developing a one page profile for covid-19 health care

Developing One Page Profilesfor

COVID-19 Health Care SettingsMichael Smull

The Learning Community for Person Centered Practices

TLCPCP.com & SDAUS.com 1

What is a One Page Profile?


Presenter

Presentation Notes

The One Page Profile was developed by Helen Sanderson. She developed a One Page Profile to provide her daughter’s teacher a brief introduction to her daughter so she would know what was important to her and how to best support her in the educational setting. Since then, thousands of One Page Profiles have been developed for a variety of reasons. The specific purpose of this One Page Profile version is address the needs of people afflicted by COVID-19 and are in need of medical care. One Page Profiles always have 3 components: A positive introduction of the person What matters to that person, or, what is Important TO that person, And, how to best support the person, given the purpose of the One Page Profile.

Passport

COVID – 19 Passport: Elaine Smith(See reverse for health care person-centered profile)

Note: Information on this form may not be complete

PERSONAL INFORMATIONFirst Name (Nickname) Last Name DOB or AgeElaine None Smith 66Street Address City, State, Zip123 Rose Lane Austin, Texas 78745Emergency Contact Emergency Contact Phone/EmailJ.J. Smith (Husband) XXX-XXX-XXXX [email protected]/Legal Representative Parent/Legal Representative Phone/EmailNone NoneInsurance Information Pharmacy Information (Most Commonly Used)Medicaid CVS at 1935 IH-35, Austin, TexasPrimary Care Provider/Contact Information Specialty Care/Contact InformationDr. Flower at XXX-XXX-XXXX Dr. Tu;ip at XXX-XXX-XXXX

Passport



CURRENT SYMPTOMS/RISK FACTORSCurrent COVID 19

Symptoms (Check all that apply)

Date Started Risk Factors (Check all that apply) Risk Factors (Check all that apply)

Temp. over 100.4 ° F 12/6/20 � Long-term care resident � Cancer� Dry Cough � Transplant Age 65 or overMalaise/Fatigue 12/6/20 � COPD/Emphysema/Asthma � Pregnant Shortness of breath 12/6/20 � Current/Former Smoker � Severe obesity� Nasal congestion � Liver Disease � HIV/AIDS� Diarrhea � Intellectual disability � Kidney disease Loss of smell/taste 12/6/20 � Neurological disorder � Homeless� Sore throat � Heart disease � Chronic bronchitis Low blood oxygen 12/6/20 � Corticosteroid use � Other Headache 12/6/20 Mental illness/substance use � Other

Passport



HEALTH CONDITION LIST MEDICATION LIST ALLERGIESHigh Blood PressureVertigoAnxiety

Med#1Med#2Med#3

Penicillin

PERSON HAS DO NOT RESUSOTATE (DNR) ORDER – Location of document and/or contact information if known: Husband keeps it in safety deposit box at bank

PERSON HAS ADVANCE DIRECTIVE – Location of document and/or contact information if known: Husband keeps it in safety deposit box at bank

� PERSON HAS PSYCHIATRIC ADVANCE DIRECTIVE or other Advance Crisis Planning Tool and/or has designated a Health Care Proxy decision maker – Location of document and/or contact information if known:

Passport

One Page ProfileFront Back

Person Centered Description

My mom is a quiet woman. She tries to keep people from noticing

her. She is polite and is very intelligent, resourceful, frugal, and creative. She writes poems and has

had several published.

Mom loves her sons and they are very important to her. She lost two other sons in tragic accidents. Mom

does not express love with a hug but through a phone call and

immediate hang-up when answered. It is expressed with her tolerance when her sons try to take

care of her – she wants to be independent and left alone.

Mom is a simple person that carries her “Nuclear Football” (important papers) where ever she goes. She

drinks coffee from an old percolator and politely declines a good Keurig

brewed cup.

9

Mom often gets scared at the voices she hears, the people that try to get in her business, the cameras planted in the holes around the house, and the

memories of abuse.

Mom is good at managing her funds and making ends meet. She often

gives the little she has to help someone else. This often frustrated me because she was often worse off than the person she helped. But this taught me the importance of other people and that self-sacrifice is a

noble characteristic.

Mom wanted to die on her own. She did not want me to sit with her. She wanted me to help her get dressed

and leave the hospital room. I think she had lost so much that in this

moment of silence…all alone…she could leave assured that my pain

would not be as great as hers.

I would like to introduce you to my mom

Passport

COVID – 19 Passport: Betty Consford(See reverse for health care person-centered profile)


PERSONAL INFORMATIONFirst Name (Nickname) Last Name DOB or AgeBetty Mom Consford 89Street Address City, State, Zip321 John ST., Apt 107 Austin, Texas 78745Emergency Contact Emergency Contact Phone/EmailRandy Consford (Son) XXX-XXX-XXXX Parent/Legal Representative Parent/Legal Representative Phone/EmailNone NoneInsurance Information Pharmacy Information (Most Commonly Used)Medicaid CVS at 1935 IH-35, Austin, TexasPrimary Care Provider/Contact Information Specialty Care/Contact InformationDr. Roberts at XXX-XXX-XXXX N/A

Passport



CURRENT SYMPTOMS/RISK FACTORSCurrent COVID 19

Symptoms (Check all that apply)

Date Started Risk Factors (Check all that apply) Risk Factors (Check all that apply)

Temp. over 100.4 ° F 12/6/20 � Long-term care resident � Cancer� Dry Cough � Transplant Age 65 or overMalaise/Fatigue 12/6/20 COPD/Emphysema/Asthma � Pregnant Shortness of breath 12/6/20 Current/Former Smoker � Severe obesity� Nasal congestion � Liver Disease � HIV/AIDS� Diarrhea � Intellectual disability � Kidney disease� Loss of smell/taste � Neurological disorder � Homeless� Sore throat � Heart disease Chronic bronchitis Low blood oxygen 12/6/20 � Corticosteroid use � Other� Headache Mental illness/substance use � Other

Passport



HEALTH CONDITION LIST MEDICATION LIST ALLERGIESHigh Blood PressureSchizophrenia (“Called Back Problems”)

Med#1Med#2Med#3

No Known Allergies

PERSON HAS DO NOT RESUSOTATE (DNR) ORDER – Location of document and/or contact information if known: Betty has it in Nuclear Football (Son has copy)

PERSON HAS ADVANCE DIRECTIVE – Location of document and/or contact information if known: Betty has it in Nuclear Football (Son has copy)

� PERSON HAS PSYCHIATRIC ADVANCE DIRECTIVE or other Advance Crisis Planning Tool and/or has designated a Health Care Proxy decision maker – Location of document and/or contact information if known:

Passport

COVID – 19 Passport: Randy Consford(See reverse for health care person-centered profile)


PERSONAL INFORMATIONFirst Name (Nickname) Last Name DOB or AgeRandall Randy Consford 61Street Address City, State, Zip123 Iwo Jima Ave. New Braunfels, TXEmergency Contact Emergency Contact Phone/EmailCathy (Wife) XXX-XXX-XXXXParent/Legal Representative Parent/Legal Representative Phone/EmailNone NoneInsurance Information Pharmacy Information (Most Commonly Used)Medicaid CVS at 1935 IH-35, New BraunfelsPrimary Care Provider/Contact Information Specialty Care/Contact InformationDr. Grey at XXX-XXX-XXXX Dr. Izzie at XXX-XXX-XXXX (Endocrinologist)

Passport



CURRENT SYMPTOMS/RISK FACTORSCurrent COVID 19 Symptoms

(Check all that apply)Date Started Risk Factors (Check all that apply) Risk Factors (Check all that

apply) Temp. over 100.4 ° F 12/6/20 � Long-term care resident � Cancer� Dry Cough � Transplant � Age 65 or overMalaise/Fatigue 12/6/20 � COPD/Emphysema/Asthma � Pregnant� Shortness of breath � Current/Former Smoker � Severe obesity� Nasal congestion � Liver Disease � HIV/AIDS� Diarrhea � Intellectual disability � Kidney disease Loss of smell/taste 12/6/20 � Neurological disorder � Homeless� Sore throat � Heart disease � Chronic bronchitis� Low blood oxygen � Corticosteroid use Diabetes Type II Headache 12/6/20 � Mental illness/substance use � Other

Passport



HEALTH CONDITION LIST MEDICATION LIST ALLERGIESDiabetes Type II Med#1

Med#2Med#3

Swine Flu

� PERSON HAS DO NOT RESUSOTATE (DNR) ORDER – Location of document and/or contact information if known:� PERSON HAS ADVANCE DIRECTIVE – Location of document and/or contact information if known:� PERSON HAS PSYCHIATRIC ADVANCE DIRECTIVE or other Advance Crisis Planning Tool and/or has designated a Health Care Proxy decision maker – Location of document and/or contact information if known:

How Can I Make a One Page Profile?


Presenter

Presentation Notes

The One Page Profile was developed by Helen Sanderson. She developed a One Page Profile to provide her daughter’s teacher a brief introduction to her daughter so she would know what was important to her and how to best support her in the educational setting. Since then, thousands of One Page Profiles have been developed for a variety of reasons. The specific purpose of this One Page Profile version is address the needs of people afflicted by COVID-19 and are in need of medical care. One Page Profiles always have 3 components: A positive introduction of the person What matters to that person, or, what is Important TO that person, And, how to best support the person, given the purpose of the One Page Profile.

One

-Pag

e Bl

ank

Shee

t


What is Important to

What People Like and Admire about

How to best support

For a good match: characteristics needed to be present or absent

InsertPhoto Here

Before DevelopingAsk These Questions…

• Where is the One Page Profile going to be used? What is the context?• What do you want people to learn from reading the One Page Profile?• What do you want people to do with the learning?

Remember

• If no one reads it . . .If no one uses it. . .

It was a wasted effort

20TLCPCP.com & SDAUS.com

Presenter

Presentation Notes

If you are developing a One Page Profile for COVID-19, or for any other reason, you need to ask yourself three questions: Where is the One Page Profile going to be used and in what context? For this purpose, it is to assist the health care professionals in knowing the person receiving care and how to support the person when diagnosed with COVID-19. But, we also want to ask ourselves: What do we want the health care professional to learn from reading the One Page Profile, and, What do you want the professionals to do with the learning? It is also important to know that even if we write something brilliant, but no one reads or uses it, we have wasted our time.

The Context is a COVID-19 Health Care Setting

What do we know about the setting(s)?• Staff are very busy, may be

overwhelmed• They want to provide the best care

in the time they have• They are very interested helping

patients feel less anxious, more comfortable


Presenter

Presentation Notes

What we currently know about COVID-19 Health Care Settings is that the staff are very busy and may feel very overwhelmed. But, we also know they want to provide the best care possible in what little time they have, and, want patients to feel at ease. So, what will work in that setting?....

What Will Work in the COVID-19 Health Care Setting?

• Basic Health Information• A focused One Page Profile

• Some examples…


Presenter

Presentation Notes

A very focused One Page Profile, that also provides basic health care information. I am going to show you some examples of how One Page Profiles would work in the COVID-19 Health Care Setting, but I first want to point out that personal information and pictures have been changed, as needed, to meet HIPAA requirements.

Getting Started

• Review the questions• Who knows the answers to all of the questions? Whose input do you

need?• Can the person whose profile it is answer all the questions? Do you need

others to assist?

• If others, who? Family members? Close friends? Care givers?• Who can tell you what others like and admire?


Presenter

Presentation Notes

In looking at these examples, we hope one or more resonates and helps with the people that you are supporting. As you start to ask the questions in the following slides, take notes on the answers, but don’t worry about filling out the template yet. Use the questions to guide your work, but first you need to consider who can best answer the questions. Who is the best person (or persons) to ask. Who knows the answers? We always start with the person. Can they answer all of the questions? If others, who? Family? Close friends? Care Givers? Who can tell you what others like, admire, or appreciate about the person?

What Do Others Like, Admire, orAppreciate about Me?

• What are you good at, proud of?• What do people praise you for?• What do people say your good qualities are?


Presenter

Presentation Notes

Ask and take notes as people answer. Ask: What do people say about you (or the person) when they are complimenting you? What are you most proud of? What have others told you about what theiy were proud of about you? What would people say if I asked them, “What are your good qualities?”

What is important to you?

• Who do you need to stay in contact with and what is the best way to do that - their phone numbers or email

• What helps you feel better when you are sick or upset• What helps you wind down, relax, or sleep• List any spiritual practices that help you feel grounded• What helps you feel valued and respected


Presenter

Presentation Notes

In the COVID-19 Health Care Setting, people will be isolated. We all know how impactful being completely alone, for several days, can be on a person. So, when finding out what is important to the person, you first want to ask who you do you want to be in contact with? And, how often? Who are the people that need to know how you are doing? Would they want to be contacted every day? What is their contact information? In the hospital, the person we want the person to feel safe, so we want to ask, “What helps you feel better when you are sick? What can we do to help you when you are upset? What allows you to fall asleep and sleep well? Do you have any spiritual practices that we should be aware of? Such as with Joanne, having her rosary and prayer book within reach is important to her. And finally, What what helps you feel valued and respected? Do you want detailed information about your health or just a quick summary? How involved in your healthcare decisions makes you feel respected? What about your need for privacy?

What Does Good Support Look Like?

• Describe how staff can help you feel less anxious or uncomfortable, or calm or safe

• Describe the best way for staff to communicate with you• Outline how staff can help prepare you for procedures, tests, and

changes in care• Explain how you might express pain• Include how you prefer to take medications• Include any physical or environmental accommodations you might

need• Describe any tips that might help staff help you


Presenter

Presentation Notes

You also want to include what good support looks like: What do you want the staff to do to make you feel less anxious and comfortable? Are there things that make you feel more calm or safe? What is the best way for the nurses and other staff to communicate with you? Do you need details or just a brief summary of what is going on? Do you want step-by-step details of how testing will be performed, or, do you just want to get it done and over? You may ask the person how they prefer to take medication. Do they want it with food? Pill or liquid form? In the healthcare profession, people are often asked to provide a number on the 1-10 scale for pain. Ask the person if this works for them or if there is some other way we would know they are in pain and how acute the pain is. Is there anything you might need to make you more comfortable; such as, an extra pillow? The call button on your bed or tray table? Or with Josie, she would like to have something wrapped around her pillow to avoid sweating. What other tips might you share to provide you with the best care?

Review your notesWrite a first draft

27

Look for the 4, 5, or 6 most important things for staff to know for each section

1Use simple, plain language

2Keep the statements brief –complete thoughts, not necessarily complete sentences

3When it is done, read it out loud -it should take no more than a minute

4

Presenter

Presentation Notes

Look for the 4, 5, or 6 top things for each section. Some people will want to list more than this and that is ok. But try to keep the information as short as possible and do not feel you must use complete sentences. Use plain, simple language that everyone can understand. It is important to read the final One Page Profile out loud, if it takes more than one minute to read, it will not get read. Healthcare professionals will not have time to read the Profile. If it does take longer, go back to the person and explain this point and ask what are the 4, 5, or 6 top things that are most important to note in each section.

Share, edit, add a photo

28

Share

Share the 1st draft with the person and those they choose

Get

Get feedback and edit based on the feedback

Add

Add missing information but don’t make it too long

Add Photo

Add a photo (if possible)

Include

Include the health passport

Print

Print it so that it is 1 page with the one page profile on the front and the heath passport on the back

Presenter

Presentation Notes

Share the first draft with the person (and representative where appropriate), If the person says “not quite” edit it until you get it right Review the “final” copy with the person. If it is too long, remind the person of the intent and negotiate to get the critical information but no more than that. It will be more powerful if there is a photo, so use a photo if at all possible. Remember that hospital staff will want the basic healthcare information. It is likely the person may get transferred to other departments, or even hospitals, so it is important to be sure the One Page Profile is available to the various healthcare professionals that will need the information. If providing a printed copy of the Profile, be sure the One Page Profile is on the front page and the Basic Healthcare Information is on the back.

29

TIPS• Print it so that it is 1 page with the one-page profile on the front and the heath

passport on the back.• Print multiple copies and put them where they will be taken to the hospital –

part of a “go bag”• Consider laminating or putting in plastic sleeves• In the hospital –

• Post it where it will be seen• Make sure it moves with the person (people may be moved multiple times)• Improve the one-page description

• Ask the person who helps the best and why• Ask those providing care to note any new learning

• If there are phone updates on status – ask• Leave space to write on the template

Passport

One Page ProfileFront Back

For more information contact:Jeff [email protected]


Presenter

Presentation Notes

If you would like more information regarding COVID-19 One Page Profiles or other One Page Profile uses, here is my contact information.

developing a one page profile for covid-19 health care

Documents