dementia strategy conference dublin · a national strategy: implementation of the french alzheimer...
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A national strategy: implementation of the French Alzheimer
plan 2008-2012
18 January 2012
Dementia Strategy Conference Dublin
Florence Lustman, inspecteur général des finances
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The main challenges of the plan
A commission chaired by Pr Ménard
10 members, 8 working groups, 100 people, 3 months
Report to the President on 8 november 2007
A financial effort on 5 years
200 M€ for research
200 M€ for medical care
1,2 billion euros for medico-social support
A new governance based on transparency
Direct reporting to the President of the French Republic every 6
months
Coordination and assessment
Steering committee every month
Supervisory committee every 4 month
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Website : www.plan-alzheimer.gouv.fr
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Let healthy ageing have a future
Plan Alzheimer 2008-2012
Family
caregiver
Respect guarantee the dignity
of the person with
Alzheimer ’s and
ethics of this key
social issue
Health
Person with
Alzheimer’s
3 axis
3 objectives
3 targets
Cure know the disease and
find a medical treatment
Take care look after and increase
quality of life for patients and
carers
Disease
Solutions explorer and organizer
Research Solidarity
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Research
Foundation Plan Alzheimer
125 research projects – 81 M€ GWAS : new genes
IGAP
138 new researchers
Structuration
National epidemiologic data bank : 342 centers, 222 000 patients
Clinic epidemiology training for 614 doctors
3 cohorts (3C, MEMENTO, young patients)
Methodology support group
Imaging center
AAICAD in PARIS – july 2011
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Cohorts : patients, young patients, general
Methodology
support group
Imaging
standardisation center
Clinical
research
Therapeutical
research
Epidemiological
research
Basic
research
Human & social
research
Genomics
Clinical
trials
Biomarkers
Image bank Protocols
Biological
bank
Genetical
bank
National
database
Research teams
Control
groups
Training
Animal
models
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www.neurodegenerationresearch.eu
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http://www.espace-ethique-alzheimer.org
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RESEARCHING TO CURE, CARE AND INCREASE QUALITY OF LIFE
Personal pathway for a person with dementia Alzheimer’s plan : 2012
General
practioner
Specialist Neurologists
Memory centres
Centre for young
Alzheimer ’s patients
MAIA
Home
Out of home : specialized structures
Home rehabilitation
Respite and support
platforms
Hospital
Nursing home
Person with
dementia
Simplifying
Assessing
Orientating
TAKING CARE DIAGNOSING
Breaking the diagnosis
Supporting
Family
caregiver
Training for professional and family
caregivers
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10
Liberal neurologists
15
10
5
Memory centers
CM
CMRR 0 500 km 250
Source : DHOS 2009 & CNAM 2009
Paris and petite couronne
Places for diagnosis in France
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National reference centre
for young Alzheimer ’s
patients
Local correspondants
National center for young patients with AD
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Hospital
Rehab
Hospitals
Nurses
General
practitioner
Day care center
Social services Informati
on point
Home-
care
services
Neurologists
Alzheimer’s
disease center
council
services
Volunteers
Alzheimer’s
association
Home
workers
Outpatient
Physical
Therapy
SLP
Continuing
care
MAIA
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Day care centers
Nombre d'AJ
52
26
13
AJ répondant aux obligations réglementaires
AJ ne répondant pas aux obligations réglementaires
Sources : Finess, Sélia, Enquête Alzheimer
Acceuils de jour installés au 31/12/2010-
Part des AJ répondant aux obligations réglementaires
Sourc
e c
art
ogra
phiq
ue :
Art
icque
Structures
Places
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Alzheimer rehabilitation teams
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Special care units in nursing homes
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Measuring patients’ quality of life CLINICAL PRACTICE INDICATORS OF ALERT AND MASTERING OF
THE IATROGENICITY OF NEUROLEPTICS IN ALZHEIMER PATIENTS
Evolution de Alerte NLP chez PA & Malz de 2007 à 2010
2,80%3,0%2,9% 2,7%
15,50%
16,00%16,90%
16,10%
0%
5%
10%
15%
20%
25%
30%
2007 2008 2009 2010
Prescription chronique PA âgé de 65 ans et plus
Prescription chronique PALZ âgé de 65 ans et plus
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Conclusion