contributions of the informal caregiver 5 december 2000 chca 2000 conference faye porter and bonnie...

5 December 2000

CHCA 2000 CONFERENCEFaye Porter and Bonnie Schroeder

VON Canada

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CONTRIBUTIONS OF THECONTRIBUTIONS OF THEINFORMAL CAREGIVERINFORMAL CAREGIVER

Responding toResponding toCaregiver NeedsCaregiver Needs

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• LEARNING OBJECTIVES

Gain an understanding of the national initiatives

Identify human resources needs today and in the future

Learn about community-based training programs and best practices

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• DEFINITION

Informal caregivers are family members, friends and neighbours who provide the bulk of ongoing care and assistance, without pay, to Canadians in need of support due to chronic physical or mental health conditions, frailty, life threatening illness, or from acute care treatments.

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• CREATING AWARENESS

Informal caregivers are not sufficiently recognized

The costs to the informal caregivers and to society have been overlooked

The needs of informal caregivers are not being addressed

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• CREATING AWARNESS (cont’d)

2.8 million Canadians (14% of women and 10% of men) provide care to people with physical limitations or long term health problems of 6 months or longer

over 5 billion dollars per year, and is equivalent to the work of 276,509 full time employees

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• OUR CHANGING ENVIRONMENT

Growing Numbers And Changing Needs Of Persons Requiring Care

• Growing senior population

• Dementia

• Increased life expectancy

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• OUR CHANGING ENVIRONMENT (cont’d)Government Policies and Changing Health

Care Practices

• Shift to the Community• Development of Home Care• Ambulatory Care/ Medical Technologies

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• OUR CHANGING ENVIRONMENT (cont’d)

Demographic and Societal Changes

• Increased women in the workforce

• Decrease in birth rates and increase divorce rate

• Increase mobility & retirement

• Changing situations of caregivers

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• IMPACT ON CAREGIVERS

Personal health and well being

Financial implications

Relocation/paid employment impact

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• TAKING ACTION

Collectively, advocating for changes in public policy

Organizationally, developing strategies within community health agencies to address the needs of the informal caregiver

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• VON CANADA’S STRATEGIC DIRECTION

Focus on Social Responsibility as part of our Mission

National Roundtables on Caregiving Canadian Caregiver Coalition McConnell Foundation Initiative: Learning to

Listen Local Community Activities, Program Development

Grants

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• Canadian Caregiver Coalition

The mission of the Canadian Caregiver Coalition is to come together with a unified voice, to influence policy, and to promote awareness and action to address the needs of informal caregivers of all ages across Canada.

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• CANADIAN CAREGIVER COALITION

OBJECTIVES

Consultation and advocacy

Promotion of relevant research

Facilitation of networking

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• CANADIAN CAREGIVER COALITION

Key Principles and Messages

• Recognition

• Partnership

• Caregivers Needs

• New policy paradigm for care

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• LEARNING TO LISTEN - A New Way of Caring for Caregivers Purpose: to develop and adopt approaches to

be more responsive to the needs of caregivers

Goal: to critical examine VON Canada’s practice with caregivers to determine whether a change is needed.

Intent: to actively engage caregivers as co-clients and partners to support their family members

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• LEARNING TO LISTEN - Process Survey of Caregiver Needs and Service

Providers Perceptions

Focus Groups of Caregivers and Providers

Development of resources including a workbook and workshop

Identification of “best practice” elements to adapt practice and standardize approach

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• STRATEGIC QUESTIONS

What sort of strategic questions are likely to get at the heart of the issues?

• For caregivers?

• For service providers?

• For the community?

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• VON CANADA’S COMMITTMENT

Strategic Direction for the Organization Social Model, Partnership with Caregivers Framework for Action: Advocacy, Services/

Supports/ Education Action Plan Implementation Evaluation

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• CONCLUSION

Valuing the contribution of informal caregivers

Learning to listen to their voices

Taking action to make a difference, individually, collectively as well as organizationally

contributions of the informal caregiver 5 december 2000 chca 2000 conference faye porter and bonnie...

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