Digital transformation

of health and care:

Data is key

Dr. Monika Lanzenberger

European Commission, DG Communications

Networks, Content and Technology (DG CONNECT)

Directorate H - Digital Society, Trust & Cybersecurity

Unit H3, eHealth, Well Being and Ageing

7 February 2019

1

Prevention and early risk detection

New therapies and diagnostics

Personalised Medicine

New health and care models

High-performance computing

Cloud computing Artificial Intelligence

Internet of Things (IoT)

Advanced Data-Analytics

mHealt

h

Wearables Telehealth

Data-driven innovation

Data-driven

health and care innovation

• One of the fields identified to deliver:

"Digital transformation of health and care"

2

3 priorities identified in the DSM mid-term review:

3

Open Public Consultation Transformation of Health and Care in the Digital Single Market

70 % individuals

30 % organisations

1464 responses from 35 countries

Results

https://ec.europa.eu/health/sites/health/files/ehealth/docs/2018_consultation_dsm_en.pdf

4

More than 90% of

respondents agreed that

citizens should be able to

manage their own health

data.

Open Public Consultation

Results

5

More than 80% of

respondents agreed that

sharing of health data

can improve treatment

and prevent diseases.

Open Public Consultation

Results

6

More than 80% of

respondents agreed that

citizen feedback to

healthcare providers and

professionals is essential to

improve services.

Open Public Consultation

Results

7

Risk of privacy breaches

Heterogeneity electronic health records

Cybersecurity risks

Data quality and reliability

Lack of infrastructure

Legal restrictions in member states

Lack of awareness

Lack of interest

Open Public Consultation

1464 responses from 35 countries

"What are the

major barriers

to electronic

sharing of

health data?"

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Commission Recommendation to establish a Format for a European Electronic Health Record Exchange

• European Commission Recommendation on a European Electronic Health Record exchange format has been adopted on 6 Feb 2019

• General Data Protection Regulation: citizens have the right to access their personal data

• Supporting the digital transformation of health and care in the EU by seeking to unlock the flow of health data across borders

• Supporting Members States in their efforts to ensure that citizens can securely access and exchange their health data wherever they are in the EU

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Commission Recommendation - Format for a European EHR Exchange

• The aim is to allow for interoperability and exchange of full Electronic Health Records: Access to existing data and adequate infrastructure e.g. to provide real-time information on existing health conditions, allergies, intolerances and polypharmacy; Improve continuity of care and reduce cost, e.g. by avoiding to repeat medical tests.

• Supported by the Connecting Europe Facility (CEF) Telecom programme, many Member States are working on an eHealth Digital Service Infrastructure (patient summaries and ePrescriptions); begin between a few countries before early 2019; approximately 22 Member States expected to participate by the end of 2021 (Since 21 January 2019, Finnish patients can buy medicines in Estonia they have been prescribed from their Finnish doctor).

• May also open up access to data for research. 10

• bit.ly/EUdigitalhealthcare

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