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Developing Programs to Sensitize Providers to the Unique HIV and Health Needs of Transgender People JoAnne G. Keatley, MSW Center of Excellence for Transgender Health: University of California, San Francisco, United States

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Page 1: Developing Programs to Sensitize Providers to the Unique HIV and Health Needs of Transgender People JoAnne G. Keatley, MSW Center of Excellence for Transgender

Developing Programs to Sensitize Providers to the Unique HIV and Health Needs of Transgender

People

JoAnne G. Keatley, MSWCenter of Excellence for Transgender Health:

University of California, San Francisco, United States

Page 2: Developing Programs to Sensitize Providers to the Unique HIV and Health Needs of Transgender People JoAnne G. Keatley, MSW Center of Excellence for Transgender

Our mission is to increase access to comprehensive, effective, and affirming healthcare services for trans and gender-variant

communities.

Page 3: Developing Programs to Sensitize Providers to the Unique HIV and Health Needs of Transgender People JoAnne G. Keatley, MSW Center of Excellence for Transgender

National Advisory BoardWe include community perspectives by actively engaging a national advisory body (NAB) of 12 trans identified leaders from throughout the country.

Page 4: Developing Programs to Sensitize Providers to the Unique HIV and Health Needs of Transgender People JoAnne G. Keatley, MSW Center of Excellence for Transgender

Primary Projects

1. CATCH

2. Transitions Project

3. Primary Care Protocols

4. International Project

5. Sheroes Intervention

Page 5: Developing Programs to Sensitize Providers to the Unique HIV and Health Needs of Transgender People JoAnne G. Keatley, MSW Center of Excellence for Transgender

Who We Are Globally

Travestís, Transvestites, Transsexuals,Transgender, Hijra, Ali, Arvani, Kothis, Metis,

Mak Nyahs, Mukhannis, Kathoey, Mahuwahine, Fa’afafine, Sistergirls, Waria, Muxhe,

Mujeres Differentes

Page 6: Developing Programs to Sensitize Providers to the Unique HIV and Health Needs of Transgender People JoAnne G. Keatley, MSW Center of Excellence for Transgender

Transsexual Population Estimates

Weitze C., & Osburg, S., 1996

Sweden Walinder, 1967 1 : 54,000 1 : 37,000 1 : 103,000 2.8 : 1

U.S. Pauly, 1968 1 : 100,000 1 : 400,000 4 : 1

U.K. Hoenig & McKenna, 1974 1 : 53,000 1 : 34,000 1 : 108,000 3.2 : 1

Australia Ross et al, 1981 1 : 42,000 1 : 24,000 1 : 150,000 6.1 : 1

Singapore Tsoi, 1988 1 : 2,900 1 : 9,000 1 : 27,000

Netherlands Gooren et al, 1992 1 : 11,900 1 : 30,400 2.3 : 1

Germany Osburg & Weitze, 1993 1 : 42,000 to1 : 48,000

1 : 36,000 to1 : 42,000

1 : 94,000 to1 : 104,000

2.3 : 1 to2.2 : 1

Country Study & YearOverall

PrevalenceMtF

PrevalenceFtM

PrevalenceMtF/FtM

Ratio

Page 7: Developing Programs to Sensitize Providers to the Unique HIV and Health Needs of Transgender People JoAnne G. Keatley, MSW Center of Excellence for Transgender

HIV Prevalence Estimates among Trans People in the US

• Transwomen (lab-confirmed)• 12% by self-report28%• African American

transwomen56%• Transmen0-3%

Herbst et al., 2008

Page 8: Developing Programs to Sensitize Providers to the Unique HIV and Health Needs of Transgender People JoAnne G. Keatley, MSW Center of Excellence for Transgender

Global Trans HIV Prevalence Estimates

• 21.5% to 78%South America

• 8% to 74%Europe

• 11%Middle East

• 2% to 56%South Asia

• 22%South East Asia

Page 9: Developing Programs to Sensitize Providers to the Unique HIV and Health Needs of Transgender People JoAnne G. Keatley, MSW Center of Excellence for Transgender

• Sex-segregated facilities

• Unprotected Sex

• Gender Affirmation

• Unprotected Sex

• Coping• Mental Health• Unprotected

Sex

• Housing & Job Discrimination

• Internalized• Self Esteem

Trans- phobia

Drug Use

Prison & Jail 37- 65%

Sex Work

Page 10: Developing Programs to Sensitize Providers to the Unique HIV and Health Needs of Transgender People JoAnne G. Keatley, MSW Center of Excellence for Transgender

Best Practices Course

• Created in order to address the urgent HIV prevention needs of trans people by building capacity of:

– Health care professionals– Social services professionals

Page 11: Developing Programs to Sensitize Providers to the Unique HIV and Health Needs of Transgender People JoAnne G. Keatley, MSW Center of Excellence for Transgender

How did the CoE come up with the eight best practices?

1. California Resource Inventory

2. California Service Gap Analysis

3. Data Analysis

Page 12: Developing Programs to Sensitize Providers to the Unique HIV and Health Needs of Transgender People JoAnne G. Keatley, MSW Center of Excellence for Transgender

Background (Cont’d)• Literature & Internet Search

• Identified 24 Trans HIV Prevention Programs in California

• Contacted all programs

• Distributed questionnaire

Page 13: Developing Programs to Sensitize Providers to the Unique HIV and Health Needs of Transgender People JoAnne G. Keatley, MSW Center of Excellence for Transgender

Best Practices Course

• Theoretical Framework:– Adult Learning Theory– Social Cognitive Theory– Empowerment Model– Social Action Model

Page 14: Developing Programs to Sensitize Providers to the Unique HIV and Health Needs of Transgender People JoAnne G. Keatley, MSW Center of Excellence for Transgender

Best Practices Course: Learning Objectives

Define the term ‘transgender’. Identify at least 4 different trans identities/communities.

Describe 3 different structural, community, interpersonal or

individual factors that impact HIV prevalence and health care

disparities among trans people.

Explore their personal feelings, beliefs, and attitudes about why HIV

prevention and improving health among trans people is important to

them.

Discuss at least 3 best practices to improve HIV prevention and

services for trans people.

State one action step that the participant will personally implement that directly improves the health and

wellness of trans people.

Page 15: Developing Programs to Sensitize Providers to the Unique HIV and Health Needs of Transgender People JoAnne G. Keatley, MSW Center of Excellence for Transgender

1. Ground your work in the Community 2. One size does not fit all

3. Use Multidisciplinary Approaches 4. Get the Facts

5. Look in All the Right Places

6. Increase Access to Health Care

7. Staff Development 8. Advocate

Best Practices for Transgender HIV Prevention

Page 16: Developing Programs to Sensitize Providers to the Unique HIV and Health Needs of Transgender People JoAnne G. Keatley, MSW Center of Excellence for Transgender

1. Ground Your Work in the Community

• Develop partnerships with trans people and organizations

Page 17: Developing Programs to Sensitize Providers to the Unique HIV and Health Needs of Transgender People JoAnne G. Keatley, MSW Center of Excellence for Transgender

2. Race & Ethnicity: One Size Does Not Fit All

• Like other groups, HIV risk in trans people is compounded by racial discrimination

Page 18: Developing Programs to Sensitize Providers to the Unique HIV and Health Needs of Transgender People JoAnne G. Keatley, MSW Center of Excellence for Transgender

3. Use Multidisciplinary Approaches

COMMUNITIES

ORGANIZATIONS

SCHOOLS

SOCIAL NETWORKS

FAMILIESINDIVIDUALS

Page 19: Developing Programs to Sensitize Providers to the Unique HIV and Health Needs of Transgender People JoAnne G. Keatley, MSW Center of Excellence for Transgender

4. Get the Facts! Assess, Evaluate & Enhance

Evaluate

Incorporate Findings

Plan Program Changes

Implement

Disseminate Findings

Page 20: Developing Programs to Sensitize Providers to the Unique HIV and Health Needs of Transgender People JoAnne G. Keatley, MSW Center of Excellence for Transgender

5. Look in All the Right Places• Trans-specific recruitment

and retention strategies

Page 21: Developing Programs to Sensitize Providers to the Unique HIV and Health Needs of Transgender People JoAnne G. Keatley, MSW Center of Excellence for Transgender

6. Increase Access to Health Care• Collaborate with local health care

providers who:– Have easily accessible or

multiple locations– Provide services in multiple

languages– Understand trans HIV and

health care issues– Provide hormone therapy as

part of primary care

Page 22: Developing Programs to Sensitize Providers to the Unique HIV and Health Needs of Transgender People JoAnne G. Keatley, MSW Center of Excellence for Transgender

7. Invest In Developing and Supporting Your Staff

• Prioritize staff development

– Build staff capacity

– Create opportunities for advancement

Page 23: Developing Programs to Sensitize Providers to the Unique HIV and Health Needs of Transgender People JoAnne G. Keatley, MSW Center of Excellence for Transgender

8. Advocate for Structural & Systemic Changes

• Advocate for policy changes alongside trans people. Examples Include:

Immigration

Health Insurance

HIV Prevention

Housing

Page 24: Developing Programs to Sensitize Providers to the Unique HIV and Health Needs of Transgender People JoAnne G. Keatley, MSW Center of Excellence for Transgender

Primary Care Protocol Project: Medical Advisory Board

Marvin E. Belzer, MD, FACP, FSAM

Jennifer Burnett, MD

Maddie Deutsch, MD

James Franicevich, NP

R. Nick Gorton, MD

Jennifer Hastings, MD

Dan Karasic, MD

Lori Kohler, MD

Jennifer Vanderleest MD, MSPH

Page 25: Developing Programs to Sensitize Providers to the Unique HIV and Health Needs of Transgender People JoAnne G. Keatley, MSW Center of Excellence for Transgender

Patient Intake

• What is your current gender or gender identity?– Male– Female– Transgender Male/Transman– Transgender Female/Transwoman– Genderqueer– Other: please specify___________– Decline to state

Page 26: Developing Programs to Sensitize Providers to the Unique HIV and Health Needs of Transgender People JoAnne G. Keatley, MSW Center of Excellence for Transgender

Patient Intake

• What sex were you assigned at birth?– Male– Female– Decline to state

Page 27: Developing Programs to Sensitize Providers to the Unique HIV and Health Needs of Transgender People JoAnne G. Keatley, MSW Center of Excellence for Transgender

Patient Intake• What pronouns do you prefer?– Fill-in-the-blank– He, she; hir, ze, they, etc.

Page 28: Developing Programs to Sensitize Providers to the Unique HIV and Health Needs of Transgender People JoAnne G. Keatley, MSW Center of Excellence for Transgender

Challenges Encountered• What challenges will/might/have you

encounter(ed)?– Interpersonal– Individual– Community– Structural

• How would/did you resolve those challenges?

Page 29: Developing Programs to Sensitize Providers to the Unique HIV and Health Needs of Transgender People JoAnne G. Keatley, MSW Center of Excellence for Transgender

ReferencesBelza M, Llacer A, Mora R, de la Fuente L, Castilla J, Noguer I, & Canellas S. (2000)

Social characteristics and risk behaviors for HIV in a group of transvestites and male transsexual engaging in street prostitution. Gaceta Sanitaria, 14(5), 330-7.

Galli M, Esposito R, Antinori S, Cernushi M, Gianelli F, Cargnel A, Quirno T, Innocenti M, & Marozzi F. (1991) HIV-1 Infection, tuberculosis and syphillis in male transsexual prostitutes in Milan, Italy. Journal of Acquired Immune Deficiency Syndromes, 4(10), 1006-7.

Gattari P and Spizzichino L. (1992) Behavioural Patterns and HIV Infection Among Drug Using Transvestites Practicising Prostitution In Rome. AIDS Care, 4(1), 83-87.Netherlands

Inciardi, J., Surratt, H., Telles, P., & Pok. B. (1999) Sex, Drugs, and the Culture of Travestismo in Rio de Janeiro. International Journal of Transgenderism, 3 (1+2) January-June 1999. Available online at: http://www.symposion.com/ijt/hiv_risk/inciardi.htm

Page 30: Developing Programs to Sensitize Providers to the Unique HIV and Health Needs of Transgender People JoAnne G. Keatley, MSW Center of Excellence for Transgender

ReferencesKhan A, Bokhari A, Nizamani N, Rehan N, & Khan A (2006) Differences in Sexual

Behaviors of Male Commercial Sex Workers (MSWs) and Transgenders/Transvestites (Hijras) In Pakistan. Poster discussion: AIDS 2006 - XVI International AIDS Conference: Abstract no. TUPDD07"

Kumta S, Lurie M, Gogate A, Jerajani H, Weitzen S, Kavi A, Anand V, Makadon H, & Mayer K. (2006) Sexual risk behavior and HIV prevalence among male-to-female transgendered people seeking voluntary counseling and testing services in Mumbai, India. Oral abstract session: AIDS 2006 - XVI International AIDS Conference: Abstract no. MOAD0303.

Modan B, Goldschmidt R, Rubenstein E, Vonsover A, Zinn M, Golan R, Chetrit A, & Gottlieb-Stematzky T. (1992) Prevalence of HIV Antibodcies in Transsexual and Female Prostitutes. American Journal of Public Health, 82(4), 590-2.

Page 31: Developing Programs to Sensitize Providers to the Unique HIV and Health Needs of Transgender People JoAnne G. Keatley, MSW Center of Excellence for Transgender

ReferencesPalwade P, Jerajani H, Ashok R, Shinde S, & Vivek A. (2004) Prevalence of HIV

infection and sexually transmitted diseases amongst MSM population in Mumbai, India. CD Only: The XV International AIDS Conference: Abstract no. C10822.

Pisani E, Girault P, Gultom M, Sukartini N, Kumalawati J, Jazan S & Donegan, E. (2004) HIV, syphilis infection, and sexual practices among transgenders, male sex workers, and other men who have sex with men in Jakarta, Indonesia. Sexually Transmitted Infections 80(6): 536-40.

Ponnusamy, A. (2006) Behavioral research / interventions. AIDS 2006 - XVI International AIDS Conference: Abstract no. CDC0968

Tumer, A., Kilickaya, B., & Akturkoglu, E. (2010) HIV/AIDS research and testing among sex workers in Turkey. AIDS 2010 – XVIII International AIDS Conference: retrieved from: http://pag.aids2010.org/Abstracts.aspx?AID=8319

Page 32: Developing Programs to Sensitize Providers to the Unique HIV and Health Needs of Transgender People JoAnne G. Keatley, MSW Center of Excellence for Transgender

ReferencesVan Veen M, Hofhuis A, van der Helm T, Götz H, Prins M, & van de Laar M. (2006)

Substantial risk behaviour among transgender sex workers in the Netherlands. AIDS 2006 - XVI International AIDS Conference: Abstract no. MOPE0478.

Weitze C. & Osburg, S. (1996) Transsexualism in Germany: Empirical Data on Epidemiology and Application of the German Transsexuals’ Act During Its First Ten Years. Archives of Sexual Behavior, 25: 419.

Wimonsate W., Naorat S., Varangrat, A., Phanuphak, P., Kanggarnrua, K., McNicholl, J., Tappero, J., van Griensvn, F., Siraprapasiri, T., and the Thailand MSM Study Group (2005). Risk behavior, hormone use, surgical history and HIV infection among transgendered persons (TG) in Thailand, 2005. AIDS 2006 - XVI International AIDS Conference: Abstract no. MOPE0349

Page 33: Developing Programs to Sensitize Providers to the Unique HIV and Health Needs of Transgender People JoAnne G. Keatley, MSW Center of Excellence for Transgender

JoAnne Keatley, [email protected]

www.transhealth.ucsf.eduwww.facebook.com/

transhealth