connecting science to people
DESCRIPTION
Connecting Science to People. Janet S. Austin, Ph.D. Director, Office of Communications and Public Liaison National Institute of Arthritis and Musculoskeletal and Skin Diseases National Institutes of Health. Connecting Science to People. Communication Objectives. - PowerPoint PPT PresentationTRANSCRIPT
![Page 1: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/1.jpg)
Janet S. Austin, Ph.D.Director, Office of Communications and Public LiaisonNational Institute of Arthritis and Musculoskeletal and Skin DiseasesNational Institutes of Health
Connecting Science to PeopleConnecting Science to People
![Page 2: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/2.jpg)
Connecting Science to Connecting Science to PeoplePeople
• Make medical research personally relevant
• Serve as trusted source of health information
• Explain NIH’s role in medical research
Communication Objectives
![Page 3: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/3.jpg)
NIH Resource: NIH Resource: NIH Web Site, www.nih.govNIH Web Site, www.nih.gov
![Page 4: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/4.jpg)
http://medlineplus.gov
http://clinicaltrials.gov
NIH Resource: NIH Resource: Other NIH Web SitesOther NIH Web Sites
![Page 5: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/5.jpg)
NIAMS Mission
• The mission of the National Institute of Arthritis and Musculoskeletal and Skin Diseases, a component of the U. S. Department of Health and Human Services’ National Institutes of Health, is to support:
• research into the causes, treatment, and prevention of arthritis and musculoskeletal and skin diseases,
• the training of basic and clinical scientists to carry out this research, and
• the dissemination of information on research progress in these diseases.
Connecting Science to PeopleConnecting Science to People
![Page 6: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/6.jpg)
“Our research belongs ultimately to the
American people, for whom we serve as
stewards in improving the public's
health.”
Stephen I. Katz, M.D., Ph.D. NIAMS Director
Connecting Science to PeopleConnecting Science to People
![Page 7: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/7.jpg)
What OCPL DoesWhat OCPL Does • Publications
• Feature writing
• Media liaison
• Inquiry response
• Outreach
• Public liaison
• Web management
• Communications support
• Clearinghouse contract management
• Multicultural health communications
• Web content management
![Page 8: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/8.jpg)
OCPL StaffOCPL Staff• Writer-editors
• Public affairs specialists
• Health educators
• Public liaison officer
• Web manager
• Information assistants
• Support staff
• Project officers
![Page 9: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/9.jpg)
Points of ServicePoints of Service
• NIAMS Office of Communication and Public Liaison (OCPL)
• NIAMS Information Clearinghouse
• NIH Osteoporosis and Related Bone Diseases~National Resource Center
![Page 10: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/10.jpg)
Publications: Production and Publications: Production and DisseminationDissemination
• Handouts on Health
• Questions and Answers series
• Fact Sheets
• Special publications (e.g., Progress and Promise)
• Easy-to-read, bilingual, and Spanish publications
• Information packets
• Newsletters: Shorttakes, IRPartners, E-Blast
![Page 11: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/11.jpg)
Public LiaisonPublic Liaison• Outreach to constituency
groups
• Contact for constituent referral for Members of Congress
• Liaison to NIAMS Coalition
• Public contact for policy matters
![Page 12: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/12.jpg)
Web Content ManagementWeb Content Management• Web design
• Web policy
• Information updates
• Technology issues
• Inquiry response
• Content
![Page 13: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/13.jpg)
Information Development and Information Development and DisseminationDissemination
Guiding Principles:• Provide culturally appropriate, audience-specific
educational materials written in plain language• Routinely review and revise existing materials• Facilitate rigorous review of NIAMS materials by the
scientific and lay communities• Work collaboratively with other NIH/DHHS
organizations, voluntary and professional groups, and universities and medical centers in developing materials
• Effectively use intermediaries for distribution, including faith- and community-based organizations, NIAMS partners, the Federal Consumer Information Center, and health professionals
![Page 14: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/14.jpg)
Arthritis Overview
![Page 15: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/15.jpg)
What is Arthritis and Rheumatic Disease?
Rheumatic diseases involve the muscle, joints, and bones. There are over 100 rheumatic diseases.
Arthritis literally means joint inflammation.
Many rheumatic diseases cause inflammation of joints and also muscle, bones, and other supporting structures.
![Page 16: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/16.jpg)
Diagnosing Arthritis
Early diagnosis and treatment is important.
Diagnosis can be difficult because some symptoms and signs are common to many different diseases.
It may take more than one office visit for the doctor to make an accurate diagnosis.
![Page 17: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/17.jpg)
Treating Arthritis
Treatment Goals:
Relieve pain Control inflammation Slow down or stop joint damage Improve well-being and ability to
function Prevent disability
![Page 18: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/18.jpg)
Ways to Treat Arthritis
Lifestyle changes
Medications
Surgery
Complementary and alternative medicine and nutritional supplements
![Page 19: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/19.jpg)
Lifestyle changes
Healthful diet and weight control
Exercise
Rest and relief
Non-drug pain relief
![Page 20: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/20.jpg)
Healthful Diet and Weight Control
An overall nutritious diet is important
Weight loss can reduce stress on weight-bearing joints
Limit or avoid consuming alcohol
A dietitian can help
![Page 21: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/21.jpg)
Exercise
Reduces joint pain
Helps maintain healthy weight
Increases flexibility, muscle strength, cardiac fitness, and endurance
Ask a doctor or physical therapist what exercises are best for you
![Page 22: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/22.jpg)
Rest and Relief
Learn your body’s signals on when to stop or slow down
Rest helps reduce joint inflammation and fights fatigue
Short breaks better than prolonged time in bed
Splints or braces can take pressure off joints
Assistive devices helps reduce joint stress
![Page 23: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/23.jpg)
Non-Drug Pain Relief
Relaxation, distraction, visualization exercises
Heat and cold treatments
Massage
TENS
![Page 24: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/24.jpg)
Medications
Corticosteroids
Disease-Modifying
Antirheumatic Drugs
(DMARDs)
Analgesics (pain
relievers)
Nonsteroidal Anti-
Inflammatory Drugs
(NSAIDs)
Biological response modifiers
Hyaluronic acid products
![Page 25: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/25.jpg)
Questions to Ask Your Doctor
or Pharmacist How often should I take this medicine?
Should I take this medicine with food or between meals?
What side effects might occur?
Should I take this medicine with the other prescription medicines I take?
Is this medication safe considering other medical conditions I have?
![Page 26: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/26.jpg)
Surgery
Surgery is used to: Reduce pain Improve the affected joint’s function Improve ability to perform daily
activities
Things to consider Level of disability Intensity of pain Age Occupation Level of interference with the
patient’s lifestyle
![Page 27: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/27.jpg)
Complementary and Alternative Therapies
Ongoing research on therapies for people with osteoarthritis: Acupuncture Nutritional supplements
Glucosamine and chondroitin sulfate
Vitamins D Green tea
![Page 28: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/28.jpg)
NIAMS Arthritis Research
NARAC
NIAMS IRP
OAI CARRA
![Page 29: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/29.jpg)
Osteoarthritis Initiative (OAI)
• A Public-Private Partnership• Funded by 7 NIH Components, the
FDA and several pharmaceutical companies
• Includes 4,800 participants at risk for developing knee OA
• GOALS:• To create research resources to
aid in the identification and evaluation of biomarkers for OA
• To further drug development and improve public health
![Page 30: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/30.jpg)
North American Rheumatoid Arthritis Consortium
(NARAC)• A multicenter group that seeks
to identify RA susceptibility genes
• Recent discoveries include the identification of susceptibility genes common to people with RA and lupus, and identifying a new RA susceptibility gene region
![Page 31: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/31.jpg)
Childhood Arthritis & Rheumatology Research
Alliance (CARRA)
NIAMS supports many CARRA studies, including:
• Trial of Early Aggressive Therapy in Juvenile Idiopathic Arthritis
![Page 32: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/32.jpg)
NIAMS Intramural Research Program
(IRP)• NIAMS Community Health Center
(Cardozo area of Washington, D.C.)
• NIAMS Pediatric Rheumatology Clinic
• NIAMS Cartilage Biology and Orthopaedics Branch
• NIAMS Arthritis and Rheumatism Branch
![Page 33: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/33.jpg)
For more information
www.niams.nih.gov/health_info
![Page 34: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/34.jpg)
2 AMS Circle
Bethesda, MD 20892 - 3676
Phone: 301-495-4484
Toll Free: 877-226-4267
Email: [email protected]
http://www.niams.nih.gov/health_info
NIAMSInformation
Clearinghouse
![Page 35: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/35.jpg)
Osteoporosis Overview
![Page 36: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/36.jpg)
Why Are Healthy Bones Important?
• Strong bones support us and allow us to move
• Bones are a storehouse for vital minerals
• Strong bones protect our heart, lungs, brain and other organs
![Page 37: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/37.jpg)
Osteoporosis
• Osteoporosis is defined as a skeletal disorder characterized by compromised bone strength predisposing to an increased risk of fracture.
Osteoporosis Prevention, Diagnosis, and Therapy. NIH Consens Statement 2000 March 27-29;
17(1): 1-36.
![Page 38: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/38.jpg)
![Page 39: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/39.jpg)
Prevalence
• In the United States 8 million women and 2 million men have osteoporosis
• An additional 34 million Americans currently have low bone mass
• One out of two women and one out of four men aged 50 years and older will suffer an osteoporosis-related fracture in their lifetime
![Page 40: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/40.jpg)
![Page 41: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/41.jpg)
Osteoporosis risk factors that you cannot change
• Gender – risk is greater for women
• Age - the older you are, the greater your risk
• Body size - Small, thin-boned women are at greater risk.
• Ethnicity - Caucasian and Asian women are at highest risk. African American and Hispanic women have a lower but significant risk.
• Family history - Fracture risk may be due, in
part, to heredity.
![Page 42: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/42.jpg)
Osteoporosis risk factorsthat you can change
• Sex hormones - Abnormal absence of menstrual periods (amenorrhea), low estrogen level (menopause), and low testosterone level in men.
• Anorexia nervosa - increases risk
• Calcium and vitamin D intake - A lifetime diet low in calcium and vitamin D.
• Medication use - Long-term use of glucocorticoids and some anticonvulsants and others.
![Page 43: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/43.jpg)
Osteoporosis risk factorsthat you can change
• Physical Activity - An inactive lifestyle or extended bed rest tends to weaken bones.
• Cigarette smoking - Cigarettes are bad for bones as well as the heart and lungs.
• Alcohol intake - Excessive consumption increases the risk of bone loss and fractures.
![Page 44: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/44.jpg)
DXA: The Gold Standard
![Page 45: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/45.jpg)
Medications
•Bisphosphonates - Bisphosphonates slow the
bone breakdown process. Healthy bones are in a state of continuous breakdown and rebuilding. As you get older, and especially after menopause when your estrogen levels decrease, the bone breakdown process accelerates. When bone rebuilding fails to keep pace, bones deteriorate and become weaker. Bisphosphonates basically put a brake on that.
•Raloxifene - Raloxifene is in a class of medications
called selective estrogen receptor modulators (SERMs). Raloxifene prevents and treats osteoporosis by mimicking the effects of estrogen (a female hormone produced by the body) to increase the density (thickness) of bone.
•Calcitonin - Calcitonin is a medicine that slows the rate of
bone loss and relieves bone pain.
•Teriparatide - Teriparatide contains a synthetic form
of natural human hormone called parathyroid hormone (PTH). It works by causing the body to build new bone and by increasing bone strength and density (thickness).
•Estrogen/Hormone Therapy
![Page 46: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/46.jpg)
Universal Steps for Strong Bones
• A diet rich in calcium and vitamin D
•Regular weight-bearing activity
•Healthy lifestyle
![Page 47: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/47.jpg)
Calcium
• Food sources are recommended
Dairy productsFortified foodsGreen vegetables
• Supplements are often necessary
![Page 48: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/48.jpg)
How Much Calcium?
Age Amount
0-6 months 210 mg/day
7-12 months 270 mg/day
1-3 years 500 mg/day
4-8 years 800 mg/day
9-18 years 1300 mg/day
19-50 years 1000 mg/day
Over 50 years 1200 mg/day
![Page 49: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/49.jpg)
Vitamin D
•Necessary for the absorption of calcium
•Synthesized in skin on exposure to sunlight or ingested in foods such as egg yolks, fish, liver, or supplements
•Fortified milk, cereals and orange calcium
![Page 50: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/50.jpg)
Vitamin D: The Sunshine Vitamin
•According to National
Osteoporosis Foundation,
usually 10-15 minutes
exposure of hands, arms and
face two to three times a
week (depending on one's
skin sensitivity) is enough to
satisfy the body's vitamin D
requirement.
![Page 51: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/51.jpg)
Physical Activity
• Weight-bearing (walking, stair climbing, dancing)
• Tai chi – enhances muscle function and balance
• Avoid exercises that involve:
Forward flexion of the spineBending from the waistTwisting or jerking the spine
Keep one foot on the ground
![Page 52: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/52.jpg)
NIAMS-funded Osteoporosis
Research
![Page 53: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/53.jpg)
Good Vibrations
![Page 54: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/54.jpg)
Can vibrations build bone and reduce fat?
![Page 55: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/55.jpg)
NIH-NASA Partnership
![Page 56: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/56.jpg)
Mr. OS
![Page 57: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/57.jpg)
![Page 58: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/58.jpg)
NIH Senior Health.gov
![Page 59: Connecting Science to People](https://reader036.vdocuments.us/reader036/viewer/2022062409/568146e4550346895db41e8c/html5/thumbnails/59.jpg)
2 AMS Circle
Bethesda, MD 20892-3676
Phone: 202–223–0344
Toll Free: 800–624–BONE
TTY: 202-466-4315
Fax: 202-293-2356
Email: [email protected]
Website:
http://www.niams.nih.gov//bone/
NIH ORBD~NRC