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CREATING SELF-PORTRAIT VIDEOS WITH A GROUP OF ADULTS LIVING WITH INTELLECTUAL DISABILITIES FOR A BETTER CONTROL OF THEIR LIVES CDSA 2009 Ann-Louise Davidson Ph.D [email protected]

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CREATING SELF-PORTRAIT VIDEOSWITH A GROUP OF ADULTS LIVING WITHINTELLECTUAL DISABILITIESFOR A BETTER CONTROL OF THEIR LIVES

CDSA 2009Ann-Louise Davidson [email protected]

CONTEXT

DeinstutitionalizationLabellingSituation in the City of OttawaPartnership: LiveWorkPlayPilot projects

RESEARCH QUESTIONS

Can we learn to talk about our intellectual disability?Can we get paid jobs and keep them?

Are we able to create self-advocacy videos on our own?

In the context of a community and residentialintegration process:

What are the problems faced by adults with ID?

Can technology help alleviate these problems?

To what extent can the group learn by being co-researchers?

LITERATURE

The Use of Videos With People With IDInstructional Videos

Video Modeling : simulated classroom instruction before engaging in an activityVideo Prompting: a person watches the steps of a task and can stop the videoas needed to accomplish the taskVideo Priming: a method of previewing the information someone is likely haveto difficulty with before engaging in a challenging activity

Ethnographic VideosNarrationDocumentary

Self-Advocacy Videos Speak-up for yourselfProvokeee

FRAMEWORK: VISUAL ANTHROPOLOGY

Basic assumption: Every form of communication,interaction and expression is legitimate and useful forresearch

Must we position the participant in the role of theactor or the spectator? Should the data collection means be placed in thehands of the participant?Up to what point must we censor their point ofview?

METHODOLOGY

Participants: 10 adults with the will to succeedOne meeting per week for eight months SAS2 (www.sas2.net) research toolsCollaborative action research

Auto-ethnography

SAS2 RESEARCH TOOLS

ListingSortingPrioritizeRatingRankingIdentify variablesConstruct analysisIdentify levels of difficulty

PRODUCTION OF THEVIDEOGRAPHY

Theme identificationPrioritizingRole identification Development of technical skillsAdaptation periodDevelopment of autonomy

CONCLUSIONS

Emerging technologies are becomingmore user friendly every yearAdults with ID want to make theirown choices, voice their concern, anddevelop an identity for an authenticsocial integration. It is essential to give them the meansto develop their identity.

NEXT STEPS: THE VID-ABILITY PROJECT

Partners:LiveWorkPlay (www.liveworkplay.ca) and Pavillon du Parc(www.pavillonduparc.qc.ca)

Objectives and ambitions:Identify participant’s needs according to their living conditions and their personnalchallenges with the use of SAS2 tools

Explain how and why these videos are useful to participants

Identify the conditions in which these videos have the biggest impact