designing for survival. developing healthcare apps for cancer survivors

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DESIGNING FOR SURVIVAL developing healthcare apps for cancer survivors Adrian Iacomi, UX Lead @adrianiacomi

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DESIGNING FOR SURVIVALdeveloping healthcare apps for cancer survivors

Adrian Iacomi, UX Lead @adrianiacomi

photo by flickr.com/emagic

This is NOT a persona, but one of my best friend’s story

23 years oldred hair, quite tallstudent

linda-hop dancer, passionate about drawing, surfing, pasta, jazz and love cats

ELISE

illustration by flickr.com/giovana_milanezi

ELISE - THE REAL STORY

photos by stf-o, pustovit, benswing, denise_rowlands, scubasteveo, agecombahia, lfamily, worldbank, hawaii, brothers-brick.com, lilivc (on flickr.com)

Her good life as a student

surfing

friends

dancing

love

Treatment and surviving

Cancerdiscovery

tired

investigations

more investigations

tumor

surgery

chemotherapy

getting support surviving

same cancer formsame treatment

same doctor

just one survivor, out of five patients

no prior oncology knowledgeno special treatmentno access to specialistsmedical studentfather - doctor

photo by flickr.com/pustovit

THE NUMBERS1. 2012: 14.1 mil new cases, 8.2 mil deaths

2. developing world: 1/3 people will develop cancer during their lifetime

3. 1/9 people have a chance of a recurring cancer

4. 5 years time frame for surviving

5. 100+ forms of cancer, anybody can be affected

6. 1/3 of cancer forms can be detected early

THERE IS NO SILVER BULLET !

JUST THE UX PROCESSimage by flickr.com/dangergraphics

UX DESIGN PROCESS1. domain knowledge

2. identify stakeholders - stakeholders meetings

3. contextual interviews

4. create personas

5. user journey map

6. create mockups for internal usage

7. iterate: advanced working prototype [limited users] - usability testing - doctor’s feedback - design

8. paperwork and politics in parallel - to be able to test the app with patients and doctors

9. mass-market MVP test

photo by www.futureatlas.com

DOMAIN KNOWLEDGE

just understanding chemotherapy it takes a lot

of time: patient, nurse and doctor’s perspective

photo by flickr.com/linusekenstam

IT’S ABOUT THE TEAM WORK

photo by flickr.com/brianneudorff

Doctors, nurses, other medical staff,Patients, Friends, FamilySupport groups, NGO

John, Doctor

STAKEHOLDERS MEETINGS

Ana, NurseElise, patient Mary, Elise’ mother Steve, MD

Carla, Hospital ManagerJake, Cancer Survivor

Kristy, NGO member

July, support group member

photo by flickr.com/clement127

Understand all your stakeholders

LACK OF INFORMATION & COMMUNICATION ISSUES

photo by flickr.com/choffee

Many times the patient feels left in the dark

MAJOR ISSUES1. no direct access to patients

2. doctors are hard to get

3. no user centred approach in design

4. the patient is not an active part

5. inefficient communication

6. high stress for doctors and patients

7. not enough timephoto by flickr.com/denise_rowlands

CONTEXTUAL INTERVIEWS

doctor

patient

do you have a good work/life balance?what is the missing communication link?what would you improve in the system?what is the patient not telling you?

what is her/his life?what is missing from the treatment?what are the greatest challenges?is there any family support?

photo by flickr.com/kbrookes

Understand both the doctor and the patient

PERSONAS

Steve, cancer survivor32 construction manager

iPhone, PM toolsi want an efficient tool

Elise, patient23, medicine student

HTC M9, Spotifybeing connected, music lover

Mike, family member57, math teacher

Samsung Mini, basic usageI loved my old Nokia

Paul, doctor43, oncology expert

Apple Tablet, medical toolstime is of the essence

photo by flickr.com/dangoodwin

USER JOURNEY

photo by flickr.com/clement127

Where is getting lost vital information?

LOW FI PROTOTYPES - INTERNAL USAGE

ADVANCED PROTOTYPES

SKETCHES

USER TESTS

The following slides are not available due to confidentiality reasons.

DESIGN CHALLENGES• time is of the essence - iterate fast, many times

• doctor’s opposition to change - must provide an easy to integrate solution

• doctors and patients want to test a real product - advanced prototype

• design process - lack of domain knowledge - work with an expert/doctor

• high level of stress in the system - patience and empathy

• access to patients - collaborating with a medical centre

Adrian Iacomi @adrianiacomi

Thank you :)