients will drive change – not the technology etc.

E-patients' use of everyday technology (smartphones etc) will demand their use on healthcare

mHealth will be the main channel of interaction

We'll stop thinking of healthcare delivery over the web as divisible from healthcare delivery overall.

Page 20: Dni2009 Phr Workshop Peter Part2

Patients are the only node connecting all aspects of the system.

As a result, human-to-human, participatory healthcare will be the 'name of the game' for Health 2.0 and beyond.

Thanks for contributions:Bertalan Meskó, Jennifer McCabe Gorman,Francisco J. Grajales III, Luis Luque, Chris Paton,Margaret Hansen, Scott Erdley, Maarten den Braber