diabetes online community - diabetes education through ...€¦ · the doc (diabetes online...

32
Diabetes Online Community Making Connections in the T1D Digital World

Upload: others

Post on 26-Aug-2020

0 views

Category:

Documents


0 download

TRANSCRIPT

Page 1: Diabetes Online Community - Diabetes Education Through ...€¦ · The DOC (Diabetes Online Community) is an online home for anyone touched by diabetes. Patients, caregivers, family

Diabetes Online Community

Making Connections in the T1D Digital World

Page 2: Diabetes Online Community - Diabetes Education Through ...€¦ · The DOC (Diabetes Online Community) is an online home for anyone touched by diabetes. Patients, caregivers, family

Michelle Auerbach&

Michelle Lord

Insert photo of Michelle A. here!

Page 3: Diabetes Online Community - Diabetes Education Through ...€¦ · The DOC (Diabetes Online Community) is an online home for anyone touched by diabetes. Patients, caregivers, family

In this session...1) Introductions - get to know us!2) The Diabetes Online Community (DOC)3) Our Online Platforms4) Tools of The DOC5) Use with Caution6) How to Get Involved7) Q & A

Page 4: Diabetes Online Community - Diabetes Education Through ...€¦ · The DOC (Diabetes Online Community) is an online home for anyone touched by diabetes. Patients, caregivers, family

Introductions!Get to know us!

Page 5: Diabetes Online Community - Diabetes Education Through ...€¦ · The DOC (Diabetes Online Community) is an online home for anyone touched by diabetes. Patients, caregivers, family

Michelle auerbach

● 26 years old● Diagnosed with T1D at age 12

● From Montreal, QC● Freelance writer & Blogger

Page 6: Diabetes Online Community - Diabetes Education Through ...€¦ · The DOC (Diabetes Online Community) is an online home for anyone touched by diabetes. Patients, caregivers, family

Michelle Auerbach

Fun Facts:● I have a rescue cat named

Big!● I love taking fun photos

for social media

Page 7: Diabetes Online Community - Diabetes Education Through ...€¦ · The DOC (Diabetes Online Community) is an online home for anyone touched by diabetes. Patients, caregivers, family

Michelle Lord

● 29 years old● Diagnosed with T1D at age 12

● From Toronto, ON● PhD in Medical Physics

Page 8: Diabetes Online Community - Diabetes Education Through ...€¦ · The DOC (Diabetes Online Community) is an online home for anyone touched by diabetes. Patients, caregivers, family

Michelle Lord

Fun Facts:● I got married this year● I love ballet!

Page 9: Diabetes Online Community - Diabetes Education Through ...€¦ · The DOC (Diabetes Online Community) is an online home for anyone touched by diabetes. Patients, caregivers, family

Introductions:Your turn!

Tell them how long you’ve been living with T1D or your connection to T1D!

Say hi to the person next to you!

Page 10: Diabetes Online Community - Diabetes Education Through ...€¦ · The DOC (Diabetes Online Community) is an online home for anyone touched by diabetes. Patients, caregivers, family

Diabetes Online Community (DOC)

Page 11: Diabetes Online Community - Diabetes Education Through ...€¦ · The DOC (Diabetes Online Community) is an online home for anyone touched by diabetes. Patients, caregivers, family

What is the DOC?The DOC (Diabetes Online Community) is an online home for anyone touched by diabetes. Patients, caregivers, family members, foundations, and organizations from all over the world come together on the world wide web.

Image by @spoonie_village on Instagram

Page 12: Diabetes Online Community - Diabetes Education Through ...€¦ · The DOC (Diabetes Online Community) is an online home for anyone touched by diabetes. Patients, caregivers, family

Where is the DOC?

● A visual look at what people with T1D are doing

● Cool pictures with captions● Insights into your day or thoughts

through Instagram stories

● Groups. Many Diabetes groups. Some general, some are a bit more tailored (ex. Women with T1D/Men with T1D, Dexcom Users, …)

● Pages for companies, campaigns, Diabetes news

Page 13: Diabetes Online Community - Diabetes Education Through ...€¦ · The DOC (Diabetes Online Community) is an online home for anyone touched by diabetes. Patients, caregivers, family

● Start a conversation. A great place to share your opinions

● An important place for advocacy (#DSMA)

● Learn from others● Tutorials on how to do certain

things (ex. Insert your dexcom)

● Videos like “A Day In the Life” which can make people feel less alone

● A platform that is ONLY Diabetes

● Make friends (even in the area you live in)

● Ask questions when you’re not sure about things.

Where is the DOC?

Page 14: Diabetes Online Community - Diabetes Education Through ...€¦ · The DOC (Diabetes Online Community) is an online home for anyone touched by diabetes. Patients, caregivers, family

Our Platforms

Page 15: Diabetes Online Community - Diabetes Education Through ...€¦ · The DOC (Diabetes Online Community) is an online home for anyone touched by diabetes. Patients, caregivers, family

Michelle Lord (@miche_lo)

● My first introduction to the DOC in 2013

● Found by searching the hashtag #type1diabetes

● Platform in which I have made the most connections

Page 16: Diabetes Online Community - Diabetes Education Through ...€¦ · The DOC (Diabetes Online Community) is an online home for anyone touched by diabetes. Patients, caregivers, family

● Started in December of 2016

● Always had a passion for making videos

● Wanted to make content that other people with T1D could relate to

Type 1 Diabetes Lifestyle Channel

Page 17: Diabetes Online Community - Diabetes Education Through ...€¦ · The DOC (Diabetes Online Community) is an online home for anyone touched by diabetes. Patients, caregivers, family

Michelle Auerbach (@ehmichelle)

● Discovered the DOC through Instagram in 2014

● My personal favourite platform for getting to know diabetes friends

● Was pulled towards Instagram for the photographic nature of it

Page 18: Diabetes Online Community - Diabetes Education Through ...€¦ · The DOC (Diabetes Online Community) is an online home for anyone touched by diabetes. Patients, caregivers, family

● Started in May of 2016

● Was inspired by other Diabetes bloggers

● Love writing pieces that make people feel something, or that raise awareness

Diabetes & Chronic Illness BlogBlogger

Page 19: Diabetes Online Community - Diabetes Education Through ...€¦ · The DOC (Diabetes Online Community) is an online home for anyone touched by diabetes. Patients, caregivers, family

Tools of the DOC

Page 20: Diabetes Online Community - Diabetes Education Through ...€¦ · The DOC (Diabetes Online Community) is an online home for anyone touched by diabetes. Patients, caregivers, family

How can the DOC help those living with T1D?Raising awareness Support Network

Page 21: Diabetes Online Community - Diabetes Education Through ...€¦ · The DOC (Diabetes Online Community) is an online home for anyone touched by diabetes. Patients, caregivers, family

How can the DOC help those living with T1D?Connection to Local Events Tips and Tricks

Page 22: Diabetes Online Community - Diabetes Education Through ...€¦ · The DOC (Diabetes Online Community) is an online home for anyone touched by diabetes. Patients, caregivers, family

Making friends!Abby

Evelyn

Page 23: Diabetes Online Community - Diabetes Education Through ...€¦ · The DOC (Diabetes Online Community) is an online home for anyone touched by diabetes. Patients, caregivers, family

Use with caution

Page 24: Diabetes Online Community - Diabetes Education Through ...€¦ · The DOC (Diabetes Online Community) is an online home for anyone touched by diabetes. Patients, caregivers, family

Are you concerned about being active in the DOC?

Let’s hear from you first!

Use with caution

Page 25: Diabetes Online Community - Diabetes Education Through ...€¦ · The DOC (Diabetes Online Community) is an online home for anyone touched by diabetes. Patients, caregivers, family

Things to be careful of onlineComparing yourself to others

Ex: A1C, Dexcom graphs

Instagram vs. Reality

Page 26: Diabetes Online Community - Diabetes Education Through ...€¦ · The DOC (Diabetes Online Community) is an online home for anyone touched by diabetes. Patients, caregivers, family

Things to be careful of onlineLots of opinions!

Ex: diets! (low carb high fat, high carb low fat, plant-based, paleo…)

Page 27: Diabetes Online Community - Diabetes Education Through ...€¦ · The DOC (Diabetes Online Community) is an online home for anyone touched by diabetes. Patients, caregivers, family

Safety

Official Meetups

Unofficial Meetups

Try to meet in public space and group setting

Page 28: Diabetes Online Community - Diabetes Education Through ...€¦ · The DOC (Diabetes Online Community) is an online home for anyone touched by diabetes. Patients, caregivers, family

How to get involved

Page 29: Diabetes Online Community - Diabetes Education Through ...€¦ · The DOC (Diabetes Online Community) is an online home for anyone touched by diabetes. Patients, caregivers, family

Diving into the DOC: Hashtags

Some examples: #type1diabetes #t1dlookslikeme #livebeyond #diabadass

#dexcom #t1d #insulinpump

#t1diabetes #type1warrior

Use Them!

Page 30: Diabetes Online Community - Diabetes Education Through ...€¦ · The DOC (Diabetes Online Community) is an online home for anyone touched by diabetes. Patients, caregivers, family

Diving into the DOC: other ideas to reach outTag companies and non-profits Submit to the BT1 Wall

Page 31: Diabetes Online Community - Diabetes Education Through ...€¦ · The DOC (Diabetes Online Community) is an online home for anyone touched by diabetes. Patients, caregivers, family

Thankful for the DOC!

Page 32: Diabetes Online Community - Diabetes Education Through ...€¦ · The DOC (Diabetes Online Community) is an online home for anyone touched by diabetes. Patients, caregivers, family

Thank youQ&A time!