dare (disability advocacy and research in europe): project ... · web viewduring the second year...
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5 Ph.D. Positions re-advertised
in the
EU Horizon 2020 Marie Sklodowska-Curie MSCA-ITN Project - 814249
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Table of Contents
DARE (Disability Advocacy and Research in Europe): project summary:.......................3
About the DARE consortium:.................................................................................................5
Beneficiary partners..............................................................................................................5
Organisation partners...........................................................................................................6
Recruitment timeframe:..........................................................................................................6
Fellowship Duration:...............................................................................................................6
Eligibility requirements*:........................................................................................................7
Language requirements:..........................................................................................................7
How to apply?...........................................................................................................................8
Project title and summary descriptions by cluster:..............................................................9
Research Cluster A – Voice in Intimate & Personal Life......................................................9
Research Cluster B – Power of Persons with Disabilities with respect to Entities that Touch their Lives.................................................................................................................10
Research Cluster C – Sustaining Change – the Collective Voice of Persons with Disabilities in the Policy Process........................................................................................12
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DARE (Disability Advocacy and Research in Europe): project summary:
The goal of the Disability Advocacy Research in Europe (DARE) programme is to train the new generation of researchers in the field of disability rights, by embedding them in the top universities in this field, with exposure to key civil society organisations working at grassroots level to secure the rights of persons with disabilities. DARE brings together Europe’s leading disability research and advocacy organisations from both the academic and the non-academic sector. The non-academic beneficiaries in DARE are:
(1) the European Disability Forum (EDF); representing 80 million European citizens with disabilities;
(2) the European Association of Service Providers for Persons with Disabilities (EASPD), representing over 15,000 support services for persons with disabilities in Europe.
The academic partners are Europe’s leading disability research centres in the broad domain of disability studies that embraces:
(1) social sciences: ISCSP and UoI, (2) law: NUIG and UM, and (3) applied social research: UNIVLEEDS and SPF.
They are united in their commitment to advance the rights of persons with disabilities as expressed in the Convention.
The DARE beneficiaries (and partners) join forces to train ESRs in disability human rights research methodologies, develop skills in applied and participatory research, and learn to communicate their research findings to different audiences – from policy-makers to disabled people’s organisations (DPOs). In this way, DARE will deliver ‘research in action’ – meaning that the research produced will not only be of a high academic quality, but will also achieve societal and policy impact. The unique skill-set that the DARE ESRs will acquire will make them highly employable in a number of domains including government and civil society (including DPOs) and will equip them with the knowledge to become future leaders in the field. By focusing on the link between research and processes of policy reform it will equip the researchers with transferable skills to put their research talents to work in cognate policy domains.
The societal need for disability rights research is clear. However, in conducting this research, three major scientific challenges must be addressed. The first and most important challenge is to define the content of disability rights, beginning with a critical evaluation of the application of generic human rights norms to the lived experience of persons with disabilities. This research should make visible the tensions between competing conceptions of human rights. For example, traditional conceptions of the right to liberty in human rights law have not prohibited civil commitment or forced institutionalisation of persons with disabilities. However, the Convention on the Rights of Persons with Disabilities brings with it a paradigm shift in recognising such practices as human rights violations contrary to the right to liberty and security. The second, and related scientific challenge is to develop a new research evidence-base, recognising the lived experience of persons with disabilities as a legitimate source of knowledge. Since DARE will take the lived experience of persons with disabilities 3
as its starting point for scientific inquiry, it will develop new knowledge on the content and application of human rights in the disability field – which can in turn lead to a more holistic and comprehensive understanding of human rights more generally. Third and finally, conducting interdisciplinary research in this field presents a significant scientific challenge. This requires researchers to go beyond their disciplinary comfort zones to confront new forms of knowledge and familiarise themselves with new research skills and methodologies in the process.
DARE aims to train a new kind of disability researcher to address these challenges, giving primacy to the lived experience of persons with disabilities. It will equip this new generation of researchers with the skills to achieve social and legal change. This requires a deep understanding not just of the relevant legal and policy instruments (including the Convention and related European instruments) but also an understanding of the process of change. DARE will train researchers on the barriers and opportunities that must be faced in the process of change and how to interact with, and persuade, a wide range of stakeholders (including government, civil society, service providers and the general public) of the need for change. This training will ensure that the DARE researchers are well-positioned at the end of the programme to become agents for change in their own countries and throughout the world.
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About the DARE consortium:
The DARE project seeks to recruit Fifteen Early Stage Researchers (ESRs) across its network on a full-time basis over three years starting in September 2019. They will explore and develop recommendations for disability law and policy reform in light of the United Nations Convention on the Rights of Persons with Disabilities. The following list details the project title for each fellowship, the primary supervisor and which country the ESR will be employed.
Beneficiary partners
ESR Country Beneficiary partner Primary Supervisor
1 United Kingdom University of Leeds (UNIVLEEDS)
Prof. Mark Priestley
2 Iceland Haskoli Islands (UoI)
Prof. Rannveig Traustadóttir
3 Ireland University of Ireland Galway (NUI Galway)
Dr. Eilionóir Flynn
4 Iceland Haskoli Islands (UoI)
Prof. Rannveig Traustadóttir
5 Switzerland Paraplegiker-Forschung AG (SPF)
Prof. Jerome Bickenbach
6 Portugal Instituto Superior de Ciencias Sociais e Politicas (ISCSP-ULisboa)
Dr. Paula Campos Pinto
7 Belgium European Association of Service Providers for persons with Disabilities (EASPD)
Luk Zelderloo [email protected]
8 The Netherlands Universiteit Maastricht (UM)
Prof. Lisa Waddington
9 United Kingdom University of Leeds (UNIVLEEDS)
Prof. Anna Lawson
10 Portugal Instituto Superior de Ciencias Sociais e Politicas (ISCSP-ULisboa)
Dr. Paula Campos Pinto
11 The Netherlands Universiteit Maastricht (UM)
Prof. Lisa Waddington
12 United Kingdom University of Leeds (UNIVLEEDS)
Prof. Mark Priestley
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13 Belgium European Disability Forum Aisbl (EDF)
Catherine Naughton
14 Ireland University of Ireland Galway (NUI Galway)
Dr. Eilionóir Flynn
15 The Netherlands Universiteit Maastricht (UM)
Prof. Fons Coomans
All of the researchers will also have the opportunity to gain invaluable and funded work experience with leading civil society and public service organisations. Here are the details of the organisation partners offering secondments (internship) within the project:
Organisation partners
Country Organisation partner Key PersonSwitzerland UN Special Rapporteur on the
Rights of Persons with Disabilities (UNSRPD)
Ms. Catalina Devandas-Aguilar
International Foundation for Electoral Systems (IFES)
Virginia Atkinson
The Netherlands Pi Consultancy NL LLP (Pi) Erik PrinsUnited Kingdom Lumos Foundation (Lumos) Georgette Mulheir,
Belgium AGE Platform Europe (AGE) Nena GeorgantziIreland CBM International, legally
registered as CBM Christoffel-Blindenmission Christian Blind
Mission e.V. (CBM)
Dr. Mary Keogh
European Association for Palliative Care (EAPC)
Julie Ling
Ireland Inclusive Research Network (IRN) Brian Donohoe
European Social Network (ESN) Alfonso Lara MonteroUnited Kingdom JUSTICE Andrea CoomberUnited Kingdom Vision Sense Susie Balderston
Recruitment timeframe: Deadline for submission of applications – 22:59 GMT 6th May 2019 Interviews will be held by the end – May 2019 Notification to successful candidates by the end – May 2019 Contract signature – June - August 2019 Employment start date – 1st September 2019
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Fellowship Duration:
Fellowship,Each project is funded for a 36 month period from 1st September 2019 to 31st August 2022, the successful candidate will also register for a structed PhD (which in some institutions is for a 48 month period), see individual requirements for relevant university.
Secondment,During the second year of the project you will be required to undergo up to a max of 2 secondments (placements) to a max of 10.8 months in total at one of the partner organisations listed on the table above.
For more information on the MSCA ITN see: http://ec.europa.eu/research/participants/data/ref/h2020/wp/2018-2020/main/h2020-wp1820-msca_en.pdf
Eligibility requirements*:
*Please ensure you meet the following eligibility criteria or your application will be rejected.
I qualify as a Marie Curie Early Stage Researcher as, at the time of recruitment by the host organisation, I will be in the first four years (full-time equivalent research experience) of my research career and have not been awarded a doctoral degree. Full-time equivalent research experience is measured from the date when the researcher obtained the degree entitling him or her to embark on a doctorate, even if a doctorate was never started or envisaged. Part-time research experience will be counted pro-rata.
I meet the additional eligibility requirements necessary to work in and undertake a PhD (where relevant) in the Hosting Network Partner (or affiliated institution).
I also meet the mobility requirements for Marie Curie Early Stage Researchers. At the time of selection, I will not have resided or carried out my main activity (e.g. work, study etc.) in the same country as the Hosting Network Partner for more than 12 months in the 3 years prior to 1 September 2019 (short stays such as holidays are not taken into account).
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Language requirements:
I am a native English speakeror
I am a non-native English speaker who has passed the academic IELTS (minimum score: 7.5) or TOEFL internet-based (minimum score: 113) tests.
I am a non-native English speaker who has completed a Masters degree through English*.
*Non-native English speaking applicants must attach evidence of this qualification to their application.
How to apply?
If you wish to apply for one or more of the PhD positions in the above stated professional areas, please send your full application directly to [email protected] see below for details of the application requirements.
motivation letter (indicating why you wish to conduct this research project and why you believe you would successfully be able to complete this project).
Curriculum Vitae. certified transcripts of results of Masters’ degree in relevant discipline (depending on
position applied for, law, disability studies, humanities or social sciences). evidence of IELTS or TOEFL scores for non-native English speakers. two completed DARE reference forms sent directly by the referees via email
(including applicant name and hosting network partner name in email title). Please note: applicants should list the names and contact details of these referees in your CV. Please ensure you gain the consent of your referees before adding their names to your application.
any further specific information required the Hosting Network Partner
2,500 word research proposal (in word format only) in the following format:
a. Background to the research proposal, objectives and main research questionMax. 500 words (excl. references). Use Word Count to specify.
b. Description of the proposed researchMax. 1000 words (excl. references). Use Word Count to specify.
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c. Methodology and proposed timeline for completion of researchMax. 500 words. Use Word Count to specify.
d. Original contribution to knowledge of the proposed research (including potential for broader societal impact)Max. 500 words. Use Word Count to specify.
e. Literature referencesMax. 20 references.
Project title and summary descriptions by cluster:
Research Cluster A – Voice in Intimate & Personal Life
ESR-3 National University of Ireland, Galway (NUI Galway), IrelandPrimary Supervisor: Prof. Eilionóir FlynnEmail address: [email protected] Title: Disability, Old Age and the Life Course: Voices of Experience.Objectives: To explore the continuities and discontinuities in policy and legal discourses around disability and old age and especially the absence of authentic voices in the relevant debates. To explore differences between the voices and their relative absence in policy debates. Building on theories of inter-sectionality, to come forward with recommendations for more coherent law and policy with respect to disability and older people. The social science dimension will explore multiple and intersecting identities. The law dimension will explore ways of getting around ground-specific approaches to be much more intersectional. Public policy will help identify how to move away from ground-centric approaches to create new space to treat inter-sectionality seriously.Expected Results: A PhD, co-supervised by NUIG with the UoI, on intersectional identities, age and disability, including recommendations for more coherent law and policy with respect to older people with disabilities. The PhD will be awarded by NUIG.Planned secondment(s): UoI, Prof. Rannveig Traustadóttir (4m), AGE, Anne-Sophie Parent (4m). The first secondment is geared towards exposing the ESR an academic setting that examines disability, old age and life course from a sociological perspective. The purpose of the second secondment is to gauge the continuity/discontinuity between the disability reform agenda and the elder rights reform agenda. ESR-5 Paraplegiker-Forschung AG (SPF), SwiterzandPrimary Supervisor: Prof. Jerome BickenbachEmail address: [email protected] Project Title: Voice, Disability and ‘End of Life’ Decision-Making.Objectives: To explore ways in which the wishes and preferences of persons with disabilities can be more fully respected at the crucial ‘end of life’ decision-making stage. To come forward with practical recommendations for policy and law reform. The social science dimension will revel just how fraught the process of dying is for many persons with disabilities and their lack of control or voice. The law dimension will reveal the imposed helplessness of persons with disabilities and how supported decision-making in legislation could assist. And public policy will reveal how the issues can be best framed and advanced in advocacy.Expected Results: A PhD, co-supervised by the SPF with NUIG, on alternative framings of ‘end of life’ decisions, incorporating recommendations for policy and law reform. The PhD will be awarded by the SPF - LucernePlanned secondment(s): NUIG, Dr. Eilionóir Flynn (4m), EAPC, Julie Ling (4m). The first secondment is geared towards exposing the ESR to an academic environment where end of life decision making is examined from a legal perspective. The purpose of the second secondment is to gain a deeper understanding of the ethics of end-of-life and how disability fits within that broader field.
Research Cluster B – Power of Persons with Disabilities with respect to Entities that Touch their Lives.
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None
Research Cluster C – Sustaining Change – the Collective Voice of Persons with Disabilities in the Policy Process.
ESR-11 Universiteit Maastricht (UM), The NetherlandsPrimary Supervisor: Prof. Lisa WaddingtonEmail address: [email protected] Title and Work Package(s): Collective Political Voice: Persons with Disabilities in the Political Process.Objectives To explore the barriers to political participation on the part of persons with disabilities in Europe. To come forward with practical recommendations on how such barriers can be surmounted. The social science dimension will identify barriers, which can be either legally or socially created, as well as good practice, and will ultimately aim to highlight steps which can be taken to remove such barriers and facilitate the political participation of persons with disabilities on an equal basis with others. The law dimension will clarify the right to vote under international law and identify good practice in law. Public policy will identify ways in which the right to vote and participate can be moved up the agenda of public policy reform.Expected Results: A PhD, co-supervised by UM with UNIVLEEDS, including recommendations for the removal of barriers to the full and equal political participation of persons with disabilities. PhD to be awarded by UM.Planned secondment(s): UNIVLEEDS, Prof. Mark Priestly & Prof. Anna Lawson (4m), IFES, Virginia Atkinson (4m). The first secondment is geared towards exposing the ESR to an academic environment where the political voice of persons with disabilities is examined form a sociological perspective. The purpose of the second secondment is to understand the issue of political participation from an organisation deeply involved in advancing the right to political participation throughout the world.ESR-13 European Disability Forum Aisbl (EDF), BelgiumPrimary Supervisor: An-Sofie LeenknechtEmail address: [email protected] Title and Work Package(s): Combining Voices: Coalition-building and Alliances with other Social Action Movements.Objectives: To explore how and whether disability civil society organisations interact constructively with other social action movements in driving forward a programme of change. To explore the optimum conditions whereby single-identity groups can collaborate effectively with other single-identity groups. To make practical recommendations about how this interaction could be stepped up with mutual profit. Insights from social science will focus on multi-identity coalitions which have succeeded on advancing change. Insights from disability studies will be used to reflect upon the impact on the process of coalition-building on the ‘voice’ (collective and individual) of persons with disabilities. The law dimension will look at the impact of this working alongside other social action movements. Public policy analysis will inform the evaluation of the impact and effectiveness of these coalitions.Expected Results: A PhD, co-supervised by NUIG with UM, including guidelines to facilitate the process of coalition-building by organisations of persons with disabilities to achieve enhanced advocacy and change. The PhD will be awarded by NUIG. Planned secondment(s): NUIG, Dr. Eilionóir Flynn (4m), TBC (4m). The first secondment is geared towards exposing the ESR to an environment where the voice of persons with disabilities is examined form a legal perspective. The purpose of the second secondment is to learn from the premiere pan-European NGO directly involved in the history of reform over the past two decades.ESR-15 Universiteit Maastricht (UM), The NetherlandsPrimary Supervisor: Prof. Fons CoomansEmail address: [email protected] Project Title and Work Package(s): Collective Voice in the Global Arena: Interactions with the United Nations.Objectives: To explore how European Disabled People’s Organisations (DPOs) have already interacted effectively with key UN bodies - the UN Committee on the Rights of Persons with Disabilities and the UN Special Rapporteur on the Rights of persons with Disabilities. Applicants may also propose to study interaction of European DPOs with other UN bodies. To assess the critical success factors that account for success in such interaction and to define what is success. To make practical recommendations to ensure successful engagement and interaction. To explore how or whether such interaction leads to practical changes in domestic jurisdictions. The project is inter-disciplinary. The law dimension will analyse the role of DPOs in the UN reporting cycle and in the development of jurisprudence and UN CRPD policy. The social science dimension will explore what advocacy lessons can be learned. Public policy analysis will help to understand the different factors which shape national and international human rights policy.Expected Results: A PhD, co-supervised by UM with the SPF, including guidelines for good practice on the means by which influence in implementation of the UN CRPD can be improved. The PhD will be awarded by UM.
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Planned secondment(s): SPF, Prof. Jerome Bickenbach (4m), UNSRPD, Catalina Devandas Augilar (4m). The first secondment is geared towards providing the ESR with exposure to an academic setting that examines public policy. The purpose of the second secondment is to gain insights from unrivalled placement in key UN bodies involved in disability rights and reform.
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