democracy and design in swedish personal assistance - john magnus roos

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Page 1: Democracy and Design in Swedish Personal Assistance - John Magnus Roos
Page 2: Democracy and Design in Swedish Personal Assistance - John Magnus Roos

Democracy and Design in Swedish Personal Assistance

ServDes. 2016

Service design & Innovation

Conference

May 26, 2016

John Magnus Roos Researcher, Design Psychologist

[email protected]

Phone (+46 73 048 22 27)

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User-Centered Design in Swedish Personal Assistance

ServDes. 2016

User-Centered = Democracy

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Personal assistance = The ultimate service

• Designing yourself

• Live as other’s do

• Full human experience

ServDes. 2016

Background

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User Pyramid

Basic needs

ServDes. 2016

Daily Life

Human Life / Full Human Experience

• Personal hygiene• Meals• Dressing• Communication

• Working life • Family life • Household activities

• Well-being• Love• Leisure activities• Social life

Background

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BackgroundServDes. 2016

UserPersonal assistants

Service provider

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BackgroundServDes. 2016

• Public (municipality)• Private firm• User-cooperatives

UserPersonal assistants

Service provider

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Explore what users desire of

their service providers and

how the assistance could be

improved.

ServDes. 2016

Purpose

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Research Design: Qualitative interviews with 12 adult users.

Participants Gender: 8 female, 4 male

Age: 21-64 years, (M=47)

Service provider: 3 public, 4 user-cooperatives, 5 private firms

Time per interview: 45-80 minutes.

ServDes. 2016

Method

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Interview questions:

• In your opinion, what does personal assistance imply?

• What is quality related to service provider of personal

assistance?

• What do you want of a service provider of personal assistance?

• What is characteristic of a good service provider?

• What is characteristic of a bad service provider?

• Do you find your service provider lacking in any way?

ServDes. 2016

Method

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ResultServDes. 2016

UserPersonal assistants

Service provider

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ResultServDes. 2016

1. User-minded

UserPersonal assistants

Service provider

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User-minded

• Caring about the user

• Empowering the user

• Supporting the user when the user asks for a favour

• Providing assistants in all situations

• Arranging social activities for users

• Reducing the workload related to personal assistants

• Covering extra costs related to personal assistants

• Arranging training for users/legal guardians

• Providing a limited number of assistants to the specific user

ServDes. 2016

Result

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User-minded - Caring about the user

In the past, a representative of my service provider always passed by with a

present for Christmas, which in itself is very nice. But last Christmas, the

service provider sent the present and seasonal greetings through a personal

assistant. I would like the contact person to wish me a Merry Christmas her- or

himself, at least on the telephone. It is neither about the present nor the

seasonal greetings. It is about being treated as a valuable person, that you are

somebody. I feel sorry for my service provider, that they do not understand

better.”

ServDes. 2016

Result

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User-minded - Empowering the user

The representative of the service provider forced me to sign a paper, stating

that the assistants can stop me from eating food which is not mixed and

ground, because I am not able to chew. But instead of explaining in a normal

way, the person just put the paper on the desk and tapped the dotted line

twice. “Sign it, you have to sign it”, the person said, instead of explaining what

it was about.”

ServDes. 2016

Result

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ResultServDes. 2016

1. User-minded

UserPersonal assistants

Service provider

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ResultServDes. 2016

1. User-minded 2. Assistant-minded

UserPersonal assistants

Service provider

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Assistant-minded

• Arranging training for personal assistants

• Providing good administrative conditions of

employment

• Arranging support for personal assistants.

• Providing instrumental rules and instructions for personal assistants

ServDes. 2016

Result

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Assistant-minded - Good conditions

The service provider must have good working conditions for their assistants.

The provider should be afraid of loosing them. Everything that contributes to

the dissatisfaction of the assistants will also influence me. If the assistants are

not pleased, they can quit working here. They must be pleased so they like to

come to my home and work.”

ServDes. 2016

Result

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Assistant-minded - Arranging support

During the autumn I have felt very low. I have quarreled with the medical

service, I have quit all social activities, I even thought that I did not want to live

anymore. The situation must have been frightful for my assistants. It must have

been terrible for the assistants to be in such an environment. During this critical

period, the service provider should have given support to my assistants,

because I was not strong enough to give them sufficient support.”

ServDes. 2016

Result

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Assistant-minded - Providing rules and instructions

I would like the service provider to have more rules for personal assistants. I

have heard that they [personal assistants] sometimes carry paving stones in

the garden. The service provider must clarify what you can expect from your

personal assistants.”

ServDes. 2016

Result

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ResultServDes. 2016

1. User-minded 2. Assistant-minded

UserPersonal assistants

Service provider

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ResultServDes. 2016

1. User-minded 2. Assistant-minded

3. MediatingUserPersonal assistants

Service provider

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Mediating

• Arranging meetings

• Handling conflicts

ServDes. 2016

Result

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Mediating – Handling conflicts

I have neither the strength nor the desire to handle a conflict between me and

my assistants. It shouldn’t be up to me, it is the service provider who should

look after their staff.”

ServDes. 2016

Result

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ResultServDes. 2016

1. User-minded 2. Assistant-minded

3. MediatingUserPersonal assistants

Service provider

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ResultServDes. 2016

1. User-minded 2. Assistant-minded

3. Mediating

4. Ideology

UserPersonal assistants

Service provider

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Ideology

• Following the legal framework of personal assistance

• Having the user´s well-being as first priority

• Personalized support and service

ServDes. 2016

Result

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Ideology

The service provider should not practice assistance by coincidence. They

should know what they are doing. They must have an ideology which is deeply

rooted in the whole organization.”

ServDes. 2016

Result

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Ideology – Following the legal framework

The most important thing is that a service provider has a clear understanding of

what personal assistance is and how important it is for all users. It is a reform,

which could be gone tomorrow. You have to treat it with that in mind. You can’t

just take the assistance money and go to the Bahamas, jeopardizing the entire

reform. You just don’t do that. What is difficult for people [people without

disability] to understand is that a careless act on the part of the service provider

representative will only lead to that particular person being fined or sanction in

some other way, whereas the life of all the users will be ruined. The difference

is enormous”

ServDes. 2016

Result

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ResultServDes. 2016

1. User-minded 2. Assistant-minded

3. Mediating

4. Ideology

UserPersonal assistants

Service provider

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ResultServDes. 2016

1. User-minded 2. Assistant-minded

3.

Mediating

Society

4. Ideology

UserPersonal assistants

Service provider

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ResultServDes. 2016

1. User-minded 2. Assistant-minded

3.

Mediating

5. Politically

Society

4. Ideology

UserPersonal assistants

Service provider

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Politically

• Informing the user what is happening

• Defend the institution of personal assistance at

a political level

ServDes. 2016

Result

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Politically – Defending personal assistance

I would like the service provider to work close to the government and

the parliament and try to prevent reductions related to personal

assistance. The service provider should fight for the rights of people

with disabilities. It is hard for the user and the user’s family to fight for

the user’s right.”

ServDes. 2016

Result

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The design challenge

ServDes. 2016

Result

• Create ”Open Empathy Organizations”

Empathy is the ability to step outside yourself and see the world as other people do” Dev Patnaik

• Clarify what your assistance is about. Use

explicit documents. For instance define your ideology, have clear rules and instructions for personal assistants, be as transparent as

possible.

• React fast.

• Empowering the user.

• Arrange social activities.

• Planning, Scheduling

• Fight for the right of the users

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The design challenge

ServDes. 2016

Result

Concrete things: Training of staff, personal assistants and users.

Recruitment process Contact persons

Nische markets? (should a service provider focus on satisfying specific needs)

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M A G N U S . R O O S @ V E R Y D A Y . C O M

S T O C K H O L M / N E W Y O R K / L O N D O N / S H A N G H A I / D U B A I / V E R Y D A Y . C O M