costello - emcc cancer on the internet
DESCRIPTION
Denis Costello - EURORDIS - Presenting on how patient groups use social media, 25 Sept 2011, StockholmTRANSCRIPT
SERVING PATIENT COMMUNITIES THROUGH SOCIAL MEDIA
ECCO/ESMO STOCKHOLM 2011
Denis Costello
Web Communications Officer, EURORDIS
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EURORDIS at your servicewww.eurordis.org
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Serving the Patient Community
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Blogs – e-advocacy: developing the patients’ voicehttp://www.rarediseaseblogs.net
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Engagement via Twitterhttp://www.twitter.com/eurordis
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Rare Disease Day – An awareness platformhttp://www.rarediseaseday.org
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Live streaming – grow an audiencehttp://www.livestream.com/eurordis
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Example – Networking patientswww.marshallsmith.org
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Example –collaborative authoringwww.marshallsmith.org
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www.rareconnect.org
Patient reported outcomes:
- Treatments- Side effects- Quality of Life
