data science @ nih · 2017-11-20 · october 12, 2017 @amiainformatics @amiainformatics official...

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Patti Brennan, RN, PhD Director, NLM Twitter: NLMDirector Twitter: #AMIA2017 Data Science @ NIH

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Page 1: Data Science @ NIH · 2017-11-20 · October 12, 2017 @AMIAInformatics @AMIAinformatics Official Group of AMIA @AMIAInformatics #WhyInforma tics • AMIA is the professional home

Patti Brennan, RN, PhD

Director, NLMTwitter: NLMDirectorTwitter: #AMIA2017

Data Science @ NIH

Page 2: Data Science @ NIH · 2017-11-20 · October 12, 2017 @AMIAInformatics @AMIAinformatics Official Group of AMIA @AMIAInformatics #WhyInforma tics • AMIA is the professional home

Disclosure

• I have no relevant relationships with commercial interests to disclose.

Page 3: Data Science @ NIH · 2017-11-20 · October 12, 2017 @AMIAInformatics @AMIAinformatics Official Group of AMIA @AMIAInformatics #WhyInforma tics • AMIA is the professional home
Page 4: Data Science @ NIH · 2017-11-20 · October 12, 2017 @AMIAInformatics @AMIAinformatics Official Group of AMIA @AMIAInformatics #WhyInforma tics • AMIA is the professional home

Trans-NIH Solutions

NEI

NCI

NHLBI

NLM

NINDS

NIMH

NIAMS

NINR

NCCIH

NHGRI

NIA

NIAAA

NIAID

NICHD

NIDCD

NIDCR

NIDDK

NIDA

NIEHSOD

NIBIB

NIMHD

NCATS

CIT

CC

CSR

FICNIGMS

Page 5: Data Science @ NIH · 2017-11-20 · October 12, 2017 @AMIAInformatics @AMIAinformatics Official Group of AMIA @AMIAInformatics #WhyInforma tics • AMIA is the professional home

NLM

NEI

NCI

NHLBI NINDS NIMH

NIAMSNINR

NCCIH

NHGRI

NIA

NIAAA

NIAID

NICHD

NIDCD

NIDCR

NIDDK

NIDA

NIEHS

OD

NIBIB

NIMHD NCATS

CITCCCSR

FICNIGMS NLM

Page 6: Data Science @ NIH · 2017-11-20 · October 12, 2017 @AMIAInformatics @AMIAinformatics Official Group of AMIA @AMIAInformatics #WhyInforma tics • AMIA is the professional home

NLM’s Role in

Data-powered Health

• Platform for discovery

• Pathway for engagement

Page 7: Data Science @ NIH · 2017-11-20 · October 12, 2017 @AMIAInformatics @AMIAinformatics Official Group of AMIA @AMIAInformatics #WhyInforma tics • AMIA is the professional home

NLM Strategic Plan

Page 8: Data Science @ NIH · 2017-11-20 · October 12, 2017 @AMIAInformatics @AMIAinformatics Official Group of AMIA @AMIAInformatics #WhyInforma tics • AMIA is the professional home

NLM as a platform for biomedical discovery

& data-powered health

New ways to reach users with

new information and new tools

A workforce preparedto advance

data-driven discovery& data-powered health

Transforming Information into Discovery

Page 9: Data Science @ NIH · 2017-11-20 · October 12, 2017 @AMIAInformatics @AMIAinformatics Official Group of AMIA @AMIAInformatics #WhyInforma tics • AMIA is the professional home
Page 10: Data Science @ NIH · 2017-11-20 · October 12, 2017 @AMIAInformatics @AMIAinformatics Official Group of AMIA @AMIAInformatics #WhyInforma tics • AMIA is the professional home

Collect and

Connect

Preserve, Protect &Promote

Reach OutSupport

Standards

TransformResearch

Page 11: Data Science @ NIH · 2017-11-20 · October 12, 2017 @AMIAInformatics @AMIAinformatics Official Group of AMIA @AMIAInformatics #WhyInforma tics • AMIA is the professional home

Do for data what we’ve

done for the literature.

Page 12: Data Science @ NIH · 2017-11-20 · October 12, 2017 @AMIAInformatics @AMIAinformatics Official Group of AMIA @AMIAInformatics #WhyInforma tics • AMIA is the professional home

Health Care

Seamless linking of clinical

and research data

Page 13: Data Science @ NIH · 2017-11-20 · October 12, 2017 @AMIAInformatics @AMIAinformatics Official Group of AMIA @AMIAInformatics #WhyInforma tics • AMIA is the professional home

Drive EHRs, data flows, and literature to the

community

Page 14: Data Science @ NIH · 2017-11-20 · October 12, 2017 @AMIAInformatics @AMIAinformatics Official Group of AMIA @AMIAInformatics #WhyInforma tics • AMIA is the professional home

Fostering a

sphere of

discovery:

digital research

objects

Models

Pathways

Literature

Page 15: Data Science @ NIH · 2017-11-20 · October 12, 2017 @AMIAInformatics @AMIAinformatics Official Group of AMIA @AMIAInformatics #WhyInforma tics • AMIA is the professional home

Stewardship

local

NCBI dbGaP

cloud

NIH/CIT, External

governance

NIH SDC, SDPC

Page 16: Data Science @ NIH · 2017-11-20 · October 12, 2017 @AMIAInformatics @AMIAinformatics Official Group of AMIA @AMIAInformatics #WhyInforma tics • AMIA is the professional home

Serving the 21st

century user

Page 17: Data Science @ NIH · 2017-11-20 · October 12, 2017 @AMIAInformatics @AMIAinformatics Official Group of AMIA @AMIAInformatics #WhyInforma tics • AMIA is the professional home

The Care Between the Care

Be where the care happens.

Page 18: Data Science @ NIH · 2017-11-20 · October 12, 2017 @AMIAInformatics @AMIAinformatics Official Group of AMIA @AMIAInformatics #WhyInforma tics • AMIA is the professional home

Data-powered

health will

require new

approaches to

NLM-delivered

information

Page 19: Data Science @ NIH · 2017-11-20 · October 12, 2017 @AMIAInformatics @AMIAinformatics Official Group of AMIA @AMIAInformatics #WhyInforma tics • AMIA is the professional home

Workforce Excellence

Page 20: Data Science @ NIH · 2017-11-20 · October 12, 2017 @AMIAInformatics @AMIAinformatics Official Group of AMIA @AMIAInformatics #WhyInforma tics • AMIA is the professional home

Training:* Re-imagine university-based data science training* Increase intramural data science capacity* Foster data-savvy clinicians and librarians

Page 21: Data Science @ NIH · 2017-11-20 · October 12, 2017 @AMIAInformatics @AMIAinformatics Official Group of AMIA @AMIAInformatics #WhyInforma tics • AMIA is the professional home

Advanced Data Management in FY2018

PMC Data Discoverability dbGaP Enhancements Clinical Research Data

Data Commons Data Science Workforce Strategic Plan

NLM with NIH…for everyone

Page 22: Data Science @ NIH · 2017-11-20 · October 12, 2017 @AMIAInformatics @AMIAinformatics Official Group of AMIA @AMIAInformatics #WhyInforma tics • AMIA is the professional home

Questions & Discussion

Page 23: Data Science @ NIH · 2017-11-20 · October 12, 2017 @AMIAInformatics @AMIAinformatics Official Group of AMIA @AMIAInformatics #WhyInforma tics • AMIA is the professional home

Reaching me

[email protected]@NLMdirector

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Page 24: Data Science @ NIH · 2017-11-20 · October 12, 2017 @AMIAInformatics @AMIAinformatics Official Group of AMIA @AMIAInformatics #WhyInforma tics • AMIA is the professional home

October 12, 2017

@AMIAInformatics

@AMIAinformatics

Official Group of AMIA

@AMIAInformatics

#WhyInformatics

• AMIA is the professional home for more than 5,400 informatics professionals, representing frontline clinicians, researchers, public health experts and educators who bring meaning to data, manage information and generate new knowledge across the research and healthcare enterprise.

Page 25: Data Science @ NIH · 2017-11-20 · October 12, 2017 @AMIAInformatics @AMIAinformatics Official Group of AMIA @AMIAInformatics #WhyInforma tics • AMIA is the professional home

• Thank you!Email me at: [email protected]